posted
i have just been diagnosed with optic neuritis
and what has me very very worried is that this is
a common symptom of MS and i never even
considered or thought about having MS, i just
thought i had lyme and babs and possible bart,
does me getting optic nueritis definately mean i
have MS or will get MS? any info or advice would
be appreciated and does this cause permanent
vision loss or blindness? thanks for any input
Radha
Posts: 392 | From New York | Registered: Dec 2005
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Optic neuritis can be caused by lyme.
My understanding from my treatment and from lyme doctors is that treatment with antibiotics should stop its progression; it is just one of the unfortunate effects of lyme caused by a bacterial infection.
Best wishes, are you in treatment?
Posts: 2557 | From home | Registered: Aug 2006
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massman
Unregistered
posted
IMO and some others opinions MS IS late stage lyme.
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
Optic neuritis can be Lyme...as per the optimologist I recently saw when I told him of my past dx before find out Lyme & Co-infections.
I was DXd MS in 1988 found out Lyme in 2003.
Found the LLMD who did this" Chronic Lyme Disease: Connection to MS- Facts behind the controversy" (DVD)
AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Biaxin plus Rocephin seemed to clear mine up.
I was told by a Neuro-Ophthalmologist that I likely had MS secondary to Lyme. He wanted me to have Lumbar puncture to prove it had gone to MS.
My LLMD said it wasn't necessary because he wouldn't Tx me any differently, put me on the Biaxin & Rocephin & the MS Sx cleared up.
It's been over a year since that happened.
I do remember being scared out of my mind when all that was going on though. I'm sorry you're going through this.
hugs & prayers, Ali
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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posted
thanks so so much to all of you for replying,
what has me even more worried and scared is that
i cannot tolerate any abx at all, so will my eyes
get even worse? will all the other symptoms just
gkeep getting worse because i have been getting
slowly worse and worse and other than doing a
lumbar puncture is there any other sign or
symptom or other way i would know for sure if i
am getting MS? would oral abx eye drops fix
this? my vision is getting so much worse! thanks
again,
Radha
Posts: 392 | From New York | Registered: Dec 2005
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Have you tried amoxicillin?
It is a relatively gentle antibiotic, which is why it is given to children and pregnant women. You need to take probiotics with amoxicillin or any abx.
Herxing for the first few days can be unpleasant, but with amoxicillin, what I first took, it passed after a couple of days.
Posts: 2557 | From home | Registered: Aug 2006
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
Radha,
MS is a symptom. Years ago docs / researchers stopped trying to find it cause. Nowadays the only reasearch is from pharmacutical companies. The MS society stinks.
it's not an abx but inhances immune system
Posts: 2675 | From ct, usa | Registered: Jan 2004
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Melatonin has a major effect on the eyes. May want to check it out.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- A lumbar puncture is not a good idea as it very rarely can detect lyme.
Do you have a LLMD? Sounds like you don't.
MS is often an umbrella diagnosis when the doctors are too lazy or uneducated to consider that, for many patients, lyme or similar infections are the root cause. Treatment for lyme or Cpn, etc., has given many "MS" patients their lives back.
This similar current thread has some great information for you. BE SURE TO SEE THIS:
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Radha, you said you have trouble tolerating antibiotics. You might want to look at the links below.
If you find a good LL ND (Naturopatic Doctor) they may be able to design a protocol for you. Whomever you work with, though, MUST know all the science behind lyme and all the other tick-borne and stealth (hidden) infections. Most NDs do not. Get one who is LL and preferably a member of ILADS, too.
If one path becomes blocked, there is ALWAYS another way. ALWAYS.
Book: Lyme Disease and Rife Machines by Bryan Rosner -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Bugg
Frequent Contributor (1K+ posts)
Member # 8095
posted
Radha-
Have you been to Dr. Fallon's Columbia Research website? I seem to recall they have a good posting under Frequently Asked Questions regarding MS versus Lyme...
Also, as many have posted, optic neuritis is not unusual with lyme disease...I think there may even be an abstract on optic neuritis and lyme in PubMed...Have you looked there already?
Posts: 1155 | From Southeast | Registered: Oct 2005
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Rahda,
There are some good llmds in new york city. I am looking for names and will PM you with suggestions.
Posts: 2557 | From home | Registered: Aug 2006
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Rahda,
I have PMed you the name of a LL Ophthalmologist.
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