disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
I'm just curious as to how many of us basically had to diagnose ourselves.
I know I did. I had been to about seven doctors. After I had been to see the seventh doctor a few times, I was fed up and started googling my symptoms and lyme came up as almost all my symptoms matched.
I decided I wanted to get a WB taken. Luckily, this duck was at least somewhat knowledgable enough to have the blood sent to Igenex. I didn't even have to ask them to send it there. Of course it didn't come back positive, but the duck still thought I had lyme. I only had 41++ IGG at the time.
He told me he thought I had lyme but that he wanted me to continue taking vitamins and supplements before he treated me. And in some cases, NOW I can agree that it wasn't stupid of him to say this, but I was so sick by this time, that I wanted TREATMENT now. That's when I stopped going to him altogether and found an LLMD.
I'm glad I did because I've learned so much and found that I DO have Bart and most likely do have Lyme and maybe some other co-infections as well.
It's just sad when I think back on it. If I hadn't done some of my own research (if I had listened to the duck who told me not to look stuff up on the Internet), I would probably be... well, I don't even want to think where I'd be.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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posted
Count me in. Fortunately I came to this conclusion pretty fast after the neurologist started the wait and see game. After 2 months I went to a PCP and asked him to test me with the Igenex kit. The ELISA/IFA came back positive and the WB came back with 39+ and 23-25 IND so he told me I was positive. There were no IGG antibodies at all at that time. After a re-test following doxy I had a bunch of positive IGG antibodies show up as well.
-------------------- Why me? Well, why not me??? Posts: 411 | From San Francisco, CA | Registered: Mar 2007
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posted
I tried to convince doctors for a year that I had Lyme. Since I lived in Florida they didnt test me when I had the EM rash and early lyme symptoms.
By the time they tested me I had seen many specilist and everybody thought I was crazy. I am now suffering the consequences of chronic Lyme disease and am not responding to treatment.
-------------------- "One day at a time"
Current: -1.2 IM bicillin three times a week -1.25 IV Vancomycin every day -IV glutathione and IM B12 -Byron White since Jan. 2011 -ALA, Yasko protocal, Adapten-All, thyrosol, Pekano, phosphalipid exchange, probiotics, oregano... Posts: 390 | From FLORIDA | Registered: Jun 2007
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
me too. i kept looking and found about the em rash myself. by the time i finally went to a doctor, i was "chronic".
bunch of idiots.........
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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bettyg
Unregistered
posted
me too
34 years; 40-50 mds/specialists = misdiagnosis!
went to a lyme meeting, heard of IGX western blot igm/igg and had them sent there! DUMBFOUNDED when i was told i had chronic lyme.
i thought it was early-onset alzheimer's disease that took my sis=in=law at age 40 !!!!
now, i was furious at first as i did NOT KNOW LYME MIMICKS 300 OTHER ILLNESSES! look how confused we are now, and we know we have lyme and rying to find correct treatments for LYME/CO-INFECTIONS each of us have.
no two of us are alike; similiar; but not 100% !!!
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Cave beat me to it.
I was going to suggest re-titling this post, "Who DIDN'T have to diagnose themselves?" This thread could be much shorter.
For me, four doctors, last one a neurologist who dx'd me with MS. By then I'd read enough on LymeNet (thank you) to know what was wrong. Symptoms were textbook neuroborreliosis. Neuro insisted 'No lyme in this area,' wouldn't give me western blot due to negative ELISA (though later blot was CDC positive), claimed 'EM rash due to tick saliva,' and on and on.
Honestly, these guys get MARRIED to their misdiagnosis and they are not getting a divorce ever.
My angel LLMD signed an IGeneX scrip and faxed it to me before he even met me or took a dime from me.
And there you have it.
I'd love to see a mandatory continuing education class for all doctors to have to attend and pass a test designed to guage their actual working knowledge of lyme disease and coinfections. No take, no practice medicine.
Sorry, I'm over it now.
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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Beverly
Frequent Contributor (5K+ posts)
Member # 1271
posted
Yeah count me in too. Luckily I had a EM rash in 2001 which helped, but I had to seek out a doctor willing to give me the continual abx I needed, and it was hard.
And then I had to leave my state and head for New York where I knew there would be an ILADS doctor willing to help me get treatment for Babesia. I had to do this for both myself and my son.
I guess what I went through made it easier for my whole family to get treatment, cuz I was telling all of them you have lyme before any of them saw a doctor about it.
Thank God we have soem really wonderful ILADS doctors out there!!!!
I shudder to think what would have happend if I had not gone to New York for treatment of Babeisa......would any members of my family got the help they needed?
And ditto to everything said above, so many doctors want to stick to their old ideas..and call us lymies crazy. Posts: 6641 | From Michigan | Registered: Jun 2001
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
All I can say is Thank God for the internet.
I (after numerous specialty MD visits) googled my symptoms and actually
Two possibilities kept coming up. Lupus or Lyme.
I had already had a complete ANA panel done which was negative, so that left me with Lyme.
My biggest problem at that point was getting a duck to actually do the WB.
Most of the Specialists refused to test me for Lyme.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
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posted
Me! I started suspecting it when my only symptom was joint pain and resting my hands did not relieve it. I was 24 at the time so many of the other typical possible causes for joint pain are very unlikely at my age. I'm not happy that at the time I didn't take my own diagnosis seriously as I only had joint pain and nothing else it was easy to brush off lyme when I had no other symptoms and the Drs were helping me (your lyme test is negative, no rash, nah nah ! etc).
Posts: 526 | From NJ | Registered: May 2007
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echostef
Unregistered
posted
Me too! I owe my current treatment to myself and one of my friends. If I would've trusted the idiot docs I saw, I would be taking Xanax and getting worse. (Since most of my illness was "all in my head!!!)
Even AFTER I tested positive I stil had to argue with an ER doc that insisted I had pleurisy and "anxiety disorder" and that my tests were mistaken.
posted
Me too after 12 doctors/specialists.
Posts: 163 | From Cleveland, OH | Registered: Sep 2007
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Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
Not me.
The owner of the local feed store did!!
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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posted
Me too. I suspected lyme early on, but couldn't convince any doctors. I agree--thank goodness for the internet. Without it I would have never been able to find a LLMD-and I live in NJ--a hotspot for LD!
Posts: 418 | From NJ | Registered: Sep 2007
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posted
Me! 6 doctors, and I told each one of them that I had been exposed to ticks while hiking. Each one of them said, "there is no lyme in California". Due to the fact that I was in so much agony and could hardly sleep at night, I spent many hours scouring the Internet, and found my answer, and my LLMD. My LLMD said that I diagnosed myself, and that I was far ahead of most others.
Posts: 69 | From So Cal | Registered: Jun 2007
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posted
Can't even count the number of doctors and specialists over the past 15 years! The latest and 'greatest' was at a Duke ALS clinic where he was sure I was 'worrisome for early ALS'. My only true ALS symptom was muscle twitching...what about everything else??
My blessed sister was the one who got me started researching lyme and wow, did I have an "a-ha!" moment. It finally all made sense. BUT, my PCP wouldn't even order a routine lyme test for me. He said, "You don't have the symptoms of lyme and testing wouldn't be helpful...I think the folks at Duke will agree with me when you see them again."
Needless to say, I didn't go back to Duke where all they wanted to do was watch me disintigrate. I found great LLMDS on my own! Posts: 136 | From North Carolina | Registered: Apr 2007
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tailz
Unregistered
posted
I got so bad, I honestly thought I was dying of cancer - I was all bone, and even my bones were thinning.
I have no faith whatsoever in modern medicine. When they can't diagnosis an egg allergy - or even malnutrition without a 'lab positive', sorry, but I will never put my faith in them again.
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posted
Why is their a duck out their?? WOW, that is great news that they actually have DX. Gee, thanks guys for letting me know.
Of coarse had NO choice. I just connected the dots. Fairly easy..Being facetious
What choice did I have even after I pushed & got 5 poss. Lyme test/Elisa/WB/& Lyme antibodies. When came to only 3 bans they wrote me off. Said, was not enough, they only ran in part,anywho after 10 yrs.+ getting worse.Also High 8 bans EBV,Cytomegally, Neg. ANA. Dr. who opened my hand up said never saw tissue like mine? Thought was scleroderma, along with MS.
All saying from stress stalking/No doubt that pushed over the edge/Thanks EX...My last yrs. had few good days a week.
I was repeatedly told as many,stress,old spinal inj. or just pain all in my head which is not far from the truth,(I gather), as many of us know, not just what Dr. said.
Well, now that to my lymie friends I know their is such a thing,WOW, know can post here.lol
Yep, collapsing all over place,chronic pain+++, was tad clue, to say least.
Kerryblue/ Those who can get to LLMD/ you are lucky between all millions who are still mistreated or ignored..sigh/tooo sad
Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003
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LisaS
Frequent Contributor (1K+ posts)
Member # 10581
posted
I actually got diagnosed by a Dr. My family practitioner diagnosed me after being sick for 15 years. But after she diagnosed me and sent me to a neurologist and ID duck, she said I'd better find a new Dr. And all the Drs she sent me too told me I DIDNT have lyme. ANd then the fun journey began!!!!
just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
A couple of turning points of my life.
Went to class reuinion where first time he was back, but a classmate from Michigan who is a great plastic surgeon asked me why I was wearing those carpal tunnel braces??
Rattled off my sxs and what I was taking for what(early on here) and what I THOUGHT it was,,,and all he said was ,,,"That doesnt sound right to ME!!"
THAT put the seek in my body. Every doc I went to I rattled off my strange list of sxs,,,they all laughed and said their is NOTHING that fits all YOUR sxs. Your just getting OLD!!! Older than I even thought possible,,,obviously.
Then I had a scarey heart event. heard the heart doc say(after a cath)I wouldnt make it thru the summer,,,told me I would fall in a pile and 'die' when weather got hot. My ejection fraction(measure of heart pumping ability) was at the breaking point of living or dieing!!
I had a completely BLOCKED heart artery serving itself life giving blood. he said part of my heart died
Right about this time I posted on the SF site when anounoumous posters were still allowed,,,my list of sxs. Some strange angel posted that 'sounds like lyme to me'.
I googled lyme and found a sxs list. Was reading down list and bells and whistles were "SCREAMIONG" in my head the whole while. It was a NO doubter!!
TUTU(Bless her wonderful beautiful heart!!) befriended me and lead me to a great LLMD who confirmed the dx.
Actually BOTH of us(LLMD and I) 'knew' based on that point test he sends out when making first appt.
Cant remember the numbers but the 'have to have','proof positive' number I was about 1.5 times that number.
rest is history,,,here I be!!--just don-- SO yes,,,yesI did dx myself(with help and guidance),then had LLMD confirm THAT!!
A local duck SAYS I dont have lyme,,,he tested me for that and it was negative,,,didnt know where he sent test,,,didnt know what timing or prep to use,,,but it was negative and that 1 test tells all!!NOT!!!
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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I didnt have the bulls eye rash, but seen the tick!
The doctors I went too did the ld test, even though it came back pos, they still looked at me like i had 6 eyes.
I still had to fight for treatment
I was told I had false positives??? go figure that out!
Best wishes all
-------------------- don't give up the fight Posts: 49 | From Frankford, DE | Registered: Sep 2007
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Me too.
I saw an old Sally Jesse Raphael(sp?) show back in 87 or 88 about Lyme and a friend said, "You know, I think that's what's wrong with you." It sounded possible but then forgot it.
In 1992, I saw an ad for a Lyme hotline in the local paper. They listed 10 sx and I had all 10, and then some, so I called the 800#.
They took a checklist and I had 38 out of 43 sx.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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posted
Really had to diagnose myself especially after my primary care duck told me that my bulls eye must be a spider bite since ticks aren't out in October! And I live (and the duck's practice) is right near Lyme CT! We have to be aware of whats going on with our own bodies at all times! Margaret
-------------------- Margaret Posts: 103 | From CT | Registered: Feb 2007
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
count me in.
my story is pretty awful in that no one, not my family, not the doctors they took me to, even believed i was ill, let alone believed i had lyme (all this with a CDC positive igenex test!). i was way too ill at the time to take myself to an LLMD, so i needed some kind of support, which i wasn't getting. anyway, what ended up happening is that my family had me committed to a psych ward (they thought i was crazy, and not sick), where i stayed, court committed, for five months. i was denied lyme tx during this time (of course the ID duck that saw me in the hospital examined me for all of five minutes, did an elisa test, and said 'there's no way i had lyme') and put on heavy-dose anti-psychotics. i escaped forced electroshock therapy by a hairsbreadth.
i was finally released by the third psychiatrist to whom i was assigned, who, by some grace of god, actually believed i was ill.
i started lyme treatment immediately upon release (my best friend drove me to the LLMD).
now, three years later, my mother finally believes me. the rest of my family, however, doesn't.
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
quote:Originally posted by heiwalove: count me in.
Wow, that's terrible. I can't even comprehend how terrible that must have been. I'm sorry you had to go through that. I'm sorry your family was so uncooperative.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Me too!!
Posts: 1603 | From ny | Registered: Aug 2006
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adamm
Unregistered
posted
99 44/100% of us probably knew what was wrong with ourselves
before getting an official diagnosis.
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Me Too
I was sick for 18 yrs - Ducks just blew me off- You Look fine ect-
4 yrs ago I saw a TV show on Lyme and they showed a picture of the Lyme Bullseye just like the one I had on my leg weeks before I started getting sick-
My LLMD figured out that I have Babs Also--
Do what you have to do to get well again--Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
ME too. Although, I went in thinking mycoplasma was the issue, then learned it was a host of bacteria that I had never heard of before in my life...bartonella? huh?
Thank God for the internet and the one doctor who believed us.
Posts: 2903 | From AZ | Registered: Feb 2006
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
Never got my wife officially diagnosed. Should have treated it anyway as soon as the bite occurred.
I would not make that mistake again. But, I deferred to the experts. Found out there are no experts in my neck of the woods. Only pretenders.
D Bergy
Posts: 2924 | From Minnesota | Registered: Aug 2006
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posted
count me in. Spent 18 months of endless doctors/tests and had just decided that they would finally figure out what was wrong with me when they did my autopsy.
As a last ditch effort, I asked one of the random doctors I was meeting with to run the WB (of course I had been negative for the ELISA) and sure enough...CDC positive IgM response. If you can believe it, some doctors still don't think I have Lyme.
Posts: 561 | From mass | Registered: Jul 2007
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
Me, too. Two ER docs a week apart, in one of the most Lyme-endemic areas in CT, missed it, in 2001. I had to tell my favorite walk-in doc what tests to run. It came back CDC positive by Quest Labs.
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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posted
I have been ill for over 12 years. Over the years I have seen several primary care docs, physician assistants, a neurologist, a rheumatoligist (who gave me the fibromylagia diagnosis!), an ear, nose and throat specialist, a gastroenteroligist, had an MRI, 2 CT scans, an EGD, a colonoscopy and 2 vaginal ultrasounds. I asked for a Western Blot a couple of months ago. 4 Lyme specific-bands, told I was negative. My sister and the internet convinced me to pursue it. Igenex said positive all the way around. Started treatment this past week. Relieved, but still can't believe how this disease is missed. I know there are so many others out there who have it and don't know and it worries me.... Take care:)
Posts: 209 | From maryland | Registered: Aug 2007
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I was reading "The Rhodiola Revolution" and author said she apparently had had an undiagnosed case of Lyme for 20 years and I thought - how can you have an undiagnosed case of Lyme? That got me on google.
And then somebody told me to read Amy Tan "Opposite of Fate" last chapter, her Lyme odyssey, and I knew right there I'd found the answer. Got an IGeneX kit and found an LLMD.
Thank you Dr's Gerbarg & Brown and Amy Tan!
Posts: 227 | From South of the North Pole | Registered: Jan 2007
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posted
I self-diagnosed incorrectly, before the internet. After failed pituitary surgery(no tumor- surgeon said he didn't understand me), I went to the self-help section of the bookstore and self-diagnosed for low thyroid and candida. So then I went to a candida support group for five years.
I really didn't self-diagnose, but I was asking, so does that count?! A fire nextdoor made me chemically sensitive and I went online to ask why. A nurse in Virginia asked what my symptoms were and then told me she thought I had Lyme disease and had I ever been bitten by a tick.
Answer: yes, on my foot in 1981, a clinic removed it(I guess it was an adult female because it was in my foot a week and not leaving) and I had no symptoms at the time.
I didn't even know what Lyme was nor that there was any such thing as this spirochetal illness. Absolutely no discussion ever in my life of the existence of this. Still feels like the twilight zone...
Posts: 13171 | From San Francisco | Registered: May 2006
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posted
I didn't get my bull's eye rash until about 7 weeks after my bite, and then it looked more like a ringworm. It was gone in just a few hours. I went to my GP, who is a close friend of mine, and he laughed at me when I told him I had Lyme. He wanted to RX tetracycline. I told him that I preferred doxycycline b/c it causes less stomach upset. I had no idea, nor did he, that it was the initial drug of choice for Lyme. After weeks of emailing him info about Lyme, he finally agreed that I had it.
I eventually doubled my doxy dosage and started writing my own RX's.
Now he has Igenex testing kits in his office and has been diagnosing it. He still calle it "Lymes," however.
Posts: 75 | Registered: Aug 2005
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posted
I was lucky that I noticed the strange "bruise" on my wrist one day, otherwise I might be on some experimental ALS medication. The longer I talked with the ducks the more I realized they didn't know much and nothing real about Lyme. When I realized that I was on the ALS railroad, I *****ed about it to the young woman who was taking blood for my 5th blood test. Told her they where ignoring Lyme. She told me of a Lyme Specialist in Seattle, and secrectly wrote the info on a napkin.
The ALS doctor must make $150,000 a year, the young woman might make $8 an hour part time.
I'm sure a duck can fix a broken arm, but not much else. Posts: 111 | From Mid Michigan | Registered: Feb 2008
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posted
I see Mookie brought this thread back. Even after I got diagnosed Igenex-positive, a rheumatologist sent out for an ELISA which came back negative - "good news, you're negative", said the rheum duck, then the ID duck said he didn't think I had Lyme, then my internist said in a very serious tone of voice that the ID duck didn't think I had Lyme. Of course, all got fired.
Point being that even after not having been diagnosed by doctors over 25 years, I was still not being allowed to be diagnosed.
And another doctor said to me recently, so how do you know you're positve. I rattled off my antibody band numbers and what they meant, then looked at her for her next question. No next question. She got the point: I knew.
Well, this situation needs to change. I suppose there are many ways to do change work. I started by contacting all medical places I had been at in the last 25 years.
Now, I speak up to any doctor I go to, plus discuss the situation with the staff, as in yes, it's here and yes you could get it too kind of discussion. My opinion is, no more silence. No more taking it. Dish it back, with educating efforts.
Another educating option: we can go to www.ratemeds.com and literally rate any specific MD. For both positive and negative reports. This is another way of letting the public know about something important, like medical attitudes about Lyme disease and coinfections.
PS JimMet, looks like you somewhat educated a physician. Congrats.
Posts: 13171 | From San Francisco | Registered: May 2006
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Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
Count me in!
When I got a ring-rash, because I had a friend who told me that people she knew were locked up in psychiatric wards when they had Lyme, I went to my PCP to get tested for Lyme. Unfortunately, he sent me to Quest Diagnostics, and the test came back negative.
After I got severe tinnitus overnight some years later (had other symptoms along the way that never really resolved), another friend sent out an email listing tinnitus as a Lyme symptom!
I got tested at the now-closed Bowen Research lab in Florida, and came back with the highest level Borrellia!!!!
Then, I went to an IDS, who isn't a total dolt, and he sent me to IGenex, where my test was also positive.
So, ten years later, I'm now seeing an LLMD and doing pretty well.
Best,
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
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posted
Me too! Myself and my husband. Ugh Von
Posts: 258 | From Washington State | Registered: Nov 2005
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pamoisondelune
Frequent Contributor (1K+ posts)
Member # 11846
posted
THANKS to ILADS website, i had read about lyme.
I had 9 months of seemingly unrelated little problems. Then first week of June, i had increasing fatigue; had to take a nap every afternoon. On June 6, went to bed with a light flu, light muscle aches, no respiratory involvement. By June 8, i knew it was lyme. Saw a new,young foreign doc, told him i had lyme and wanted 400 mg Doxy/day. Two more appointments, and on June 18 i started the ILADS dose of Doxy.
I was able to convince him because of his insecurity, and because i made precise demands, and showed him a bunch of printouts from ILADS website.
Sometimes i want an insecure doc that i can push around!
Posts: 1226 | From USA | Registered: May 2007
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tailz
Unregistered
posted
I can't even remember how many doctors I saw. Lymetoo found me on the Celiac forum, starving to death. (thanks again)
Now though I'm diagnosing myself with some sort of hormone-producing tumor (most likely adrenal), and I haven't been wrong yet - so why should I doubt myself?
I DO have infection. I DO parasites. I DO have candida. I DO have diabetes (but I'm faking it out). I DO have a failing liver, clogged arteries, etc...
I went grocery shopping yesterday, and oh my God, the cell phones were out - while I was darting away from one, I ran right into another three. I gave up trying to avoid them and had the luxury of overhearing one conversation...
..."I couldn't sleep last night for some reason. I can't understand why."
???!!!
Then I drove by some monster towers on 22/78 with my daughter. I have been avoiding going to the mall because I always felt sick on that road. There was one area where two cell phone towers were almost side by side, and both of them were loaded.
We're supposed to have a wintry mix tomorrow, so now I have to cancel my appointment. It doesn't matter - I CANNOT drive that distance anymore. I just can't do it.
I know I have cancer, too. I know I do. I think I'm overproducing hormones.
'Cell Towers: Wireless Convenience? or Environmental Hazard?' Edited by B. Blake Levitt - pages 39-40
In the early 1980's, the U.S. Air Force commissioned a $5 million study into the biological effects of long term, low-level exposures in test animals at the University of Washington's Bioelectromagnetics research lab, the oldest in the country. Nearly the entire first group of test animals died of an unidentified infection.
Dr. Robert O. Becker, author of 'The Body Electric' and 'Cross Currents'...observed at the time that this was likely due to immune system suppression which made the test animals more susceptible - an observation that he and colleagues had made in research of their own. The tests had to begin again.
Several generations of rats were exposed to pulsed microwaves in ranges that simulated the levels allowed by current standards for humans. Results found increases in adrenal medulla tumors, malignant endocrine and ectocrine tumors, and increases in carcinomas and sarcomas.
The authors of the study tried to downplay their own findings and the study became controversial. (Effects of Long Term Low-Level Exposure on Rats, by A.W. Guy et al., University of Washington, Vol. 9, USAFSAM_TR-85, Aug. 1985.)
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posted
My daughter too. 8 years, untold docs and specialists and clinic - including Mayo.
Dara
Posts: 93 | From Illinois / Ontario | Registered: Jan 2008
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Yes and no. My naturopath suggested doing a lyme test, and my response was that he should test me for something I might actually have!
But I had most of the symptoms on the ILADS list, so I did it anyway. I thank God for his knowledge and insistance.
Well the Bowen test came back with a high positive, but Labcorp says I have nothing.
According to the duck experts, the Bowen test is just reporting random borrelia, not lyme borrelia bergdorferi, and isn't worth the paper it's printed on.
So I read everything I could find, and responded to lyme treatment. Now I have my life back.
If you ask a duck, I don't have and never did have lyme.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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posted
I had my hormones tested and they were all out of whack. I went on meds for them which only helped for about a month.
Then I thought maybe I had food allergies, but couldn't find any.
Finally I settled for the Fibromyalgia diagnosis, but it kept getting worse.
Finally, the thought of Lyme came into my head. (I was living in Florida, but I grew up on the east end of Long Island so why didn't I think of this before? Lyme brain!) I started researching Lyme and I knew I had it. I was tested by Bowen Research lab, but they couldn't say for sure if I had Lyme.
I found Dr. S in South Florida via internet and he confirmed it was Lyme, Babesia, and Bartonella.
-------------------- "Never underestimate the power of a few committed people to change the world. Indeed it is the only thing that ever has." --Margaret Mead Posts: 290 | From New York | Registered: May 2007
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cottonbrain
Frequent Contributor (1K+ posts)
Member # 13769
posted
me too. 16 years with a misdiagnosis of CFS. Finally figured it out myself.
there are NO LLMDs in my state, NC.
Posts: 1173 | From USA | Registered: Nov 2007
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! etc).
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Kerryblue/ Those who can get to LLMD/ you are lucky between all millions who are still mistreated or ignored..sigh/tooo sad
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I can't even comprehend how terrible that must have been. I'm sorry you had to go through that. I'm sorry your family was so uncooperative.![[bonk]](graemlins/bonk.gif)
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