Topic: Babesia Duncani--anyone have this from New England?
ArtistDi
Frequent Contributor (1K+ posts)
Member # 2297
posted
I always thought this was prevalent on the West Coast. But now, this has come up on a screening through Igenex. Matches symptoms--chills, night sweats and air hunger. Treated Babesia (before there was testing for Duncani & was neg. for Microti) 14 years ago and never had any trouble until now.
Posts: 1567 | From Hatfield, MA, USA | Registered: Mar 2002
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Duncani started on the west coast but it is all over the U.S. now.
Here in Maryland, I have a friend who tested positive for both microti and duncani.
Posts: 9931 | From Maryland | Registered: Dec 2007
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I'm from MA and tested positive in 2010
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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ArtistDi
Frequent Contributor (1K+ posts)
Member # 2297
posted
bcb1200, what treatment did you do for it? Anti-malarial drugs or herbal?
Posts: 1567 | From Hatfield, MA, USA | Registered: Mar 2002
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Ive done high dose malarone (6 pills / day) with Zith. I've done high doze Mepron with Zith.
I've done high dose clindamycin, herbs,etc.
You name it, I've done it.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
I had a positive test three years ago, and I got infected in Virginia.
Posts: 1737 | From Virginia | Registered: Aug 2011
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Summer3
Frequent Contributor (1K+ posts)
Member # 35286
posted
I'm in VT and had high titers from Quest of all places.....even after doing years of anti-malarials including Mepron.
posted
Got it too, possibly in 2002. In New England that whole time, no travel out of the region,
It's def spread. It's antibiotic resistant, been treating it for 9 months, still present. Zith, mepron and herbals. Afraid it's with me for life.
PCP told me its a controversial diagnosis. See, those things 'resolve on their own'
Posts: 35 | From Boston | Registered: Jul 2014
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I'm not sure I would fully trust the test honestly. SO many people test positive, including me. This is one I never have been able to fully accept, though it could be there for sure. It's almost ridiculous how many test positive in my opinion.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
The test is b.s. - I had babesia for many years and it wasn't until we started treating (over 6 months with Zith/Mepron) that we actually got a positive.
A good clinician will treat based on clinical presentation. The proof is when there is improvement, even in the absence of positive tests.
Unfortunately, mepron, malarone and tindamax (NOT pulsed - ugh) didn't work at all for me. It was only when I did an herbal protocol that my babesia symptoms were controlled. This ranged from pulsed liposomal artemisinin, Beyond Balance products (Bab-1 or Bab-2), etc.
Only then did my symptoms of extreme fatigue, heat intolerance, orthostatic hypotension, palpitations and shortness of breath improve.
BTW - I am on the east coast and, although I did travel to the west, I was bitten in the east.
Posts: 348 | From NJ | Registered: Sep 2011
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