sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Thank you for your prayers, encouragement, and advice friends
I do live near a larger city so yes there are many good hospitals nearby if I were to need another one.
I chose to go to that specific hospital ER because they are affiliated with an excellent neuro group called the Mayfield Clinic. I was hoping that one of their docs would be on call... maybe by chance I would get seen or get a direct referral or appt.
So even though I didn't get seen that night by a Mayfield doc, one has now accepted my case. I am scheduled for an MRI and better quality x-rays tomorrow. Once the reports are in on monday, he will decide what else needs to be done and will schedule the appt from there.
I know fractures sound like ortho problems and that's what I thought at first too. I've learned that orthopedic spine surgeons do not handle cases like mine. You must see a neurosurgeon for repair (for vertebroplasty or kyphoplasty and whatever else they might need to do...).
I've been very conscious of how much pain medication I am taking. Trying to take as little as possible. Then I get upset with myself because I still need the full dose that they prescribed... just to be able to move and breathe.
So I called my PCP's office again today and asked if they had any cancellations for monday. They had one appt slot open up, thank God! So I will be able to see my PCP on monday and hopefully he will agree to refill my pain meds to help me last until I can get in with the neurosurgeon. Of course, we also need to discuss why I'm suddenly having these fractures in the first place and possibly start a treatment for that too.
Monday feels so far away! I'm trying to be more careful with my movements so that I don't get further injured.
Posts: 5237 | From here | Registered: Nov 2007
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
thank goodness...but please be careful with movement...and get help if you can
just to clarify-above i did not say "dont talk to your llmd" i said in my experience when i did talk to my llmd when in crisis he (they) always told me to deal with crisis-let attending doc tell me what meds to take or stop...and then go back to llmd when stable
good luck. be careful
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
sammy, I am so glad you are having testing done tomorrow and that a good doctor has accepted your case. What a relief!
Please take whatever pain medication you need. You will not be on it forever. Intense, constant pain can be so draining.
I hope the tests go well tomorrow. I also hope your appointment with the PCP goes well on Monday.
Do be careful with your movements and get plenty of rest in the meantime.
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
<<<<< sammy >>>>>,
Prayers continue for your healing and protection, I am so sorry you are in such pain.
More gentle hugs and prayers continue!
Dear Lord,
Thank You that Sammy can be seen soon, keep her safe, and swaddled in Your love and comfort as she waits and while she goes thru the tests.
Please keep the Angels surrounding her,with gentle hugs, and freedom from pain.Let her have peaceful, restful, healing sleep.
In Jesus Name Amen!!!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
First and foremost: Pain relief. A medication that is, in essence, natural and has been shown to relieve the pain of compression fractures, is the hormone calcitonin, and it comes as a nasal spray. Next is diagnostics, but don't waste time; a dexa scan will tell you what you already know, that you have osteoporosis, but it won't do much more than establish a baseline. You may need to see an endocrinologist to understand why you have soft bones at a young age. You should have serum calcitonin measured, as well as the 25 hydroxy and the 1,25 dihydroxy vitamin D levels. Don't let them put you on the 50,000 IU vitamin D protocol if your vitamin D level is found to be low, you will need D3, the 50k is D2. Start D3 low and go up slowly.
Posts: 60 | From Maine | Registered: Jan 2012
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
So glad you got an appt. Will be saying a prayer for you.
Keep us posted.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
But what about the risk of further fractures while not in the hospital?? Not that anyone loves being in the hospital, and least of all us. I guess you will be moving very minimally now. I just worry about your spinal chord, and also further fractures. It sure seems to me that you should be in hospital while they do your work up and get you stabilized.
I'm glad we heard from you. I thought either you were finally sleeping and resting a lot, or were possibly in the hospital.
Those are beautiful prayers from Silverwolfi.
Oh, and, yes, take what pain meds you need and get more soon. That much pain is destructive. You need to rest and sleep.
Docluddite is right both about the vitamin D and the calcitonin. You should try for quite high vit. D levels, like 75 or 80, even though that is higher than the usual lab ranges.
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
quote:Originally posted by docluddite: A medication that...has been shown to relieve the pain of compression fractures, is the hormone calcitonin, and it comes as a nasal spray.
Don't let them put you on the 50,000 IU vitamin D protocol if your vitamin D level is found to be low, you will need D3, the 50k is D2. Start D3 low and go up slowly.
I just found this: Quote: Magnesium helps to regulate calcium transport and absorption. By stimulating the secretion of calcitonin, it aids the influx of calcium into bone and promotes optimal bone mineralization.
This looks like low magnesium is part of the problem of why we lose calcium from the bones and get osteoporosis.
The Lyme bacteria depete our bodies of magnesium, as they use it themselves. The body draws calcium from the bones to make up for the loss.
Doc Luddite, I have a family member who just took the 50,000 IU dose of D2 over the winter. Is there anything she can do about it now?
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
Thanks Silverwolf for the prayer..
But does this CR-P just never end?///
To others...is it Lyme related ,,is it meds
They say don't take calcium ,which may not of had anything to do with this .....
But Get some Mag shots from LLMD after this is over...
What's up with the D2 I took it for a while then found D3 drops..told to take then not and I'm only 38 on blood test..
I have back pain ,BUT i THOUGHT i KNEW WHY now I wonder
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Good luck to you, Sammi. I hope you feel better soon!
Thank you to DocLuddite, too!
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
So I finally saw my PCP today.
I went from 5ft 4.75in to 5ft 3.25in I've always been the small one in my family, now I'm even shorter! Oh, this just broke my heart even more.
My PCP is very nice, not judgmental about the Lyme or any of my other crazy medical things that have since popped up. He just kinda shakes his head in disbelief and asks if someone has written a book about me yet. Essentially my LLMD has written a book of office notes on me...
So thankfully my PCP was willing to refill my RX for pain medication, though at a lower dose. He really didn't want me to be taking it. I kinda have no choice if I want to continue eating, drinking, and breathing. I consider those activities life sustaining.
He also recommended some tests that he wants my rheumatologist to order. I have an appt with my rheumatologist wednesday, he has a special interest in osteoporosis so my PCP felt comfortable allowing him to do the DEXA scan and most of the diagnostic testing.
I asked if he thought that the neurosurgeon would be able to fix my spine since I have been having pain since Jan 31 (that's when I had my last appt with PCP's wife). He said he didn't know. Said he hoped that they would be able to do the kyphoplasty and restore some of my height and stabilize my spine without major surgery. Said he didn't want to see me have any other kind of major surgery to straighten my spine. At least he was honest. The idea of surgery still scares the daylights out of me. I don't like the thought of anyone touching me, especially my spine! Yikes!!!
I had my MRI and a whole bunch of x-rays of my cervical and lumbar spine done on Saturday. Went to a hospital that was supposed to be in the neurosurgeon's digital network. Well, apparently they told me wrong. Multiple phone calls and now my mom has gone to pick them up to bring them to the doctor's office. Hopefully he will look at the MRI and x-rays sometime tomorrow and give me an appt. I really need an appt soon! I can't handle the pain.
Thank you friends for your continued prayers. Please pray with me that God will work everything out so that I can have an appt soon. That he will protect my spine while I wait so that I will have no further injuries or damage. That He will also bless the doctors as they come up with a treatment plan, guide their thoughts, hearts, and hands to best help me.
Thank you also for your suggestions. I am taking some supplements that should normally support bone health. I take a good multivitamin by Thorne with calcium + other minerals. I take lots of magnesium (a mix). I drink at least 1 glass of milk, often 2 per day. Take 2,500 IU vit D3 + K2 per day.
My last vit D levels were 60. My LLMD said that was perfect. They were 80 about 6mo ago and he had me lower my dose of D3 because he said that was too high.
So that's what's going on with me. Still hurting but trying to hang on.
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
sammy, thanks for the update.
I am glad things are moving along, but I hate that you have been having pain for so long!
It is good that you will have further testing done on Wednesday. I wonder if there is there any way the rheumatologist can call the neurosurgeon to maybe get you in right away? Or maybe once the neurosurgeon sees your results, you will get in quickly.
Prayers continue for you. I hope the pain meds give you enough relief until you can be seen.
Hang in there, okay?
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
OMG. this is crazy that the neurosurgeon hasn't seen your test results yet, and that you don't even have an appt yet!! I still think that you should be in the hospital with everything completely expedited (much as you are scared of being in the hospital). This is an emergency for Pete's sake!! When are they going to get it!??
Call the neuro's office first thing tomorrow and make sure that he sees it ASAP and that you get an appt immediately. If not, sorry, you need to go back to the ER and demand to be admitted. (by crying and letting them know how much pain you are in, and what is going on with no response from the neuro). I know you don't want that, but this is crazy. you can't wait.
Oh, and get the Rheumy and the Ehlers Danlos docs on board and calling the neuro to get things in motion IMMEDIATELY!! That may be the most helpful of all. Don't wait until Wed. to get the Rheumy to know what is going on and to contact the neuro. Time is not on your side. This must be handled NOW---before it's too late for the kyphoplasty.
Praying for you. Keep us updated. Lord have mercy!
Posts: 3792 | From around | Registered: Mar 2008
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
*Update 3/20/12*
I finally got an appt with the neurosurgeon! He wants me to get a Dexa scan before I see him though.
The nurse said that this test is necessary for him to know if my bones would be strong enough to withstand any surgical procedures. So the earliest I was able to schedule my appt for is next tuesday 3/27.
I will go see my rheumatologist tomorrow and get the Dexa scan done as soon as possible. Hopefully those results will be good.
Before today I had not thought of the possibility that the neurosurgeon might refuse to treat me based on Dexa scan results. That worries me. I can't imagine living with this pain. I'm too young to have my spine permanently curved like an old woman. I imagine leaving this deformity/damage untreated would only lead to more back pain and destruction.
Thank you all for listening and praying for me. I feel like you all are really the only ones that care right now.
Posts: 5237 | From here | Registered: Nov 2007
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posted
Oh my. I am so sorry you have to wait even longer. I will pray, pray, pray.
Keep us posted.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
All the best to you, sammy! I hope you get through this quickly.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
You are in my thoughts too. I hope the surgeon accepts you and you can get over this quickly.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Praying for you, sammy!!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
sammy, thanks for the update. We do care.
Why would you think the neurosurgeon would not treat you? Please do not think about this now.
Good luck at your appointment tomorrow, let us know how it goes.
Good luck on Tuesday too. Keep us posted.
Posts: 4682 | Registered: Oct 2000
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Did your chiro read good quality imaging studies prior to the adjustments?
-------------------- My biofilm film: www.whyamistillsick.com 2004 Mycoplasma Pneumonia 2006 Positive after 2 years of hell 2006-08 Marshall Protocol. Killed many bug species 2009 - Beating candida, doing better Lahey Clinic in Mass: what a racquet! Posts: 830 | From Mass. | Registered: Aug 2006
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Hubby's PCP has the DEXA machine in his office. The machine actually has software that writes the report. And it is supposed to be able to compare prior scans if the machine is programmed correctly. Hubby's doc did not have that programming set up but both scans were done on the same machine and the reports are in the same format.
Ask about getting a copy of the written report and there might be an option of getting something on a disc as well.
I would push for getting the report ASAP and maybe you could have someone hand deliver the report to the neurosurgeon and get a quicker appointment.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
You're on my prayer list.
Posts: 331 | From West Coast | Registered: Jan 2012
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Argggh! This is just unreal! There must be a place where you can get the DEXA scan same day on an emergency basis!! What about the local hospitals?? You or your mom could do a search (or ask the surgeon's office for a list) of places that do it, and call until you find one that can do it immediately. Can't the surgeon order it done on an emergency basis at the hospital?? you can not afford to wait! Yeesh! Leave no stone unturned to get this right away.
Did the neuro see your MRI films, etc. already? Doesn't he realize that this is an emergency?!! It's all stunning.
Love and prayers to you and your family. But, please, don't slacken now (not saying that you would!). I just want to encourage you to get this scan done right away. I'm sure there are lots of places to get it done.
Posts: 3792 | From around | Registered: Mar 2008
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
sammy, how are you doing? I hope you have your test results and a plan of action.
Posts: 4682 | Registered: Oct 2000
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
*Update 3/26/13*
I will go for my DEXA scan later this morning.
Then have my IVIG treatment in the afternoon. It will be a busy day for me.
Tomorrow at 2pm is my appt with the neurosurgeon. I am excited and nervous. I really don't want surgery but I can't handle the excruciating constant pain. Oh, I hope and pray that he can fix my back, make it good as new.
Thank you for continuing to care and pray with me friends. Please pray that these DEXA scan results will be good enough for the surgeon to safely operate to fix my spine. That God will bless and lead my doctors as they come up with their treatment plans for me.
Hugs, thank you LN friends I don't know what I would do without you!
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Thanks for the update, sammi.
I am praying for you, dear friend, that everything works out perfectly for you, and your pain resolves.
Huge hugs!! Just meditate on Jesus, Jesus, Jesus, when you are nervous. He will be there holding your hand.
Will wait to hear how things go.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
Sammy - thinking of you - as I have been past days. Prayers for you from me also.
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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AuntyLynn
Frequent Contributor (1K+ posts)
Member # 35938
posted
Sammy - I'm praying for you too!
But I have three questions ...
1. Why are you waiting around for a neurologist when you should be seeing an Orthopedic Surgeon?
2. Why in heck are they making you go out for a DEXA scan when you shouldn't even be standing? Most hospitals have them on site.
3. Why don't you just call an AMBULANCE to take you to the next appointment? If you get into another coughing/Nausea fit on the back seat of a car ... you could be paralyzed for life. In an ambulance, at least you'd be prone.
Sometimes pain can interfere with logic!
Posts: 1432 | From New Jersey | Registered: Jan 2012
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Dogsandcats
Frequent Contributor (1K+ posts)
Member # 28544
posted
I have been scanning these posts and am amazed at our medical system. I don't know why.
You poor baby, I want to fly to where ever you are and smack some doctors around - wouldn't do any good for you, but sure would feel good for all of us on the board.
Keep you eyes on the Lord, as He is the great Physician. When pain overwhelms or fear creeps in - look to God. I don't know why you are going thru this - but I know God is with you. This may seem sappy considering how much pain you are in and all the nut jobs you are dealing with - but rest in His arms.
Sometimes I find myself holding my breath because the pain is so bad. Breathe out and take the pills for pain.
God bless you and I will be in prayer for you! Praying for a miracle ...
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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We are all praying for a positive Dr visit for you today.
-------------------- aperture Posts: 551 | From Louisville, KY | Registered: Nov 2011
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RZR
Frequent Contributor (1K+ posts)
Member # 20953
posted
Sammy,
We are all praying for you. So sorry you are going through this.
I would be glad to help dogsandcats smack some doctors around.....I have bart rage anyway and it would feel make me feel great!
-------------------- Tick bite May 2009 Diagnosed June 2009 Posts: 2329 | From SouthEast | Registered: Jun 2009
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fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
Poor Dear Sammy, I do pray that God will lead all of your Doctors to heal you and relieve you of this. May the healing hand of God guide their every thought and move pertaining to your treatment.
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
*Update 3/27/12*
Oh friends, my appt did not go well. Not at all.
The neurosurgeon said that with the "7 vertebral body compression fractures" (yes, you caught that, I did fracture another one...) surgery would be too risky because I could potentially develop a bone infection due to my primary immune deficiency.
I got the distinct feeling that he simply did not want to be liable for treating me because I was a complex patient with the immune deficiency and the multiple compression fractures.
I asked if he would have treated me differently if I did not have the immune deficiency and he hesitated for several seconds then said "well... no...". That long hesitation was a big "yes" to me.
He said that my DEXA scan results were -3. So I do have osteoporosis. Which again I was told is unusual at my age.
I broke down and cried in his office because I have been waiting so long for this appt, waiting to hear his treatment plan.
When I learned that there was no treatment plan, my hopes were crushed. I told him that I can't handle the pain. It is truly unbearable. It's excruciating. I asked, what am I supposed to do? How long will this pain last?
He told me that I should restrict my movement and stick with bed rest. He gave me a prescription for a back brace to wear when I have to be up. Said that will take the pressure off my back and support it. Said the pain will gradually get better but it may never go away, I will "get used to it".
I just continued to cry. I tried to ask a few more questions. Enough to see that he was clearly uncompassionate, totally unempathetic. I cried all the way out of the office. I couldn't help it.
You probably would too if you were in this much pain and had been waiting for almost 2 months for someone to take your pain seriously and treat you!
This doctor that I saw is a part of a very well known and highly respected neuro group.
I'm stuck in a nightmare and I really need a miracle.
Posts: 5237 | From here | Registered: Nov 2007
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Sammy, I am SO sorry to hear this. I can't imagine. That is just heartless of any physician.
I know of a orthopaedic surgeon in Michigan who is one of the best in the country. He is not easy to get into, but you could try calling. He has quite a reputation and works on a lot of sports athletes.
PM me if you want the name/number.
I would never give up in that much pain. As many others said, I wouldn't hesitate to pop into the ER room and cause an uproar.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
sammy, I am truly flabbergasted about this doctor's behavior. I cannot believe he expects you to live with the pain and just get used to it! This is unacceptable.
As so many of us here know, supposedly respected doctors are not always so. You definitely need to get another opinion.
I am very sorry this happened. I am also very sorry that you have an additional fracture.
Have you told your Lyme doctor what is going on?
There has got to be a way for you to get the help you need. Can your mom or someone nearby make some calls for you?
Prayers continue. Hang in there.
Posts: 4682 | Registered: Oct 2000
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Sammy,
Your situation is beyond imaginable. My prayers are with you.
I just sent you a PM with some information. I hope it helps.
Take care,
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
Don't give up Sammy, there are other Dr's out there. I am so sorry you are in so much pain. I will continue to pray for your miracle.
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
No, I have not told my LLMD yet. I was going to call him after I saw the neurosurgeon and had more information about the treatment plan. But there is really no treatment plan.
Right now I just have a diagnosis and terrible horrible unbearable pain.
I know I need to tell my LLMD because they are going to be receiving copies of a bunch of labs results that my rheumatologist and PCP ordered in an effort to try to r/o what is causing my osteoporosis.
I feel like I don't know what to tell my LLMD. He's in another state. I wish I lived closer to his office so that I could see him in times like this.
I cannot see an orthopedic surgeon because I've been told that they do not fix this type of fracture. Originally I had a referral to an ortho spine surgeon (supposedly very good too). When I told them my diagnosis the doctor said that I needed to see a neurosurgeon.
I've made an appt to see an Interventional Radiologist (Dr.T) for a consult for thursday afternoon. I know that they too can perform the khyphoplasty using fluoroscopy to repair the vertebral body compression fractures. I really hope and pray that this doctor will accept me as his patient and treat me.
Thanks for praying for me friends.
Posts: 5237 | From here | Registered: Nov 2007
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posted
I can't evn imagine how frustrated ou are. Someone has to be able to help you I am just sick for you reading this. Praying for quick miracles for you.
-------------------- Tick bite in 2006, bullseye rash, treated with 2 rounds of 2 weeks of doxy. (once in 2006, once in 2009) Dx with chronic Lyme May 2011. LLMD April 2012, Treating with omnicef/zith Lots of supplements! Posts: 640 | From Connecticut | Registered: Apr 2011
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
I would let your LLMD know even though the doctor is out of state. He/she may have some suggestions.
I hope that Dr. T. is caring and that he can help you when you see him on Thursday.
Keep us posted sammy.
Posts: 4682 | Registered: Oct 2000
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posted
OH Sammy... I am so so sorry to hear this! Call a pain management clinic ASAP.. after calling your LLMD.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
sammy,
I am so very sorry for all that you are going through.
I am fervently praying for God to have mercy on you, dear friend.
Lord, please guide sammy to all the right people that can help her in all the ways that she needs.
I agree, that it sounds like you need very good pain management in the interim.
If there is anything at all that I can do for you (besides praying), please pm me.
I am adding you to a prayer list right now.
I am praying and praying and praying.....
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Sorry, sammy. I don't really know anything about this illness but I did find this article -
Osteoporosis in Men1 John P. Bilezikian - Author Affiliations
Departments of Medicine and Pharmacology, Columbia University College of Physicians and Surgeons, New York, New York 10032
All of this takes time to figure out. I think you could try to get the pain under some control & then try to think about it & study. It's hard to think when the pain level is high.
It's really hard to find a good doctor. If you could get some control over the pain - it would be a big help. Then, you could focus on trying to get some kind of cure or treatment plan.
Hang in there... You never know what tomorrow will bring.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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I've always been the small one in my family, now I'm even shorter! Oh, this just broke my heart even more.
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