LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » $2k later and 37 viles of blood

 - UBBFriend: Email this page to someone!    
Author Topic: $2k later and 37 viles of blood
jonjacob
Junior Member
Member # 9788

Icon 1 posted      Profile for jonjacob     Send New Private Message       Edit/Delete Post   Reply With Quote 
Just got the results back.

Dr. started me on cholestyramine, and an antifungal, - these I understand are to get rid of the toxins.

Then I'm on R5081 and Artemisiae, which I understand are gonna kill the disease.

then i'm on some other supplements, to help my body recover.

I'm new here, and wanted to find the protocol for other patients.

I can assume that it would be different for each patient, and there symptoms, nonetheless, wanted the feedback.

Any thoughts are appreciated.

Posts: 7 | From florida | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Which disease? No antibiotics??

Which tests do you have results for?

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96223 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
AliG
Frequent Contributor (1K+ posts)
Member # 9734

Icon 1 posted      Profile for AliG     Send New Private Message       Edit/Delete Post   Reply With Quote 
What's R5081?

--------------------
Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006  |  IP: Logged | Report this post to a Moderator
luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090

Icon 1 posted      Profile for luvs2ride     Send New Private Message       Edit/Delete Post   Reply With Quote 
No antibiotics is working well for me.

I am back to a normal life and my only remaining symptom is occasional pain in wrists and fingers. All other joints have been consistently painfree for a couple of months.

I did a search on R5081 and found the following website which seems focused on Lyme. My doctor is using some of his suggestions even though my doctor is not specifically targeting lyme.

I am not going to claim success until I am 6 mths recovered, but I am very optomistic.

Luvs

--------------------
When the Power of Love overcomes the Love of Power, there will be Peace.

Posts: 3038 | From america | Registered: Oct 2005  |  IP: Logged | Report this post to a Moderator
seibertneurolyme
Frequent Contributor (5K+ posts)
Member # 6416

Icon 1 posted      Profile for seibertneurolyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
R-5081 is part of the Dr Z Chinese herb treatment.

I also just discovered a website today that summarizes the info in his new book.

http://www.steveclarknd.com/LymeDisease.htm

JonJacob,

Don't think many here are on strictly Chinese herbs, but a couple of people have recently either switched from antibiotics or incorporated some of the herbs into their protocols.

Please keep us updated and let us know more about your history and symptoms and how you respond to the herbs.

Bea Seibert

Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
seibertneurolyme
Frequent Contributor (5K+ posts)
Member # 6416

Icon 1 posted      Profile for seibertneurolyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
jonjacob,

Might want to check with Timica. See her response at this thread.

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=2;t=003765

Bea Seibert

Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130

Icon 1 posted      Profile for lymie tony z     Send New Private Message       Edit/Delete Post   Reply With Quote 
I know I'll get letters...

But...how come this Dr Z guy and these herbal "cures" pop up now and again....

I am glad some of you folks get good results...

No one wants this disease...but I'm somewhat skeptical about all these herbal treatments...

They all seemed linked to a Buhner or Dr Z or dr K protocol that for me...isn't science...

and seems to have an ulterior motive of selling supplements or machines or whatever...

Like I said...I'm glad for those that say they are doing well on alternatives...I have also done pretty well on some of the supplements recommended by Dr B....

However....my bug in particular isn't going to be subdued unless I knock it down every so often with antibiotics/virals/fungals/malarials...

That, even though some would say, are the ulterior motives of mainstream or LLMD medicine...

At the very least these drugs are regulated...
and for me have been esscential in my recovery(to this point).

I just have a hard time "buying it all"....zman

--------------------
I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman

Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004  |  IP: Logged | Report this post to a Moderator
daniella
LymeNet Contributor
Member # 6753

Icon 1 posted      Profile for daniella     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'll give aything a try to get better!

--------------------
~Things may happen in my life time to change who I am but I refuse to let them reduce me...~

Posts: 968 | From private | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804

Icon 1 posted      Profile for AZURE WISH     Send New Private Message       Edit/Delete Post   Reply With Quote 
What kind of dr are you seeing?

Is he lyme literate meaning does he understand and know how to treat lyme AND coinfections?

I use abx and vitamins and other supplements. They have been helping me. I have to give the majority of the credit to the abx for my progress.

This is just what has been helping me - I am still disabled and have a long way to go.

Through my expereince being a lyme patient I would not want to try to treat myself with just vitamins/supplements and no abx OR with just abx and no vitamins/supplements - but this is just my opinion.

Best wishes

--------------------
multiple chemical sensitvity group:
http://www.lymefriends.com/group/multiplechemicalsensitivities

Group for artists. All media welcome:
http://www.lymefriends.com/group/creativecorner


http://groups.yahoo.com/group/Lyme_Artist

Posts: 3860 | From nj,usa | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
Andie333
Frequent Contributor (1K+ posts)
Member # 7370

Icon 1 posted      Profile for Andie333     Send New Private Message       Edit/Delete Post   Reply With Quote 
Jon,

I'm using several antibiotics (for Lyme and for co-infections) and have been on them for awhile.

In addition, I'm on a number of supplements, including a variety of Chinese herbs...and I have been since starting my treatment. I honestly think the Chinese herbs have been helpful and especially like the Cordyceps.

I hope this works for you, but I've seen a lot of improvement using a combination of antibiotics and herbals. In addition, I didn't initially incur the kinds of costs you mentioned in your subject line.

Andie

Posts: 2549 | From never never land | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.