Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
Julie...
Posts: 2549 | From never never land | Registered: May 2005
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
matthewgoss Frequent Contributor Member # 3167
posted 12 January, 2006 05:31 AM -------------------------------------------------------------------------------- Its been almost 3 years now since I've had any symptoms. I haven't kept up much with the discussion forum here the last couple years, but I am committed to popping in here once in awhile to let you all know this thing can be beaten.
I was pretty depressed during the time I had Lyme, because I couldn't find anybody who had gotten rid of it for more than a couple of months. Everybody said the symptoms all came back after they were off meds for a few weeks.
I thought my life was over, and suddenly my whole world revolved around Lyme. But I was determined that I wouldn't go down without a fight, and channeled my energy into finding a solution...there are lots here who helped me do that, and I owe you all a debt of gratitude for the life I got back. I spent every spare moment on the net (mostly here and medline) reading as much as I could, and spent a good deal of my own money on meds...we all know the insurance deal, and I had some damn good insurance (was working at the phone co at the time)...I don't have health insurance now...the whole experience soured me on the concept...
I got really aggressive with the meds within the first year I had it, and I think that is the key...covering all of your bases. It saddens me to see so many familiar names on here still...I still think about you guys from time to time. I'm not blaming you for not getting well (I'm sure your friends and family give you enough grief in that department...I know the ones who didn't give me grief just plain disappeared...most of them disappeared...you really learn who your friends are)...seems to me the biggest thing I've learned from you all is that this disease is hard to beat in general, and it gets harder as more time goes by. I've talked to hundreds of people that have Lyme, maybe even thousands, and the handful I've met who were able to stop meds permanently took handfuls of pills for months at a time within the first year after they got Lyme, though for many this didn't work either. I'm trying to be upbeat about it, but I think the most important message I can send out to the 'new' people here is that you don't have time to fool around, if you don't nip it in the bud, then well, you just might be here awhile.
Last June I moved from Florida to Missouri, and OMG do we have ticks here! I spent the whole summer camping down by the river (I've spent almost a year of my life so far living in a tent), and I pulled dozens of ticks off me every day last summer...it worries me because there is a different strain here than in Virginia where I got Lyme...but I've got an emergency supply of abx on standby But I won't stay out of the woods and live in fear...in fact, I just bought 7 acres of woods a stone's throw from the national forest...I plan on spending the summer building a log cabin out there, and when I move out there permanently getting some guineas and chickens for tick control
If anybody is coming to Missouri to visit a certain doc I know, look me up! I'm halfway between Springfield and St Louis, and I might just put you up for the nite (spend your $ on meds, not hotels)...though the accomodations will be very simple (everything I own aside from some simple furniture fits in 4 boxes and 3 suitcases).
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
hardynaka
Frequent Contributor (1K+ posts)
Member # 8099
posted
Free from night sweats since Christmas!!
After 4 months suffering from low body temperature and occasional sweats at night, I'm free of low body temperature and night sweats since Christmas. Hope it will continue like that.
What worked was Riamet. I was not sure I had babesia and I'm not receiving any antibiotic treatment since I discovered I had lyme. Low body temperature was very annoying, I never had high body temperature since lyme onset (June 2005), and had only occasional chest pain...
Someone from this forum suggested me I had babesiosis. I insisted to receive Riamet from my general practioneer short before Christmas, he prescribed it to me, and after 3 days of taking it, 4 months of suffering with cold and chills were gone like magic.
So I had probably babesiosis. Now my fight is with lyme (light arthritic pain), but I feel another person after having gained a normal body temperature in these cold winter days!
Riamet then: highly recommended, even if you just suspect you have babesiosis!!
Selma
Posts: 1086 | From Switzerland | Registered: Oct 2005
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
Hardynaka,
That's really great news you posted; I'm so glad to hear it!
I've battled cold hands and feet but seem to be getting some relief from acupuncture and Chinese herbs.
Treepatrol, thanks for finding and posting the success threads you do. Reading here can really give me hope!
Andie
Posts: 2549 | From never never land | Registered: May 2005
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
up for newbies and just support
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted 10 February, 2006 02:28 PM -------------------------------------------------------------------------------- Although this is not *my* success story, I thought I would pass this along because it is one of the most encouraging things I've heard since I got sick.
A woman I used to work with in San Francisco has Lyme. I was able to sit down and interview her last week and learn what worked for her.
She has had Lyme for, she suspects, a long time. I asked her how on earth she discovered it, and she said that she had been seeing a homeopath for a couple of years for unremitting hip pain and other things and when she wasn't responding to treatment, the homeopath said to her, "You have Lyme, and the reason I know is because *I* have Lyme".
At first she didn't believe it, but then she got tested and sure enough. I should also mention that although her symptoms were fairly severe, she was still able to keep her job but she did miss a lot of days.
As of today, she is completely and totally symptom-free. She is able to drink a glass of wine if she wants, and is actually in Hawaii right now with her family, diving, swimming, and surfing. She says she is 100 percent, 100 PERCENT (!!!) better. She just stopped abx 2 months ago after having been on them for over 2 years. She was also getting abx shots 2x week.
She said that she still has to watch what she eats, though, and of course be vigilant, but yes, she is even healthier than she was befor she got sick, she says.
The main thing she said that was so important was eating an anti-inflammatory diet. She prefers the Zone (what has been working amazingly for me is doing a Leptin-balancing program and incorporating tons of anti-inflammatory vegetbales and fruits. Yes, i said fruits lol. More on that when I am done with my Cymbalta withdrawal hell. Anyway, back to the topic....)
She said that the quickest way to slow healing progress is to eat anything unhealthy, inflammation-causing, etc. Diet is key, and not just anti-candida.
Fasting: She also said that what really "kick-started" her healing was doing a medical fast. This was encouraging to me because I had some success with Lyme and fasting in the past but I felt like none of the fasts I tried were quite right. She has given me some info on the one she did and I am going to contact them and find out more and will pass along info.
FIR (Far Infrared saunas) - She said this was hugely important and effective, so much so that she bought a unit and her husband and she use it regularly. She said this really did help speed up detox and healing.
Bodywork: She recommends bodywork that focuses on chronic disease and removing the mucous/gunky deposits in the muscles and connective tissue that Lyme causes. I am guessing this is sort of a lymphatic drainage combined with direct muscle detox stimulation. She said she was doing this once a week and it was invaluable to her. I am going to see her person and will find out more.
She also spoke very highly of Dr. Zhangs herbs, which I was tangentially aware of through this site and other posts. She said these are pretty much the only ones she uses and they are great. I will list her suplements below.
Supplements
Daily Amnt Brand 3 B Complete (b complex and antioxidant) Montiff 4 B12 2000 mg 1 5 Biotin 5000mg 2 Allergy Research6 CoEnzyme Q10 100mg 2 Vital Nutrients 7 DHEA 15mg 1 8 DHEA 25mg 1 9 Esterol (vit C/calcium) 657mg/75mg 3 Allergy Research 10 Formula 14 Enzyme Supplement 1 every other day 11 Glucosamine/Chondroitin 1.5/1.2g 3 Whole Foods 12 Lipoic Acid/Taurine 300mg/500 mg 1 Designs for Health 13 Liver, Organic Glandular 500mg 1 Allergy Research 14 Minerals Plus 1 TBS Bio Max 15 Natren's Trio (Probiotic) 1 Whole Foods 16 Sam-e Extra Strength 400mg 2 Whole Foods 17 St John's Wort 540 mg 1 18 Tocotrienols (Vit E) 100 iu 1 Allergy Research 19 Ultimate Omegas (Vit E) 1400 iu 3 Nordic/Whole Foods 20 Vitamins (liquid) 1 TBS Bio Max
She also said that rife was too invasive and negatively stimulating to the system for Lyme (her opinion) and often did more harm than good. She also said that Samento didn't do much for her, in fact most all other herbs I mentioned she said just didn't do the trick.
I will post more info as I get it. Hope this might help some.
Cheers to everyone,
Alison
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
I was diagnosed 10 years ago with MS and then a year ago a new doctor felt I had been misdiagnosed and tested me for lyme. Test came back positive. Have treated symptoms with natural means and rife machine. I feel great but losing more mobility in legs and also balance (gait) problems worsening. Has anyone experienced similar symptoms and if so what has helped to improve your symptoms? I had my first symptom when I was 17 (optic neuritis) and did not have any other symptoms until I was 46 which consisted of gait problem and leg stiffness occasionally. Has anyone taking antibiotics seen improvements in similar symptoms? I believe I received lyme through utero. Would appreciate hearing from anyone who has similar situation.
Posts: 1 | From united states | Registered: May 2005
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Hi Batics,
Welcome to LymeNet!
I was afraid that your question might get lost in this success stories thread...so I began another post for you here:
posted
Copying this from my other thread to be part of the "success!"
Thought I would come back and see if there was anything I could help with. My mother just started her treatment last week after constant nagging by me to stop accepting this as old age!
I had debilitating Neuro Lyme and Babs. Had it probably 5 years before diagnosis. Took 2.5 years of solid antibiotics. Had to quit my job, leave law school, withdraw from society, and really re-define life.
I couldn't walk and I couldn't make out sentences during the first few months of herxes, but I could stay on a horse, which was a miracle. I was so Type A, to not have had this outlet, even just sitting there walking around like a snail, would have destroyed me. I also had a horse survive Lyme who I looked to for inspiration, as well as the best family and friends ever. OK, who am I kidding, not many people understood, but the ones that stood by me mean everything to me now.
During Flagyl I was a suicidal maniac. I would scream, cry, wrench, hallucinate . . . I had to be supervised by hubby or Mom. Lexapro helped some. It was like demons were scratching through my pores. All I can do is shake my head to think of it now.
Saving grace came when I finally pushed for an IV of Rocephin. Took it for two months after 2 years of pills. I am firmly convinced if I hadn't waited that long, the strength of the IV meds would have killed me. I had to wait that long unfortunately to kill off enough bugs as to not overload me.
I am now 80% healthy after coming out of treatment last August. There are still days where I really lag. I think of it like people with Epstein Barr. It is a hinderance, but I have my life back. I can work all day long now, have intelligent conversations, handle driving, movement, most sounds, light. My muscles hurt now like a 50 year old instead of a 90 year old! (I am 30) It is all manageable. Life is worth living again. I have joy and the ability to appreciate it.
I always told my family if it wasn't for them, I would never have fought through the disease like I did, not just for me. But now that I am well, I sure am glad I did fight, for ME.
Posts: 60 | From Ohio | Registered: Sep 2003
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi All
I had a GREAT day yesterday
I live in Austin TX --- Every year Austin has a Really Cool Party called Eeyores Birthday-its been happenening for 43 yrs--
Ive been to 21 of the parties but yesterday was the First Time I felt Good-
Its gotten Real Big threw the years- about 40 to 50 thousand folks meet at a huge park that is in centrial Austin---
The weather was Perfect-- I got there at 2- goes till dark--
The music was great and there was at least 10 Huge drum circles-- and they were in the groove -- I bet there was over a 1000 drums there today- Austinites are into drums--
The park that its held in is about 1 and a half miles square miles - has hills and many big trees-grass--shade -
I bet I walked over 12 miles -- Ran into 5 different people I havent seen in years --
You can bring- ANYTHING -you want- so all kinds of Fun stuff shows up-- Everything is FREE --
Theres a Egg Toss-- the line of contestants is over 100 yards long elbow to elbow- 5 rounds -- -let me tell you there is a Lot of scrambled eggs out there now -- 1000s for sure -- Great Fun -
The same guys have won severals years- They must pratice --LOL --
The Sack race is Cool -- and lots of fun--50 yards - folks can go perty fast with there feet in a bag --
There is a paint tables for the kids- Many--May Poles -- Jugglers -- mud pond -body painting -- everybody gets painted- not just the kids --
Theres A Costume contest -- big puzzles made from wood- swings- jump ropes -ect Tons of stuff to do-
Lots of folks ride bicycle -- Saw a really nice chopper bike- Lots of folks ride the bus or walk--Zero car parking - --not even one --
About half of the folks wear costumes-- all hand made -- I Laffed Hard all day-- folks come up with some Really Funny stuff--
The Eeyores has a Really Cool Groove-- Reallly Layyyed Backkkk -- No Cops at all-- Not nessisary --
Being a single guy -I got to meet many pretty girls --was great --
For the last 8 yrs I have been video taping the party --
I have made some perty good shows from my footage-- Won a award last year and my film shows at the new city hall on the plasms screens daily -
Let me tell you that holding a video camera for 8 hours is perty hard work-
its not that the camera is heavy- its you have to hold it Very Still -- Poops me out-- I shot 4 hrs of tape--
I talked to a couple of hundred folks -- and made some new friends --
I had a Great Time ---
You can see more by googling --EEyores Birthday Austin---
Now let me tell you about myself-- I got Lyme and Babs here in Austin 20 yrs ago -- 2 yrs after I moved here- --I got Real Sick Quickly--
Threw the yrs I have been to over a dozen doctors-- None of them had a Clue --
Im a detail kind of guy -- so I took a Complete Symptoms List to every duck that I went to --
I Now know that it was a Complete Lyme Symptoms List -DX -
They should have known -- something was very wrong with me but most looked and talked at me like I was crazy --
I wish I could get All of them a locked room- Now -- They would have a -- Whole New Out Look on Life --
So I went down hill and suffered extream body pain - exhaustion-- I looked Terrable --Felt offel-- Felt like I got Beat Up Every night -
When I did get some sleep I wished I would not wake up -
After a few yrs I could only work part time and then I had to quit my job-I just could not do it --
I havent slept in 20yrs- Had drenching night sweats-- Candida out the cazoo --
On a scale of 1 to 10 I hovered around a 8 or 9 most of the time -- I was sick as Hello --
Thousands of time I thought about doin myself in -- a bunch of times I would have done it but I was to sick to get out of bed --
About 3 yrs ago I figured out that I have Lyme by seeing a TV show about a Broadway dancer who got very sick-- Quickly --
Her symptoms matched me Exactily Big Lyme Bullseye and All--- She had Lyme --
So I started researching lyme-- In a week or two I found LN -- SAVED MY LIFE --For Sure --
I took the info I gathered the up and went to My Doctor-- I convenced him I had Lyme --
He is a Really Cool man -- one of the Nicest people I have ever met -- He is simi retired and is a Great doctor but he knows little about Lyme-- Its not around here --Ya know --
He put me on Doxi 200mg a day-- It help and I did get alittle better- I upped the doxi to 600mg aday and I got --More Better --
I was still Very sick tho -- Looked like a Loosing battle to me --
A year ago--January 6- I made my self a promise that if in one year I was not any better that I would end all of my suffering-- I just could not go threw this anymore --
I dont think there has been 5 minutes total in the last 20 yrs that I was not wrenching pain--
To go to Eeyores I would have to rest a good week before and after-- Was really hard to do--
Well about a year and a half ago I found a LLMD here in Austin -- Very Lucky--
Took 5 months for my first visit- She is Very Buzzy --
She did tests (Igenx) and they came back--IND--
She said that I have Lyme and have Babs written all over me --
Put me on Mepron and Biaxian--
I felt Better in 3 days --
Its taken about 9 months of Good Treatment to get feelin Perty Good - Most of the time --
Its been a Perty Ruff trip-- When I herx I get Killer Migrains- the last big one was 19 solid day of head squeezing pain -- I got about 5 minutes sleep -Ouch -
(Read my Head Clamp post-- its perty funny--)
I deffently got Sicker before I got Better --
Now Im doin Perty Good Most of the time --
My LLMD tells me I am one of her prize patients -
Wants me to be in a movie they are making about what it takes to Get Better from Lyme--
Let me tell you a couple of things I learned threw this Tuff Jorney --
You Have to Take Control of Your Situation -- Nobody else can do it for you--
You HAVE to edgucate Your self-- Knowlage = Getting well again --
If you did only 1 week reasearch- on Lyme the Odds are that you will know more than 95% of doctors out there about these dieases --
You are probelly going to have to teach your doctor about Lyme ect- I had to -
Do what You Have to do to get help -- If your doctor is a duck -- Move On---dont waste time --
You Will Know when you find - --The doctor that will help you -- I Did -
Check for Co Infections --For Sure-- Most folks have them -- This is Very Very Important -
DONT Relie on Test Results-- ALL of the current tests are Very Poor--at best--
I give them ZERO weight in my dissisions --
All the tests that doctors gave me threw the yrs Always came back Clean --
All the ducks said to me- You Look Fine -
This I becaused they relied on the test results 100% --So I got screwed--
Dont be Scaired of ABX- No Reason --
Take your meds on time-Important-- Dont miss any--makes a Big differance-
You have to Eat Good-to be Good- No carb diet is Best - Carbs are not worth the pain and problems they Will cause --
There is not many things that you are going to have complete control over- But what you- Put In Your Mouth-- You have Complete control over--
Drink Tons of water and tea-- In the time its taken for you to read this you should have downed a Big glass of something--
Rest as much as you can--
Quiting my job last November was one of the Best things I have done --Stress makes it Much harder to get well-
Threw the yrs I saved up some money so that if I Ever figured out what was wrong with me I would be able to get help -- and be able get the rest I knew I was going to require to get well again
Well All my bucks are Gone Now-- Was worth Every Penny tho --
Speaking of Money--
Buy your meds in Mexico -- Same meds as in the US-- Way Way Way Cheaper --
No perscription required -- No Doctor Hassell-- Sweet-
I spent about $1000 in Mexico- Saved me about $12,000- Im not kidding --
Its worth catching a flight to a border city- stay in a hotel --aday or 2- Will save you money- For Sure --
I go to El Paso-- Thats where I from so I know my way around --
Saying its Easy To Get Meds in Mexico is a Understatment- Big Time --
There are cheap hotels 2 blocks from the Border-US--
Walk across -Dont Drive--
The pharmicas are the first bussiness you will come to after you cross -- Dozens of them--
You can get Name Brand and generic meds--
I try to get the Name Brand- I have found them to be more effective than generic in both the US and Mexico--
I have always been a believer in-- If a little is good --More is Better- and a Whole Bunch is Best--
So far this has worked very will for me --If you go this route -- you Have to drink at least 3 gallons of water a day to keep from getting toxic--
With out Mexico there is no way could have done this--
AmTrack goes to EL Paso -- so if you feel good enough- Its a fun way to travel-- The train station is 2 blocks from the border--
If you go to EL Paso I can tell you where to get the Best Green Chucken Enchalads I have ever eaten--Awsome --
I can also answer any questions you have--
I have written many posts about buying meds in Mexico-- (Sunny Vacation to Mexico) is one- -----------------------------
You also have to keep a Positive and Optmistic Attitude --
If you Allow lyme to Take Control of your mind--It Will -- Its not easy - but you can do it-- I Did --
Its Very Easy to allow depression to take hold of you-- It happens Quickly-and it could be very hard to dig yourself out from this-- So Dont go there--
You need to Realize that we (you) are Perty Much genipigs-- Now--
Not much is known about how to treat these diseases--
It took me about 3 weeks of research on Lyme for me to figure out I was going to a Pioneer Genipig--Ouch--
I am very glad I figured this out Earily --
One thing that is VERY VERY Important to do is--
Post a COMPLETE SYMPTOMS list here on Lymenet--
I Sure wish I would have done this when I First Got Here --
The Eaisest way to do this is to Copy and Paste --DR B's symptom list--
When you do this dont just answer the questions --Yes -No-
Give more details like - Only at night- pain moves around - my tempature is 93- for 3 months--
Fill in your info underneath each Question--
Give Complete-- Clear Answers--
Describe intencity of symptoms like 1 thru 10 ect
Make it Easy to Read-- You want to Make It Easy - For folks to help you--
Remember we All are lymees here-
At the bottom of your symptoms list Give-Any and All-- other info about your situation like- age -general health any thing else you have wrong with you--
Include things like - what other doctors have thought- What meds you have tried- Results if any--Include doses and time -
Give Test results- give numbers --
Describe any type of skin rash carefully- post pictures --
Give All info that you think could help-
Post your Symptoms list-- Many Times-- Doing this will allow long time LNers to have a chance to see your post-
People will be able to get a Good Clear Picture of your situation Quickly- Easily --and Help You--
Most folks who get over these Illness at some point are going to get On with there Lives and wont be coming to LN much anymore --
You Really want these people to see and read your posts --
I think the vast majority of folks who have lyme desease are going to regular Ducks- and are getting the run around- -It happened to me for 17 years--
Dont Let this happen to you--
Just One visit to a Good Doctor - change my life Quickly-- and I got Much Priceless Info from the Great folks here at LN -
If LN was around 20 years ago-- I would have been All Better many years ago ---
You can get Well Again--
It Takes a Good Attitude lots of reading- Good food -Rest - some Luck and a Huge Pile of meds --
There is Life after Lyme-- and it can be Perty Good to--Jay--
Posts: 795 | From: Austin tx USA |
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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posted
I thought I would add my success story, at least my fingers are crossed that this is finally over. I was bit in June 2005 back east and started having symptoms July 2005. It took about a month before I self diagnosed myself with Lyme. I had a wide range of symptoms, fever, flu-like symptoms, rash, bells palsy, neck stiffness, headaches, fatigue, irritability etc.
I saw an ID Dr. for a few months and while on 100mg of Doxy twice a day, I was feeling better. But every time we stopped the treatment the symptoms would be back within days. The ID Dr. said I was having "post lyme sypmtoms." Once I heard that and found this board, I knew that I needed to talk to a different doctor.
Through another support group in my area I found a LLMD and he put my on 500mg of Biaxin and 200mg of doxy a day and after a month I was symptom free, he kept me on the meds for three months total. I am now three months without medication and I have absolutely no symptoms.
I thank God for helping me find this community, I didn't post a lot but I read jsut about every post that applied to my illness.
Thank you to all of you and I hope that you find your way back to good health.
God Bless, Corinne
Posts: 17 | From Northern California | Registered: Jul 2005
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posted
Seven years ago, 1998: 15 different docs, ms diagnosis that I didn't believe and was finally treated for lyme. One year of pulsing antibiotics and stopped because of elevated liver enzymes but went on to feel totally well except for continuous sinus problems.
May 2005 Started to feel really crappy, just like 7 years ago. Went right on antibiotics and started herxing from the beginning. All of my symptoms returned severely and rapidly. And to make things worse, I developed a severe yeast infection that made my doc stop all of my antibiotics.
I went downhill very fast and was unable to work. No antibiotics and extremely desperate, I started to look for alternative methods to get better. Please know that I have never spoken to Bryan Rosner with the exception of one email, directing me to the Website for his book, but I feel like I owe him and the rest of the people involved in rife technology my life.
This is only my story and if you want to believe it, fine, if not, that's fine too. I'm not posting this to start another rife debate; I'm just posting what I've done to get better. Rife is my major treatment but I also did 14 weeks of salt/c and added antibiotics occasionally along with some diflucan. Mostly according to the outline in the book. I also sought help from a wonderful LLMD who finally got me the proper testing and I found out I was positive for ehrlichiosis and mycoplasm. I know in my heart that the only way to beat this disease is to use more than one method. I also learned that DETOXING is just as important, if not more important than killing the bugs.
It's been a very long and rough year (search my posts) but also a very rewarding one too. I've been introduced to so many wonderful people because of this disease, that in a weird way, and only at this point of my recovery, it's been worth it!
Symptoms Throughout The Last Year
Dizziness Extreme light sensitivity Sensitive hearing Numbness (whole body) Tingling throughout Twitching Fatigue Insomnia Uncontrollable Crying Extreme depression Paranoia Afraid to be alone Afraid to go out in public Weight loss (30#) Impotence Memory loss Slurred speech Nightmares Vision Problems
Remaining Symptoms
Slight tingling in my forehead and occasionally, slight blurry vision in my left eye.
Treatments
Rife, EMEM3d from rifelabs.com (no affiliation) Salt/c - 14 weeks Zithromax Flagyl Doryx Diflucan Epsom Salt Baths (Thanks Marnie) Steam, ozone (thanks Bev) and infrared saunas Coffee enemas 3 liver cleanses Very Low sugar and carb diet
I'm not telling you it was easy, because it was pure hell. But the strength and support I received from my family, this site and others, my doctors and the Lord got me through it and I really, truly feel that I am close to being even healthier than I was before my relapse. Every time I herxed, I felt like giving up but my wife carried me through every one of them. Bryan's book was also the main reason my wife understood what I was going through, when I couldn't get out of bed or just didn't want to, she always referred to certain parts to help me keep my faith.
I went back to work fulltime in Sept. and just started coaching my 12-year-old baseball team again. There is hope, however it comes very very slowly! If anyone would like any help at all just send me an email and I will help in any way possible. Sorry this is so long.
-------------------- BTW - I am NOT a medical professional - just speaking from MY own personal experience. Posts: 266 | From Philadelphia | Registered: May 2005
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
up for the sad people and me
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Author Topic: An Old Timer returns! GailAnne Flash Member Member # 3946
posted 25 August, 2006 10:33 AM -------------------------------------------------------------------------------- I was really active on this cite about five years ago...since then, I've been PCR free of LD, healthy, and continue to teach school and work-out at my local gym. Long term IV antibiotic treatments REALLY do work. After four years of six long-term treatment cycles(I had undiagnosed LD for at least seven years prior) I'm Lyme free! Sooooooooooo my dear LD friends...there IS HOPE and don't give up! God Bless Gail
-------------------------------------------------------------------------------- Posts: 17 | From: Holland MI USA | Registered: May 2003 | IP: Logged
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Hi,
I think I can now safely call myself a success story.
I was "lymed" 10 yrs ago and treated antibiotically for 6 mths even though the ELISA test said "no lyme". After 6 mths, I recovered.
Additional problems developed over the next 10 yrs that I did not connect to lyme. Migraine headaches, stiff neck, shortterm memory issues, hot flashes and finally mental confusion. Aug 05, migratory joint pain hit and 2 LLMDs clinically diagnosed chronic lyme. Funny thing is, now, 10 yrs later, blood tests (western blot at Igenex) confirm I had lyme but can't determine if I have it now.
5 mths of homeopathic treatment cleared up all symptoms but the arthritis which ballooned until I was 100% disfunctional. Jan 06, I was diagnosed with Rheumatoid Arthritis. I abandoned the Lyme treatment and began pursuing any and every known cause of RA.
DIET was everything!!!! Just switching to a vegan diet produced 75% improvement. For the last 5 mths I have been working with a doctor who is not an LLMD but does test and probe your entire body to determine where you have deficiencies. He then focuses on repairing those deficiencies allowing the body to do the healing.
Again, DIET has been critical to my success. He ran a food allergy bloodtest and since eliminating my offending foods, in addition to so much else he did, I am painfree and have been so for about a month.
I met with the rheumie for the first time in 6 mths. I never took his immune suppressing drugs but instead opted for a low dose minocycline protocol that targets mycoplasmas. He was stunned to see my progress. I can't say how much if any, the minocycline deserves credit. But I can definitely tell you diet has a huge and immediate impact.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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posted
Would love to read about some current success stories and what antibiotic combinations might have worked for you.
Also diet, excercise or alternative therapys???
Barb
Posts: 281 | From san francisco | Registered: Jun 2006
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
2 stories, mine and daughter: 1) I had a very bad start after first tick bite in Switzerland. I got the rash, went to doc, 2 weeks doxy, told I was cured.
A month later, got arthritis, then fatigue came, then eye symptoms, sun light sensitivity, night fevers, and many other symptoms. I got sofa ridden. I could barely take showers on my own, so much fatigue I had. Total brain fog. Forgot my way home, I could barely drive.
Started Buhners' herbs, went better but not cured. Started Salt and C, it made things worse.
Started then ART and Dr. K's protocol with two practioners, then started seeing improvements. From then on, slow improvements, but no total cure. I was told it was going to take time. Loads of homeopathy and herbs, almost no abx at all.
Diet, EMR protection, heavy metal treatment, allergy treatment, teeth, cavitation, scar treament, etc
Slowly better, but not cured. Lyme kept coming back, either by relapses or new tick bites. I live in endemic area, and get bitten every year a few times (about 5 times, in average).
In 2009, after fighting lyme for 4 years, I tried photon therapy, following dr. W's protocol and loads of muscle tests. Well, that nailed borrelia and lyme for good. From then on, no more lyme for me, despite new tick bites.
I still continue with enzymes (Rechts), chlorella, and some stuff like minerals (moor, diatomaceous earth), sometimes omega 3, in winter vit D3 and propolis, and eat only organic as much as possible, cook at home (but do eat in restaurants twice a week now), exercise, do meditation and breathing (following mostly the ARt of Living technique).
My lyme doctor told me then, when he saw me and told me 'cured', that it was incredibly fast. I told him: how could 4 years of daily suffering be fast?
He then told me I was his worst patient then. That no one as bad as I was could get healed so fast like I did. And he mostly treat lyme patients and had a long waiting list...
So, if I did that, many of you all can do it. Before lyme, I had fought chronic candida for decades, literally, so when I heard borrelia is a tough infection to get rid of, I knew what that meant!
2) My daughter caught lyme when she was bitten in Belgium, by a tick on her head. She was only 2 years old!
Day 1, got bad symptoms, tummy ache, nervousness. I found the tick next day after the bite, so mini, almost invisible. It walked after I pulled off, that is how my husband believed it was a tick!
Amoxy for about 3 weeks... She got worse every day, I stopped amoxy then, went to my doctors who do ART. Then she got also better, with homeopathy, microcurrent, herbs, and tapping.
Then every year, bitten again, new pathogens, new borrelia strains. We tried amoxy again, this time 5 weeks. No result, still as sick as a child can be... Almost not walking, arthritis, horrible pains in the tummy. So from that day on, I decided, no more abx for a tick bite.
We again, did the natural way, following ART. Again she got well. Until next bite, which was infected with FSME (tick born encephalitis). That made her borrelia revive, and it almost killed my child. It was the most horrible infection ever.
Bad luck: naturopaths and doctors have to report FSME to big hospitals and send the sick person to big hospitals. They are not allowed to treat on their own. I had bad experiences with hospitals, and as it was a virus, western medicine have no tools to deal with it, except giving stuff for pain.
So I said: I take her to a hospital, they will kill her. No way. I trust them next to zero for chronic diseases, and for tick born diseases, my trust is zero. They would not allow me to give my child even Vit C, nor Vit D3. So how can I take her to hospital?
So I was left no choice than treat her home, all on my own. To treat a disease that cripples or kills in 2 to 3 weeks, with a child that already had lyme on top, full of allergies.
Well, muscle tests, ART (I had learned that a bit then), dr. K's help through Gigi here (she called him to ask how to treat), and another crazy experience saved her. She was declining every day. From a day to another, she got a bit better, then I knew it was gone.
The good thing with FSME is that, the acute form has really a shape and time to happen. So if she went through the 3 weeks and came out, it means, no sequels. Many people get paralitic, constant headaches forever, or deaf, in ONLY 2- 3 WEEKS time! then have to live with that forever!
Anyway, we went through that.
then a year later, she got a relapse from lyme and went to wheelchair, due to swollen knees. Doctors started her on rocephin, iv.
Day 2 of rocephin, I pulled her off the treatment. And off the hospital. I said, if I knew it was lyme, I wouldn't have brought her to hospital.
I thought she had broken her knee, as it was painful and swollen, it was middle of winter, I didn't know it was a lyme relapse. So I treated her home.
That is when we tried photon therapy with her. And her knees got better in a couple of days, I'm not exagerating.
Really too fast to be true. That is when I tried photons on myself. Photons and homeopathy, of course.
She is today a 9 year old girl, since photon therapy too, she's off lyme. Once only, lyme came back, but it took only two treatments, during two weeks, to have it gone back again. She didn't miss any day at school for that.
We still needed to treat her allergies after, which are muuuch better today. She still eats loads of veggies and fruits, mostly organic, we still avoid wheat, and she takes same stuff I take.
She still gets bitten, every single year. But so far, so good. Peace is also back, we're less frightened after a new tick bite now. Just because there are photons, there is ART and muscle tests, there are nosodes, and I think our immune system is working somewhat better.
Once lyme is dormant, I swear to you all, it is like you NEVER got lyme. There are zero symptoms, no fatigue, no brain fog, no pain, zero. You can be fit mentally, physically and emotionally. You don't need any killer to keep you on that state.
The most amazing thing that happened to me was when I was listening to Bach, a mess, I think. I suddenly felt all colors again, like the whole piece was talking to me again, directly to my heart, so colorful and huge!
I said: My God, I didn't know that lyme had taken that from me too! I now can listen to music and feel it so deeply again!!
I cried like a baby, that met her mother again after long time no seeing her. Years and years have passed, and music meant nothing to me anymore, just because disease had taken it from me. And I didn't even notice that was taken from me.
My daughter is fully active too. She plays classic for 4 years, and is now staring jazz piano.
She plays pop in the school band, practices her jazz dance, goes swimming, continues her French, English and German (at school).
She rides her bike about 6 miles a day, up and down very steep hills, to go to school and come back. No matter what weather, rain, snow, heat.
She's not the strongest of all against infections that run in school or neighborhood, nor allergies (she still got some left), but her life is fully back.
Our motto is: never ever give up!
And another motto: Borrelia dormant = no borrelia at all. There is healing to chronic lyme!
Posts: 6200 | From Brussels | Registered: Oct 2007
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ukcarry
Frequent Contributor (1K+ posts)
Member # 18147
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Dear Brussels,
How lovely to hear that you are both so much better and sustaining your good health. What a lot of wisdom you have gained along the way!
I was so touched reading your account, and you wrote so beautifully about your experience when listening to Bach. Thank you for resurrecting this Success Stories thread and for thinking of us,
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