posted
My 24 year old son has neuro-psych Lyme with Bartonella, Babesia and Mycoplasma. Most of his symptoms have resolved. He is left with seizures and extreme fatigue. He is "isolated IgG deficiency" and his doctors are going to try him on IVIG. They told us about the sub-cutaneous form which can be done once a week without a home care nurse. Has anyone had any experience with this method?
Thanks for any input, Karen
Posts: 89 | From Long Island, New York | Registered: Mar 2007
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quote:Originally posted by Dan's Mom: My 24 year old son has neuro-psych Lyme with Bartonella, Babesia and Mycoplasma. Most of his symptoms have resolved. He is left with seizures and extreme fatigue. He is "isolated IgG deficiency" and his doctors are going to try him on IVIG. They told us about the sub-cutaneous form which can be done once a week without a home care nurse. Has anyone had any experience with this method?
Thanks for any input, Karen
IVIG = INTRAVENOUS Immune Globulin
Hence there is no such thing as "subcutaneous IVIG" as IVIG by definition...is INTRAVENOUS!
There is IMIG (intramuscular Immune Globulin)...but I haven't ever heard of subcutaneous IG
Posts: 99 | From Bucks County, PA | Registered: Aug 2008
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Medications can be administered IV (intravenous), IM (intramuscular), subcutaneous, oral, transdermal...
But you can not have a "subcutaneous IVIG". Sorry if I seem anal about this, but when you write something so obviously untrue, it is very frustrating.
There might be subcutanesous Immune Globulin (SCIG) but you can't have a "subcutaneous intravenous" medication"
Posts: 99 | From Bucks County, PA | Registered: Aug 2008
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You are right. There is no such thing as a subcutaneous IVIG. I had a momentary brain lapse here. I was trying to clarify that yes there is a subcutaneous version of immunoglobulin.
Let's stick to what the real question was. Is there a subcutaneous form: yes. Different forms work in different ways for people depending on their circumstances.
Posts: 984 | From San Diego | Registered: Nov 2006
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posted
Sorry for any misunderstanding, but that is how the doctor described it to us. Obviously if it is subcutaneous, it can't be IV. So my question is has anyone had any experience with subcutaneous immune globulin? Thanks for any help or insight you can give us.
Take Care, Karen
Posts: 89 | From Long Island, New York | Registered: Mar 2007
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posted
I know that when my husband started IVIG a year ago the nurse mentioned that maybe down the road we would switch to subcutaneous as it would give us more flexibility.
posted
You are right, I am anal about it too BUT even the docs and pharmacists still call it 'home' IVIG.. You have nothing to be sorry about, the best of the best still refer to it as that so how would you know otherwise! You're overwhelmed as it is so no worries here
Can't get them to change I guess. I am supposed to get the SC IG next week, it has been on hold. I am frustrated as I was told it would be a 'shot' but that's not so- have to do it via pump over four hours, it is subq ..
I have a friend who is on it as well, hers is also on hold as she developed asceptic meningitis. It is done at home, the nurse has to stay, it's a blood product with many MANY donors so the nurse is required to monitor.
I had a few doses in the hospital and did fine.. Just be sure that if they try to pre med with steroids not to let them side affects can include bad headaches and chest pain-but that is rare.. Just had to tell you.
There is one maker of the SC IG 'Vivaglobolin' and they have a fairly decent informative website..Good luck and keep us posed and I will do the same
Posts: 49 | From Louisiana | Registered: Mar 2009
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Parisa, Great website, thanks so much. The doctor had given us a DVD, but we haven't been able to get it to work, so the website was a big help.
Lostgurl, Good luck with the immunoglobin next week. Dan probably won't be getting his until the following week or so. Please do keep us posted on how this works for you and we will do the same. Thanks for all your help, Karen
Posts: 89 | From Long Island, New York | Registered: Mar 2007
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