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Originally posted by livinlyme:

someone saying that a young spry energetic guy just in his teens, who was into athletics was complaining of joint pains and had a high cpr, and was consulting with a senior MD on the phone as to what to do ..

stating that he really thought it was rheumatoid but why was the crp high and what should he do next..

I was sitting there thinking to myself I should hear maybe something about ordering a WB or a ELISA but instead I heard him mention ANA...

I saw the guy shortly after and what struck me as this guy was so lean and tall, I would think they might have mentioned Marfans syndrome... but no .. and not even a blurb of Lyme Disease ...

I remember when my son was thought to have Marfan's Syndrome and likely this condition also would fall into the category of probably underlying cause : Lyme Disease..

well sure enough the treatment for LD has halted his heart progression..

so My concerns are less and less that he will die before his fathers early age of 42... and his paternal grandfathers age of 36... but I know why he has issues

and I thank heaven for you all here .. because if it had not been for this group we may have been caught up in the vicious cycle of all these other possible illnesses which give no room for improvement ..

just treatments which ultimately kill the person after a period of time with a slow progression towards death..

thank you all again for giving us a longer more prosperous life..

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