treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Having a big mean ugly dog that you have to take outside and scoop up his sh*t everday!
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Having a nightmare from which you can't wake up.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Climbing a mountain everyday in high altitude with an overloaded backpack on a loose shale slope.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
| IP: Logged |
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Waking up in a Kafka novel!!!!!!!!!!!!!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
| IP: Logged |
lymeladyinNY
Frequent Contributor (1K+ posts)
Member # 10235
posted
having burning shards of glass running rivers through your body.
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
| IP: Logged |
posted
Having Lyme disease is like being a paraplegic trying to claw your way up a flight of stairs. It takes all your strength, courage and stamina to make it one step, two, three and maybe four only to have someone kick you back down to the bottom in the pit of pain & confusion. You can't stay in the pit, but climbing the stairs seems futile. You keep on trying only to have it happen over and over again.
Lyme disease is a vicious cycle of pain, agony and despair with a glimmer of hope here and there or is that an on-coming train!
Kayda
Posts: 582 | From midwest | Registered: Nov 2006
| IP: Logged |
LisaS
Frequent Contributor (1K+ posts)
Member # 10581
posted
Lyme Disease is like watching everyone and everything you know,love,feel and cherish die everyday except you never lose consciousness ...or feeling in your heart.
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
| IP: Logged |
Cobweb
Unregistered
posted
An eraser-it's erased my health, my job, my marriage, my home, my finances...
but it hasn't erased my Faith!
"Having lyme is like being at an all you can eat buffet but are not allowed to eat anything." this reminds me of an inpirational, fictional story I heard about a group of people with a particular disorder where their elbows would not bend, so they could not feed themselves.They were still happy and well fed-because they fed each other!Just like here on Lymenet!
posted
Having Lyme is like slowly drowning. You come up for air,see the light, and are pulled back down again over and over.
Posts: 237 | From WV | Registered: Mar 2007
| IP: Logged |
savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Having lyme disease is like being in prison, for life!!!
Posts: 1603 | From ny | Registered: Aug 2006
| IP: Logged |
cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Starting life all over again, everything you once new or did is gone and you are now trapped within your own body.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
| IP: Logged |
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Having lyme disease is like never completely coming out of anesthia.
Having lyme is like being held hostage by a sadist.... You are taken away from your "normal" life and tortured daily. While you sleep your kidnapper dreams up tons of new torments.
and the kidnapper only allows you to sleep (actually forces you to sleep and sleep) so that inbetween the sleeping nightmares you can dream of all that was and all you thought would be ...
making it that much worse to wake up each time knowing your a hostage being kept by a sadist.
3greatkids
Frequent Contributor (1K+ posts)
Member # 3838
posted
Slipping on the roof and hanging onto the gutter with your fingernails.Clawing,cussing,praying and trying with ALL your might to get back up.
Posts: 1076 | Registered: Apr 2003
| IP: Logged |
Betrayal of your own body and mind.
Posts: 175 | From Pa | Registered: Aug 2006
| IP: Logged |
Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
Having Lyme is like suddenly finding yourself unarmed and horribly wounded in a war you didn't start with a virtually invisible enemy that's cunning, malicious and trying to kill you.
Posts: 2549 | From never never land | Registered: May 2005
| IP: Logged |
posted
Having Lyme is like having one of those dreams where you are running in the sand and not going anywhere. You run, run, run and yet you don't move an inch.
-------------------- Corinne Posts: 529 | From Raleigh, NC | Registered: Jun 2006
| IP: Logged |
hiker53
Frequent Contributor (5K+ posts)
Member # 6046
posted
Having Lyme is seeing what really matters in life. Hiker
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8890 | From Illinois | Registered: Aug 2004
| IP: Logged |
posted
having lyme disease is like being out in the cold, nose pressed to the glass watching other people having the fun inside........while someone keeps landing punches to your joints!
-------------------- the daughters of lions are lions too. Posts: 3 | From macau, china, SAR | Registered: May 2007
| IP: Logged |
hopeful123
Frequent Contributor (1K+ posts)
Member # 3244
posted
like having a cement block chained to your ankle!
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
| IP: Logged |
bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Finding out I have lyme disease is like finding out that I am not a weak, sorry depressive with a low pain tollerance, but one a group of some of the most strong and courageous people in the world, to a degree that most other people will never begin to comprehend.
bejoy
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
| IP: Logged |
posted
Having Lyme for 25 years and not knowing it is like the lead character in Moliere's play, The Bourgeois Gentleman, who exclaimed he had no idea he'd been speaking prose his whole life.(regular discourse)
Posts: 13116 | From San Francisco | Registered: May 2006
| IP: Logged |
livinlyme
Frequent Contributor (1K+ posts)
Member # 3773
posted
Is a rude awaking of what a reality check should not be! Someone wake me when it is over....
here is another one I tell people I meet who are sick: Lyme Disease is like your body is a hotel for parasites and all you want to do is evict the whole lot of them!
-------------------- "Hatred paralyzes life; love releases it. Hatred confuses life; love harmonizes it. Hatred darkens life; love illuminates it." Posts: 1389 | From who knows, who cares, but somewhere over the rainbow | Registered: Mar 2003
| IP: Logged |
posted
Having Lyme Disease is like a never ending nightmare, day & night... and having about as much control over it as you do your nightmares! Posts: 240 | From MA | Registered: Nov 2006
| IP: Logged |
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
hiker53 posted 02 May, 2007 09:44 PM ------------------------------------------------- "Having Lyme is seeing what really matters in life." Hiker
Lyme sure does have a way of whiddling it down. Thanks Hiker53
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
| IP: Logged |
LisaS
Frequent Contributor (1K+ posts)
Member # 10581
posted
Having Lyme is like being run over by an invisible truck several times every day.When you heave your broken body up to start over, people ask you why you are acting so (pick one) tired, spacey,painful,tearful. Cindy
-------------------- Cindy Posts: 227 | From VA | Registered: Sep 2005
| IP: Logged |
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Finding out I have lyme disease is like finding out that I am not a weak, sorry depressive with a low pain tollerance, but one a group of some of the most strong and courageous people in the world, to a degree that most other people will never begin to comprehend.
bejoy
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
| IP: Logged |
bettyg
Unregistered
posted
having lyme disease is endless RED TAPE; not green representing our lyme!
. keeping track of every dr. we see and getting copies of their medical dictation for each one;
. losing our jobs and applying for SSI and/or SSDI, disability insurance benefits, which took me 5 years of hell to get!
. watching my lyme friends go bankrupt losing their homes and everything they own in order to go to LLMDs and take the proper lyme treatment to hopefully put them into REMISSION.
. eventually going on title 19, etc.
yes, chronic lyme has robbed me of my life 37 years ago, and I WILL NEVER KNOW WHAT TYPE OF PERSON I MIGHT HAVE TURNED OUT TO BE MINUS LYME SPIROCHETES INVADING MY ENTIRE BODY!
but i am happy that i am the FIGHTER i turned out to be that i refuse to be kicked over and over by the "systems", family, friends, etc!
IP: Logged |
Vanilla
Unregistered
posted
It is like a bad Fellini flick with over tones of One Flew Over the Cukoo's Nest. It never ends... Robin Williams plays the part of the 3 mean shrinks and 4 MDs that give you Prozac and tranqs.
They will not try to correctly diagnose you even when you keep telling them you had a bulls eye rash with horrible flu like symptoms and the first anxiety and panic attacks of your life but they do offer you stronger sleeping pills and ask you why you are not married like that has something to do with it.
Lets not forget the part of the Big Nurse that is played by the psycho homeopath/NP from hell dying to toss her control issues and wrath on her paying patients.
posted
Having lyme is like being dead but still alive enought to feel all the pain and severe exhaustion, it is a living death.
-------------------- CFS for 20 Years then found LYME the root cause! Am dealing with several viruses also. Posts: 89 | From Alliance Ne | Registered: May 2006
| IP: Logged |
kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Being the mother of a lyme daughter, I can only describe what I see as an observer.
Her body is a contaminated pitre dish...a combination of Alien and the Excorcist.
It's a robber of life, a raper, a violater.
If it could stand in front of me, I would spit on it, then kill it, and kill it, and kill it.
This is worse than cancer. There is hope with cancer. There is validation with cancer. Sympathy and support with cancer. Compassion with cancer. A time limit with cancer.
I don't wish cancer on anyone, but this is like being suspended by string and safety pins.
She wakes in the morning, to endure the day, and wish for sleep at night.
I HATE IT I HATE IT I HATE IT I HATE IT I HATE IT
Posts: 2903 | From AZ | Registered: Feb 2006
| IP: Logged |
djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
lyme sucks. thats the only way about it. it sucks so bad. i am sorry for everyone's pain on this thread. i too, wake to endure and wait for sleep.
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
Having the life slowly drained out of you while being beaten with sticks and burned with embers. It is like feeling that you are dieing and just slow enough to make you hope it would just happen quick and be over with.
It is not bad enough to take away your ability to see the good in life, but bad enough to where you can not be apart of it.
Just Julie
Frequent Contributor (1K+ posts)
Member # 1119
posted
Having Lyme disease is realizing that you are not going to experience paradise here on earth. You thought you had. . . then find out that the paradise (open space parks here in Northern CA) you thought you'd finally found is making you sick. You go into "paradise" and get bit by a tick, which gives you this disease which means you can see paradise from your window, drive by it in your car, but can never get out and partake again. Not in this lifetime.
It made me wonder, and perhaps have great hope? that my paradise will really be in heaven. A place outdoors to hike, and roll around in the meadows full of wild flowers watching the cows munch on the tall grass with the red tailed hawks circling the blue blue sky above, KNOWING THAT THIS WILL NOT LEAVE ME WITH A DISEASE THAT CANNOT cannot, will not, be taken seriously, be treated by a doctor that will take my insurance, be acknowledged as a "real disease" by my family and friends, and be *cured*.
Lyme made me consider that God really did mean that heaven will be my paradise after all.
-------------------- Julie Posts: 1027 | From Northern CA | Registered: May 2001
| IP: Logged |
posted
Waking up, with yr hand's, and leg's, hand-cuff'ed to the bed post's,and having to watch every one else get to get out of bed.
And have a life of fun, and joy playing with the grand kid's,and getting to go fishing.
But, NO,Yr just hand-cuff'ed to the bed-post's, watching everyone else get to have a life.......!
It's bad enought to have most of yr part's, missing, or broaken, and then to be hand-cuffed to the Bed-Post's too...?
[ 15. May 2007, 01:34 PM: Message edited by: Texas TixanDar Dar ]
Posts: 39 | From Branson Mo. | Registered: May 2007
| IP: Logged |
Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
quote:Originally posted by bejoy: Finding out I have lyme disease is like finding out that I am not a weak, sorry depressive with a low pain tollerance, but one a group of some of the most strong and courageous people in the world, to a degree that most other people will never begin to comprehend.
bejoy
EXACTLY!!!
Posts: 2557 | From home | Registered: Aug 2006
| IP: Logged |
canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
Having undiagnosed Lyme is like a bus going downhill uncontrollably, trying to steer with the wheels falling off...there always seems to be another wheel.
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
| IP: Logged |
posted
Having Lyme is like you are trapped in your body. You're willing, your body just isn't ever able.
It's watching your kids grow up, but not being a part of it.
It's like already being in a coffin...alive, but not living.
It's wondering what life will be like in 10 years when you are already in so much pain now.
Posts: 94 | From Greenville, Tx | Registered: Apr 2007
| IP: Logged |
posted
Having Lyme Disease is like a vampire not only sucking all your blood out, but all the breath and life as well. It's hell.
Posts: 10 | From san diego california | Registered: May 2007
| IP: Logged |
posted
is like being lost at sea and instaed of sharks eating you its minnows and the driftwood you so desperatly cling to is coated in vaseline.
Posts: 40 | From AZ | Registered: Oct 2006
| IP: Logged |
Starphoenix
Frequent Contributor (1K+ posts)
Member # 2402
posted
What I often say when I wake up: It's like a bulldozer ran over me, backed up, and ran over me again. Or like someone beat me all over with a baseball bat in my sleep.
It's also like being a stroke patient:
"Uh...put it on the....uh...um...ya know...round thing...four legs...oh...TABLE!"
It's like having amnesia. It's so embarrassing when I'm at a register signing a receipt and I can't remember how to spell my last name.
It's like being punished, having to go to bed early in the summertime when you hear all the rest of the kids outside playing.
It's like being on trial for a crime you didn't commit.
It's when people don't trust you anymore because you don't look sick and they don't believe you could be too debilitated to go out at all when you were out, and even looking energetic, just yesterday.
On a positive note, it's helped me "be here now" more.
-------------------- Learning to love, and loving to learn. Posts: 1318 | From Shohola, PA | Registered: Apr 2002
| IP: Logged |
posted
Having lyme disease is like a vicious enemy stealing everything you ever worked for, destroying every ounce of health and eyesight you have and never to escape the nightmare.
Posts: 719 | From Delaware | Registered: Jan 2006
| IP: Logged |
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
up
cause it is feels good to say how you feel
"Having lyme disease is like being alone in a desert starving & thirsty and waiting for God to finally come & take you home."
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
| IP: Logged |
I am going to print out these wonderful comments and post them on a board for everyone to see at the Lyme Walk in San Diego. These are very moving!
Posts: 984 | From San Diego | Registered: Nov 2006
| IP: Logged |
posted
I'm so glad you found it, Parisa! These are really moving. Many expressed what my feeble brain would not allow!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
quote:Originally posted by CaliforniaLyme: Waking up in a Kafka novel!!!!!!!!!!!!!!!
I LOVE IT!!!! Yes, the Metamorphosis! Now, I have the urge to go read the short story. :-) I love literature -- coming from an English BA graduate!
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
| IP: Logged |
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Just Julie - that was beautiful. I hope heaven is just like what you described!
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
| IP: Logged |
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Having Lyme Disease is like feeling what it must be like to be 120 years old -- frail, weak, can't do anything for yourself, including not being able to keep house or cook dinner, and then the next day feeling like you're a kid again -- with energy and feeling like you may be able to get things done.
It's a huge roller coaster ride.
When you wake up in the morning you never know if you'll be well that day or feeling like death.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
| IP: Logged |
posted
like trying to prove a consipracy theory. Something is out to destroy me and I have to convince the rest of the world. But there is no "proof" and people think i'm crazy
Posts: 368 | From freehold, nj | Registered: May 2007
| IP: Logged |
Leaving my old healthy body and normal fights in life
To a all out battle that I never knew was out there, than learn how to live my new life of pain and hell of fighting doctors that I was taught to trust and now can't.
Doctors that I spent my life working with and trusting. Now can't trust!
-------------------- don't give up the fight Posts: 49 | From Frankford, DE | Registered: Sep 2007
| IP: Logged |
posted
Just thought you would like to know that I made a display with three poster boards. The first board saying: HAVING The second board saying: LYME The third saying: IS LIKE.....
I surrounded them with a collage of the quotes, each with its own colored background and font to set it apart. It made a very nice display. I took pictures and if I find a way to post them somewhere I will.
Posts: 984 | From San Diego | Registered: Nov 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
![[bonk]](graemlins/bonk.gif)
![[Mad]](mad.gif)
![[Frown]](frown.gif)
![[kiss]](graemlins/kissing.gif)
![[group hug]](graemlins/grouphug.gif)
![[Embarrassed]](redface.gif)
![[hi]](graemlins/hi.gif)
![[Wink]](wink.gif)
![[cussing]](graemlins/cussing.gif)
![[lol]](graemlins/lol.gif)
![[Razz]](tongue.gif)
![[dizzy]](graemlins/dizzy.gif)
![[shake]](graemlins/shake.gif)
Printer-friendly view of this topic