Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
wOtm, I think what you are talking about is a very different issue then hypercoagulation. While they both can be related to the Lyme, they're different. Both should get better with eradication of the microbes.
One major difference is that treating the hypercoagulation will help to get rid of the infection which will get rid of the low temp, etc. Because, one, your immune sytem can manage it or two, the abx have a better chance of working.
Posts: 1251 | From california | Registered: Apr 2005
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Marz
Frequent Contributor (1K+ posts)
Member # 3446
posted
Great information here and I haven't taken the time yet to read every word, so maybe this was covered.
Isn't an extremely low sed rate also indicative of hypercoagulation? My C-reactive protein test was very good, but sed rate very low. (can't remember exactly.)
morning body temp about 95.5
I wonder every once in a while why my LLMD hasn't addressed this. We did talk about the fact I can't take heparin due to a genetic test and can't take nattokinase, since soy makes me ache.
But I've never been told to take anything for it.
Anyone know what Rechtsregulat is made from?
Posts: 1302 | From USA | Registered: Dec 2002
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posted
Well I don't want to be negative but I've been on heparin for a year and a half and haven't noticed any improvements. I've been on antibiotics for over two years with only slight improvements.
I do feel some better since starting treatment, but far from recovered. I was really sick for 19 years years before I started treatment, so I think it's just going to take a little longer to reach recovery.
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
My CRP has been extremely high for a year now. They keep telling me it is inflammation. It is usually 4 times the normal. I will have to ask about this.
thanks, Melissa
Posts: 3905 | From USA | Registered: May 2007
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posted
Before everyone rushes out to pay a zillion bucks on nattokinase, lumbo. and rechtsregalat - GO SEE A HEMATOLOGIST. These are the docs who are experts on coagulations disorders. They know which tests to run - and there are a whole battery of them - some genetic disorders and some acquired and some due to chronic inflammation caused by chronic infection. These guys are the experts - not someone you read on Lymenet.
There are no REAL STUDIES on Rechts. Messing with an unknown substance with no professional testing is dangerous - especially if it increases the likelihood of bleeding too much or bleeding internally.
Re: Haley and Bob Jones' cavitat - these guys have been successfully sued. You can read all about it on an internet search. despite what you read here, extracting nonsymptomatic root canals can lead to a whole new bag of problems. Any surgery in the bone, especially when it exposes bone in the oral cavity can be dangerous and lead to a bone infection - which believe me, is hell. And, getting them extracted, especially by a maverick dentist using a cavitat as a diagnostic can actually cause bone death as well.
Posts: 364 | From California | Registered: Sep 2005
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posted
When I was on warfarin it was vitamin E that I had the most problems with. I take a ton of magnesium and other supplements but it was vitamin E and ginko that messed up my pro times on warfarin. My blood would get way to thin.
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
Morning Annek, very soon after I was found to have hypercoagulation as it occurs with chronic infection I actually did go se a HEMATOLOGIST. What a waste of money that was!!! Very respected in the community I live in too.
Now keep in mind that I had blanch white skin, with a purple lace like pattern. My extremeties were ice cold and I do mean ICE, along with my nose and butt 24/7. They never, ever warmed up. My feet would often turn black on my soles when sitting.
To top it off, my blood was brown, and very thick and gooey. I regularly clogged needles within seconds when having blood drawn. That was on top of all the other typical Lyme symptoms and I had most of them, except for testicular pain, that may have something to do with me being a woman.
My highly educated and respected HEMATOLOGIST told me I was perfectly healthy and there was nothing wrong with my blood. She told me, the doctor that told me I had hypercoagulation was a quack.
Fast forward.....I stayed with my quack and I am in remission!!!! An LLMD can run all of the same tests that a HEMATOLOGIST can. Mine did. Mine first ran a PTT which showed my blood to be on the thick side, he used the word viscous like cold auto oil.
Then he ran the ISAC panel which was very new and something the very educated HEMATOLOGIST never even heard of. I came back extremely positive for hypercoagulation as it occurs in chronic infection. Keep in mind this is not the same at all as what happens when a person gets a blood clot.
My Doc also tested me for all of the clotting disorders, I was found to have none, Factor V Liden had been suspected.
There is a ton of research on this form of hypercoagulation now. If your LLMD can do all of the same tests that a HEMATOLOGIST can do why waste your money on that UNLESS your LLMD finds that you do in fact have some disorder that is out of his league and has nothing to do with Lyme, then by all means you may want to see a HEMATOLOGIT:}
Posts: 1251 | From california | Registered: Apr 2005
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