posted
is like being lost at sea and instaed of sharks eating you its minnows and the driftwood you so desperatly cling to is coated in vaseline.
Posts: 40 | From AZ | Registered: Oct 2006
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Starphoenix
Frequent Contributor (1K+ posts)
Member # 2402
posted
What I often say when I wake up: It's like a bulldozer ran over me, backed up, and ran over me again. Or like someone beat me all over with a baseball bat in my sleep.
It's also like being a stroke patient:
"Uh...put it on the....uh...um...ya know...round thing...four legs...oh...TABLE!"
It's like having amnesia. It's so embarrassing when I'm at a register signing a receipt and I can't remember how to spell my last name.
It's like being punished, having to go to bed early in the summertime when you hear all the rest of the kids outside playing.
It's like being on trial for a crime you didn't commit.
It's when people don't trust you anymore because you don't look sick and they don't believe you could be too debilitated to go out at all when you were out, and even looking energetic, just yesterday.
On a positive note, it's helped me "be here now" more.
-------------------- Learning to love, and loving to learn. Posts: 1318 | From Shohola, PA | Registered: Apr 2002
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posted
Having lyme disease is like a vicious enemy stealing everything you ever worked for, destroying every ounce of health and eyesight you have and never to escape the nightmare.
Posts: 719 | From Delaware | Registered: Jan 2006
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
up
cause it is feels good to say how you feel
"Having lyme disease is like being alone in a desert starving & thirsty and waiting for God to finally come & take you home."
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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I am going to print out these wonderful comments and post them on a board for everyone to see at the Lyme Walk in San Diego. These are very moving!
Posts: 984 | From San Diego | Registered: Nov 2006
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posted
I'm so glad you found it, Parisa! These are really moving. Many expressed what my feeble brain would not allow!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
quote:Originally posted by CaliforniaLyme: Waking up in a Kafka novel!!!!!!!!!!!!!!!
I LOVE IT!!!! Yes, the Metamorphosis! Now, I have the urge to go read the short story. :-) I love literature -- coming from an English BA graduate!
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Just Julie - that was beautiful. I hope heaven is just like what you described!
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Having Lyme Disease is like feeling what it must be like to be 120 years old -- frail, weak, can't do anything for yourself, including not being able to keep house or cook dinner, and then the next day feeling like you're a kid again -- with energy and feeling like you may be able to get things done.
It's a huge roller coaster ride.
When you wake up in the morning you never know if you'll be well that day or feeling like death.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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posted
like trying to prove a consipracy theory. Something is out to destroy me and I have to convince the rest of the world. But there is no "proof" and people think i'm crazy
Posts: 368 | From freehold, nj | Registered: May 2007
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Leaving my old healthy body and normal fights in life
To a all out battle that I never knew was out there, than learn how to live my new life of pain and hell of fighting doctors that I was taught to trust and now can't.
Doctors that I spent my life working with and trusting. Now can't trust!
-------------------- don't give up the fight Posts: 49 | From Frankford, DE | Registered: Sep 2007
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posted
Just thought you would like to know that I made a display with three poster boards. The first board saying: HAVING The second board saying: LYME The third saying: IS LIKE.....
I surrounded them with a collage of the quotes, each with its own colored background and font to set it apart. It made a very nice display. I took pictures and if I find a way to post them somewhere I will.
Posts: 984 | From San Diego | Registered: Nov 2006
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