It made me cry as most of us have been here all along, and never been gone.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
I LOVE Carly Simon!!!!
Maybe she will help bring some dynamite to the impassible mountain we face...
Thanks for finding this, Pinelady!
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I'm on it. Need prayer.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
Maybe she'll take up this cause, though often it seems like celebs shy away from drawing a lot of attention to their health problems.
Posts: 256 | From Texas | Registered: Jun 2010
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"Wearing a white nightgown, a kind of Victorian-style shift, she answered the phone. "I'm fine," she said. "I'm not fine, what am I saying?" For one thing, she's been ill: She thinks she was bitten by a tick when her horse was put down." ...
"Her West Village duplex has been on the market for years, but she still has her house on Martha's Vineyard. There, waiting for a Lyme disease test early this week, she was in bed again in the late afternoon, but optimistic. ``I'm a believer,'' she said. ``So I'm a believer that the next great thing could happen.''"
I really hope she knows that the tests aren't accurate!
Posts: 472 | From New Jersey | Registered: Dec 2007
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
It's hard to imagine living on Martha's Vineyard all those years and NOT having Lyme.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189
posted
I sure hope she draws some more attention to our fight , but when 'The Boss' said nary a word...in the press anyhow... about poor Bill Chinnook, up in ME, after he did himself in (Bill was an original member of the E Street Band in NJ back in the early '70s), I start to wonder if all these big music-industry "icons" just want to keep mum- as they age- when it comes to personal health.
Seems Everyone's falling of the stage &/ or ripping their bodys up lately. You aren't 25 forever! Geesh! Even the store manager- where I work- messed up his back at a gig last Friday.
I secretly hope Carlyn's "ex".. J.T., takes on the cause. Esp with things getting worse down on the Vineyard. But he's busy lately with Carole King... doing that "reminiscing tour"... And chatting about ticks might break the spell, huh?
[sorry about that looong 1st sentence )
Posts: 1233 | From Dover, NH | Registered: Sep 2008
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posted
Well if I'm ever famous, I'll be Lyme's pitbull. I'll attack and won't let go until we've won.
Posts: 743 | From New York | Registered: Apr 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Thats the spirit! I suspect trauma to the immune system when she lost her life time friend-her horse.
So many seem to have the same thing happen in Lyme if we too become stressed in any way.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Moving to General Support
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
I get envious of the people able to afford any and all types of treatment. I just don't sympathize with them as much as I do with the person stuck with no LLMD's in their state and no funds. Hopefully, she realizes about those of us that more unfortunate and crusades for the cause.
Posts: 743 | From New York | Registered: Apr 2009
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posted
I don't have time to search the whole blog, but if i remember correctly, she's had Lyme for at least 20 yrs....??
When she kinda "disappeared" for awhile.. it was the Lyme. She used to have panic attacks and performing made them worse.
I used to listen to her while in college... listened to her, Neil Diamond, The Moody Blues, The Beatles, Simon and Garfunkel!!... on and on... they were all great!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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-------------------- 5 yr. Vet. of the Lyme war. Helping and sharing are now my only objectives.I have nothing to sell & I no longer interfear with things I cannot control. But, I have learned many good things from my affliction & am a better person for it. Posts: 51 | From Northeastern PA | Registered: Jul 2010
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![[Smile]](smile.gif)
, but when 'The Boss' said nary a word...in the press anyhow... about poor Bill Chinnook, up in ME, after he did himself in (Bill was an original member of the E Street Band in NJ back in the early '70s), I start to wonder if all these big music-industry "icons" just want to keep mum- as they age- when it comes to personal health.![[Eek!]](eek.gif)
You aren't 25 forever! Geesh! Even the store manager- where I work- messed up his back at a gig last Friday.![[Roll Eyes]](rolleyes.gif)
![[Razz]](tongue.gif)
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