METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
I'll report my progress with Rife as soon as possible. Whatever the end result, it'll be nice for me to finally get first hand experience. I don't have any obvious options left, so it only makes sense.
My specialist is encouraging and supportive. She told me patients that fail other therapies like I have sometimes surprisingly improve more effectively using Rife. Obviously they (Dr. H and his PA) said they've also seen plenty of people not improve using Rife.
MAP: I don't think any of us like to be patronized, so I understand. I can accept that behavior though. I accept it because I realize that people here are angry, frustrated and sick, especially when expensive therapies (proven or unproven) fail.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Porsche, I don't even use a rife machine, but I'm stumped why you are so much about this. Really, isn't there better more productive ways to spend time healing?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
Ok, let me weigh in here for a second. I am feeling much better than yesterday. Lesson learned: don't overdo it.
Yes, I probably am still battling active infection. I have never claimed to be cured by rife. If I believed I was cured, why would I continue to rife? Indeed, if I was cured by Buhner herbs, or oral abx, or IV, why would I be treating at all?
What I believe is that sugar, alcohol and skipping sleep and working very hard lessened my immune response. When my immune response is reduced, I have a flare up of symptoms. I did before ever treating, when on abx, and it is the same on rife. But, no matter what you say, Porche, I am able to work full-time, drive, cook, and parent and I couldn't do that 18 months ago. There is no question of improvement, if it's placebo, I'll take it. Maybe the radical improvements on mepron and IV rocephin were placebo, too- at least in part, it's possible, no?
What I don't want to see and what I sense in your posts is INTIMIDATION. I will NOT stop posting my experience with rife and I will not stop posting about my personal experience, even if I suffer a setback. FYI- I did orals for 6 months, went off and relapsed hard. I did orals another 8 months and plateaued and then backslid before going to IV.
Please keep a civil tone. Actually, is it too much to ask for a kind tone? You don't have to believe in my treatment approach. I hope you find something proven and standard that works for you. Goodness knows I told myself I'd never do IV or rife.
But please speak with kind words, tone and intention. That is the best way to wellness for all of us. Porsche, I wish you good health in the new year.
[ 01-08-2010, 05:54 PM: Message edited by: sixgoofykids ]
Posts: 524 | From Hudson Valley, NY | Registered: Jul 2007
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posted
Oh, and one more thing I must add after reviewing the thread. I will also post if I go back on abx or herbs. I am not in the rife business so I have no reason "hide" if rife treatment eventually fails me.
My goal is to get some support and to offer some first-person experience that other people can use to make their own decisions.
Much of my progress through this disease can be attributed to having others post their unscientific personal experiences on lymenet. I am trying to add to the dataset in an honest and forthright manner.
Posts: 524 | From Hudson Valley, NY | Registered: Jul 2007
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posted
Hi mama. Oh please don't try to discredit my comments by trying to label me as an angry person that has an axe to grind because of rife...... that's not the case at all, and my tone on this thread has not been an angry one. You are mistaken about that to say the least.
I'm glad that you are feeling better. Yes, I know that you never claimed to be cured. But you did make this claim:
quote: and I am symptom free.
Which brings up another point that I would like to comment on. I only hit on the ``symptom free'' part of this statement last time, so let's look at this part now: ``I am using rife with no other supplements or alternative treatments''
But in the ``I overdid it thread'' you made this statement''
quote: Thanks, July. I am trying to relax. I did rife and I am drinking green tea and trying to detox as much as possible.
So are you under the impression that green tea is not a supplement, and that heavy detox is not an alternative therapy?
Just in case you are, let me point out that green tea is considered a pretty good defense against malaria all by itself, and that it has some very strong immune building properties, not to mention its synergistic properties with other herbs, abx, and supplements.
Honestly, I'm not going after you on some vendetta for the comments that you made; I'm just using the opportunity to back up what I said before. I don't think that you lied about these things on purpose, but I think that it's important for others to see how people think; that a lot of chronically sick people are either not aware, or just plain forget to mention all the things that they are doing that might make a difference in any particular alternative therapy's perceived success.
Here's my point: Talk is cheap on the internet. No one can be sure what any person is really doing as far as other therapies, herbs, detoxing, exercising, and so on unless you are actually living with that person and are able to verify it.
The internet is probably the greatest tool to date for learning as far as I'm concerned, but it is also the easiest way for crooks to con someone with false information and fake identities. Our society is still pretty trustworthy overall, and then when you add sickness and brain fog and desperation to boot, it really makes it hard not to believe what seems to be a sincere testimony.
Whether you believe it or not, there are many fake identities on every health board that have been there for years, and new ones are continually added.
That's why internet testimonies are worthless IMO, unless I actually know that person. I want to see real evidence that something works before I spend a lot of money on it, or waste a bunch of precious time that I don't have trying it. This is what abx and herbs have...tons of studies and research that show them working on animals and in people, even when used against placebo's...rife doesn't have this.
Now to you that believe that rife is working. I believe that it is not, that you would do just as well without it if you were to continue with your usual supplements / vitamins and herbs and leave out the rifing. All you need is to have the same faith that you are putting in a placebo Tx, and a faith coach that will give you the assurance that you will need along the bumpy road to follow; someone that will be there to continually remind you that what you are attempting is the right path; that all the bouts of fatigue and brain fog to come will pass if you only stick with your belief.
Metalicblue: I don't believe that anyone can effectively judge whether or not rife is working by trying it unless they were to quit everything else. The typical rifer usually has a significant list of supplements, herbs, and detox methods that would make it impossible to rightly divide any improvement. At least IMO.
Posts: 132 | Registered: Jul 2005
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posted
The first time in my life that I drank green tea was with this symptom flare over the holidays. My detox methods include drinking lots of water and eating blueberries and I don't believe any of these things change the fact that over the fall I was symptom free.
Over the holidays I ate sugar, aspertame, alcohol, worked hard and lost sleep causing a symptom flare. None of this means that rife doesn't work. Please don't use me as the poster child for it working or not working. But as to opinions about what is working for me, I think if people care about my current status, they should listen to the utmost authority on me and that would be me.
FYI I am taking no other vitamins, not even a multi at this point and had exactly two cups of green tea in my life, both yesterday.
I hope you find real evidence that something works, so far I have not found that for anything, especially after relapsing from abx.
I do not believe internet testimonies are worthless. I took MMS and it nearly killed me and I try to enter every MMS thread to let people know that for me it caused a severe drop in platelets- to the point that I was at risk for bleeding. In addition, I relied on testimonies to figure out what was making my PICC line insertion site breakout- like others I was allergic to adhesives. Testimonials are valuable in both cases.
Indeed, if testimonials are worthless, why are you here?
And by the way, your comment "I don't think you lied about these things on purpose" is exactly the kind of comment I was referring to in terms of tone. You ARE accusing me of lying- just not on purpose. In fact, your post implies that I am so "chronically ill" that I cannot remember what supplements and detox protocols I am on. Not true. And I would be more than happy to have a pm from anyone who wishes to have more information about my protocol, etc.
What treatment are you pursuing, Porsche? Or are you just here to evaluate others?
Posts: 524 | From Hudson Valley, NY | Registered: Jul 2007
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Porsche-
Your tone and remarks on this thread are clearly angry and inappropriate. You call people foolish and ignorant and claim you don't have an angry tone? You can see by the responses of others on this thread the I am not alone with this opinion.
Your arguments are hollow and frankly don't make much sense. Why are you wasting your valuable time "that you don't have" here? And furthermore, if you don't believe in testimonials from strangers, than why are you even here? That's what this forum is - ANONYMOUS TESTIMONIALS!
Maps is right...time to ignore at this point.
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
I agree.. Stop that back and forth and post your experience and opinion and move on.
No need to pick on or pick apart one person and keep on going and going...
You made your point.. So whats the deal..
If you do not believe rife works. All you have to do it post that.. and thats that..
If your hell bent on stopping people from trying it. You can not do that. We all get to choose our paths. Just like you do..
Live and let live..
You do not have the answers anymore than anyone more than anyone else does.. We are all just trying to help ourselves and we get to choose that route. That does not make anyone better than anyone else.
If you have proof of what does work.. Would love to see you post that.. for us all to see... and hey maybe you would grab my attention.
But there does not exist such a thing or we all would not be here.. now would we..
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
quote: Metalicblue: I don't believe that anyone can effectively judge whether or not rife is working by trying it unless they were to quit everything else. The typical rifer usually has a significant list of supplements, herbs, and detox methods that would make it impossible to rightly divide any improvement. At least IMO.
I agree, and that's exactly what I'd like to do. Additionally, the reason I'll be attempting Rife is after having evaluated a friend of mine after his 2 years of therapy. In 2006 he bought a used EMEM23D for about 500 dollars, just like mine. He began keeping a diary. The diary was primitive and simply included the frequencies he used during each session, how long the sessions were and the time frame between treatments, his symptoms, and a percentage of what he felt his function was i.e. 50%, 60% etc. I told him I would purchase a machine of my own from someone he didn't know if the results he had in 2 years were significant. I made it clear I would do this even though the report would be subjective.
He had been on antibiotics of various combinations for 3 years (From the start of 2002 thru the end of 2004). Unfortunately he got stuck at about 40-50% (He waxed and waned there, just like I wax and wane between 35-45%). He stopped treatment for a year in order to prepare for treatment. He fell extremely ill inbetween since he wasn't on any medications or any other supplements except for eating a "regular" diet, and taking plant sterols (Cholestapure) which is what his LLMD recommended he use while on Rife. He did gradually start exercising after a year of therapy, such as walking.
I told him I didn't believe Rife was an appropriate therapy for me to do at that present time. He didn't try to persuade me before or during his own process.
Once he was ready, he did his thing. When he completed the 2 year protocol he told me he was very confident in recommending the treatment to me given our cases were similar. He recommended it only after I requested his opinion. I told him "You have no proof it works though. Just because you're feeling better doesn't mean anything" His retort was, I'm 95% functional Mike, I feel great. I have a job, and I'm in a long term relationship." That's all he had to say. This kid was down to earth and I knew him well enough to trust his judgment since he and I worked together on the Myspace Lyme group that he founded. He had built boats with his father and was an avid civil war and Revolutionary Gun builder/collector before he fell ill. He kept carving the guns during his healing process he told me.
This kid and I talked constantly prior to his starting treatment -- 2 years actually. Once he began treatment however I tried intentionally to not talk to him very much so as not to be affected. In-fact, the 2 years passed by extremely quickly as a result. We spoke perhaps 3-5 times in the two year period.
So that was how I came to consider Rife a viable option. I bought my machine used from a young guy who felt he'd bought the machine prematurely, given he hadn't used antibiotics or herbal therapies. He felt his load was excessively high and thus even minor treatments with the Rife caused debilitating herxheimer reactions. Whether he was actually experiencing herxheimer reactions is unknown to me, but I trusted his judgment and he didn't try to sell me on it. He simply answered my questions. I asked for pictures and that was the end of it.
As anyone who knows me can imagine, I was extremely skeptical, but over time (In 2008), I began researching the results of other patients who performed a similar treatment pattern with the same machine that my friend had used. The reports were overwhelming, especially when I began talking to other people who I trusted too. I didn't follow their cases for "years" but I knew that for me personally, I could tolerate and trust their judgment as honest and worthy of consideration. The "average" consensus of the patients I spoke with was simple. They all made it very clear that it probably would not cure me.
When I spoke to people, I focused exclusively on those who "didn't" use supplements and who went off antibiotics before starting therapy and who remained disabled before therapy began (I defined disabled as unable to work).
I did a variety of research on Rife and felt the evidence was thin, but frequencies were being used in a variety of settings that demonstrated that it was possible that the claims people made might be reproduced. I felt the controversy was absurd surrounding Rife, but all I had to do was compare it to the current controversy of Lyme and long term antibiotics (which also had no objective proof via studies). It was obvious to me that while there was no proof and that hundreds of thousands of physicians around the world denied Lyme was Chronic, that it obviously was, since I kept coming up positive inspite of long term antibiotics. I felt better using antibiotics but better didn't mean "well." It meant I was no longer dying from the disease and was stabilized at 35% on most days.
So, will it work? I really have no idea but I've spent thousands of dollars in my own money as well as a million plus dollars over 20-25 years of my insurance companies' money) and wasn't healthy. Earlier in the thread I spoke about what I knew. I don't know if regular Rife machines sold perform as I described earlier but I do know that frequencies do cause damage to various cells and organisms if enough energy is supplied.
600 dollars (For the EMEM23D) and a commitment of 2 years of therapy seems harmless to me to at least try since nothing else has worked. I see Dr. H in New York. His PA is the one I really like working with and so I asked her (as well as his) opinion on the therapy. They said the results were mixed and the felt antibiotic therapy should be the first line. If treatment failed they said a lot of patients turned to Rife. Most flared up directly from using the treatment and decided not to continue, but some got much much better." I decided to also investigate further by having patients intentionally ask their LLMD's directly (As a favor), if they felt Rife treatment was effective in cases where antibiotic failure was present. Since I maintain one of the major LLMD lists and collect patient reports after they've seen the doctor, it was easy and very logical to use them to accumulate knowledge for my personal use on their dime. The majority of LLMDs said they "DID" feel it helped people but they didn't know why -- they each also made it clear they couldn't recommend it for legal reasons but they could give the patient their opinion and information if specifically asked about their observations. Some very well known doctors in the Lyme community did recommend it, but they are so cutting edge that I felt uncomfortable personally putting much weight on it.
After all of this, here I am. Does it work exactly as reported and claimed? I have no idea. Are there side effects that might hurt me? I have no idea. I've been on so many toxic drugs and tried so many alternative treatments it seems self evident to take the risk.
The reason I'm telling everyone this is so they understand what has motivated me to consider this avenue.
One last note. My friend who got well has not returned to the Lyme group (even to moderate) since reporting his recovery to me. He told me privately when asked that "I see no reason to take part in the group now, it self functions fine by itself and I'm well now. I don't know if I'm cured and I don't care. I'll continue to maintain my health by doing Rife monthly or every couple months. If I get sick again then you'll know because I'll be back immediately to try something else."
It's coming up on two years now and I haven't heard from him since, though I do see he signs onto his own myspace page occasionally. I'm very happy to have not heard from him.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
I wish you luck.
Posts: 132 | Registered: Jul 2005
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lymie_in_md
Frequent Contributor (1K+ posts)
Member # 14197
posted
If anyone deserves a break in their treatment, you do MB. Really hope rife works for you!
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Thank you, both of you.
For anyone who wishes to see everything I've tried, I laid it out very systematically, including symptoms, history, and the who, what, when, where, why, and how regarding treatment.
lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
Porsche...You really seem to enjoy stinking things up. I used to post regularly on the Lyme Friends website when I first began my Rife journey and I was torn apart by someone much in the same manner that you're tearing apart Catskill now.
I'm wondering if you're the same person? Of course if you are you won't speak up and say so, so I suppose that's neither here nor there.
Now, I know you're thinking, "But I tried Rife and it didn't work." Well, I don't believe you. I don't believe that you've ever been anywhere near a Rife machine. The good ole' "internet hearsay" thing is a two way street and judging by you're tone in this thread you just don't strike me as the "I'll try anything" type. You're point that anybody can get on the internet and say anything is well taken. I'll leave it at that.
For others that are still following this thread and are trying to get something constructive out of it I'll try my best to offer support and my personal experience with using Rife as my MAIN tool of treatment against Lyme and Babesia.
When I first began Rife I was tapering myself off of abx. It took me about 3 months after starting Rife to finally make the leap and stop abx all together. It helped greatly that my insurance cancelled me and 3 years of Lyme and Babs treatment had virtually wiped me out financially - I had no money left for abx and certainly not for my thousand dollar a month bottle of Mepron. Alas, I would have no choice but to rely solely on my machine to get well.
Let the journey begin. For the first month or so after stopping abx I felt GREAT. Very typical reaction. Because I was feeling so good I didn't use my machine. Right at the one month mark symptoms started creeping back in and I felt lousy. I used my machine, herxed my behind off and after about 3 days I felt much better. I repeated this cycle for many, many months until my symptoms lessened in severity and my flares grew further and further apart.
In the midst of all of this my Babs symptoms came back full force and I was pretty ill. I definitely had my doubts that my machine would have any impact on this infection, but once again, with no money and no health insurance, I had no choice other than to give it a go.
To my pleasant surprise minutes after using Babs frequencies on my Babs symptoms I was symptom free. In a matter of minutes I went from barely being able to walk b/c I was so ill to feeling fantastic. I was so ecstatic over this that I got on here and wrote a whole post about my experience. Nobody was more shocked than me that I had such a profound reaction. Placebo effect? I think not. You have to BELIEVE in something in order to reap positive benefits from it according to those that tout the placebo effect.
I used my machine against Babs for several months before finally getting rid of this infection. I got symptoms, I rifed, I felt better. I got symptoms, I rifed, I felt better, and on, and on, and on for months. I have not had any Babs symptoms since September and I have not used my machine for babs since then either.
As far as the argument, "Well how do you know it's you're machine when you're doing detox and taking multiple supplements and drinking green tea?" Of all the arguments against Rife this has to be the MOST ridiculous of them all. The same could be said of antibiotic users! I don't know of anyone on this board who takes abx and nothing else, be it vitamin C, probiotics, a multi-vitamin, some sort of B-complex, digestive enzymes or any other number of things.
So once again, this is a two way street. How do we REALLY know that they aren't seeing improvement from any of the above rather than their Cipro, Zithro, or Mino. Can their user reports be trusted?? Maybe they're all crazy! Heck, in light of all this perhaps all of us should just ditch whatever treatment we're on since we can't TRULY decipher what's helping and what's not. Of course I'm being sarcastic myself here...I just want to point out what a silly argument this is, and in my humble opinion it has absolutely no merit whatsoever.
At this point in my life, after a little over a year of using my machine I am 90%. I work full time, have the occasional drink and once again have a pretty full social life. Like Catskill, if I neglect myself and eat too much sugar, pull an all-nighter or drink too much alcohol I will get a flair in Lyme symptoms. So, I'm I cured? No. But I have a quality of life that I haven't experienced in years and never experienced on abx.
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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pamoisondelune
Frequent Contributor (1K+ posts)
Member # 11846
posted
Thank you, Lymielauren!
So what frequencies did you use for Babesia??
570? and?
Maybe you could post it on the other rife thread going now?
Thanks!
----Polly Polygonum ----or Nilufar Knotweed
Posts: 1226 | From USA | Registered: May 2007
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lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
Polly - thanks and will do!
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
I say..
Be Happy for ANYTHING
Be Happy for ANYONE
That helps or feels better from this horrible disease no matter what it is .. or how it is done!
Great story Lauren
So glad to hear
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
Look, I don't want to argue with you or anyone else on this board. What really aggravates me is that you're lumping all Rifers together in one big heap.
I'm not against negative testimonies at all and I personally know of a person who bought a machine, used it for several months on many different known Lyme frequencies with ZERO results. I'm very curious and also puzzled as to why they had such a different experience from the one that I had. Why???
I wish I knew. I firmly believe that these testimonies should be heard right along with the positive ones so that the person buying the machine goes into it with an open mind and a healthy dose of skepticism.
That being said, I do think everyone that has chronic Lyme should spend the 400 bucks and at least try it. From what I can tell it helps more people than it doesn't, and the ones that are helped are usually helped drastically.
If they purchase a machine and it doesn't do diddly-squat for them then they can easily sell it and make their money back since most are on a waiting list for one anyways.
If you did use a machine and it didn't work - I'm truly sorry. I wish everyone could experience the profound results that I have and then there wouldn't be much need for this board at all. How awesome would that be?
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
I just kind of skimmed through all of this. No medicine is 100%.
A big part of healing is based on belief. If you don't believe the treatment choice you are trying will work - chances are that it won't... This is true for many modalities, drugs, herbs, etc.
It's very individual. Even if there are studies & proof - it may not work for "you" in particular.
There are scientific studies from universities that frequencies can shatter pathogens. If you search for them, you will find them.
I haven't really seen any proof that the standard lab tests are 100% accurate, that the abx kill Lyme or co-infections, that herbs heal people 100% or that anything works 100% for everyone.
It's all very individual as to what will work & what doesn't. Most medicine is based on averages. There are always situations where people are outside of the norm - either for positive or negative.
Some things are frauds. We just have to give it thought & research to see if it's worthwhile. Alot of this dealing with Lyme & company is trial & error.
If the idea of Rife is not appealing - it's probably a good idea to try some other method. No reason to discredit it for everyone. Some people seem to be getting results with it.
I've seen alot more positive responses to Rife than negative ones.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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lymie_in_md
Frequent Contributor (1K+ posts)
Member # 14197
posted
What is absolutely ludicrous about how to treat is the thought you buy something it's suppose to work as if there is some implied guarantee. Magnesium might help one person and not another. Vitamin C and salt helps one person not another.
Rife is a tool, nothing more, it may have its time in a treatment method, but it is one method only. It might be useless if there is potassium deficiency. Or it might be useless if your eating too much sugar and defeat the purpose.
To me testimonials are weighed, if it is 50 / 50 you have to determine how to get to 100 percent your self, what other supplements get you there. So far the testimonial are more then 50 / 50 for rife, and I really hope it doesn't hurt anyones feelings I said that. And I defy anyone to prove me wrong, but if you try show your statistics and how they were arrived if you dare.
By statistics, I would like to see at least 50 testimonials rife doesn't work, look them up on the internet. Have them post here. Also within the 50, the other things they were doing, the type of diet they were on. Whether they exercised, what kind of relationships they were in. To profile success versus failure isn't easy.
And by the way, Royal Rife proofed to the satisfaction of the AMA in the 30's that rifing kills pathogens. Rife has its place, we just have to learn better how to apply it.
I also agree with Sparkle about the power of believe. The use of meditation. There are sooo many avenues to consider in creating a successful result from any tool you engage into a protocol.
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Thanks Bob. It's hard because the treatments take so long & we really don't know if anything gives us a permanent cure. Dealing with all of this is a big, time-consuming nightmare.
If people do get better from using a Rife - they probably want to do something other than sitting in from of a computer writing up their experience on a blog or message board.
Sometimes, they may stop treatment or try something else. So, we don't have alot of long term statistics as to how this all works out. The same can probably be said for treating with drugs, herbs, or other things, too.
We are all just doing what we can to try to have a life after all of this illness. We have to keep believing something is going to work.
Rife type machines put the empowerment to get well in our own hands, With all of the bizarre things we deal with in this illness - it's kind of comforting to know we have a huge list of "stuff" we can look through to treat with a machine we own. Even if it's 6 months or 5 years later.
I don't have a Rife but I'm seriously considering getting one.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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WildCondor
Unregistered
posted
Rife did not help me at all. It seemed like quackery and potentially dangerous. I tried it repeatedly and it did not do anything. Some people feel Rife helps them. HBOT on the other hand has produced lasting excellent results.
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Thanks for your report WC. Do you recall which type of machine you used? I investigated HBOT, and it was definitely something I wanted to do. Sadly I couldn't afford the costs for enough treatments to make a significant impact.
Anyone who can afford HBOT as apart of their therapy -- including those who do alternative therapies, or even Rife, should.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
lymie_in_md
Frequent Contributor (1K+ posts)
Member # 14197
posted
On the line that wild condor brought up, that it didn't work for her (and thanks for the comment). It would be great if you could try before you buy. Somehow if those using rife would allow folks to try there machines before they make a purchase. Not all therapies work for everyone.
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
wildcondor,
Thanks for your comments. Can you tell us more about your experience? For example, when you were using your machine, did you feel anything? I have tried a friend's machine once for only 30 seconds and I felt a tightening in my head, so I know it was doing something. My husband felt this as well. Did you ever have any feelings like that during a session?
Thanks, tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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quote:Originally posted by lymie_in_md: It would be great if you could try before you buy. Somehow if those using rife would allow folks to try there machines before they make a purchase. Not all therapies work for everyone.
There are manufacturers that allow a 60 day money back guarantee - that is the main reason I bought my machines from where I did. 60 days should be plenty of time to find out if it does anything for you.
The problem with letting people try your machine is that you open up a lot of potential conflicts - I would be cautious who I let use my machines and I definitely would not turn it on for them.
Just be careful is all I'm saying - I would open my door to anyone if it were possible but I/we should make sure it is not being considered a treatment. I know I am not authorized to treat anyone.
All My Best,
-------------------- BTW - I am NOT a medical professional - just speaking from MY own personal experience. Posts: 266 | From Philadelphia | Registered: May 2005
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
It has always been a mystery how it can work for one person and not another.
I understand that happening with, for instance, my Crohn's treatment of using LDN. It is known to work about 70 to 80% of the time. Since it is altering the immune response, I can understand that is going to vary for each individual.
Frequency treatment for Lyme should kill Spirochetes, at the very least, in anyone. I noticed some do get a Herx, but do not improve otherwise. That makes some sense, as this can happen using any treatment.
I am not sure if it is a detox issue or what it is, but that problem is not so much a treatment problem, but something else. If four different treatment methods produce the same result, then you have to find out the reason for lack of recovery other than the method of killing Lyme. Certainly one of four methods should have produced some improvement.
What really puzzles me is no reaction at all, good or bad. That one I have no explanation for. I wish I knew the answer, because not knowing does not help anyone.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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quote: I used to post regularly on the Lyme Friends website when I first began my Rife journey and I was torn apart by someone much in the same manner that you're tearing apart Catskill now. I'm wondering if you're the same person? Of course if you are you won't speak up and say so, so I suppose that's neither here nor there.
No, it wasn't me. I have never joined that group....I don't even go there to read either. I barely post here as you can see from my whopping 112 posts to date over a five year period.
Dig down a little deeper in your past, and I'm sure that you can find a few more bitter memories that you can heap on my back as well. Maybe a little psycho analysis will help. Maybe it will help to put an end to your need to continually lash out at others when they disagree with you.
You use the term ``torn apart'' to describe what happened to you and catskill both. I didn't see what happened to you over there, but I doubt if it's an accurate description of what really happened, based on what I wrote here. All I did was to give actual proof of what she claimed, and what she did in reality. It was all matter of factly laid out. I didn't attack her character as a whole, or try to make her out as some kind of evil person like you are trying to do to me. I attacked her argument with her own statements, because that's what people need to see.
Why is it necessary to use a real example? Because rifers believe that experience is king, and that no one's opinion means didley unless they have actually used it. It isn't enough to give examples from people that have found rife to be useless; it has to be first hand information from actual experience. But it doesn't stop there; if there are negative testimonies against rifing, well there has to be a reason like operator error or machine malfunction. And then finally if all else fails, attack the person and try to discredit their testimony as you and others have tried to do in this thread.
Posts: 132 | Registered: Jul 2005
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Why was this post brought back up again with the same posts as it had a week ago?
Either way, I saw my LLMD yesterday (Dr H in NY). They are encouraging me to use Rife now. They said "We have a routine for people who Rife that will support your treatment. The Rife is your decision, we don't know or suggest frequencies, but we can provide plenty of help in detox, heavy metals, and many other areas.
This was a shock to me. It was the PA who I saw and have worked with. She is brilliant. She did "not" prescribe or recommend this to me, but she seemed excited and happy about my decision to take it seriously.
At any rate I'm exhausting a few more antibiotics before starting. She prescribed ongoing Rifampin, Tindimax, Naltrexone, RX Chelex, Vitamin D3, Milk Thistle, Vitamin B6, (Multi Mineral), Lariam, Magnesium, Diflucan or VFEND, Ongoing Nystatin, VSL3/Theralac/Saccrymycin, ALA, and NAC, as well as Dr. Zhangs Hepa#2.
She also told me to get a Reverse Osmosis unit installed for fresh water. She told me I need to drink a lot, especially when I begin Rife. She told me once I'm done with the antibiotics, then I can start Rife if I choose.
Anyway, I thought this was exciting news since I'd never heard her so excited about Rife before.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
Metallic, please let us know if they seem to like one machine better than another or whether they like several. They might not be able to state that for fear of the law. I mentioned to my LLMD that I was interested in rife, specifically an EMEM, but he didn't comment on it although he said a lot of people were helped by rifing.
Sheryl
Posts: 258 | From Spokane, WA | Registered: Oct 2008
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
They do not support any particular machine.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
Rife didn't help me one bit.
Posts: 365 | From Sylvania | Registered: Aug 2008
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IckyTicky
Frequent Contributor (1K+ posts)
Member # 21466
posted
Hasn't helped me because I have not been able to try it yet... that said, I have a personal friend who recently cured his own cancer using only rife.
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
Hello Icky.. Thats great news.. Does that person have a blog or a place they told their story?
I am trying to introduce this to my mother as a possiblity for her cancer treatment and a success story would be a nice thing to be able to read..
Thanks Let me know .
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
For those of you like JR and wildcondor and others who say rife has not helped them, it would be so helpful to hear the details of your experience.
Can you share what machine you used and how often you used it and how long your sessions were and whether you herxed during or after it?
This is the type of info that would be really helpful.
Thanks, tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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posted
I just scanned the posts quickly, so I may have missed this...
I was surprised that nobody mentioned "THE CANCER CURE THAT WORKED". I am told that Dr. Rife did prove rife in the court trial mentioned (post said one patient died).
posted
My sis and I have gone halve-sies on a couple of Lyme books, it is one of them. She read it and was very excited about it. I haven't read it, because of my brain fog, but I may be able to read it now. Maybe when hubby picks up my Rife machine he can get that for me, too.
I am going to check out your other post about the docu. Sorry, I didn't get back to you sooner. I hadn't marked to get emails notification, I have now.
Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Rife therapy, to work, requires the RIGHT frequency (scanned and pulsed) for the right amount of time using the most powerful machine made (which increases the depth of penetration).
It takes many treatments to be effective just as it takes MULTIPLE HBO "dives" to work...along with reducing inflammation simultaneously.
Bb is camped out in the MEMBRANES...very specifically the "basement membranes". Google that and see where they are.
Because it is so close to blood vessels, lyme becomes a vascular problem. "H16" is the category.
Healing takes TIME.
If antibiotics (alone!) worked, a few "rounds" should do the job.
Heating is key...how we heat the infected cells via "frequencies" or "lightwaves" or other means is key.
When our own defense cells are infected, Bb makes them "cold" and in we send the "de-icer" NaCl to Bb's pleasure...as it needs NaCl for motility and has a gene for Na-ATPase which does this: ATP-> ADP.
The infected cells are functioning solely on glycolysis (glucose for energy) and maybe becoming "immortal" (HeLa) cells.
Not good.
Bb triggers TNF alpha and (worse) IL1 B which together, in time will do a number on your pancreatic cells.
IL1 B blocks insulin release which activates an enzyme called PFK which Bb is dependent on....
Up goes glucose.
Many lyme patients develop diabetes, hypothyroid, etc., etc.
Porshe, do you know HOW your microwave oven works to heat foods (esp. those loaded with glucose)? Microwave ovens use frequencies.
And my Advantium oven cooks/heats with the "speed of light".
Before you try to say there is nothing to far infrared therapy too, you might want to look at this:
Recruiting Far Infrared Irradiation for Control, Management and Treatment of Amyotrophic Lateral Sclerosis (ALS) Condition: Amyotrophic Lateral Sclerosis Interventions: Radiation: Far Infrared Radiation (5μm to 20μm wavelength); Radiation: Far infrared radiation
Recruiting Far Infrared Irradiation for the Management, Control and Treatment of Frontotemporal Dementia Condition: Pick Disease of the Brain Intervention: Radiation: Radiation: Far Infrared Radiation (5μm to 20μm wavelength)
Recruiting Energy Specific Far Infrared Radiation Treatment for AIDS Condition: HIV Infections Interventions: Radiation: Far infrared; Radiation: Far infrared radiation
Recruiting Far Infrared Irradiation for Stroke Rehabilitation Condition: Stroke Intervention: Radiation: Far Infrared Radiation
Recruiting Far Infrared Irradiation for Management and Treating of Parkinson's Disease (PD) Condition: Parkinson's Disease Intervention: Radiation: Far Infrared Radiation (5μm to 20μm wavelength)
Recruiting Far Infrared Irradiation for Managing, Control and Treatment of Huntington's Disease (HD) Condition: Huntington Disease Intervention: Radiation: Far Infrared Radiation
Recruiting Far Infrared Irradiation for Managing and Treating Multiple Sclerosis (MS) Condition: Multiple Sclerosis Intervention: Radiation: Far Infrared Radiation (5μm to 20μm wavelength)
Scroll down to page 208 near the bottom...
Posts: 9424 | From Sunshine State | Registered: Mar 2001
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Thank God. That's not just for us with lyme & company. There's this "C" disease that we must have change in treatment protocols.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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