posted
Yesterday while out on the east end of long island in Mattituk I saw a tick crawling along the weeded area - so I decided to inspect my daughters head and sure enough I found a tick that looked like it just attached itself to her scalp - I panicked and pulled it out w/ my fingers right away! Out of anger that this little demon was on my child I crushed it - I know I should of kept it intact f
Posts: 259 | From new york | Registered: Sep 2002
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posted
For possible testing!! I did a little searching on the Internet and am pretty positive that it was a dog tick not a deer tick and was not that small either - any advice on what if anything I should do next? Seing that I have suffered from lyme and babesiosis for over a decade I will not allow my daughter to go through this! Thank you for taking the time to read this lengthy post! Lenny
Posts: 259 | From new york | Registered: Sep 2002
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I was just reading yesterday a positive lyme test on a dog tick from Igenex. I thought it was lymenet? Maybe our FB support group?
I'll go looking for it and post.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Well shoot, I can't figure out how to post the Igenex positive test picture??
Pam
Photo taken by an advocate in OH...this is what she wrote.
**** Lyme Disease detected in a COMMON DOG TICK in Guernsey County, Ohio****
"I just got these results from Igenex today. I sent a dog tick to them for testing. I ordered the test for B burgdorferi (Lyme), Babesia, and B. henselae (bartonella.)"
"The results: See for yourself!"
"There is so much hype about worrying that deer ticks have established in Ohio - and surely, it's worth the hype. But this is proof that being bitten by the "common" dog tick should not be taken lightly."
"Friends, Ohio's current budget bill removes funding for testing of ticks. The tick population has EXPLODED this year - by all accounts! Add that to the fact that you personally know me - Amy Kissinger - and I personally have this document showing the bacteria that causes Lyme was in a tick that I personally harvested in Guernsey County."
"This was the first time I ever sent a tick to be tested. Do you REALLY think that I got lucky, and found the random dog tick positive for Lyme? Or do you have your thinking cap on today and realize the likely dreadful reality - this is super common and you are harms way... . In a few years, you will be diagnosed with MS, Fibromyalgia, RA, etc., and you will waste away, ignorant of your true illness. "
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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posted
And I still have the tick! Where do I go for testing? It is not fully intact because I crushed it to kill it!
Posts: 259 | From new york | Registered: Sep 2002
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
Would highly recommend finding a doctor who will prescribe 6+ weeks of Amoxicillin (which is what kids are given who are too young for Doxy) or Doxy, depending on her age. Does your LLMD see kids?
Could always start out with urgent care to get some immediate drugs, which will buy you some time to keep looking for a longer script. I have found the urgent care centers to be pretty free with drugs, but you have to give them some "hook" to allow them to do it (ie brought my daughter in for prophylactic abx in a similar situation and urgent care doctor said he would give her the abx, but said it was because she also had a cough.
Her cough was very slight - I think he wanted to help us and just needed a hook b/c prophylactic abx isn't standard fare for mainstream docs(although it should be in this situation!)
Posts: 1737 | From Virginia | Registered: Aug 2011
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posted
Well I went to a few docs who even w/ me begging did not give antibiotics- 2 weeks after the bite my little girl has a 104 fever and Is not acting right- coincidental ? Maybee - this time her pediatrician gave a script for amox- I pray to god this works out okay-
Posts: 259 | From new york | Registered: Sep 2002
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I am so very sorry to hear of your experience. I hope you find an ILADS educated lyme literate doctor (LLMD).
WHY you need an ILADS "educated" or "minded" Lyme Literate doctor (whether MD or ND, or both) - starting with assessment / evaluation.
Medical "models" explained here, as to differences in the ISDA & ILADS models of assessment & treatment - and exactly why it is so very important to know the differences.
How just doxycycline (or other antibiotics, when alone) can cause chronic lyme:
Topic: replication within cystic forms of lyme -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Antibiotics can cause a worsening of symptoms from a "herxheimer" reaction. See the section here for CHILDREN - to ease a herx. Also see the note to avoid acetaminophen.
- Not an exclusive or formal list. Remember to connect with STATE and LOCAL lyme support groups for the best area options. Just always check to be sure they are of like-mind with the groups above, with ILADS as the educational base.
Each group above has a unique focus, yet they are all fully "lyme literate" - as well as tick-borne infection literate (as lyme rarely travels alone). All are ILADS "minded" -- bringing them all together. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Be sure she is checked for ehrlichia and babesia.
keep us posted, lenny!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I do not know about using a rife machine on a child. I could not easily find that answer with a quick search. Still, you might find this helpful. And the LL ND detail may be of help for your daugher - at least until she might be able to see a LLMD (waiting times can be quite long).
LL Naturopathic links here, too. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
I got my tick flu 2 weeks after my exposure. Also had high fever. Plus pain in head, neck and back. Vomiting. Sweating. Couldn't eat. Fainted twice.
My problem infection has always been Babesia, which on top of its own severe symptoms makes Lyme symptoms much worse.
Will your doc test for Babesia? If she has Babesia duncani, she should be treated ASAP. Duncani is a horrible, virulent strain. Do not let it go chronic.
posted
Her pediatric dr gave me a 30 day script for amoxicillin twice a day- she only got bit 2 weeks ago- tick was not engorged and prob only on her for less than an hr- is this treatment enough? Doc said a test this early is pointless and that even though he doubts her high fever is related to tick bite he said if it was his daughter he would want to be safe! Thank you all for the input and advice!
Posts: 259 | From new york | Registered: Sep 2002
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You say the tick was not engorged and probably not on more than one hour.
That makes no difference. Infection can occur the very instant of the bite (from an infected tick). The moment the skin is punctured and the tick mouth parts come in contact with blood.
Within a short time of a bite, lyme can invade the central nervous system, throughout the entire body and brain. Same for other tick-borne infections.
Most doctors do not know this because the IDSA is ignorant in this regard.
I hope you can find an ILADS educated LLMD or LL ND.
In the meantime, do try to get her assessed and tested for other TBD because they can be fatal if left untreated. Antibiotics cannot treat babesia. Other Rx is required.
And, for lyme, a single antibiotic can CAUSE chronic lyme to develop. Combination treatment is required to address the cyst form & biofilm. Antibiotics cannot do that.
Sorry. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Do not let anyone give her steroids, even for skin. I wish your whole family the very best of luck. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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