Aniek,I know exactly what you mean!
Somewhat related...
The week before our initial LLMD visit my wife ended up in an ER doubled up with upper right quadrant abdominal pain. (Turned out to be Lyme symptom related.) She was afraid her gall bladder was about to rupture, or something.
When they were asking her what was wrong, about the third sentence she blurted out was "...AND WE BOTH HAVE MALARIA AND LYME DISEASE!!!"
Both statements were in fact absolutely TRUE, but I assumed she would not go there unless it came up.
You should have seen the looks on their faces! I'm sure they were expecting her next words to be about being abducted by aliens and taken to the Mother Ship... and guys in Blackhawk helicopters SPYING on us!
It turned out though that the ER Dr. examining her has a sister with lyme, and after looking us over a little told us 'whatever you do, do NOT cancel your Lyme Dr. appointments!' They aren't all ducks.
Its funny though... If you tell them you have a highly contagious multi-drug resistant STAPH infection, they come up close and say 'lets have a look'.
If you mention LYME though, alot of them shrivel up and shrink away like the wicked witch in the Wizard of Oz when she got the water splashed on her!
This poor girl (threefries, I'm talking about now) seems pretty smart. I think she will be able to find her way this Twilight Zone episode. Especially if her mother sees the pitfalls and helps her past them. It is really important having friends and family nearby.
There are just so many black holes one can step in when we happen to get something outside the medical system's preferred profit centers.
[This message has been edited by James H (edited 04 March 2005).]