posted
Tracy, the fact that he'd give you some hints, but won't tell (as in this thread) is strange, counterintuitive, and seems to be indeed provocative behavior. If he was on the level, he wouldn't be playing "here's a hint, and no that's not it " games. imho.
Posts: 76 | From tolland county, ct | Registered: Jul 2008
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
You can access lymechat from www.lymefriends.com or there are direct links posted on threads here. I'm sorry, I have to pull them up to get the direct link.
Email me at [email protected] to get the password for it. We've had a troll problem of late.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
I am glad James is okay. Given the complexity of Lyme disease, I just don't believe that one chemical found in a common food can alleviate Lyme and all of it's co-infections, viruses, fungi, parasites/worms etc. It's just not in the realm of common sense.
Even the principal of alkalizing which changes the inner terrain and doesn't allow these pathogens to survive takes a lot of persistence and a long time to get rid of all the infections.
I know when I have started on a new protocol and felt and saw things dying and felt better initially, it was never that easy.
"He just wants to retain the credit for his hard work". He can put up a website with a video of him using his microscope showing the pathogens dying. He can date it etc.
That's what the people who put up www.lymephotos.com did. All they wanted was for people to get well. They have my respect!!!
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
I eat half a litre of organic probiotic yogurt a day. I am on my way so. happy days! haha
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Off to buy 10 gallons of Dannon. lol.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
This is one of the reasons I quit reading these types of forums. One or two egos are more interested in getting attention than actually doing something constructive. What is constructive about a post that hints at something that helps but won't say what it is? Either say nothing at all or wait until you can fully tell your story. Otherwise, it is just an ego thing. very irritating.
Posts: 375 | From Southeast | Registered: Sep 2002
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lymestop
Unregistered
posted
Lactic Acid
Eat Yougurt and then exercise !! : )
Lactic acid is primarily found in sour milk products, such as: koumiss, leban, yogurt, kefir, and some cottage cheeses. The casein in fermented milk is coagulated (curdled) by lactic acid.
In animals, L-lactate is constantly produced from pyruvate via the enzyme lactate dehydrogenase (LDH) in a process of fermentation during normal metabolism and exercise.
It does not increase in concentration until the rate of lactate production exceeds the rate of lactate removal which is governed by a number of factors including: monocarboxylate transporters, concentration and isoform of LDH and oxidative capacity of tissues. The concentration of blood lactate is usually 1-2 mmol/L at rest, but can rise to over 20 mmol/L during intense exertion.
Lactic acid is widely used for reducing the number of pathogenic bacteria like E.coli, Salmonella, Campylobacter, and Listeria on animal carcasses like beef, pork, and poultry during the slaughtering process.[7]
djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
this is hogwash and a waste of all your time.
this guy has been posting nutso ideas for years now.
EVERY DAY HE HAS THE CURE.
NONE of them ARE it. THERE IS NOT A MAGIC BULLET FOLKS.
IT TAKES YEARS TO REBUILD A BROKEN BODY AND IMMUNE SYSTEM.
the sooner you all realize that the better off you all will be.
INSTEAD of wasting your time discussing FLEA medicine AND A MYSTERY CURE (there is NONE) you could be gathering info and assembling a comprehensive treatment protocol that actually will get you well.
this is disgraceful and everything that is wrong with LN.
the only people left on here that have any sense are not being listened to, its sad.
perhaps keebler, myself, and the others who are the voice of reason and proven methods should title our threads WE FOUND THE CURE in order to invoke a better response.
i am all for alternative measures to regain health but this is a crook of you know what.
you should all be ashamed.
i will eat my shorts is james finds the cure, WHICH THERE WILL NEVER BE, BECAUSE LYME IS 20 THINGS ALONG WITH LYME ASLL OF WHICH CANNOT EVER EVER EVER BE TREATED WITH ONE PILL.
thinking cap time thinking cap time.
james being banned is entirely appropiate IMO and until what he says is actual info that can be applied i say leave it that way.
there are people on here pouring their hearts and souls into threads trying to help people only to have their words fall on dead ears while jamescase (and what an appropiate name THAT is) spouts the stupidest and most ridiculous info i have ever read.
if this is too harsh for you all SOB.
its my 2 cents and this is a free country.
i have been to hell and back and walk through hell every day with various lyme patients, devising treatment plans and reviewing options all of which do NOT include frontline collars, mystery substances, or anything else THE CASE suggests.
these threads are like TMZ TV, dominating a somewhat legitmate forum that is intended to help others get well. NOT disseminate BAD info.
lets all get our heads on right and remember where we came from, where were going, and how were going to get there.
derek
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
I am shocked and disappointed that James has been banned from lymenet. The fact that he is banned for being excited about his findings and giving us some hope for the future is absurd to me.
Of course I would love to know his findings, but I don't for a minute think that he "owes" us this information. He apparently spends most of his time doing tests on his own blood and studying the results under the microscope. Shouldn't he be rewarded for this (notwithstanding his remark about socialized medicine!)?
OK, the hints he gives may seem like teasing, but I don't think this is his intention and we really just need to get thicker skins. Can't we be happy he is doing this because it could benefit us eventually?
It may turn out to be nothing, but there is a small possibility that it could be something real. This is how discoveries are sometimes made...not always by big pharma!
So, now by banning him from lymenet, we shoot ourselves in the foot...we could have found out info perhaps after a provisional patent is filed (a relatively quick process from what I recall), but now we know nothing and if it turns out to be something big, we certainly won't find out about it on lymenet before anybody else.
I was going to ask what other sites he visits...so thank you Tracy9 for sharing the info. Guess I'll be spending a lot of time over there.
posted
By the way, I don't think that he has found the magic bullet that can cure lyme alone overnight, but I am just open to the possibility that there is something yet undiscovered that could speed up the current "proven" lyme treatments.
That to me is the beauty of lymenet...there is so much information and we can read what we want and choose to comment on what we want. If we want to waste our time reading posts by someone who may be a bit unconventional or even half crazy...so be it...
That's why I guess I have a problem with him being banned.
Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
quote:Originally posted by Keebler: -
No cure can be found - or tested and documented - in one day. Rubbing something on an ear is not going to cure lyme by the next day.
-
True.
I think the lymenet banning was appropriate, as sad as it is to see anyone banned from lymenet.
James has been risking his own safety and life by his experimentation with any type of chemical that catches his day to day fancy. In these risky and self-destructive efforts, he is greatly encouraged by the attention he receives on lymenet.
In just the last two days that he posted, he experimented with two vet pesticides, 2.4 IM bicillin, augmentin, heparin, and a slew of other drugs that he takes daily in addition to his "mystery" new cure. Just check his multiple threads to see the large combination of chemicals, including multiple abx, he has used in the two days prior to his recent miracle cure.
In that way, he never had any findings on his new mystery chemical. Since he had taken bicilin, several pesticides, augmentin, heparin, and other drugs within one or two days of his latest "experimentation", he could never be sure what was responsible for what he "sees" in his blood microscopy.
If he is really seeing anything, which several lymies with experience in analyzing blood microscopy have disputed.
Sorry guys to break the bad news; there is no miracle cure that James discovered. Probably the heparin he injected that was responsible for any decoagulation he experienced.
This is not research; this is just sad and desperate experimentation for a difficult set of diseases. My best wishes to James, as always, that he finds a llmd and sticks with some treatment for a while.
Posts: 2557 | From home | Registered: Aug 2006
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
I agree with derek and as I said in a previous post, one substance to kill bb, viruses, parasites, worms, fungus, and heaven only knows what else is just not common sense.
And whether we like it or not it does take yrs even for protocols that work well.
To dangle a "Cure" in front of people that are suffering for monetary gain just speaks volumes about that persons character and integrity.
I wish we did have a quick fix, but it's just not realistic.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Gael said:
"To dangle a "Cure" in front of people that are suffering for monetary gain just speaks volumes about that persons character and integrity."
I know James pretty well, we have spoken on the phone lots of times over the past year and a half.
He is not in any way, shape or form the person you and others are describing, though I do see how you could get that impression.
He is more like an excited little kid who just invented a great new Kool Aid flavor and can't wait to share it but doesn't want the bullies to steal it from him (I get it, no need to post a bunch stuff bashing the comparison; harmful stuff vs. Koolaid.)
Just trying to give you a glimpse at his character. He is very sick and he hates it. His sister and mother are also sick. He feels so desperate to be well that he combats his overwhelming feelings of helplessness and despair by trying to find hope in his experiments.
NONE of us have to try and replicate anything Jim does. MANY of us have chastised him for over a year on LymeChat, warned him, etc. It doesn't stop him.
When we don't hear from him, we call him to make sure he is okay. He is a young guy who lives alone and has nothing in his life but his desperate search for a cure.
I personally have never held any interest or seen any value in Jim's experiments, but I will sit on the phone and listen to him excitedly tell me he has found the answer, over and over again.
If that's all I can do for a fellow Lymie, and it helps, then I'll do it. It means the WORLD to him.
Maybe with him banned from here, which deeply hurt him and left him feeling very alone, some of you can come to LymeChat and talk with him.
I also have his personal email address and phone number, and I'm sure he would be glad to have a few phone buddies. I'll ask him first, but email me if you're interested.
I just wanted to clear up the speculations about his character. Ego? He has none. Money hungry? I can't tell you how many times I've heard him say he wished he had some money to help people on Lyme Chat when they are having a rough time.
If Jim ever does hit upon a cure, I can almost guarantee you once he got his bills caught up, every penny would go to helping other Lymies.
So please, please don't bash the character of this very kind and sweet soul when you don't even know him.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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lymestop
Unregistered
posted
All i can say is that from the time I got here ... I still get frustrated in how personal the posts can become and how there always seems to be a battle of
who is right and who is wrong?
Which one are you? The true answer is we all are lost in this world of lyme and all the complexities and the lack of answers.
We are all in the same boat but with many personalities and opinions and ways of doing things.
Not one is any better than the other...
I admire everyone for what they try and how they share and how they care....
Can anyone really say someone has been hurt by someone elses opinion.??
We are all grown adults and can choose what we want.. lets stop pointing fingers and stop putting others down.... please.
We have been through enough..
I feel this probably will fall on deaf ears.. But I try anyone.. Sometimes anyway.
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
no one is bashing character tracy, i am though calling out the means in which he and others like him go about touting their ridiculous and unsafe means in which they attempt to gain wellness.
im sure he is a great guy. i dont doubt or dispute that. again, i take issue with the way in which he is going about dispersing this misinformation.
if he wants to inject himself with gasoline that is his perogative.
is it NOT however his perogative to post misinformation that is not only erroneous but undisputedly dangerous.
he is a good man. great. keep the "great" ideas to himself until they are proven.
btw- ANY "THING" SEEN UNDER THE SCOPE CANNOT BE REASONABLY IDENTIFED OR QUANTIFIED.
EVEN if it could, its HIS blood and does not pertain to ANYONE ELSE!!!
darkfield love blood microscopy is somewhat accurate in diagnosing possible ailments. to say it is the way to track and gauge progress is RIDICULOUS.
IT IS NOT POSSIBLE, for james to be able to identify what the "invaders, blebs, hatchlings, etc" ARE.... OR how they respond to the lethal chemicals he is injesting.
if you are friends w james, tracy, thats fine.
i do not take issue with him, you, or anyone else.
i am here to spread reason and advice to sick desperate people and they do not need to be pumped full of false hopes full of false claims of ridiculous treatment measures that will never go farther than james case body.
IF this was such a cure, which it is not, he would have told someone by now, assuredly.
every day unfortunately there is a new cure, from wormwood to lauricidin to frontline to heparin to augmentin to bicillin on and on it goes.
ever hear of the story of the boy who cried wolf?
lets make sure we keep common sense our primary tool when striving to make sense of all of the info here on LN.
derek
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Tick, YOu can upload any photo, it doesn't have to be of you. Any photo you have on your computer or that you download onto it, just click the little box, it will say browse, go to "pictures" in your computer, and pick one.
You can get to Lyme Chat directly from the link posted, I'll pm you the password.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
I don't know if the mediators send out a warning with explanation before they ban someone, but if they don't, I think it would be a good idea.
It could avoid this by helping the person understand what's wrong with his/her thread, make a change and not repeat the offense.
Maybe that's a breech of free speech, but it's better than this outcome.
This feels like the time when my "so called friend" told me to go away and leave myself alone. She had never approached me and said I was too negative and to please work on it for the sake of our friendship. SHE GAME ME NO OPTIONS, ROOM TO IMPROVE THROUGH UNDERSTANDING, JUST LEFT ME.
Food for thought without knowing the details.
2roads
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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