TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Your previous lyme doc was helping you in the sense that he didn't want you to spend any more money paying for visits to him if you did not move.
He also didn't want to spend any time trying to help you as long as you lived in that moldy place because it is a losing proposition. It will do you no good.
The message is that you are wasting your time with a lyme doctor until you get out of the moldy environment.
I am allergic to mold. By living in a rented house that had mold in it, I ended up getting black mold growing in my ear. For the entire 3 years we lived in that house, I was continually sick and going to the ENT.
The result of those 3 years was that I got lyme disease. This was taught at a lyme conference a few years ago. Suffering with mold sets a person up for lyme disease and other chronic illness because it weakens your immune system. You must expect to remain sick as long as you are living in a moldy environment with your gene makeup.
So, you must get out of that house. There has to be a place in the vicinity that tests better than what you are in right now.
So, in essence, the doc is saying that you must make it a priority to get out of the mold. The mold caused you to get lyme and you cannot get well as long as you are in a moldy environment.
Since I completely agree with him, I see his strong stance as a way of educating you and impressing on you that your first priority must be to move.
Since 25% of the population has the mold toxicity (poisoning) problem, there have got to be places in your area that such people can live and not be sick.
You have to find these places. Chose only well maintained properties. Inspect the plumbing (look under sinks for evidence of water leakage, look at the floor around the toilet for evidence of leakage, look at the tiles in the bathroom for evidence of mold in the grout, etc.), inspect the basement, know what a mold smell smells like, etc.
Maybe you can find out where he lives if it is nearby. Try newer homes as opposed to older ones, newer apartment buildings as opposed to older ones, ones away from water (like streams that can flood, etc.) instead of ones right on some water, stay away from basement apartments and anything even partly under ground (like the bedroom being a little under ground even though the rest of the place isn't, etc.) Very top floors may be the best for you.
Here are some threads that will teach you about the mold/lyme connection and how serious it is for you, with the mold gene AND lyme, to stay in such an environment.
posted
thanks for your feedbacks. there is sort of a shuttle i can take , walk part way and transfer..i may do that for the IVIGG. I am a bit confused about how my body will react with the mold.
although i dont physically see mold. the LLMD is going off an ART session i did (in april). and the hertsmi test last year.
last year he had me get a good air oasis filter.. and i am still using that. i like your thinking about the comprose. he doesnt seem to compromise.
as far as moving, we'll i live in the bay area. i have a "rent control" one bedroom and i pay 1300.. the upstairs same as mine is now going for 2300. i can t really afford to move. unless i move far far away and then my whole support systme (what little i have left) and drs / iv igg will be far away as well.
I am looking but this is going to take a while. i keep the windows open as much as i can and run the air oasis 24x7, it is for a 3000sq ft place and my apartment is only 700 sq ft. i am also looking into an air iq filter.
i know where i lived before for 10 years i had black mold under my bed and under the carpet, it was a "converted " garage. i did get really sick there.
i dont get infections like i used too thank goodness. i used to get 102 temps with lung infections..but those are very far inbetween, mabye becasue i am not able to work and not working has givin my body some time to rest more
i get it about the mold. those are great tips TF.. some of the bigger challlanges are when pipes inside walls leak and they repair the wall but maybe they dont dry out the wood frame... i recently had that happen here. they did let the wood air out for 2.5 days though before they put the drywall up.
i have my eyes out for a place, but i dont think it will be immediate and i am hoping the IVIGG might help me with a sense of wellbeing and a bit more energy in the meantime. i am going to meet with my dr again on thursday.. my primary that wants me to do the ivigg and explain more about the situation and see what her thoughts are.
also i am considering the LDI which might help my body not be so reactive to the mold.
thanks for the support and ideas Bartenter Bonnie and TF
Posts: 34 | From california | Registered: Jan 2015
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Yes, yes, yes.
IMO, it's what made me turn the corner towards wellness.
If you can find a way to get approved for treatments, go for it !
Posts: 3221 | From Florida | Registered: Nov 2016
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