posted
hey guys...I'm here..not feeling great though..I've had iv removed for about 2-3 months. And some nuero stuff coming back...ugh!
But I will pull through it...thanks for caring about us!
daniella
-------------------- ~Things may happen in my life time to change who I am but I refuse to let them reduce me...~ Posts: 968 | From private | Registered: Jan 2005
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Whoa! Busted! Hadn't peeked in on General Support for a while!
Count me in, please.
A coupla months of treatment under my belt for previously undiscovered Babesia WA-1 and I am nearly good to go.
Yesterday, I even rode my horse.
Hah!
New people, listen up: A year ago, I prayed to make it to Saturday, so I could slump in a chair all day, nauseous but too scared of doxy to lie down, head shrieking in pain. So don't give up, you're gonna get there!!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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posted
I'm here and doing a little better. Hey Michelle, I rode my horse for the first time this summer. Yours looks like an arab. My guy is a thoroughbred. It was really GREAT!! I haven't ridden in over 17 years.
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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posted
Hi aiden...Kathy! Haven't heard from you in quite awhile. Glad you're doing better!
[I Like Al....Michelle!]
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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hopeful123
Frequent Contributor (1K+ posts)
Member # 3244
posted
hey tutu et al,
I've been reallllllllllllly busy at work, so that's why I haven't been here. Don't really have a computer at home that works decently.
I now have been off of atx for a month and a half if you don't count the ten days on biaxin I just finished for bronchitis. Seriously, I doing okay. Until I got diagnosed with bad bronchitis I was so worried that I was relapsing because I had been horribly tired for a couple of days. Such a relief to learn it wasn't connected to Lyme.
Doing supps and other stuff which has not so much to do with Lyme. Wouldn't try going off of the antidepressants. Not only are they mood regulators, but they help concentration and focus. Still have acid reflux. Try to stop taking the drugs, but then it comes back. Also, cholestoral meds. Not so bad.
I'll tell you what's really wierd. Not having to worry about eating so I can take meds on a full stomach. If lunch is late, so what.
I don't feel as good as I felt pre-Lyme, but it's okay.
Staying away from yeast and sugar - one day at a time.
Still have major yeast in mouth, although I am on Diflucan every day. I think it's the Advair discus, which I am taking twice a day since asthma acted up and then bronchitis.
I'll stop by again.
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
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posted
Hey hopeful!! been missing your happy face here!!! Thanks so much for chiming in here!
ONward, forward....hope you can stay off abx!!!
Somehow I've managed to avoid thrush. I use Advair too....You do rinse your mouth, right?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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hopeful123
Frequent Contributor (1K+ posts)
Member # 3244
posted
hey tutu,
thanks for the good wishes. yep, I do rinse. what i forgot to mention is that with the atx for the bronchitis, i also had to take prednisone, which can cause thrush, as well. \
theralac is so expensive, but it helps like nothing else, once something pops up.
still have enough to do to keep my head on straight. life can be stressful. Ya.
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
I'm here,just back from utah and MRI Brainscan,had some blood test w/ scarey findings ,and waiting on LD tests.
I'm really weary,and a bit shook about some of it. I posted some of what little info we have, Trying not to be a Chickn'Silverwolf,and not succeding very well. I want to sleep and just cannot get enough rest. OwOWooWOOOOOoooo-cluck-cluck-cluckeRoooowowooooo!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
I'm here off and on....lots going on in the summer I need to finish. Will be around more in the fall to make jokes out of people's posts.
betcha can't wait...
Charlie
Posts: 2804 | From Texas | Registered: Oct 2000
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posted
I'm here - haven't been on much this summer. Feeling okay, but not great. Looking at doing some herbal stuff - is there anything new that seems to be working for Lyme symptoms?
Posts: 62 | From Northwestern, VA, USA | Registered: Jun 2004
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posted
I'm still here! It's so good to hear how everyone's doin'.
I'm still struggling with awful bronchial issues and a terrible cough - don't know what's causing it. Waiting for results of CT scan to make sure it isn't a pulminary problem.
I started seeing a new LLMD who has me on a strict food elimination diet and also started me on Ceftin and Zith about a month ago.
Been feeling too poorly to contribute much, but I read the board regularly for inspiration and support. It's really good to have you guys here.
posted
Hey, tutu! I did get my birthday greetings, thanks. I was having a particularly awful week, so didn't have the heart to reply, but it meant a lot to get them. :-)
pmerv
Frequent Contributor (1K+ posts)
Member # 1504
posted
I'm here too, but only occasionally. I've been busy setting up yahoo groups for several states, modeled on CaliforniaLyme, which is working amazingly well. There are many people outside of the existing networks who desperately need information and support and LymeNet can be a bit overwhelming. There's something to be said for smaller and more local.
If you want me to set up one for your state, let me know. Check it out at http://health.groups.yahoo.com/group/ followed by the state name (in full with no spaces) and "Lyme." (e.g. newyorklyme) So far there are groups for CT, MA, NY, PA, NJ and CA. Slow starting but I think they have potential. Phyllis
-------------------- Phyllis Mervine LymeDisease.org Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001
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posted
Hey Lyme Buddy! YOu've really been hiding out for a LONG time!! It's so great to hear from you!! Doing well??
Heather....a JOB!? WOW!! Good for you! [send me some money $$]
Imanurse....yeah, I was wondering what happened to you. Hope your daughter does well and you can get some rest now!! Guess we'll be seeing more of you now, huh?!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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This is the first time in 2, count 'em 2 years that I have read "General"...There's a lot of fun goin' on here!!
Been hangin' in "Medical".
Think I'll come again.
Have been struggling with strep/cold/cough all August.
Have been rifing for 10 months now and herxing non-stop. Tried to start Biaxin/Plaquenil...Biaxin caused my heart to jump like a love sick teenager!!
Haven't worked in 2 years.
I'm thankful for a good husband that takes care of me and God who is the lifter of my head!
Psalm 3:3 But You, O Lord, are a shield for me, my glory, and the lifter of my head.
Bug
-------------------- Every experience God gives us, every person He puts in our lives, is the perfect preparation for a future only He can see....Corrie Ten Boom Posts: 343 | From Northcentral Iowa | Registered: May 2005
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posted
Hi to all, I'm very new to Lymenet. But I'd like to take this opportunity to say thanks to everybody for all your help. I don't post much because I don't know much. I've only been to my LLMD once and am going again this Tues. So once again I thank you all for everything. sincerely,
Don't be buffaloed into thinking this site is only for those who know everything about Lyme.
It's for people who have questions and are learning also!!!
Don't be afraid to post.
Bug
-------------------- Every experience God gives us, every person He puts in our lives, is the perfect preparation for a future only He can see....Corrie Ten Boom Posts: 343 | From Northcentral Iowa | Registered: May 2005
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posted
"TuTu", I'm here, have'nt forgotten you & the group. I'm just having a hard time coming up with the words to respond to replys or Posts. Still kicking Girl!!!!! "Miss you all", Robin
Posts: 139 | From Panama City, FL., USA | Registered: Jun 2005
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posted
Actually, Ireally haven't been here in 6 years! What ever happened to Loveyonlyme??? I hope only good. Pegee4
-------------------- To win this battle, make the time for exercise and fitness activities! There is no shortcut to any place worth going! pegee4 Posts: 59 | From Hamptons, New York | Registered: Aug 2006
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I just drop by to check up on everyone and I find the roll call request! What a great post!
Here I am! I was lost and finally found myself...maybe I am an impostor...no, I think it is me! I often wonder if I am coming or going, life is so busy and I thank God everyday that I can participate!
Many changes over the past couple years! I rounded my 2-year anniversary being off of meds! Just a few struggles here and there, life is good!
That is...until I herniated a disc in June, I am still fighting this terribly. My chiropractor feels that it is healing so slow because of the Lyme and attacking of the system, weakening everything. However, I am working hard to get through this and I will! I am heading to Canada next week to go fishing in Northern Ontario, I have to be better! He is working me over hard and often, so wish me luck!
Just delivered my baby girl to your great state in Rolla for her second year of college last weekend! Trip went well, lots of pain killers, I can say it was a "happy" trip!
No other complaints, just wishing and hoping that everyone can have the success of throwing those meds away and participating in life again! It can happen!
August is my 7th "bite" anniversary. It takes a long time, but life does get better!
How are you and your talented hubby doing? Keep in touch!
JJ
Posts: 919 | From Minnesota | Registered: Jan 2001
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
I am new to this board, but not the disease. I am here.
Posts: 1603 | From ny | Registered: Aug 2006
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then 1 kid and myself to Washington State to see an awesome Dr- we'll be going there again. Very beautiful!
Gosh! No wonder I am worn out!
Good to see everyone!
Lyme x 9
Posts: 399 | From Texas | Registered: Apr 2005
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
Just checking in per request TUTU...
Feeling better now that diabetes2 is under more control...
Yeah, loveyonlyme is around...I just saw her earlier this year at conference in Tampa.
Actually met her and her hubby for first time!
Nice folks...............zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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posted
Hang in there, Missy Heather!! Keep us posted, OK?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Good morning Tutu,
I'm here and hoping for a "good day" on Christmas, although I have my monthly herx at or around the 24th of each month.
Been reading all of the Lyme Christmas carols, was laughing soooo hard. I wish I was as creative as you all are.
Will see LLMD for 2nd visit on the 20th. Hope to start some more aggressive treatment. Also hope to hear if we can begin to build a new house on that date as well.
I am so ready to get at least part of my life back. Having a real house to have my children in would be a big part of it.
Keeping all of you in my thoughts and prayers. Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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posted
Geneal....I hope that second visit goes well....and "may your Christmas herx be LIGHT!" [set that to music]
Karen...Yes, it was great talking to you. You're not going crazy! I'll let you know when you sound crazy, OK?! Otherwise, DON'T WORRY~!!
Take it one day at a time.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Caryn
Frequent Contributor (1K+ posts)
Member # 366
posted
just a ghost.
my family doesn't even get much of me.
and i did try.
try hard to get better. i was young, strong, i was going to get better, and even maybe have another child. a child my mother in law could not steal from me and ruin. before my eyes.
try to tell the world.
jefferson airplane "get together"
"everybody get together try to help one onther right now, Right Now"
and like they haven't been hit by this too.
anyway. really hurts is friend who could have helped us, not $$$, but personally, abandoned us because i got so sick. could have helped us with the family stuff, etc...
abandoned us. but did help them big time. Carnagie! at last! but i was so attacked on thier website. by "idealistic" people. but the private emails. so different than the public people.
the ones who followed them emailing me about relatives who had lyme and died from a "stroke". had "floppy babies" like my congenital lyme son, but, wife ultimately decided not to test child for lyme, as he might be scared as they had close friends who got really messed up by lyme. thier son's future.
so much more. and the attacks! unreal and unanticipated. and you do have to question thier motives.
and a friend. a few yrs back. was not allowed to utter the "L" word. the attacks from all i was getting. he tied wieghts on himself and jumped into the Delaware. now even my husband does know that not only does he have lyme (pos pcr), but so did our friend. goodbye scott.
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