posted
I've been experiencing a strange symptom lately. I get it in the evening, and it lasts about 1 to 3 hours. It literally feels like the little energy I have left is draining out of me through my lower back.
I get extremely weak and I have to lie down. Then it's like I'm filled with lead and I'm sinking in the mattress. Resting doesn't seem to help. I have to wait for it to pass.
I feel like an old battery that's running out of energy. I feel like I'm about to die.
Anyone ever felt like this?
Posts: 209 | From Montreal, QC, CAN | Registered: Jan 2008
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Hi Bob,
I have felt like that when I first collapsed in 1983. I know it feels really scary, but it will go away with treatment. As you can see, that was 26yrs ago and all I could do was ride it out and rest.
I describe it as bone crushing fatigue. I didn't know what was wrong with me back then. Sorry you are going through this. Hang in there,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Yep, I get this occasionally too. When it hits, I can do nothing but collapse on the bed. It's scary and no doc can explain it.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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blaze
Unregistered
posted
It IS the energy draining out of you, courtesy of area cell phone and wifi towers. I have the same symptom.
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That will happen, the life draining out of you feeling. Or the battery completely dead feeling.
I still get that and I have had Lyme for years. I do notice it is worse after eating a meal of the type of heavy carbs we are not supposed to eat.
Keep smiling and just know that we (Lyme people-yes I know it sounds like bad '50s science fiction) are in this together till we cure this monster from Mars (I must be in a '50s science fiction mode), we care about you, and if we keep fighting, we may just win.
We'll Win
Posts: 107 | From maryland | Registered: Feb 2007
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posted
I remember this all too well. It's a terrible feeling. If you try to describe it to someone who hasn't had Lyme, they just can't begin to imagine how you feel. Sometimes this feeling would make me seriously wonder how much longer I'd be alive.
If you were fairly athletic when you got sick, it's hard to believe you could become this weak.
And the good news is that I'm so much better now and you will too. Hang in there, and don't give up.
Posts: 975 | From California | Registered: Apr 2007
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posted
I've been taking antibiotics for over a year now. I'm surprised to be feeling worse now than I did 4 months into treatment.
My energy levels are so low! I can barely work -- I work from home, just a few hours a day, but I feel like I will have to stop, as I'm less and less functional.
Thank you all for your replies. I don't feel like I'm the only one with a monster inside my body.
Julie
Posts: 209 | From Montreal, QC, CAN | Registered: Jan 2008
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Thanks for the link. I live in a city with forced public wi-fi. My kids get it at the playground, in the neighborhood, big time.
Posts: 564 | From Tick Hell | Registered: Oct 2008
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Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
I got this a lot last summer when all my symptoms started.
It has gotten better, but I still sometimes get this tired, usually after a good day.
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
yep, me too, it's so bad i can't even go shopping.
and when i can't shop, you know it's bad....
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
This is how I feel practically all the time! absolutely drained, I have to spend most of my time in bed. Very occasionally I have enough energy to go out for half an hour, or do a bit of housework.
Nelly
Posts: 416 | From france | Registered: Oct 2001
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Bob since it has been a year since starting
treatment is it possible that you have a co
infection that is not getting treated? Meaning the
Bb is giving in but the antibiotic is not
addressing the co?
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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I've always taken enough abx to cover both babesia and borrelia, or bartonella and borrelia.
Am presently taking biaxin, mino, rifampin and tinidazole (pulsing the last two).
Posts: 209 | From Montreal, QC, CAN | Registered: Jan 2008
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Wow! You describe this almost exactly the way I do!
I often say it feels like someone attached a vacuum cleaner to my lower back and is sucking out all the energy.
And when lying down - as if my bones are sinking into the mattress.
It is a terrible feeling.
Have you checked out your adrenal function?
That might be another area to explore.
Getting an underlying adrenal issue treated has really helped me.
Not sure if it would help you as well, but might be worth a shot.
Sending you some energy vibes, Cactus
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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