posted
According to this article toxoplasmosis can live in water, soil and can be transmitted from mother to child.
Newly developed anti-malarial medicine treats toxoplasmosis March 5, 2008
A new drug that will soon enter clinical trials for treatment of malaria also appears to be 10 times more effective than the key medicine in the current gold-standard treatment for toxoplasmosis, a disease caused by a related parasite that infects nearly one-third of all humans--more than two billion people worldwide.
In the March issue of PLoS Neglected Tropical Diseases, a research team based at the University of Chicago Medical Center shows that the drug, known as JPC-2056, is extremely effective against Toxoplasma gondii, the parasite that causes toxoplasmosis, without toxicity.
"JPC-2056 has the potential to replace the standard treatment of pyrimethamine and sulfadiazine," said infectious disease specialist Rima McLeod, professor of ophthalmology at the University of Chicago and senior author of the study. "The drug, taken by mouth, is easily absorbed, bioavailable, and relatively nontoxic. In tissue culture and in mice, it was rapidly effective, markedly reducing numbers of parasites within just a few days."
Untreated mice injected with the parasite "appeared ill," four days after the injection, the authors note, "with ruffled fur and hunched shoulders." Treated mice remained well.
"Studies in tissue culture found no evidence of the parasite or the plaques they produce 52 days after four days of treatment," said co-author Ernest Mui, a researcher in McLeod's laboratory.
"The absence of growth," the authors write, "indicates that this compound is 'cidal' and not merely 'static' for the active form of T. gondii.
The drug inhibits the action of an enzyme, dihydrofolate reductase (DHFR), produced by the family of parasites that includes those that cause toxoplasmosis and malaria. It is structurally distinct from the human DHFR.
"The drug's effect on the malaria and Toxoplasma enzymes is robust," said McLeod. "It has much less effect on the human enzyme."
The new drug was effective against all malaria parasites, even those with multiple mutations that make them resistant to other anti-folate medicines, suggesting that "this family of parasites, including not just Toxoplasma but also various malaria parasites, will not easily develop resistance," she said.
Toxoplasma infection is "probably the most common parasitic infection in the world, causing very significant disease in those who have immature immune systems or who are immune-compromised," McLeod said. "New medications are urgently needed."
The standard medicines to treat the infection can cause severe side effects and many patients become hypersensitive to them. There are no medicines that can eliminate certain latent stages of the parasite's life cycle. There is no vaccine.
T. gondii infects humans through three principal routes: a newly infected pregnant woman passing the infection to her fetus; consumption of undercooked, infected meat; and ingestion of T. gondii oocysts in food, through accidental contamination from cat litter.
"An infected cat can excrete up to 20 million oocysts over two weeks," McLeod said. "Even a single oocyst is infectious and they can remain infectious in water for up to six months and in warm moist soil for up to a year."
Congenital toxoplasmosis, which occurs in an estimated 1 per 5,000 births a year in the United States, can cause severe vision loss, brain damage and even death. The annual cost of caring for these children may exceed $1 billion.
Also at increased risk are people with compromised immune systems, such as those with cancer, autoimmune disease, AIDS or transplant recipients. Even people with normal immune systems can suffer major organ damage from chronic infections. Eye disease leading to loss of sight is caused both during the primary infection and as a result of infection transmitted from mother to child. Recent epidemics in Surinam and French Guiana have been lethal even for young healthy victims. Studies have also found an association between chronic brain infection with Toxoplasma and diseases such as schizophrenia and epilepsy, although cause-and-effect relationships have not been proven.
JPC-2056 was developed in the late 1980s by teams led by Wilbur Milhous and Dennis Kyle of the Walter Reed Army Institute for Research in Silver Spring Maryland (both now at the University of South Florida), and David Jacobus of Jacobus Pharmaceutical Company. The original version was quite toxic, but the researchers found ways to reduce the toxicity and developed an oral version of the drug. Clinical trials using JPC-2056 to treat malaria are scheduled to begin later this year.
This new class of medicine holds "considerable promise for significant advances in the treatment of toxoplasmosis, which damages the eye and the brain," said McLeod, "as well as malaria, which kills one million children each year."
The National Institutes of Health, Research to Prevent Blindness Foundation and donations from several private family foundations supported this research. Additional authors include Michael Kirisits and Susan Liu of the University of Chicago; Guy Schiehser, Honghue Hsu and David Jacobus of Jacobus Pharmaceutical Company; Wilbur Milhous of USF; Craig Roberts of the University of Strathclyde, Scotland; Stephen Meunch and David Rice of the University of Sheffield, England; J.P. Dubey the US Department of Agriculture; and Joseph Fowble, Pradipsinh Rathod of The University of Washington in Seattle and Sherry Queener of Indiana University.
-------------------- sunnymalibu Posts: 192 | From california | Registered: Jul 2006
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posted
It is amazing the "speculation" about this bug. Clongen and F Labs are seeing the same bug. F Labs has the patent on the stain...and Clongen has to find a different way stain it.
BLO? What is BLO? Bartonella Like Organism...which is what? Bartonella spp. have tails...wouldnt this mean this organsim is probably what has been the buzz for so long? F Labs has a live video of it running around in the blood and with a "tail". It is also a single celled organism...isn't Bartonella also?
It is already known that this organism feeds off Arginine...it has also been cloned.
I am not saying that Lyme isnt an issue. Lyme has been studied for years and so have co-infections. There have been studies in vivo and in vitro and many years of trial and error. All these infections create different symptoms in each individual. Why do some people get stretch marks and some dont? Why do some have foot pain, drenching sweats, fevers and so on...while others dont. One thing is for sure....we all have massive fatigue and pain. When someone is on 10 different antibiotics for 2-3 years and is not better...there has to be something else going on.
For all the pessimists...thinking negatively will not help your chances of getting well.
For all those who have hope...we have science on our side and people who are really trying to find a cure for us. If the CDC has recognized this as a Pathogen...and a DNA match will soon be made...how much more serious can it be?
Posts: 136 | From Arizona | Registered: Sep 2008
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posted
A couple of thoughts - regarding the flagella, if the bug has one that would be unusual, Apicomplexans usually only have flagella during one part of the life cycle, and some have none at all. They can get around just fine without it, they are usually very motile.
Re: biofilms - that would be highly unusual also, what would the function of a biofilm be for a motile, intracellular parasite? Apicomplexans already have a very durable external structure unlike bacteria that use biofilms to protect themselves and adhere to surfaces.
I think that many people may be assuming two things - that the bug is tick borne, and that it is the root cause of some symptoms. I do not think that we know either one right now.
What I do wonder is where the rest of the bugs are located - Apicomplexans are pretty much all intracellular parasites. If one part of the life cycle is found in the blood, where are the other stages?
Posts: 263 | From Capital Region, NY, USA | Registered: Jun 2008
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quote:One thing is for sure....we all have massive fatigue and pain.
That's actually not true. I am IgM and IgG positive for Lyme and have a CD-57 of 36, and while I have fatigue, CNS symptoms, and heart issues, I have zero pain.
Posts: 195 | From Manchester, CT | Registered: Jun 2008
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cantgiveupyet
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I dont have massive fatigue either. My illness started as neuro (tingling around eyes ,weightloss , severe head pressure, dizziness..sensitivity to light...very vivid vision(things were sharp and crisp)...right side of body numbness..right wrist pain..neck pain. chest pressure...trouble breathing..then moved to the bladder and lower extremities...where the majority of my symptoms are now. Most days my body is more revved up then fatigued. I didnt have a whole lot of muscle pain and stiffness until about 1- 1 1.5 years into illness.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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kelmo
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SUCH a difference in each person! My daughter has had everything affected but her heart. She is in tremendous pain most of the time.
My son has a friend, who is CDC+ for Lyme, who just moved here from Pennsylvania. She works full time, attends school full time, but she has lost vision in one eye and occasionally has an achey feeling.
My daughter said she would give anything to just be "achey"
Posts: 2903 | From AZ | Registered: Feb 2006
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blaze
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How long before LLMDs will be able to treat us for this bug?
Also, is this new bug accepted by the IDSA and CDC, or are we going to have to continue to see doctors outside the state to receive any treatment? I guess what I'm asking is - did this new mystery bug give what we've been calling 'chronic Lyme' some credence within the medical community?
I have this bug, and when you find yourself gargling with bleach, that's pretty desperate - but I'm not sure what else to do.
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That's interesting...my symptoms are similar to cantgiveupyet's.
60 lb weight loss, dangerously underweight, neuro symptoms (mini seizure-like episodes, dizziness, blood pressure regulation issues, visual distortion, etc.), neck pain, upper back pain, left arm pain, chest pain, heart palpitations, issues with regulating the heart beat, shortness of breath/breathing issues, bladder issues, major intestinal issues, paralysis of the gut etc...
Sounds like some of FunkOdyssey's symptoms are similar, with the heart and CNS issues...
I'd like to hear more about everyone's symptoms that they may or may not associate with this bug.
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cantgiveupyet
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wow littlelymie we do have very similar symptoms.
Do you have all of those symptoms currently? I forgot to add I had sensitivity to light and vivid vision also a month after onset of illness.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
I'm confused. First it was thought to be Bart, then mycoplasma and now a protozoa. Do they all look the same under a microscope? Has any studies been done to see if healthy people have this too?
I'm very hopeful that this all works out. But there have been so many twists and turns just in the last four years when I found out I have Lyme that until it's been proven I'm not going to get to excited.
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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Leelee
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I am new to this thread as I have spent the last couple of months trying to get a handle on Lyme and co-infections.
So, is this mystery bug something thought to be prevalent in those of us with Lyme or is it like other cos. and affects some and not others.
Also, I read through this whole thread, but I probably missed this part....are there specific symptoms for the mystery bug? Am I right in understanding one catches it from water? Does it have a name other than mystery bug?
Sorry to be so confused and thank you for helping me.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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posted
Cantgiveupyet, those are all things that I'm experiencing now. I've also had other weird symptoms here and there. My hearing is painfully heightened and I've had sensitivity to light as well.
Do you have the GI issues too?
I'm so sorry that you're suffering from this awful set of symptoms as well.
I'm wondering if everyone who has this organism has some level of GI disfunction? Those of you who have tested positive...do you have intestinal issues?
My GI issues became severely worse after I got water poisoning on a trip in Mississippi 3 years ago after the hurricane. I'm wondering if it could have possibly been infected with this parasite.
I just recently had a stool test done by metagenics and they identified a bunch of parasites, but at the end of the list on my test they noted that there was a parasite present that they "were not able to identify". Could this be it?
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cantgiveupyet
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Littlelymie- I dont have all those symptoms now...most have gone away. Im left with bladder/pelvic, weight loss, some sweating off and on,very very stiff muscles...yes I have GI symptoms , some knee pain on and off.
that is interesting about the stool test.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
I wouldn't say I have massive pain and fatigue either. I think we're all presenting differently.
Posts: 13171 | From San Francisco | Registered: May 2006
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posted
The water connection is very interesting as I have always blamed my husband's illnesss on a houseboating trip he took to Lake Mead. He became seriously ill about five weeks later.
He has muscle pain and wasting (some of that has resolved with IVIG treatment which I know is not an option for most), weakness, fatigue, pulmonary fibrosis, etc.
He also tested positive for toxoplasmosis.
Posts: 984 | From San Diego | Registered: Nov 2006
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posted
I see no reason to hide this - so here is what my LLND said about this. She attended the conference where this was presented.
For those with the Fry Labs findings of "Suggestive of Mycoplasma/Haemobartonella" in their blood smears - here is some new information that was presented at a recent Lyme conference in Kansas (March 2009) that I just learned from my LLND. Apparently this coinfection is common enough that they decided to isolate it and look at its genome.
It turns out it is not related to Bartonella at all - nor is it even a gram negative bacteria, thus antibiotics would have no effect on it. Instead, it is a protozoan parasite in the Apicomplexa phyla, which include Babesia and Malaria. They have this bug identified down to family, but not genus yet. But it appears closely related to Theileria, which is in the same family. A species of this, disseminated by ticks, causes Theileriosis in cattle, which is widespread in Africa. For now the working name for this bug (until they know more) is "Little Babesia". They should have it down to genus or maybe even species in about a year.
My case of "Lyme" is characterized by recurring fatigue episodes that are unpredictably timed. My Lyme diagnosis was based on a clinical diagnosis but the Igenex results were borderline (only 3 bands well expressed). One of the characteristics of the Apicomplexa is an asynchronous life cycle. If my case was just Lyme my episodes would be predictable. 10 months of increasingly powerful antibiotics with naturopathic support had little effect. Thus I am suspecting that this Apicomplexan is the primary source of my symptoms and who knows - I may not even have Lyme.
With this new information we've made some changes to my therapy. I just started Arteminisin, which is a powerful anti-malarial. If this works broad spectrum against all Apicomplexa then this may be the silver bullet I've been searching for - now 3 years into this! Am also taking a whole host of other things to boost Artiminisin's effectiveness. The other side of my therapy is boosting the immune system (this is working - my CD-57/HNK1 numbers are all very good).
Casey Burns
Posts: 34 | From Kingston WA | Registered: Feb 2008
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kelmo
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Casey. Thank you for that report. I just looked at my daughter's blood smear to confirm. Two years ago she had it done (before it went public), and her report said Babesia, Bartonella and Theileria.
I had no idea what theileria was, but when I looked it up it said it was found in cattle in Texas.
We made trips to that region every summer, but the summer I'm thinking we were infected happened on the OK/TX border.
We just saw Dr. F and he wasn't ready to do a blood smear yet to DNA her particular protozoa.
I think adding Art is a good idea. I hate to start it because it makes me weepy.
I believe Lymetoo found art to be helpful, and she was from TX. Is that correct, Lymetoo?
lymie tony z
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posted
I have to agree with nomoremuscles....
unfortunately....this thread seems to go on and on and on with no clear picture....
I suspect something, and am sorry I wasted my time...as ill as I am.
Partly because of who the contributors are on this thread....
Mostly because of who is NOT!
zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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Truthfinder
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Well, it appears that a form of the Cytauxzoonosis protozoa may still be in the running here..... Cytauxzoonosis is caused by the Theileria-like parasites of the genus Cytauxzoon of the family Theileriidae....
(Google cytauxzoonosis Theileria and see how much pops up....)
I don't get the `water' connection, though..... unless perhaps they think bugs like mosquitoes could be carriers?
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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kelmo
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It's always been believed that we were infected by mosquitoes, not ticks. We have never had a tick bite.
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feelfit
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sorry you're so sick Tony. obviously everyone here is...thus the search for answers. SOB the next time so you don't get so sick and tired of looking at this and the contributors that you don't think much of.
Be well, feelfit
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Alv
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This will show why this protozoa bug behaves as T.GONDI!
The article below in treatment section will mention all the treatment that have been mentioned in this thread.BUT artemisin has not been mentioned .It is only about the Drugs.Now I see why Groovy2 is having results with his treatment.
Sorry if you are confused. A very brief history. In the Dr B guidelines you may see some references to BLO or bartonella like organisms. This supposed bacteria has no test and is diagnosed based on clinical symptoms. Primarily G.I. symptoms and neurological symptoms which seem more severe than with just Lyme. In the past treatment was Levaquin or Cipro or Rifampin plus doxycycline. In other words patients were basically treated with bartonella meds.
2 or 3 years ago the F lab in Arizona started offering a blood smear. Based on visual exam (not on antibody or DNA sequencing or PCR) the lab started telling patients they had bartonella or mycoplasma -- both bacteria look alike on a blood smear.
Then about a year ago the lab changed the description to Haemobartonella or mycoplasma.
Within the last few months the rumor was that the F lab had decided it was a parasite/protozoa and not a bacteria that was being seen on the bloodslides.
Also starting last fall a new lab (Clongen) in Maryland also started doing blood smears. The new lab also found what they originally thought was an unidentified bacteria in the blood of many tickborne illness patients. The lab was unable to do 16S DNA sequencing or to culture what they had thought was a bacteria. Now they also believe it is a parasite/protozoa although they have not identified which one yet. Not sure if the lab is still doing any research at this point or not.
Hubby has positive tests from both F lab and Clongen. He has treated for Lyme, Bartonella/BLO/mycoplasma and Babesia. Many symptoms have improved but after 6 years of treatment he is still disabled (sick 8 years). There are many other patients like hubby who have been on many antibiotics and many different antiparasitc meds as well.
I personally think this new protozoa is hubby's biggest issue -- just not sure how to treat it as obviously there is something unique about the pathogen which makes it very difficult to erradicate.
Hope this overview helps.
Bea Seibert
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Hoosiers51
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Ouch Tony! If you can't say anything nice about the members on this thread, don't say anything. Thanks.
Also, if one is knowledgeable about taxonomy, they will realize this thread is not jumping around, and that all the organisms we are talking about have many similarities. I think it's a productive thread, and we have lots of fantastic members contributing here.
Yes, artemisinin does make sense. So does Thieleria. So does Toxoplasma. It all makes sense.
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Leelee
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seibertneurolyme,
Thank you so much for explaining the mystery bug to me. I couldn't have asked for an easier to understand explanation.
I hope that your husband improves. Hopefully with this new understanding of the new protozoa they will also find a successful way to treat it.
Last week I went to a community meeting and a LLMD was the guest speaker. He said there are still so many things to discover about Lyme and co-infections.
Best to you and your husband. Thanks again for the explanation.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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Hoosiers51
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To anyone who thinks this thread is off-topic, read this:
Not sure how many are aware of the fact that babesia microti, according to who you ask, doesn't even exist anymore. It's now called Theileria microti. They have changed it's classification. It is more similar to cattle disease than the babesia we have come to know and love.
That means those of us who have babesia duncani actually have more in common with those who have babesia canis (humans and dogs get it) then those who have what USED to be called babesia microti.
BUT, the interesting thing is that in blood tests, t. microti and b. duncani can cross-react.
That should give you an idea of how similar the organisms are that we are talking about.
Posts: 4590 | From Midwest | Registered: Jun 2008
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cantgiveupyet
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Thanks hoosiers! I have a positive Babesia FISH....but test negative for WA-1 and Microti IGM and IGG. The LLMD said it was because my body wasnt fighting it, but now I wonder.
Does anyone know if this protozoa could look similar to babesia when they look at it under the microscope?
Im going to post my smear in a little bit.
My gut has been telling me for awhile that I should start malarone again.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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Hoosiers51
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I have this theory in my own mind that these parasitic diseases like babesia, theileria maybe....that they are way more common than Lyme in the general population. A lot of people with exposure to babesia are asymptomatic though.
Since not all people with Lyme have babesia, some people jump to the assumption that the babesia genus is rare. Probably not the case.
Those of us who have Lyme (or some other kind of Lyme-like organism, if such a thing exists. Or maybe it's really bb in every case)...it's understandable why we're as sick as we are.
Even those of us who may not have Lyme (or, those who question if their Lyme is gone and they are now fighting something else) can understandibly be sick from these parasitic diseases on their own, but maybe there is still some kind of "pathogen soup" at work, even when Lyme is out of the picture.
Babesia-like organism + Bart or BLO + damaged immunity from Lyme or whatever other stealth virus set this in motion = a very sick person
I just wish there was a better way to know what's what.
cantgiveupyet-- of course don't rule out that it really could be babesia though. (or both babesia AND a separate babesia-like organism)
EDIT: I want to correct what I said about in my above post about the tests cross-reacting. That isn't PROVEN. All I know is that multiple LLMD's have told me that babesia microti (now theileria microti) and babesia duncani probably cross-react in blood tests. One said, "they may" and another told me, "they do cross-react."
This is just a theory though. Lots of things are possible then....like how many other organisms cross-react with these tests? But then, how many don't? Did any of us really have b. microti (now t. microti)? etc etc.
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Hoosiers51
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Here's one problem with the Theileria thing: On a smear, you see them INSIDE the red blood cells.
"A definitive diagnosis of theileriosis can be made in the field by demonstrating Theileria sp. parasites within erythrocytes on the Romanowsky-stained blood smear."
(there was also a picture in the article I was reading. They look exactly like what we have on our cells, but they were inside. So they didn't look like the "ring" you see with babesia. Is that just a different stage of the life cycle?)
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feelfit
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Hoosiers good work!
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Hoosiers51
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Thanks feelfit! I hope no one takes me *too* seriously.
But I just find this really fascinating, probably because in my heart, for awhile I have known there is more to this, and that it seemed to be related to this artemisinin/Mepron/malarone thing....the fevers, the fatigue, etc.
Here is the article I drew that quote from, about theileria being inside the cells.
The picture I was talking about is the 4th one down, where you can see how the Theileria cervi (found in a white tailed deer!!!!) looks like what we have, but it's inside the cells. So maybe we have something similar, but probably not the exact same thing.
Posts: 4590 | From Midwest | Registered: Jun 2008
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quote:Originally posted by Hoosiers51: Even those of us who may not have Lyme (or, those who question if their Lyme is gone and they are now fighting something else) can understandibly be sick from these parasitic diseases on their own, but maybe there is still some kind of "pathogen soup" at work, even when Lyme is out of the picture.
Babesia-like organism + Bart or BLO + damaged immunity from Lyme or whatever other stealth virus set this in motion = a very sick person
I just wish there was a better way to know what's what.
I think Hoosiers is exactly right, this is the crux of the problem.
Posts: 845 | From Eastern USA | Registered: Jul 2006
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posted
Anyone taking Enula and finding it effective for this parasite?
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Hoosiers51
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Yup, I forgot to post the link, silly me.
Okay, I will preface this by saying I don't know much about microbiology, besides what I learned in college (a few science classes including bio), and what I read on Wikipedia, which is mostly the classifications of organisms (taxonomy) and drugs that treat everything.
So I don't know what this stuff is supposed to look like on a slide because I am not a microbiologist. So please forgive my ignorance. Maybe closer they all look all lot different, I dunno.
The 4th picture down is the Theileria cervi which was found in a white-tailed deer.
EDIT to add: The picture I was talking about may be a moot point. Now that I look at it again, with caffeine in my system (thus, more awake), it looks like they do look a little bigger than what we see on the outside of our cells....some of them.
But in one cell they look small like ours (the cell with the long arrow pointed towards it), but in a few of the others (particularly on the left side of the smear) they seem larger.
If you look closely at one of the cells on the bottom right, it appears that the ring-like structure seen in malaria is actually on the OUTSIDE of the cell. Hmm, wonder if that happens with babs or malaria too.
In this book if you click under the PREVIEW THIS BOOK ( I hope the link below will work) ..you will see how the single cells PROTOZOAS are efected by the light.And I just wandered why this protozoas are not beeing seen much in SUMMER by Dr F but mostly in winter.THEY HATE the LIGHT!
In page 39 you will be able to read " ESSENTIAL CONCEPT" and you see how they react toward the light , EMF, nutrition , sugars etc.
-------------------- sunnymalibu Posts: 192 | From california | Registered: Jul 2006
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feelfit
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Little,
I think it was 295 and it was called a babesia/bartonella blood smear when I ordered it. You have to get the kit from Fry and then have a doctor order the blood draw.
Feelfit
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I was looking at the requisition form today. It is $295 for the smear.
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Alv,
Really good find. Very interesting about protozoa being sensitive to light.
Did you read my posts towards the end of Azure's recent thread talking about babesia symptoms?
MariaA and I began discussing about how we both feel our babesia flares in the middle of the night, and then I sort of went off and started talking about how I think other protozoa are active at night too. (makes sense...babesia night sweats, the theory about parasites being more active during a full moon, the insomnia you see with some protozoal infections).
Also, in terms of the EMF thing, it looked like the book said that it was bacteria that respond to EMF's. It seemed to be mentioning light for protozoa. Correct me if I'm wrong though, but that is how I read it. I'll do some more research, because this is interesting.
I believe my EMF sensitivity is caused by some type of bug...not sure yet if it's viral, bacterial, etc. When my chiropractor muscle tested me for things to help my EMF sensitivity, one thing that helped were some homeopathic Virus drops from Desert Biologicals. But maybe those drops had an effect on something else besides just viruses. Not sure.
Posts: 4590 | From Midwest | Registered: Jun 2008
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
To those considering getting the smear done from F Labs, if you want to save money, you might want to wait until they offer the testing that will show what drugs help your strain of the bug.
Just my two cents. Might as well wait a little longer and pay for testing that will give you better answers as to treatment.
Posts: 4590 | From Midwest | Registered: Jun 2008
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posted
Do you have any idea about how long it will be before this enhansed testing is available?
Jen
Posts: 236 | From Illinois | Registered: Feb 2009
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Jen,
I don't know. I'm not a patient of theirs, so I'm not really in the loop.
Posts: 4590 | From Midwest | Registered: Jun 2008
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TadichGrill
Unregistered
posted
heiwalove you can have this mystery bug and not test positive for it in a Fry Smear. It was explained to me more then one that when testing with a smear your body is like a swimming pool and they can draw from the wrong end of the pool where the bugs are not hanging out.
Hoosiers I also heard it first hand from Igenex that the two kinds of babesia cross test.
Robin and (I only mean this respectfully) with all the coffee you drink how would you really know if you have any fatigue?
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posted
I have always wondered where/when I was infected.
I did test positive for Lyme and Babesia thru Igenix. I recall LLMD mentioning WA-1.....can someone tell me what this means? I've been treating both for about 4 years...I'm still ill. Never hit babs hard enough as I usually just monotherapy malarone for the babs. I've always felt hitting the babs hard would kill me. I've added in artimisinin pulsing here and there....bad reactions there.
I recall camping in N. California around 1992 and remember swimming in the Russian River. The next day I was severely ill, throwing up the whole ride home, felt like I was gonna die. Remember thinking, this is not right and the two beers I had the night before could never give such a reaction.
This has always been in the back of my mind as to the possible time of infection.
Things that make you go hummmmmmmmmm
This is a very interesting thread.
Thanks for posting!
Posts: 69 | From fort collins, co | Registered: Dec 2007
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
It would be great too if you could let us know how they're doing on it in a month or so.
Hope it helps them!!! Posts: 4590 | From Midwest | Registered: Jun 2008
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