Derealization is my worst symptom by far. I have had it for a year non-stop for a year. I have been treating for 4 1/2 months. I have had three glimmers of it getting better. I have been taking doxy/rifampin/zith.
My doctor just switched me to omnicef, zith, mycobutin, and flagyl. I am pusling these. It's weird. He think it is bart and this should help.
For those of you who have overcome it, what did you use and how long did it take?
Kathy
-------------------- Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly. Posts: 515 | From washington dc | Registered: Aug 2008
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lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
Derealization was the symptom I hated the most and I didn't think it would ever go away.
This probably isn't too helpful but I bought a rife machine several months ago and started treating babs at the same time.
I'm not sure which, but either babs treatment or rifing took care of it.
I feel for you and hope you can find a way to rid yourself of it soon.
Lauren
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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posted
Lauren, Congrats on getting rid of it. Still trying abx. Might get to rife eventually. Kathy
-------------------- Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly. Posts: 515 | From washington dc | Registered: Aug 2008
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
long term high dose multi class abx tx.
also provigil helps it. concentration is better on it.
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
djf2005 - did your LLMD think it was caused by bartonella. Mine does. What abx? Probably the whole range of them.
-------------------- Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly. Posts: 515 | From washington dc | Registered: Aug 2008
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posted
like I am living under glass, not present in the world. the world goes on around me as I go through it. I can't feel thing emotionally the way that I should.
-------------------- Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly. Posts: 515 | From washington dc | Registered: Aug 2008
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posted
Yea Venus I have been wondering the same thing. Its been my worst and most bothersome symptom for the past 4 yrs.
When i start doing better it starts getting better but it never goes away fully.
I wish i had some more input. It seems like most people who have this symptom get better with bart or babs treatement. I guess its different what the cause is for each person.
Ill be sure to let you know if it improves for me.
CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
This is one of my worst symptoms. It has not gone away for good, but has rather left and returned. Undoubtedly bart or babs for me.
Posts: 3528 | From US | Registered: Apr 2007
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posted
Well, I might be herxing hard from my very first day of this treatment - I was having the suicidal thoughts last night. That hasn't happened since started treatment.
I wonder if it is a big, bad bart herx. Makes me scared to take the drugs again tomorrow. It might be too much for my system or maybe I need to work through it. I just don't know.
-------------------- Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly. Posts: 515 | From washington dc | Registered: Aug 2008
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