Topic: Not a new topic but Lyme, MCAS and the vaccine?
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
The topic is "MCAS and the Vaccine", and I personally feel any discussion involving mRNA therapy safety is relevant.
Again, since we don't know the long-term effects of mRNA therapy (especially multiple shots), we can't definitively say that Covid causes more damage, just that it may cause damage more overtly and/or rapidly in most cases.
Posts: 2072 | From Earth | Registered: Jul 2013
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posted
I responded to the title of the thread. I have MCAS so I feel my response is appropriate.
We don't know that people aren't coming here because of a covid discussion. The topic is affecting everyone in the world.
It's not conspiracy. We have data from the US VAERS site, UK's Yellow Card, Europe's EudraVigilance and more showing huge numbers of injuries and deaths from the shots.
We have doctor sites such as FLCCC - Frontline Covid Critical Care Alliance, World Doctors Alliance and more reporting on injuries and deaths. We have top doctors in the world, like Dr McCullough, Dr Levy, Dr Ealy, Dr Buttar, Dr Northrup, Dr Merritt, Dr Thomas and many more reporting on injuries and deaths.
We just had an online summit by Jonathan Otto, "Brave Revealed," with interviews with health experts and patients. 12 sessions, each took me several hours to watch. That summit has a tremendous amount of information about what is happening to people who took the shots as well as the shedding going on from them and affecting nonvaxxed people.
We have sites such as Children's Health Defense and The Highwire reporting on injuries and deaths.
We have insurance companies and actuarial sites reporting on excess deaths, supposedly 40% more excess deaths in the 18-64 years range as a result of these shots.
We have pathologists reporting and showing to the public huge bloodclots coming out of the blood vessels of deceased people! They can't even embalm them!
We have D-dimer and triponin tests showing microbloodclots in just about everyone who's done the shots.
We have vaxxed people dropping dead everywhere, including dying in their sleep.
There is an explosion of cancer cases now. The shots are thought to lower the immune system!!
We have pregnant women losing their babies and a drop in childbirths worldwide after the shots. The shots are affecting fertility. What will that mean for all the young people getting the shots?
What caught my attention early on was reading about an OB-GYN in Florida who died in January 2021 two weeks after he took the shot from having no platelets left. And I thought, no platelets left?! They stop bloodclotting. So even back then, I was wondering about what was causing all the bleeding. And now we know - inflammation.
This is information, not fantasy. I suggest you start to take a look at what is being reported. I am not going to back down from reporting what is going on. If it's going on, we report it, just as if it's about Lyme and co's - we would report that info too. No difference. Health is health, no matter what the topic. If it's helping people, we say that. If it's harming people, we say that. And this situation is clearly harming people.
Recently the CEO of Pfizer said they didn't even test the vaccines to see if they prevented virus transmission. And they have no liability. What product gets no liability especially if it's a risky one?
[ 01-22-2023, 02:00 AM: Message edited by: Robin123 ]
Posts: 13171 | From San Francisco | Registered: May 2006
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Well stated, Robin123...you've done your homework!
Posts: 2072 | From Earth | Registered: Jul 2013
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posted
[“Well, I've scoured the internet and read nothing but conflicting info.
I've had Lyme for years, was diagnosed with MCAS in the fall.
I am curious if there are others out there like myself that have gotten the vaccine or were advised against it.
My LLMD has advised me to NOT get the vaccine.
Not looking for a debate, just an honest conversation or story of experience.
All answers and opinions are welcome!
Cheers to good health for all.”]
The remarks in quotes were written by the original poster of the thread. We have done this poster a disservice as most of us have not given our experiences with the vaccine and MCAS.
The poster wanted experiences. We failed.
Jessig627 said he/she wasn’t looking for a debate. We failed.
And the person who started this thread, Jessig627, hasn’t been back posting on Lymenet since the day she posted this thread.
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 10174 | From Illinois | Registered: Aug 2004
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
"Failure is success in progress."
~Albert Einstein
Posts: 2072 | From Earth | Registered: Jul 2013
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Jessig asked for our experiences with the covid vaccine and MCAS.
We (and I include myself) just debated the safety of the vaccine, each rooted in our own views.
We did Jessig a disservice. Can't you all see that?
We may have lost a member of Lymenet. We already have low numbers of people coming to Lymenet and we may have driven one away.
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 10174 | From Illinois | Registered: Aug 2004
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Your point has not been missed, Hiker53.
With all due respect, maybe you have missed the point of this forum. It is not strictly for Q & A, but for discussion and the exchange of information.
You may not agree with the discussion or see how it relates to the topic, but others may welcome this information and find it helpful.
Is there a reason you don't want others to have access to information?
Calling the thread "off topic", a "disservice", "failed", and making assumptions that the poster left because she was "driven away" frankly sounds like an effort to shut down a discussion that makes you uncomfortable.
posted
Not truth, Phoiph. Have said multiple times that if you do not want to get the vaccine that is your choice and I certainly respect that.
And I am certainly aware that some people cannot get the vaccine for various health reasons.
I just feel like we strayed from the poster’s intent.
The poster was just seeking experiences from those who have MCAS and had gotten the vaccine. We didn’t help with that. We told the poster all the reasons to either get the vaccine or not get the vaccine. Very few of us told her experiences with MCAS and the vaccine.
So, I feel like we did not honor the posters wishes which were not to debate this, and this clearly turned into a debate. If you can’t recognize a debate…
I feel like I did not honor the posters wishes, except to say that AK has MCAS and have gotten the vaccine with no issues. Then I should’ve just shut my mouth because I don’t have MCAS.
And so I guess I feel like those of us who have MCAS, but did not get the vaccine, shouldn’t have commented.
You don’t have to agree with me on this. I know Lymenet is an open forum but I feel like the thread was hijacked.
posted
I commented because I was specifically told by ER docs and my Lyme doc not to go near the vaccine due to my many allergies and my severe MCAS. I think it's a life-or-death issue and that's why we need to talk about it.
There will be a nine-part online summit series starting Monday January 30, www.absolutehealingseries.com that anyone can sign up to watch for free. They will be discussing the negative health impacts of the vaccines and what people can do to heal from having taken them. The good news is, there are a lot of remedies and we just need to learn about them and decide what we want to do.
Posts: 13171 | From San Francisco | Registered: May 2006
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Please note, Lyme patients, especially those who are sensitive or have MCAS have valid concerns regarding Covid 19 or any vaccines.
These decisions should be made with the medical professional most familiar with the individual patient’s risk factors and current condition.
I am a recovered patient and an old-timer here. This forum was important to my healing, so I have continued to refer patients here for desperately needed and trustworthy Lyme disease information.
Recently, I received disturbing feedback from those I have referred.
One was an RN with MCAS, but her social history indicated she should research LD. Another friend with a PhD in Biochem and a MS in Immunology immediately rejected the validity of information here.
I don’t know why the others moved on. It saddens me to know they will look no further when their suffering is likely due to Lyme.
I can’t help but wonder if they if they represent others seeking desperately needed Lyme disease information who move on silently, never post and will look no further.
How many visitors or guests never post? How many people post once, then never again?
Are these numbers different than in the past? The traffic seems slower than the Lyme disease forums I looked at yesterday that someone suggested by PM.
When moderators posts known conspiracy sites such as Infowars, Global Research Site, which is a conspiracy website in the main medical forums, it dilutes the credibility of Lyme information,
especially to medical professionals who still face the same challenges everyone here has when seeking diagnosis and treatment.
There should be room for open discussion and differences in opinions, but Off Topic seems best suited to many of the links posted everywhere else on the site, lest they deter Lyme disease patients from finding and trusting information about Lyme disease.
Robin, posted a valuable link Inspire group for MCAS Covid 19 vaccine discussion the relates to this topic. I’m sure that will be helpful to many, so I will list it below, lest it get lost in discussion.
If there is a list of helpful links on this site, it might be a good idea to include that one.
It probably needs its own post on this topic it isn’t lost in the discussion because it would help to answer the original poster’s question.
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
There seems to be an obviously simple fix.
I personally feel the discussion in this thread is relevant to the topic, timely, and valuable.
Since some others strongly disagree, why not simply start a new topic (IN MEDICAL--since this is a medical issue) dedicated to discussion of information and issues surrounding mRNA therapy?
If other threads veer wildly off topic in that direction, they can be referred there. Conversely, the individuals who are bothered by such discussion or debate can easily avoid that thread.
Posts: 2072 | From Earth | Registered: Jul 2013
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posted
Personally I think the mRNA vaccine issue belongs in Off Topic.
Sometime ago, Jennifer or a moderator had the Covid vaccine discussions moved to Off Topic.
I think some of us feel this Covid vaccine discussion is turning off people who pop into Lymenet.
They see the controversy and see some of the misinformation and don’t come back. See Lonestartick’s comment about this.
I talked today with a Lymenet friend who is fed up with the vaccine debate and misinformation and may leave Lymenet. So, another veteran Lymenet poster who has valuable insights to Lyme disease may leave.
It is the misinformation that bothers some of us.
Certainly some can’t get the Covid vaccine or any vaccine and shouldn’t. But we are not the ones to decide that.
The initial poster asked for experiences with the vaccine. She said her LLMD was against it.
I called my old LLMDs office and he had no issues with the vaccine.
Why don’t you open a thread in Off Topic or a Facebook page dedicated to this?
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 10174 | From Illinois | Registered: Aug 2004
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Because medical topics belong in "Medical", not buried in "Off Topic" where people discuss "Seeing Numbers in 3's" or "Russia Banning Oil Exports".
Posts: 2072 | From Earth | Registered: Jul 2013
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Since the truth is yet to be realized regarding mRNA therapy, who is qualified to determine what is "misinformation" or "conspiracy theory"?
If someone is "bothered" by "misinformation" on the subject, then what they are really bothered by is a difference of viewpoint or opinion.
Sidelining information due differences of opinion is one step closer to censorship.
Posts: 2072 | From Earth | Registered: Jul 2013
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posted
This is a Lyme site not a Covid vaccine site. This topic has been beat to death. People are avoiding Lymenet due to these kinds of threads.
And you will notice in Off Topic the majority of the posts tend to be from one person. Jennifer has told her it is okay to post that kind of junk in Off Topic. I don’t agree with that decision, either, as it doesn’t relate to health.
If you search Off Topic you will find some of Lymetoo’s vaccine posts although some vaccine posts have been deleted due to totally false information. (Not all false info was Lymetoo’s)
There are at least 9 threads that remain in Off Topic related to the Covid vaccine.
And Norin who began posting in Off Topic became Helloitsme and then Helloitsme2 and now Working3. She deleted a lot of her posts and some were Covid vaccine related.
I am not afraid of information. I am not trying to censor. But I cringe when I see members posting Infowars as a credible site for truthful information about the Covid vaccine.
This is a LYME site. It is not a Covid vaccine site and it is not a general news or political site (which Off Topic has become).
Below in the brackets are the rules for Off Topic. The Covid vaccine fits perfectly into that forum. The stuff working3 posts does not but my complaints to the moderators about what is posted in Off Topic go by the wayside.
[This forum is for general discussions of broad interest to the LymeNet community. Please avoid contentious political, religious, or other topics that have little to no relevance to Lyme disease, health & wellness, or other themes for which this community was built]. These are the rules for Off Topic.
I asked Jennifer to weigh in but have yet to hear back from her.
*Edited to add, Dr. C has a podcast that discusses Lyme patients and the Covid 19 vaccines in detail. This episode was interesting and there are others on his channel.
[ 01-27-2023, 09:42 AM: Message edited by: Lonestartick ]
Posts: 487 | From USA | Registered: Feb 2002
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
I've had Lyme and co's and actually had MCAS before Lyme. I have severe anaphylaxis and other symptoms from MCAS.
I'm caring for my 91 year old mother and 2 of her doctors stressed the importance of me getting the Covid vaccine.
I've never had vaccines outside of my childhood ones in the 60's and tetanus shots. Did have shots for Impetigo that me and my siblings contracted while overseas.
My first 2 Covid vaccines were at my allergist's office since I was very scared that I'd have anaphylaxis. My first shot was an incremental one to make sure I'd have minimal side effects if I did react. My second one was a regular full vaccine.
I've had 2 Covid vaccines and 3 boosters and outside of a bad headache (only with the second shot) and a sore arm thankfully I've had no reactions or side effects to date.
That's been my experience.
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6918 | From Columbus, GA | Registered: Jul 2004
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Bartenderbonnie
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Lonestartick
THANK YOU for posting TRUSTWORTHY CLINICAL and STATISTICAL information from well respected LLMD’s!
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