Topic: Anyone get negative results from Igenex? Can I have a show of hands please?
Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
quote:Originally posted by AliG: SHOW OFF!
It's just stunning to me to have so many positive bands and a totally negative ELISA. Also a negative spinal tap.
This blot was about 1.5 years after being infected.
It just goes to show that you can't tell much from them, because in theory my IgG should have turned positive within several months. Yet after a year and a half of infection, "IND" is about the best I could do. Maybe I would have made more antibodies if I hadn't had babesia??? Just a guess... Would love to hear an answer!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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posted
I tested positive in 05 through igenex. But I tested negative a few months ago through igenex and am still sick. I just read the following in one of the brochures from the LDA site called Lyme [r] Primer:
During the first year after a tick bite, less than 65% of patients produce antibodies, and they may not last. By year two, less than 50% of patients still have antibody response.
You can go to the LDA website and print out this brochure. Take it strait to whatever duck has a problem with the idea of testing neg but being positive. But back to the point of this post, I did recently test neg through Igenex and still have lyme.........Rich
Posts: 413 | From nj | Registered: Nov 2005
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Areneli
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me
Posts: 1538 | From Planet Earth | Registered: Jan 2005
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kelmo
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Member # 8797
posted
We go to the doctor mentioned in this thread. He has always used his own lab and never sent to IGENEX. He did send some things to Labcorp to help us with expenses. It actually showed positive bands.
I think most of us will test negative on some things at first, then when things get stirred up with treatment, bugs come out of hiding.
posted
I just got retested today, I'll let you know what the results are. She still is doubtful about it being LD, because she says its uncommon in our area, but I know its bull.
-------------------- OK...I'll play your silly games.
Finding my happy place.
Brenda-Lee Posts: 126 | From Florida | Registered: Aug 2007
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My relative tested Negative through IGeneX....
but, POSITVE, CDC positive for Babesia through Quest!
yup, they called her--immediately.
How is this possible? hmmm!
She fortunately does have a LLMD, and is in treatment! This after being told she has Sojgren's, RA, Fibro,IBS for years!
my oh my oh my!
Posts: 158 | From PA | Registered: Oct 2006
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AliG
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Member # 9734
posted
quote:Originally posted by tory2457:
My relative tested Negative through IGeneX....
but, POSITVE, CDC positive for Babesia through Quest!
That's what I'm talkin' about!
Let those "Everyone tests positive with IGenex" "doctors" explain that!
Even people who are KNOWN to have Lyme & test positive ELSEWHERE can test NEGATIVE AT IGENEX!!
How can they say "everyone tests positive with IGenex"?!!!!!!
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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posted
Go to this website; http://www.amytan.net/LymeDisease.aspx. This is Amy Tan's website. She talks all about testing. Print out her story and show it to the idiot who said all tests from Igenix come back positive.
Maybe he will learn something.
Posts: 24 | From Maryland | Registered: Aug 2007
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to go a little deeper, aren't people like her that test positive for a co-infection, but negative for LD enough to insist on "changing the guidelines?"
What does the CDC say for treatment? 6 weeks?
btw, her son (32yo) was tested, he too was negative from IGeneX, but tested positive through Quest for RMSF!
Our local Health Dept called him; said since he doesn't have symptoms, he doesn't have RMSF.!
He does have elevated liver enzymes with other "slight" symptoms...He's also in treatment. His llmd didn't take his positive test result--lightly!
Posts: 158 | From PA | Registered: Oct 2006
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posted
All tests always neg thru IgeneX except FISH (1 out of 2 - the second was neg, although relapse was obvious) ERRRR
Daughter's was neg thru IgeneX also...I tested pos tho thru the old Bowen for Lyme, Babs, and both forms of erlichia.
TBI's are the only disease on the planet where a pos result is good news - in a warped kinda way, lol.
Posts: 176 | From Tenn | Registered: Jul 2004
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savebabe
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3 negative tests and 1 positive
Posts: 1603 | From ny | Registered: Aug 2006
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I was also considered Negative even by Igenex. I had no IGG bands. But I had a 41+ 58+ and a 39 IND. My LLMD said the 39 and 58 were Lyme specific and with my low CD-57 and all my symptoms concluded I had Lyme.
Posts: 17 | From Boston | Registered: Apr 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
After years of severe illness, tested in 1997.
Seizures, severe hyperacusis, fainting, all the CFS sort of stuff. balance problems verified by testing.
WB IgG a few bands, but "negative according to the CDC Criteria" was printed on it.
WB IgM was actually postive according my state's dept. of health band criteria, but equivocal with Igenex and "negative according to the CDC Criteria" was stamped across it.
Postive for Babesia and HME (human monocytic ehrlichia).
So, trying to show my doctor that even our state's dept. of health said lyme was positive even if the CDC said "not"
and with the presence of the co-infections, that lyme was highly likely, anyway . . . well my doctor said "we don't have lyme in this state." Treatment was refused. My file was marked for life.
About ten doctors later, still none in this state who will treat. And, of course, by now, they say "it's burned itself out"
I'm the one burned out.
But, to be fair, I've come across two doctors who have helped me in various ways. Treatment options, money pose restraints.
We desparately need better attention to this.
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I've got negative from IgeneX once
Posts: 275 | From Home | Registered: May 2007
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Back from LLMD, copy of IGenex results in hand.
I am proof that we should get copies of our bloodwork. My interpretation of our previous conversation was that Igenex came up blank.
IGM 23-25 IND (pos on Quest) 30 + 39 ++ 41 IND (pos on Quest) 66 +
IGG 41 IND (23 pos on Quest)
While still technically considered Negative, I guess that makes me guilty of "showing some positive bands"
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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Vanilla
Unregistered
posted
My first Igenex test was negative for LD positive for Babs.
My second Igenex test was positive for LD.
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
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Any ALL negatives bands & pos elsewhere?
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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