lymeHerx001
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posted
I have this weird headache now from a little levaquin.
Does it go into the brain?
Posts: 2905 | From New England | Registered: Sep 2004
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adamm
Unregistered
posted
For better or for worse.
fqresearch.org
Very important: Make sure to not take any NSAIDS's for the headache (or drink coffee), as the interaction between them and the Levaquin can cause CNS damage, and be on the lookout for the other ADR's.
I personally know someone who developed numbness from it, and I don't think I would ever take a drug in that family.
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lymeHerx001
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posted
adamm I know, I cant help but take NSAIDs.
They lead to GABA antagonism which decreases gaba.
I need to treat.
fqresearch.org is all nightmare stories like this site at lymenew!
Posts: 2905 | From New England | Registered: Sep 2004
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lymeHerx001
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posted
up
Posts: 2905 | From New England | Registered: Sep 2004
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adamm
Unregistered
posted
Any particular reason why you have to stay on the Levaquin, then? Sounds like you're playing Russian Roulette...
posted
I agree...I'm willing to take the risks now if it will help me feel better.
I'm planning on starting levaquin today. Started several months ago for 2 days and got scared from some of the posts on here and stopped.
Now, it's worth the risks to me. I'm tired of struggling with infections.
If anyone can help answer the initial questions... whether levaquin penetrates CNS... that would be much appreciated Posts: 453 | From TX | Registered: Aug 2008
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lymeHerx001
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posted
exactlly, im chronically sick.
Thats the worst part.
If I have pain I will stop.
Posts: 2905 | From New England | Registered: Sep 2004
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posted
I just found a book on Quinolones online that has a chart which shows CSF (cerebrospinalfluid) penetration of Quinolones, including Levaquin.
For Levaquin, without inflamed meninges - 16% penetration. With inflamed meninges - 61% penetration.
They point out that good CNS penetration is a double-edged sword because it also increases the chance of adverse effects from the quinolone on the CNS.
All I know from my experience with 6 months of Levaquin is that it helped considerably with my Bart, the symptoms of which were 90% mental/brain related.
Posts: 443 | From The Wild West | Registered: Jan 2002
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posted
Lymeherx, Thats probably because its true. Very few people experience toxicity from levaquin. I have read half of the "horror stories" online and I am of the opinion that these people are actually herxing.
Levaquin is a very strong inter cellular antibiotic and I would be dead without it. I did Bactrim and zithro in its place for 3 months and STILL relapsed. A week of levaquin and I am 40% better in a week.
Had I listened to all the horror stories on here I would probably be blind from Uveitis (which is now in remission thanks to 750 mg of levaquin) and insane from infection of the brain from Bart borrelia or whatever we are treating with this ****.
When you kill thee bugs crazy **** happens.What do you expect?? they are swimming around your body and every bit of you. Above all you need to trust your LLMD or get another one. After all the **** I have been through, I would not be surprised if a monkey crawled out my butt during a herx.
Ring your doc. Tell him whats up. Then obey his recommendations.
I feel like myself and Adamm have been tit for tatting everytime there is a post on levaquin. The fact is its a life saver for many.
In my personal experience Advil is not a problem with it either. In fact I had a headache last week when I had a massive herx on levaquin and I took advil for it. Slept like a baby.
Adamm I bet after all this it will turn out to be the drug that cures you. And Shmangosteen will cure me LOL
Oh and levaquin absolutely penetrates the CNS and brain.
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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lymeHerx001
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posted
Someone I work with took it for a UTI she is in her 50s at the time, never had a problem.
For me I got my name from Biaxin and the flood to toxins from the bacteria.
Then I developed MCS/vertigo
It wasnt the Biaxin, it was the killing.
I think now that anything would have done it. It was the straw that broke the camels back.
I know that the leviquin is making me herx because my skin feels different afterwards.
Posts: 2905 | From New England | Registered: Sep 2004
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posted
I know. I started with 200 mg of doxy daily 2 years ago. 4 days in I had about 20 symptoms that I had excused away flare like mad. 5 days in I got a ringing in my ears. I knew I had lyme (but not Bart) because that what I was on doxy for.
Had I not known I would be posting all over the internet that "doxy ruined my life", It literally opened the can or worms proper, and they ain't going back in the tin.
In my experience with meds. If I don't herx then I don't get any better.
The only meds I fear taking are: quinalones and flagyl,doxy+rif. why?? because they make me herx like hell. I know there are old timers that would disagree but for me its no pain, no gain.
Lymeherx I hope you make real progress soon.
"I know that the leviquin is making me herx because my skin feels different afterwards"
Thats not a herx thats sounds like a holiday
Try curled up in a ball in the dark feeling like a mental case for a day or two. Its a bitter sweet feeling
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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lymeHerx001
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posted
well what I mean by my skin feeling better is this:
All the time my skin feels tight(painfull) and is in pain.
Right after I herx, my skin feels cool and refreshed and its as if I can "feel" more.
I realize that thats the way normal peoples skin should feel!
I have come so far from that normal nice feeling that yes it feels like a holiday, but it doesnt last long at all.
I dont think theres any other way to go about it.
Posts: 2905 | From New England | Registered: Sep 2004
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lymeHerx001
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posted
well took 1/8 of a pill after work yestuerday.
I woke up at 7:00 pm.
Is that a herx of what, then I felt groggy and in a bad mood, usually happens with a herx.
Today I feel a bit better.
Its strong stuff. Its absolutelly hitting the mycoplasma.
Posts: 2905 | From New England | Registered: Sep 2004
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lymeHerx001
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posted
up for this strong drug
Posts: 2905 | From New England | Registered: Sep 2004
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lymeHerx001
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posted
ive been having some tendon pain but I dont know if this is normal or not?
Ive only taken 1/8 the dose. I wish there was a blood test to monitor whether or not this is going to affect my tendons.
Does extra mg help?
Posts: 2905 | From New England | Registered: Sep 2004
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lymeHerx001
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dont know yet if its psychogenic.
I do herx on a small micro dose, as some posters on this board do.
Posts: 2905 | From New England | Registered: Sep 2004
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lymeHerx001
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Member # 6215
posted
levaquin doing me good so far, its taking away my pain and clearing my head.
...have yet to clear 20 mg yet.
I feels simlar to doxy though without all the suicidal thoughts
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