MADDOG
Frequent Contributor (1K+ posts)
Member # 18
posted
What a load of male bovine excrement from the CDC!!
MADDOG
Posts: 3996 | From Ohio | Registered: Oct 2000
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
I posted too & can see my own post, but it is not available to the public.
Posts: 2087 | From NY | Registered: Oct 2011
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
oh right...all in my head
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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hiker53
Frequent Contributor (5K+ posts)
Member # 6046
posted
Actually, I agree with a lot of the video. If you are not getting better you need more tests.
However, I have had every test in the book including 4 MRI's, lumbar puncture, bone scan etc. and I don't have anything else wrong that they can find.
My igenex Lyme test was positive, so I will go with that diagnosis. Antibiotics did not help me, though.
Not everyone with Lyme symptoms have Lyme, but I think Lyme is underdiagnosed.
Hiker53
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8890 | From Illinois | Registered: Aug 2004
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
I've had every test known to the medical community. many several times. spent literally tens of thousands. all negative exceptfor igenex. abx jus made me worse and worse.
candida helped some. parasite treatment almost did me in.
has to be a way to treat without killing the patient.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
You guys should really check your blood, if the tests are negative & you still have symptoms. I wish I can check this guy Robert's blood. I bet anything I will find the spirochetes in his blood.
I looked at my blood from the very beginning of going chronic & could not find anything. As weeks turned to months I developed more Lyme symptoms, that allowed me to then confidently say it was definitely Lyme & at the same time these spirochetes exploded in my blood.
To the point they are now everywhere & I get short of breath & if I move too much/fast & I am so tired.
Under Our Skin 2: Emergence clip of biologist telling us that borrelia can easily be seen in the blood. And guess what? They closed down his research & tried to suppress this information.
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
I know I sound like a broken record, but a lot of these ticks are carrying the Filarial Worm co-infection as discovered by Willy Burgdorfer and more recently the researcher Dr. Eva Sapi.
If that is the case and a lot of people are infected with parasites, then borrelia is not the main culprit in Lyme disease. For the life of me, I cannot understand why this has been so ignored even by some of the best LLMDs???
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
Bastards
________
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
The flood gates of the Lyme community have opened & the comments have finally been enabled in that video.
I have never seen that many thumb "downsis" in a Lyme video before.
posted
Gael, one of the reasons I switched from a "LLMD" to a ND was because after I repeatedly enquired about having parasites they dismissed it. Once one of the Dr.s told me the parasites would be destroyed in the course of antibiotic treatment. It was one of my first red flags to find someone else to help me. I don't think a lot of them know what to do about parasites.
Posts: 143 | From Pittsburgh | Registered: Jan 2014
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
Why are they doing this?
About a year ago, they were warning that people were dying from heart attacks caused by Lyme disease that the victims didn't know they had.
It was all over the internet and I was encouraged that the CDC was letting this be known.
Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
Another strike for the IDSA/CDC...I hope moral is getting low there?
"The Deutsche Borreliose-Gesellschaft (German Society of Lyme-Borreliosis) raises objections to the IDSA Lyme Guidelines published in 2006. The fundamental basis for our objections is that the implementation of the IDSA guidelines extends beyond the United States and into Europe.
Accordingly, our ability to diagnose and treat patients with Lyme disease is being severely restricted by these guidelines, and we believe that the guidelines must be revised to provide greater flexibility in the diagnosis and
treatment of Lyme disease given the poor laboratory test sensitivity, the persistence of the organism despite adherence to IDSA protocols, and the seriousness of this illness."
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