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» LymeNet Flash » Questions and Discussion » Medical Questions » neuropathy - loss of leg function - recovery?

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Author Topic: neuropathy - loss of leg function - recovery?
readmccarty
Junior Member
Member # 24329

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My mother in law (Irene) 84 years in good spirt and health except Lyme - been thru IV antibiotics - lyme confirmed with spinal tap -but she can not walk due to neuropahthy caused by LD. In a nursing home undergoing physical therapy... progressed rapidly this fall from a cane to walker to wheelchair. Now can not stand on her own - very painful for all of us to see as Irene was an avid gardner, walker and swimmer.

We are trying to get appointment with LLD on CapeCod (Dr Donta)

anyone have any experience with the possiblity of recovery and if so the time frame?

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Read

Posts: 4 | From south of Boston MA | Registered: Feb 2010  |  IP: Logged | Report this post to a Moderator
karenl
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did you think about ALS, can be caused by infections.
Posts: 1834 | From US | Registered: Oct 2008  |  IP: Logged | Report this post to a Moderator
readmccarty
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they tested for many things before determining it was LD - not sure if ALS was looked for - I will look into it

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Read

Posts: 4 | From south of Boston MA | Registered: Feb 2010  |  IP: Logged | Report this post to a Moderator
Got Lyme?
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From the time the neuro stuff affected my legs and my ability to walk until the time it was gone was roughly 3 years. That was taking oral antibiotics the whole time. It was a gradual healing.

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Margaret

Posts: 103 | From CT | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
readmccarty
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thank you for the reply - three years is a long time - I hope you are up and walking now.

Where you stuck in a wheel chair for all that time?

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Read

Posts: 4 | From south of Boston MA | Registered: Feb 2010  |  IP: Logged | Report this post to a Moderator
ninjaphire
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You should look into benfotiamine for neuropathy.
It helped my neuropathy a lot, but mine was much milder of course.

Posts: 330 | From Colorado, USA | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
Got Lyme?
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I used a wheelchair for outings but I mostly layed around at home being so sick with co-infections. I am now back to work full time and I can walk and I can feel my socks on my feet again!
Without treatment I would not be better.

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Margaret

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JunkYardWily
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got lyme how long were you treated?

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sick since 9-09
igg, 18,23,41 reactive
igm, 41 reactive

Posts: 436 | From Kansas City | Registered: Jan 2010  |  IP: Logged | Report this post to a Moderator
Pinelady
Frequent Contributor (5K+ posts)
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I would say she is being under treated. The Dr. D would be great.

http://www.ncbi.nlm.nih.gov/pubmed/2334308?dopt=AbstractPlus

http://www.relapsingfever.org/ALSLYME47.htm

These are old, but you have to remember how bad the testing can be in some.

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Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

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lymeflox
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readmccarty
Which antibiotics was she on? In fact, what antibiotics has she been on for the last year or so?.
Depending on the medicines, the sharp decline of her could be a side effect. Some antibiotics have symptoms of delayed toxicity that match well with what you have experienced with her health.

Posts: 94 | From canada | Registered: Nov 2006  |  IP: Logged | Report this post to a Moderator
   

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