posted
Hi everyone--I came across this YouTube link today, and it touched me deeply. Marie, a young girl from British Columbia is desperately sick with Lyme Disease, Babesia, Bartonella and Tulameria. She is being refused help in BC, and the one real LLMD in Canada was just forced to retire. Her story has been on the news in BC several times.....
This video shows Marie after a recent 16 day hospital stay---She was discharged after her attending physician found "No evidence of Lyme" (She has tested positive at Igenex twice, and tested equivocal on the Canadian ELISA test!)--And the hospital claimed she was "Well enough to go home"---View this video, and you will agree with me, she is not well at all, she is desperately sick and suffering.
posted
This is so heartbreaking, to see such a lovely young person so ill.
I hope she and her family get the help they so desperately need. Will try the e-mail you posted.
Posts: 23 | From San Francisco, CA | Registered: Apr 2008
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posted
For more information on Marie McQuhae, see the links below which contain posts with links of television interviews given earlier this year by Marie and her parents and a recent letter from Jay McQuhae.
Lymenet Forum post started by FuzzySlippers, April 29, 2008 Titled, "New Lyme Video (Marie McQuhae's Story)"
posted
up for Marie.... Any Canadian Lymies have a GP or know a doc who can help her?? There has to be something...
Posts: 29 | From New York | Registered: Aug 2007
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posted
Up for Marie. I am both outraged and grief stricken. I have not yet watched the entire video as when I was doing so, my 16 year old daughter became way too upset. This is criminal - and I know there are so many more like Marie.
Posts: 566 | From West Coast | Registered: May 2008
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
I'm going to e-mail them the resources I have. I'll talk with my church -- it's a really huge one -- and I'll see if I can come up with some ideas.
I'm not sure if they have access to medications in any respect or what their situation is.
I think the key would be a physician to treat her from a-far, but to prescribe the treatment, and then they either buy, or some of us can help get the medication to her somehow. If I'm right, a doctor from the U.S. can write a prescription, and the online order can be used to fill the prescription at an appropriate cost.
There are LLMD's who would treat a case like this, I know that much. Many of us travel far across country for car.e Some of us fly Internationally for care.
I'm sending them an e-mail right now.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
Thank you for watching the Save Marie video. As you know from the video, Marie is a Lyme disease sufferer seeking treatment in a very hostile medical environment in British Columbia, Canada. She is desperately ill and her family has exhausted nearly all its resources battling her illness outside of the Government ``Healthcare'' System.
Marie's status:
She continues much as when she left the hospital. She struggles daily with tremendous pain and difficulty trying to breathe, eat, sleep, walk, talk, etc. She may end her struggle by ``Paying the ultimate price!'' - Jay McQuhae (Marie's father)
What's next for Marie?
It appears the highest priority may be to get her strength back with IV Vitamins, nutrients, and such so she can handle further treatments. She has lost a great deal of weight to the point where she is losing muscle mass. All that will depend on the doctors if we can afford to get one who will treat her.
Here's how you can help:
1. Donate to Marie's medical trust fund if you can, and/or find others who will (See below for details).
2. If you are unable to give personally, perhaps you could take up a collection at your workplace, club,church, etc. Many people can't afford $50. or even $20. However, many people might be able to throw $5. in a collection pot. Perhaps you could put us in contact with a good fund-raiser?
3. Donate your air miles for transportation, if needed.
4. Spread the word: Send this Youtube link http://www.youtube.com/watch?v=qpnyMIPglLI to everyone you think will view it (and request that they forward it). Add the link to your favorite site,send to groups, churches, etc. It's the latest video update, and shows Marie's pitiful condition after she was discharged from a 16-day stint in the hospital on the grounds that she has ``NO'' evidence of Lyme disease and is doing well. She has tested positive for Lyme/multiple Lyme-related co-infections, and has been refused treatment by our Health Care Regulators. Please be sure to state that it's important to view the credits as they are part of the story.
5. Let those in authority know that this is unacceptable. Write to your government representatives and health authorities whose addresses can be found at: http://canlyme.com/writegov.html
7. Help add to Marie's medical team. Do you know any doctors who are Lyme Literate and can help diagnose and treat Marie?
8. Attend a rally at the BC Legislature on Thursday May 15th, 2008. (Marie's 24th birthday) To be held at the legislature grounds in Victoria (on Vancouver Island). Even if you cannot attend, please tell others.
For information on how you can donate to a Medical Trust fund that has been set up for Marie, please email: [email protected]
Thanks everyone! Posts: 29 | From New York | Registered: Aug 2007
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
I gave her a lot of information, her father that is.
I gave him my nutrition shake that I recommend to other patients who are undernourished and unable to tolerate food well.
Her G.I. system isn't shot, but she has a lot of inflammation and nausea in the stomach, so Zofran was recommended, along with a Proton Pumpinhibitor. These are both simple enough.
I then encouraged them to visit their local Bodybuilding shop where weight trainers go. These shops are usually health food stores. Different bodybuilding supplements contain different nutrition depending on the persons preference. I suggested buying a high quality supplement with whey protein, which most patients can tolerate, even if ill. A scoop or two mixed in a small cup of water can provide protein, and combined with a vitamin like ALIVE -- together they can be the beginning of a foundation for recovery.
Once the stomach settles from the PP inhibotor and Zofran, then the real fun begins. The recipe is as follows and is obviously not consumed all at once.
1: 4oz Cottage Cheese 2: 2tbsp Olive Oil 3: 4-8oz Yogurt 4: 2oz Oatmeal 5: 2scoops Whey Protein 6: 3-6oz of Fruit 7: Add stevia as needed or Splenda.
If she is hypercarb sensitive, the fruit should be just fine, and the yogurt should be sugar free. The sugar that remains in plain yogurt rarely upsets most people's stomaches while on the PPI unless their G.I. system is in major distress. I spoke with an associate of Marie's, and that does not seem to be the case.
Her primary issue is ongoing infections, medication intolerance, malnourishment, and chronic debilitating fatigue and a need to sleep.
I recommended that she see a physician here in the U.S. -- that we could get a collection together to help her travel, and I even found her a place she might be able to stay, but the girl has to consent to it first. I don't know if she will -- it's a far stretch, but she did say she'd consider it.
Then, she can stay up to 3 months here, and the airport services both ways can provide disability services, which is easy to deal with. They get you through security, through the airport everything -- she wouldnt' have to move much at all.
Then once she's seen someone who can treat her from a distance, she can use the prescription online to purchase the medications which can be delivered to Canada (Ironically from a Canadian Pharmacy), and she could do treatment in that way.
Right now she is still on treatment, but she can only tolerate extremely low doses, and I sent Dr. B's guidelines to let them know that the doses must be moved only gradually. I discussed detox, using Charcoal to begin, as she can't maintain bowel movements. She needs a constipating product and a detox item. There are stool formulas which work combined Benzonite Clay and Charcoal, but this was my initial recommendation.
I recommended all these things since she's seeing a ND who is on the Lyme List. So the ND can verify that, and she can verify my other ideas with some of the LLMD's on the list I gave her, as well as from Dr. B's guidelines.
Last but not least, I recommended medication combinations as she progresses as suggestions. All this information was told to be run past family, her ND, and other doctors who she eventually will see.
Marie's parents must overcome their current drive to fight the system in BC Canada. Instead of wasting time trying to get blood from a rock, they ought to suspend their rage and frustration with the CA health system and come to the United States to get the ball rolling on a solid treatment with a physician specialized in a case like Marie's which I gave her, who will also treat her from miles away and do phone consulatations, and who won't break their wallet.
Some of this information is new to them, some isn't -- but I wanted to let people know what I thought and said. And if you think so of this information should be reinforced, then write Marie and tell them you think so, or give them your own ideas!
I also talked to my mother back home in the states and asked her to talk to my church. I go to Bethany Assembly of God, we're a Pentecostal church (Yeah, we're insane), but I love it there and they're all so nice. It's a massive church, so I asked my mother to talk to the Pastor's about setting up donations and or helping with a charity. She'll get back to me on that.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
Just found out from Bill, who is the nice guy answering any emails that go to [email protected] for Marie McQuhae and her family....
The family is now set up with a Paypal account. If you would like to make a donation, just sign into your Paypal account (or sign up for one at www.paypal.com, it's free).
Then you can make a donation either by transfer of funds from your bank account. Or you can use a credit card. You specify where you want the money to come from.
And that's it. Pretty easy.
The transaction will show on your Paypal account as going to Jay McQuhae, I believe. The McQuhae family will then be able to move the funds into the trust account they have for Marie.
If you want more information, please send an email to [email protected]. I believe Bill is updating the sheet with the information on all the ways to donate. (Paypal is not the only way)
Happy donating. Posts: 23 | From San Francisco, CA | Registered: Apr 2008
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Are there any other Vancouver Lyme Members here on Lymenet, or does anyone know any? PM me. Also, PM me if you know Marie personally or the family.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
pmerv
Frequent Contributor (1K+ posts)
Member # 1504
posted
Many people are concerned about Marie McQuhae after seeing her tragic video. However, the video does not tell the complete story. There is a lot going on behind the scenes and many people, including several doctors, are stepping forward to help Marie. Medication and testing are being donated, and people are planning to set up a trust fund as soon certain issues are resolved. I will post updates as more can be told publicly.
For more information, contact Sherry Drew
-------------------- Phyllis Mervine LymeDisease.org Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001
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pmerv
Frequent Contributor (1K+ posts)
Member # 1504
posted
I didn't realize Sherry's email address wouldn't come through. Her email is sherdrew at hotmail dot com. Or you can contact Jim Wilson at the Canadian Lyme Foundation. jimwilson at telus dot net. Many people are trying to help Marie. I would not send any money until the trust fund has been set up.
-------------------- Phyllis Mervine LymeDisease.org Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001
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bettyg
Unregistered
posted
quote:Originally posted by pmerv:
I didn't realize Sherry's email address wouldn't come through. Her email is sherdrew at hotmail dot com. ************************************
NOTE: I DELETED CANADA'S JIM WILSON'S NAME.... HE HAS NOTHING TO DO WITH THIS AT ALL!!! done by family! continue reading downward!! ******************************************
Many people are trying to help Marie.
I would NOT send any money until the trust fund has been set up.
phyllis, thx for update on marie's special funding!
METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Marie was offered complete help, everything she needed. Special flight (s) back and forth from BC to NY, housing, hospitalization, access to the top specialists competent in Lyme and co-infections from New York, New Jersey and Connecticut.
She would be taken care of completely by another family that I contacted. Marie's family declined.
Hope things improve for them all, especially Marie. Can't say I didn't try.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
Just to clear the record, the Canadian Lyme Disease Foundation is not involved with this fundraiser. It is an undertaking of the family and we have nothing to do with it. There was a thread posted on our forum and I'm guessing that people assume therefore we are somehow involved.
I am not a contact person for this, and in fact I know very little of what has gone on.
Jim Wilson
Posts: 144 | From British Columbia | Registered: Sep 2002
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posted
I have been in contact with the McQuahe's and offered my home free of charge for Marie and family to stay here so that she could see ANY of the TOP LLMD's 3 hours from where I live.
I am sick also but want to help in anyway I possibly can. I figured they could fly here and stay as long as they needed.
They felt Marie was too ill to travel here so they declined.
I really wish I could donate money, but I have none. I figured donating my house was the next best thing. They are very grateful for everyone helping or wanting to help.
I just pray for them everyday and hope Marie gets the treatment she needs soon....
-------------------- "You'll be surprised to know how far you can go from the point you thought it was the end" Posts: 946 | From Massachusetts | Registered: Apr 2008
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Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
I personally would never take Charcoal, it could very well absorb the medications,
and I am not a big believer in Detox because it did not work for me, my body detoxed on its own, I just went slower with antibiotics and worked up,
in fact I found that certain supps made me worse, and just sticking to antibiotics and probiotics and yogurt were what worked for me.
On a limited budget I dont feel personally that anything should be added in but antibiotics,
probiotics and yogurt if you can handle this.
First see how you respond to antibiotics alone, then add in other things, this is what I did, and then I KNEW
that the antibiotics were working.
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
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