Educational
ISL - Internal STOP Light

Educational - I have learned more about myself over the past few months than in the past 30 years!

Not to mention, more than I ever wanted to know about Lyme Disease and now I educate others.

ISL - Internal Stop light. I like that. That works.

I, too, was a lot like you. And, I do continue to try and over ride the system.

Only, it is more serious this time and can be very dangerous to do so. I am slowly learning to try and listen to that ISL so I don't go to the kitchen that day and use a knife, or try to cook or bake, or get a needle out and try to give myself a shot when all the connections are not connecting or try to give myself an infusion.

My computer just stops on me at times and tells me all systems are dangerously low.

My body is like that at times.

My power chair will get slower and slower until it stops completely if I don't keep it recharged.

My body is like that.

The only difference is I don't have a gage on my body or a warning that flashes on the screen.

I have to work at staying tuned to my ISL

quote:

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Originally posted by kam:
Using one word, describe lyme. Please do not repeat what has already been said.

I'll start:

Fatigue

[This message has been edited by kam (edited 12 February 2003).]

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I don't have what it takes to look through all the words to see if it has been noted before....

but today I think lyme is....

running in the fields screaming...if I were able!

In one word....NUTS!

catastrophic

mystery

patience

prayers

coinfection

bacteria

parasite

protozoa

virus

PCR

Western blot

B. burgdorferi

neurotoxin

appreciation (for those that help treat and finally diagnosis it after years of doctors; for those that post on lymenet.org offering sympathy and advice; for loved ones and family and friends who listen and try to make things better although they don't always understand)

eye/hearing extreme sensitivities

pain/fatigue

living in the bathroom - IBS

isolation since family/friends do NOT understand and end their relationsips w/you

waiting for sundown to go outside & enjoy weather....

no longer able to complete understandable sentences due to can't think of words & meanings.

BLESSINGS OF LYME:

1. wonderful web sites/forums like this board where we can come & express ourselves freely and see if others are having SAME problems.

2. Educating ourselves and/or by boards/others about our newest lifelong enemy.

3. We FINALLY have a name for all the many other illnesses this rotten tick gave us.

4. Having support groups online as well as at regular meeting places.

5. Having LOVING family members who take their marriage vows seriously...for better or worse, and in sickness and in health".

Tues. we celebrate 30 yrs. of marriage. My husband has NEVER known me well; I've been sick for 34 years.

I thought of another....

"ticky situation"

I also thought about how this is forcing me to deal with anger management.

At times I need to assess the situation and attack the problem instead of the person or or in most cases get down on myself.