posted
Hello My 2 initial tests for Lyme have come as +ve for lyme 41igm antibody so i was thinking of consulting LLMD doctor . can you please suggest Lyme doctors in New Jersey or NYC areas Thanks a lot for the help
Posts: 4 | From New Jersey | Registered: Oct 2015
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Do you have a positive just on band 41? Are all of the other bands negative? On both tests?
Do you also have symptoms of lyme?
I ask because lyme doctors are very expensive. And, the symptoms are all important--moreso than the test results.
Doctors diagnose lyme mostly based on symptoms. See the symptom list on pages 9-11 of the Burrascano Lyme Treatment Guidelines found here:
With test results like yours, you want to have some clear lyme symptoms before spending the big bucks to get the opinion of a lyme doctor.
My husband was tested for lyme by an outstanding lab (Igenex in California--they specialize in tick-borne diseases). He had a positive just on band 41. He had no lyme symptoms.
That test was done 11 1/2 years ago and my husband is still as healthy as ever. He has never gotten sick with lyme.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
Hello i have had only Igm 41 band as +ve and my PCP has prescribed me 14 days doxy my sumptoms : I have had fainting episodes 2 times and heavy headedness and sinking feeling. so just for my peace of mind want to take second opinion from LLMD Thanks for the help
Posts: 4 | From New Jersey | Registered: Oct 2015
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posted
Thanks a lot for the quick reply but that might be a little far for me.Can you please suggest some one from NJ and New York City area
Thanks
Posts: 4 | From New Jersey | Registered: Oct 2015
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I sent you the name of a NJ doctor. But, since my info on her is old, contact some lyme support groups and see what they are currently saying about her.
See Support Groups on the left side of this page.
Posts: 9931 | From Maryland | Registered: Dec 2007
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You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are.
Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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