Troutscout, I can tell by your posts that you are doing better. I don't post much, but read a lot, and am glad to see so much improvement.

I think it's a good idea. If you, or a loved get's sick with Lyme it can be very overwhelming.

It can be very overwhelming for newbies just at Lymenet alone.

If you go the see a Dr. and are given ABX, you can read 50,000 posts on ABX in Medical.

But...I thought you were a little out of hand and I got 'pissy'... :rollseyes:

So....are thinking what I brought up a LONG time ago was a wise idea?

I revisited this thought the other day...in my mind..it would have kept the flames a little lower recently...well, that and good decorum...and, less devious work from some others.

Trout

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Do unto others as you would have them do unto you.

Trout

I'm not quite understanding the relation to what happened over Benicar..to my mind it seems the problem is in the HANDLING of a subject and the treatment of eachother..

(Whereas the discussion of ideas and theories, of our immune function in relation to Bb, of the possibitities in treating that, in any way if at all..is of great value and should be included in our medical discussions..)

Everything went awry because of bad behavior, not because the subjects or ideas didn't belong here.

I hope we can scroll back, and take a look at our immunology in relation to out illness, and share ideas as to how to investigate that..

To me, that's a relevant, potentially productive question...in relation to LD.

However, cure all, take it or leave it, no questions asked, do or die ideas, personal attacks, IMO, are non-productive and detrimental to the group.

Taking sides was what was what was totally non-productive, and got us into trouble in the first place.

Why propose doing that to solve a "problem" that wouldn't exist had ideas been discussed freely with respect, caution and interest?

Mo

That is what happend...people...JRW became obsessed....haven't any of you seen that yet?

Are you So bling as to see the forest thru the trees?

JRW is as sweet as the day is long..and he's also sick, just like the rest of us, and deserves the right to be who he is.

From what I could see, he was waving a caution flag, which is to be respected in it's own right..especially after the whole ICHT thing..maybe he was overly passionate and non-objective about the caution..I don't know..maybe not..

maybe some of the others were overly passionate and non-objective reguarding the many questions asked..I saw that going on, too.

Can't comment on 24's posting of a private communication..that's none of my business, and we only saw one bit of the whole exchange.. that's like having blinders on..and then making judgements.

Either way, his intentions were genuine. Reactions to caution and questions were also really out-of-line, IMO..and in no way do I see the whole fiasco as his fault. No way..
allot of legitimate questions were not met with an air of understanding response..not sure why..

Free brought great info here..but was also quite aggressive and avoided allot of questions. I'm not questioning his character or info AT ALL, maybe he's just focused on one thing and has no time for questions..just that I can see where some may be wary of his mannor...that's all..whether there is reason to or not.

Take a look back at all the exchange..it's pretty clear when you look at it all objectively (except, Free deleted his posts)

Scott's leaving the group wasn't the doing of JR, it was his own decision...and I think everyone, including he, played a part in the inability to discuss the issue here.

But..things happen for a reason..maybe discussion can continue on Lymenet in regaurd to very specific points and our illness and the theories.

Mo

I have to wonder why it would not be a better use of someone's time to work on figuring out this illness, rather than calling all over the country, checking up on people's identities and credentials, at such an early stage of a discussion?

Believe what you will, but this does not feel like a safe place at all for a free exchange of new ideas.

I hope you find your way by following JR's way. I sincerely doubt it, but whatever it takes to get well is my motto, and if that works for you, then great.

Only commented on what was going on here on the board.

Penny, you were very kind in addressing questions when you could, that is much appreciated.

Kudos for opening a discussion group, it's obviously needed.

I do regret, though, the underestimation of Lymenetters as a whole to be able to discuss and question these ideas, and the removal of valuable information from the site as a result..the free discussion was blocked at MANY avenues..making it difficult for many to understand.

I have faith in this group as well, though..and I believe we can do a fine job of looking at all of this.

I hope some will consider continuing discussion here as well.

Mo

I don't think Trout's idea of having an "alternative" forum was looked into enough. From what I saw over 50% of the posters here were in favor of some type of break up in Medical.

I no longer post here as frequently as I use to, due to the BS that went on in the "Vibration" thread awhile back and this latest thread.

It's a shame, as I can learn alot here, and I also feel I have alot to offer others here as well. At least I try to help.

But it is becoming a battle ground lately, and I just don't have the energy to wade through all the BS to get to the good info.

I've also noticed that many posters are posting less or have stopped posting all together...It's a shame when our posters start leaving as they no longer feel comfortable on this board

~LymeBrat

That's what I've always seen as the great strenghth here..what gives us all as a group a real fighting chance.

A united front is essential in doing that, and many members feel Medical is the frontline..where we need all the ammunition we can get our hands on.

A united front!..we'll loose without it.

For the most part, we have that, and I treasure it. I have and continue to utalize a plethora of information from medical, both in real time and on the search engine for me and my kids, both abx and alternative.

new folks especially need access to all information in one place..we all help eachother SOOO much.

It seems the detriment to this has come from poor treatment of eachother sometimes when opinions differ, not because information is not catagorized.

I for one, still feel strongly that subsetting of medical info weakens the frontline.

Mo

The most important thing on this board is the support we receive from each other. Knowing that we are not alone in this fight strengthens us all. It's encouraging to hear the stories of others, and be able to share our thoughts to others that somewhat understand what we are going through.

Most of us on here aren't in the medical industry, yet spend long hours writting our friends from Lymenet about things that we believe might help. At no point are we to confuse advice with medical expertise.

I vote to do anything that will bring us back together. I'm too tired to write down options right now. All I know is we should spend more time helping each other rather than bashing each other.

Trout - thanks for coming up with a possible solution! Hope it works.....

I truly do care about you guys and wish only the best for Lymenet and its users.