Topic: Cannot believe what is going on with Lymenet
Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
I have been here about 4 years, and cannot believe what is going on here at Lymenet.
I cannot believe that they have banned members and let others back on. I want to bring something up in public because it is very upsetting to me and I do not want to post anymore on lymenet.
Gigi, it is you and your attitude sometimes that I cannot believe they at lymenet have allowed you back on.
I will share something with you all and want you all to know because it is because of you ALL that Gigi was allowed back on.
I had a horrific experience with mercury removal, 8 years ago, and I share it on here occasionally to help others and to warn them to be careful and go slow with mercury removal.
I have had Gigi, after she was let back on, tell the board that I ALWAYS paint a very dark picture of my experiences, and that when you are under the care of Good Dr's Dentists this does not happen.
Doesnt happen? I am being told that what happened to me does NOT happen, and that I paint this very dark picture of my experiences. I can say that my experiences have been MORE then dark, they have been suicidal almost, and
I was working with very good Dr's and Dentists. I DONT NEED THIS from someone on here that has HAD lyme and is better, I dont need this, do you get this all of you?? I am sick, want to get well, come on here and have to deal with this BS.
Lymenet has saved my life along with my LLMD, Lymenet is like a little gift from GOD to me, at the right time, but now, I just dont need to deal with this from a fellow poster. WHERE is the goodness in the persons heart, not speaking to me like this, buzz off.
For me to come on here, post to help others to be careful about Merucry and have GIGI call me down in her way,
I am tired of this, and all that support her, this is so terrible, it is not a place I want to be anymore.
Not only was the negative Nelly comment upsetting to me, we on here were given no apology, and now I have to listen again to anytime I post about my mercury removal experience.
I am not needing to listen to this, I am here to get well, share my experiences, good and bad, and then move on and live my life.
that is simply,
not right, and fair.
I am posting this to get it off my chest.
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
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posted
Thanks for sharing that because everyone has different perspectives and it's important to know everyone's experiences when trying something new. Unfortunately, most of us don't have access to these doctors that GiGi luckily does. We all know great doctors, but it's more hit or miss. It's important to know the dangers of treatments in order to make informed decisions. We value your opinions and help and I hope that we continue to hear from you. Many hugs!
Posts: 20 | From Philadelphia PA | Registered: Apr 2004
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charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
Trish...I'll PM you some alternate sites.
I've never had a quarrel with GiGi but I don't give a flying flip where the cat sleeps either....
Charlie
Posts: 2804 | From Texas | Registered: Oct 2000
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Trish, I relate, I really do. I felt like no one on this board cared about me because they let me be treated badly and didn't say anything- but a few did- YOU did, for one, because you had been harassed too. I think you are a wonderful person and I know that you tell the truth. I am glad you do. I think you are brave and I know you have had a hard time. I didn't think I would come back here but there are good people here- like Michelle M, who does care. I wish Cavey was still here and I am hoping she will come back. I would hate to see you go because you are one of the most honest and sincere and hurting people on here. And your support has been invaluable to me.
I can't believe the way it has been either. I think people don't notice, or if they do they don't notice the endless repetition of the same thing directed at the same people. And if you are one of those people, it hurts and it sucks.
I have lost a lot of faith in the Lyme community these past couple of months but I hvae mORE faith in certain people- and one of them is you. I would miss you so much if you left.
And your sharing your truth DOES matter, I am ALWAYS so glad to see it when you post your experience and I have always thought you very brave to do so when you have been treated the way you have been- belittled instead of supported. I am so sorry that is happening.
Sincerely, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
thanks Sarah,
I love lymenet, I really do, I feel the hope of recovery because others have been where I have been, but it is getting to me lately.
Do you know or do you remember what it was like when you had NO idea what was wrong with you? Did you go through that? I did, for years, about 15 years of not knowing what is wrong,
then I found out, and everything I have experienced in this illness has been found on
lymenet. What a relief to find a website that has everything you have ever experienced, it is like a rare find.
I just dont want to listen to this anymore though, it is not the lymenet I have grown to love, it is not.
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Dear Trish,
I have found your posts to be always very kind and honest.
I do not think you deserve to be spoken to in the manner I noticed in this post.
It appears that post has subsequently been "sanitized."
I also happen to think Cave's comments in that thread were not only typical of her but appropriate. It appears from her banning that moderators disagree.
Fortunately, there are only just a few Lymenetters who are judgmental and imperious. They do not brook dissent kindly. Owing to their apparent omniscience, no apology could ever be genuinely felt, let alone issue.
You mustn't trouble yourself with them.
Remember, for an opinion to matter to you, it must come from someone about whom you care. Remember too that cruel words tell volumes about the speaker, and not the person at whom they are directed.
Hugs,
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
Thanks Michelle,
I am very bothered by it at this time, perhaps if I was feeling better I may not have it bother me as much, I am not sure. Some may think it is silly, but it is annoying me to no end.
I cannot take it, so I feel it is best to avoid situations that bring out anger in myself. I am not good with situations like this at this time, I cannot deal with them, and erupt in anger,
I am sure it has much to do with lyme, and just being worn out.
I look back at my life and never had to deal with things like this, I just did not have it in my life,
when we get sick, we learn things about ourselves, and what we can deal with and what we cannot.
I find I am not that good at situations like this at this time.
I am not really hurt, I am more angry.
It was very easy to let things go before, but as you get sicker, my nerves are shot in all areas of my life right now.
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
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quote:Originally posted by minitails2: Hang in there. I think you have much to share and please make sure you request the removal of such offensive material whenever it appears.
Definitely! You have to be your own advocate in the social aspects of life, as well as medical aspects, as we have all learned!
Stay, Trish, stay!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Please hang in there girl. We are in the same boat and need eachother.
Anneke
Posts: 364 | From California | Registered: Sep 2005
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tailz
Unregistered
posted
When I read your posts, I can really tell you're suffering, too, just like I am - and you're honest about how you feel, which is the most important thing.
If I see a hurtful post on here, regardless of who the poster is, I highly doubt in my impulsive state I would have ignored it. I'm not saying Gigi didn't hurt you - I'm saying I didn't read the thread.
(If you dare disagree with me on EMFs though, I make no promises I won't hurt you.)
IP: Logged |
I'm back ... well, sort of back but still overwhelmed with non-LymeNet things until the middle of next week (11/15/07), however I will do my best to handle issues and objectionable posts as time permits.
So, bottom line, if you feel there are objectionable posts on the LymeNet Flash please PM me and I'll do my best to review and take action, if appropriate. I'll need information as to the Topic / Post and the specifics of what you find to be objectionable or offensive. Generalities such as "Cannot believe what is going on with Lymenet" do not give me or my team very much to go after.
I'm doing the best I can to take care of me ... please take care of YOU,
-------------------- Lou B Posts: 2200 | From Mount Hope, New Jersey, USA | Registered: Oct 2000
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Lou!*)!!!!!!!!!! We have missed you. Regardless of moderation issues!!! I have anyway, to speak/ write for myself. I am glad you are here. I am also glad Jenifer is here, she has been doing her best but has had so much to contend with. It has been strange lately, yes, there are many specific things but it is the overall-ness of it which is so weird as well. Jenifer has removed many posts lately as she has been requested to by many people- and unfortunately one poster I miss dearly, Cave76.
There was a thread where Gigi told me and Cavey to leave the board that was left up for a whole week and some other mean ones directed at me. Obviously Trish has felt some have been directed at her, too- and they have been- like the comment "Health has always drawn a very dark picture of her experiences. Do not let that scare you. This is not what happens when you do detox under the guidance of someone knowledgable." which completely dismisses her as a fellow Lyme sufferer sharing her experiences. I have found Health to be an honest and trustworthy person to listen to.
If it had been a once only it would be different but I think there is a pattern of comments like these being directed at Trish and at me. Last week I was feeling as hurt as Trish- because it is not so much the one person being so rude- it is the lack of people saying, "Hey, I know Trish and that's not nice!" and some people even joining in to be mean because they revere that other person. I personally felt very down for a few days and was deeply, deeply hurt by a bunch of mean comments and by lack of response.
My feelings of isolation with this were exacerbated with this when I wrote Jenifer repeatedly for help during this period and received no reply. Jenifer and I finally connected recently and she explained her replies were being sent to an old account of mine that no longer exists (very weird), so it appeared to me as if she had just been ignoring me. She had not been ignoring me at all which fits what I have always known her to be- a really good person trying her best.
SO, you have missed a lot and none of it fun, Lou. Sorry- not the nicest thing to come home to- but we do need you, which is hopefully nice in it's way. You are missed when you are not here!!
Take care, WELCOME BACK*)!!*! Sincerely, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Lou, I just wanted to drop a post here. Jenifer did a good job with the very childish behavior that was taking place on this site.
I tried to pull Jenifer's post where she once again stated what's and why's and asked everyone to act like adults and be able to share our ideas without the nastiness. I couldn't find the post, so....
Lou, we really need you to share with this group how we need to respect others, even if the "others" have alternative treatment methods or if someone is ABX supporter for life.
My fear, that this board won't exist if we don't find a happy medium.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Hi, Lou! Welcome back! Gosh, you have sure been through a lot.......
Health and CalifLyme, I'm sorry that both of you feel attacked or harassed. No one should feel that way here at LymeNet.
It sounds like Lou and Jenifer are willing to address problems like this, now and in the future.
Perhaps it would be best if we could all decide that this is ``A New Beginning'' for us?
Tempers really flared in recent weeks, and there were many members who made posts that were not appropriate (IMHO).
Perhaps the most `healing' thing to do at this point is leave the past alone, and go from here.
I trust that future complaints will be dealt with by the moderators. It is my hope that from here forward, members will be much more courteous and considerate of one another.
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i am so sorry that you feel this way. many times i've read things here and gone "what?". the written word can be so misconstrued as to be almost impossible to interpret.
lots of times i just try not to get involved. i have such strong opinions that i find myself practically yelling at the computer "what an idiot!! you jerk, you missed the point." amazing...
i hope you find yourself coming back again. i try to read all the posts.
i don't know the post which you're talking about. i can't remember much these days.
i truly hope you decide to stay. everyone contributes in their own way and you've helped me a lot even tho i haven't said as much.
i don't understand this banning and all, sometimes it seems rather chaotic and without reason, but then i'm not a moderator. (lou has always answered my posts and been very friendly and helpful.)
please stay, i will miss you.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
HI LOU!!! Very happy to see you back!! I hope you will be able to handle your complex life AND us! I know we're quite the handful!!
I do hope you are doing well now!!
-------------------
I'm with tailz and randi...I don't read all threads and probably missed a bunch of stuff. When conflict is going on, I'm usually not interested in being involved!
The people involved need to report any serious infractions directly to Jenifer or Lou.
Stay, Trish, stay!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
It is about time this was brought up, I have addressed this with a moderator before, I am not sure what happened, but nothing was done.
I know others feel like this, they just dont say it.
How can I just forget it, the woman is in my face everyday I am on here, it is NOT being addresesed and it is absolute Bull**** for this to continue on.
I mean, come on will you, Lyme disease is a devastating disease and if you get well from it, which some and more then some are, they you want to help others or let them know what worked for you,
ALL done of course in a gracious manner.
SO, enough of this, nothing is being done about it.
Bless you all that can tolerate it, I cannot anymore, be well and get well.
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
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Greatcod
Unregistered
posted
I very much appreciated the information you offered on your difficult experience with mercury removal. Maybe you could just take a break, amd see how things shake out around here.
IP: Logged |
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Dear Lou,
Welcome back. Hope you are doing well.
Please, please consider lifting the ban on Cave76.
Please?
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
Hi, Lou!
It's good to have you back!
Just please continue to take good care of yourself.
Andie
Posts: 2549 | From never never land | Registered: May 2005
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Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
Health, I hope you decide to stay. Hopefully things will change around here. It's been hard to read the board a lot of days.
I hope that cave can be reinstated. I still can't believe she was banned when others have been so insulting and cruel.
I certainly understand why Sarah was/is so upset.
Glad you're back Lou...
Posts: 1366 | From Southeast | Registered: Sep 2005
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quote:Originally posted by Boomerang: I hope that cave can be reinstated. I still can't believe she was banned when others have been so insulting and cruel.
ditto on that!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
quote:Originally posted by Lymetoo:
quote:Originally posted by Boomerang: I hope that cave can be reinstated. I still can't believe she was banned when others have been so insulting and cruel.
ditto on that!
Double ditto, times infinity. (My daughter claims this cannot be topped, so don't anyone even try!!)
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
I have to add 'haughty and condescending' to insulting and cruel.
Charlie
Posts: 2804 | From Texas | Registered: Oct 2000
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
i feel like this entire thread is an attack on one particular member here and it makes me really uncomfortable, really sad.
i'm so sorry you feel this way, trish. i'm so sorry you've been hurt. i say that with all the genuineness, love, and honesty i hold in my heart.
but i really don't think a whole thread bashing another lymenet member should be allowed to stand.
charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
VOT...there was a thread on just that....sabotage of sorts. It got deleted.
Posts: 2804 | From Texas | Registered: Oct 2000
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bettyg
Unregistered
posted
condor, please start a post about the new lyme board you mentioned. tell us about it.
someone emailed me about ALL advertising on it; is it to sell, or is it a FREE BOARD so advertising comes along with the board?
was this created before; i seem to recoginize parts of it. was it created when lymenet went down OR it became a severe battle fighting ground like right now?
welcome lou b! i've missed you too but hope you got some prime time vacation and working on your other BIG projects you mentioned in pm to me!
YOU TAKE CARE OF YOU; ME, I'LL TAKE CARE OF ME!
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Very well said heiwalove.
This thread is highly ironic. Far from the kind behavior that I would expect from fellow lyme sufferers.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
well I for one am not aiming my posts at GiGi....I'm aiming them at the poor delusionals who talk to their pills....
and the pills talk back.
HELLOOOOOOO Posts: 2804 | From Texas | Registered: Oct 2000
| IP: Logged |
posted
Now what happened to Cave? She seems very helpful and I thought I just read a post...?
To make the best use of "boards" like this, you have to realize that we are all people with many different problems. But we have one problem in common-Lyme. We must transcend and appreciate our differences, not wallow in them, and have compassion for each other. When any of us throws forth an inuendo or an opinion, we might, ... horrors... be wrong! We always have to assumne that there is sincerity somewhere in there, while at the same time saying what needs to be said when mullfit becomes apparent, but not letting ourselves get bent out of shape. Too often, we forget to give each other the benefit of the doubt- I mean, heck, we're lymies, for Pete's sake! If somebody goes off on a rant, let's NOT "go after them" and try to "get them banned"! Those of us with an inclination toward ranting are usually those who have something to say; let the stuff that irritates us roll off our countenances like water off a duck's back, and ferret out the stuff of value. The only people to "ban" are those who insist on being incessantly, blatantly nasty despite sincere efforts to help them. But really, folks we have lyme ***, or rather, uh, posterior, to kick; we can't blow our energy getting on each other's cases!! DaveS
DaveS
quote: I wish Cavey was still here and I am hoping she will come back. I would hate to see you go because you are one of the most honest and sincere and hurting people on here. And your support has been invaluable to me.
I can't believe the way it has been either. I think people don't notice, or if they do they don't notice the endless repetition of the same thing directed at the same people. And if you are one of those people, it hurts and it sucks.
I have lost a lot of faith in the Lyme community these past couple of months but I hvae mORE faith in certain people- and one of them is you.
Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
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charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
Good point Dave!
Posts: 2804 | From Texas | Registered: Oct 2000
| IP: Logged |
posted
Now what happened to Cave? She seems very helpful and I thought I just read a post...?
To make the best use of "boards" like this, you have to realize that we are all people with many different problems. But we have one problem in common-Lyme. We must transcend and appreciate our differences, not wallow in them, and have compassion for each other. When any of us throws forth an inuendo or an opinion, we might, ... horrors... be wrong! We always have to assumne that there is sincerity somewhere in there, while at the same time saying what needs to be said when um, mullfit becomes apparent, but not letting ourselves get bent out of shape. Too often, we forget to give each other the benefit of the doubt- I mean, heck, we're lymies, for Pete's sake! If somebody goes off on a rant, let's NOT "go after them" and try to "get them banned"! Those of us with an inclination toward ranting are usually those who have something to say; let the stuff that irritates us roll off our countenances like water off a duck's back, and ferret out the stuff of value. The only people to "ban" are those who insist on being incessantly, blatantly nasty despite sincere efforts to help them. But really, folks we have lyme ***, or rather, uh, posterior, to kick; we can't blow our energy getting on each other's cases!! DaveS
Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
| IP: Logged |
posted
oh, sorry, my computer did some digital hiccuping of sorts, leading me to send again, but I see it must have gone through (haven't gone back and checked it, though...) DS
Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
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charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
Hiccuping beats vomiting any day! Posts: 2804 | From Texas | Registered: Oct 2000
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charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
Cavey is on several other boards...she's fine but I miss her being here too. I'll PM you the sites if you want.
Charlie
Posts: 2804 | From Texas | Registered: Oct 2000
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posted
Well, I'm truly sorry that anyone feels unappreciated on this board but it seems to be one group against the other group and why is that? I am new here, but I've quickly come to realize that there is a tit for tat thing going on.
------- ***Minitails, said:
"But instead, some are treated to taunts, name calling, insults, or baseless accusations simply because they choose to stay true to themselves and their experiences." *** ------
I find that a strange thing to say as I was Taunted, Heckled, Baselessly Accused of Being Scott in disguise and told "my keystrokes were being recorded" and I felt like I had stalkers on one of my first posts here.
I'm not the only one who thought a remark made to Luvs was threatening, maybe that should have been reported to the admins?
Then I was called "McNastypants" on the thread this crew started and then I read the post where JimBob was called JoeBob, BillBob, WhateverBob and on and on. How insulting -- not something I expected from adults.
Gigi is very passionate about what she believes will help people and maybe she should choose her words more carefully, but she is not the only one. Sarah also posts most passionately, perhaps many times on one thread and she reminds me of Gigi.
My experience as a newbie here is that there is a lack of tolerance for opposing opinions and viewpoints.
I'm sure the group that was having fun tag-teaming all the alternative posts and being extremely sarcastic, rude and disruptive thought it was all a lot of fun. They did not seem the least bit concerned if others were offended.
There seems to be a lot of "the pot calling the kettle black" going on here.
I would just like to explore the different options for treating lyme in peace, but apparently that doesn't happen here.
I, too, am seriously wondering if this board is a beneficial place to be. I'm looking for help for myself, my daughter and my 2 beautiful grandbabies all with lyme and all misdiagnosed, but perhaps this is not the place.
Looking
Posts: 590 | From Canada | Registered: Oct 2007
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
I agree 100% with Looking.
I get a great laugh reading how GiGi is rude but Cave is witty. Certainly GiGi has been dogged to the point of rudeness in some of her previous posts for which she has apologized. But I never saw a post where GiGi intentionally sabotaged, ridiculed and hi-jacked the post with jeering insults which some of you call "witty". Cave was not alone in this. She always had a partner or two to help her in her sarcastic banter.
Obviously, anyone who agrees with you and your protocol is witty and those that don't are rude, ill-informed and predators of the sick and niave.
Why not move this post to "Off-Topic" as I can't see what relevance it has to "Medical Questions".
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
I have nothing to say except I lost my morning coffee over charlies comment about people talking to their pills and they talk back. I had a visual and spit coffee everywhere.
Laughing matter aside though, no one should feel attacked here, yet it happens.
-------------------- You want your life back? Take it. Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
Trish,
At the recent ILADS conference, one LLMD mentioned that he'd had his mercury fillings removed. He said it was a very prolonged and painful experience, and he did NOT recommend it for everyone, even though he does recommend many alternative therapies.
Hope that helps,
Shaz
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
quote:Originally posted by Michelle M:
quote:Originally posted by Lymetoo:
quote:Originally posted by Boomerang: I hope that cave can be reinstated. I still can't believe she was banned when others have been so insulting and cruel.
ditto on that!
Double ditto, times infinity. (My daughter claims this cannot be topped, so don't anyone even try!!)
Agreed.
Welcome back Lou, hope all goes well for you.
Trish, sorry to hear that you feel that way, and I hope you will continue here on lymenet.
I hope Cave can come back soon to Lymenet. It seems diminished without her.
Yes, Cave has a sense of humor, which she has often used to question the unsubstantiated claims of substances or processes promoted as miracle cures for whatever ails you. Hard to believe that some would take her questions and intelligent skepticism about products or treatments personally. Could these folks who complained about Cave be profiting from these products? It does make one wonder.
Hopefully lymenet will continue to be a safe place for critical thinkers like Cave who have been so generous in sharing their knowledge and experience to help others with TBDs.
From what I have read recently, there are a couple lymenetters that have been more noxious, and far less caring, than Cave in their writing on this forum. Sounds like these may be the same folks who complained about Cavey. These are only a very small minority of lymenet posters, and perhaps the best thing we can do is ignore them, or speak with the moderators when they are disruptive.
The moderators have done the best job that they can, and deserve all our support for their work.
Sarah's treatment has been regretful though, and she deserves alot of thanks for tireless and generous work on behalf of lyme patients.
Hopefully she will not be harassed further by anyone who disagrees with her, and that harassment will be dealt with swiftly by the moderators of this board.
[ 09. November 2007, 11:24 AM: Message edited by: Vermont_Lymie ]
Posts: 2557 | From home | Registered: Aug 2006
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
quote:Originally posted by luvs2ride: Certainly GiGi has been dogged to the point of rudeness in some of her previous posts for which she has apologized.
Sorry - I must have missed this.
quote: Why not move this post to "Off-Topic" as I can't see what relevance it has to "Medical Questions".
It seems to me it has everything to do with the health and continued longevity of LymeNet as a community. Tucking it out of sight (like the posts concerning the banning of Cave) won't fix it. However, I'm sure the moderators will do whatever is the right thing.
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Michelle M, my 10 year old agrees with your daughter re infinity- !!
What I talked about in my response to Trish was the way I was feeling and the way she was feeling. I don't believe I bashed anyone.
I also hope Cavey gets to come back!!!
Vision, I agree with you. It's weird. Sincerely, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Gee, Charlie - can't you be funny without bashing someone's methods or beliefs?
Ironically, if you take the time to look around this board and notice the `alternative' people who are getting well, it becomes clear that 90% of these people got help from the very thing(s) you are making fun of.
I appreciate humor, but not when anyone is the ``butt of the joke''. And that's been the whole problem here for a very long time.
And like Cave always said:
``It depends on whose ox is being gored.''
I think you'll find that if you don't mess with anybody else's ox, they won't bother yours.
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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You have been helpful to me, although you may not know it. At the same time, there are times I would rather have not found out I have these diseases. Because my relief was extremely short lived considering what stresses there are in getting treatment.
I had the mercury removed from a maxillary tooth on the same where the jaw bone area had been a longstanding pain problem. Previous to this, there was no maxillary pain. The dentist put an onlay on this tooth. Ever since then in 2006, the pain is worse than it ever was. It has traveled beyond my jaw and up into my maxillary and often also into my eye. The dental stuff is real confusing with all the differing opinions about root canal. If I had it to do again, considering this pain, which is likely now involving trigeminal neuralgia, I do not know that I would remove that mercury.
But I can't blame anyone for that.
Though it is important to hear all sides of experiences.
Concerning Cave, I was rather shocked that she was banned! I found her to be a mainstay, as if she was lymenet herself. I don't know what happened and at this point, really can't add it to my brain....only have a limited space, must use it wisely!
At the same time, I have read some of these threads and do find it disagreeable to have a statement like "Health always paints a dark picture of her experiences". What that sounds to me is, a bit of ignorance as to exactly where you are coming from with regard to how deeply the diseases have infiltrated your CNS. Well, unfortunately for me, I do relate to you and hear where you are coming from. It seems Pollyanna to hear how miraculous some of this stuff is made out to be when truly, we are all different.
We have different DNA and living arrangements, different duration and onset.
Anyway, just wanted to add my two cents because I don't really understand what is going on here!
And I wonder why the Christians and Muslems can't get along. Each one thinks the other is not right. For the sake of the earth at this point, no less!
Charlie, remind me to never invite you over when I am taking my pills! Or when I am putting my amethyst crystals in water to bathe in the sunlight before I drink it!
This disease does bring desperation. We desperate will go to many measures to find relief.
And I think miracles do happen, especially with the right effort. Of course I'm not herxing so don't ask me to repeat this in two weeks!
Plus, I may have forgotten that I posted it at all!
charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
quote:Charlie, remind me to never invite you over when I am taking my pills! Or when I am putting my amethyst crystals in water to bathe in the sunlight before I drink it!
....Actually I do something similar when I dip lime and salt in my Corona before I drink it. (and I bet it tastes better than your water)
Charlie
Posts: 2804 | From Texas | Registered: Oct 2000
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Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
this POST is a post that should have been posted a long time ago.
I finally did it, and have no regrets to it. If you and this board want to support Gigi, then you do so, but each time I want to post, I have to wonder IF I am going to have something said to me by Gigi, some remark that is
harsh, and not at all kind, or making me feel like I am some ignorant lady. Dont ever tell me that this woman is kind hearted, give me a bloody break.
I am sick and tired of this BULL**** said to me with this lady and the remarks that are going to slip again from her mouth.
Am I bashing someone? I am telling it like it is.
I still WANT to post on here, I have several questions I wanted to ask, one actually about Primal Defence but I am not going to be a part of a board
that Gigi is. I mean this, call me what you like, do it, you already have, I am not looking for sympathy, I just dont want to get so angry and upset when I have to listen to some person say this to me about the mercury, to get me so riled
up I hate this board.
Oh, and by the way, I sure the heck can let A comment go, but when it comes again, and then later again,
no, it is hogwash.
Stir up the board? am I really stirring up this board? Yes, I am, but it would not be stirred up if a certain person was a kind decent person.
So, shake a way, shake rattle and roll.
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
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RoadRunner
Frequent Contributor (1K+ posts)
Member # 380
posted
some of you people need some cheese.... some of you people don't have a sense of humor either. lighten up
RR
-------------------- "Beep Beep" Posts: 2630 | From ct | Registered: Nov 2000
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quote:Originally posted by Vermont_Lymie: From what I have read recently, there are a couple lymenetters that have been more noxious, and far less caring, than Cave in their writing on this forum. Sounds like these may be the same folks who complained about Cavey.
I would bet lots of money that you hit the nail on the head!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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