if this is where you get your support, keep coming back. i've been so happy with the support and info found here. everyone really understands. Posts: 76 | From Kalispell, Montana | Registered: Dec 2006
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posted
Hi Caryn! Good to hear from you again! I'm sorry things have not been going well for you and your family. Hang in there, and continue to seek help.
Welcome, leogrl!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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posted
Greetings from bartonella blue.Me too have the blahs,the blues and a dragging kind of a meloncholia.... Onward we all churn in this green soup of the lyme... My best greetings, from b.b.
Posts: 42 | From northern calif. | Registered: Mar 2006
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Hi LymeToo:
Checking in per request...
I am hanging on my fingernails this month. Had over two weeks of something like cholera (more likely c.difficile), and had to stop ABX! I am scared. My symptoms started coming back after about 10 days off abx. did the last four months of treatment not count for anything?? Sorry to sound pessimistic...
On a better note, I finally got Buhner's book and read it in one sitting. Great information, and after just a few days of following his protocol, feeling better already! Could all this be happening so fast??
Take care Posts: 2557 | From home | Registered: Aug 2006
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posted
tired, in pain, lost most of my friends,need a doctor, don't like the person I've become.
Posts: 353 | From Florida boonies | Registered: Nov 2005
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Nebula....have you been treated for babs?? I hope you find the answer SOON!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
not totally new here, not an elder either by any means. maybe there is still hope.
4 1/2 years of primarily neurological lyme (and likely babs, 7 months of tx later- no sustained progress of any kind, and a son of 4 years old infected in utero whose symptoms are multiplying.
enough of the oral abx, one kind after another after another after another.
bring on the iv's!! i was scared of them for a long time, not anymore. need some progress that doesn't evaporate for no apparent reason at all to give me as sense of hope so i can keep on fighting as hard as i need to.
i am more and more in awe of those who have battled lyme/TBD for years on end. i am one tough cookie, but man oh man, i had NOOO idea how difficult this path would be.
thanks to you and the other elders here, Lymetoo, I know it is possible to prevail. my gratitude for that is enormous-
hugs- dilly
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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posted
Here too! Been busy with holidays and such!
Amy
-------------------- Amy Holloway Posts: 255 | From Michigan | Registered: Oct 2005
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mbroderick
Frequent Contributor (1K+ posts)
Member # 5220
posted
I'm still alive and kicking! In fact, my feet feel absolutely normal for the first time in years!!! I might just take that leap off abx in a month or 2. Very busy with school this year and trying not to get overwhelmed with it all. Jordan is completely well and a full-time college student!!! Nothing could have made me happier...
Posts: 2097 | From PA | Registered: Jan 2004
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stymielymie
Frequent Contributor (1K+ posts)
Member # 10044
posted
open wide
docdave
Posts: 1820 | From Boone and Southport, NC | Registered: Sep 2006
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posted
I'm here, mostly lurking too. Been off abx since last May, doing mostly treatment for babs which is a bugger to get rid of.
So far, so good. Feel better than I have in years but have more to go. Co infections treatment should never be underestimated!
For New Years I want to thank everyone for their insight, research, input and all around good humor on this site.
Posts: 460 | From Illinois | Registered: Aug 2005
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posted
hilo a little late in the check-in process. I'm here, I just haven't been on here in a while! Sorry about that....I'll try to come back more often Posts: 89 | From UT | Registered: Jun 2006
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hi, i have been around for the past several days, i am trying to check in more often, things have just been so nuts around here. good to be back!
-------------------- (((HUGS!!!))),daphne Posts: 232 | From ft. worth, texas, | Registered: Apr 2002
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
by the way... pmerv (Phyllis) is here on another thread.
oh, yeah, I'm here too, in case you missed me, toots.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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posted
checking in- have been doing better w/o abx;been doing a lot of herbs & nutrients using Buehner's protocols- does anyone else do them?sorry to hear that so many of you are not well.have also been using aminos and a product called Cellfood; don't know if that is responsible for my increased energy, but i feel like my body is being cleansed and replenished.a happy note: my youngest grandson just turned 3, and i had a great conversation with him on the phone the other day-little gems out of the mouths of babes! everyone hang in there,ok?
-------------------- ~*~ Carole ~*~ Young at Heart Grandmother of 4 Posts: 140 | From Morristown, NJ, USA | Registered: Jan 2004
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posted
Hi All, hats here checking in to say I'm on vacation in the Rockies skiing and I feel great. A huge difference from a year ago when skiing totally wiped me out and horrible nerve pain went through my arms & shoulders, my feet & knees were numb and I got lost all the time.
I have a couple of rough hours in the morning, herxing after I take tetracycline. I get through it though and then have a great day.
I drink lots of detox tea, soak in Epsom salts and eat really healthy. The altitude is not affecting me the way it used to.
Wishing I could be at Dr. Js hearing tomorrow - I've been at all the others. hats
Posts: 956 | From MA | Registered: Nov 2004
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
My first time checking in!
Feeling prickly today - but happy to have a Lyme family out there. You guys rock!
Cactus
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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posted
Yes, it is amazing to be out skiing and feeling great.
In 2005 I could ski but my feet and knees would go numb and my muscles would twitch. My shoulders and arms hurt too much to use my poles properly. After skiing I felt like I'd been run over by a truck. I was foggy and got lost a lot.
In March 2004 I went skiing and was in extreme pain. I could not use my poles at all and the nerve pain in my arms required codeine after skiing. I was in major brainfog and had great difficulty getting my boots on & off becuase my hands hurt so much and my arms were weak.
In December 2004 I could not lift my skis. In fact I could barely lift my arms and was exhausted after walking across a room.
Amazing what a difference an LLMD has made! hats
Posts: 956 | From MA | Registered: Nov 2004
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