Topic: Help a Member: Need information, books or contacts knowledgable of Neuroborreliosis
Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Hi everyone,
Another lymenet member who is very sick needs our help.
She is too sick to stay on the computer and search. She has been bedbound and alone.
She is very ill with severe Neuroborreliosis.
She has felt much worse on antibiotics...no surprise there.
She will be starting some IV antibiotics soon.
She is not in the US, so she has even more limited access to LLMD's. A Dr is treating her for Lyme, but is beginning to question if they have "cleared the Lyme", but agreed to the IV antibiotics.
She needs articles, books, contact info,etc, that may be helpful to her regarding treatment of severe Neuro symptoms....even your own experience may help.
She has Dr B's guidelines.
If you have info that may help our member please respond!
Thank you all very much!!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- More important than pouring through tons of articles is finding a good doctor. I would put energy into that avenue first.
Or is this so she can self-treat somewhat?
What country? What city or town? Maybe someone closer can help.
Is there a support group there?
Any LL complementary doctors to help along with Rx/ MD in that area? -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Canada...I'm not sure if she wants to self treat.
She just asked for book/contacts etc since she can't search and she is too sick to really travel.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
Sixteen articles that discuss both neuroborreliosis and treatment at:
Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Thank you Sharon!
I appreciate the link to the info!!!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
| IP: Logged |
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