quote:

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Originally posted by boola:
"Its probably just the start of menopause."

(I was 39 at the time.)
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Close runner up:

Me: This medication is making me gain weight.

MD: Medications don't cause weight gain. Eating too much causes weight gain.

Me: But I wasn't having any weight problems before I started taking the medication, and since I started taking it I've gained more than 30 lbs.

MD: If you weren't eating too much you wouldn't be gaining weight. After all, there weren't any fat Jews in Auschwitz.

P.S. I am Jewish.

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I hope you slapped him BEFORE you spit on him! no sence you messing you hand

Here is mine. Remember I am a tri-athlete and martial artist. I danced clasical ballet for many years before that. My thighs have so much muscle mass that before I got sick I had to wear baggy pants because my thighs would not fit in regular pants till loose fitting jeans came out. Lyme struck with neuro sympthoms and I could no longer walk right let alone train. I gained weight at an extradornary rate I gained almost 90 lbs in 1 year. But at the time it was about 60 extra pounds. My ID said to me, you have had the IV Rocefrin now you are cured, the reason you cannot walk is all the weight you gained! I asked what about the absence of reflexes on my left side? and the diminished reflexes on my right? wouldn't that effect it. He just gave me a stupid smile. He told me when I walked into his office for the first time I was the ONLY PT he had ever even heard of whos blood tested negitive but spinal fluid tested positive for lyme. He had to "look it up" but in the following 4 weeks he became an expert.

My latest neurologist just droped me: "Your beyond my ability to treat. I just don't know what is going on with you or how to treat you" She said this as she handed me back Dr B's guidelines that I was courtious enough to get for her.

No wonder I look to God for my healing. These morons aren't goning to do it.

Here is mine. Remember I am a tri-athlete and martial artist. I danced clasical ballet for many years before that. My thighs have so much muscle mass that before I got sick I had to wear baggy pants because my thighs would not fit in regular pants till loose fitting jeans came out. Lyme struck with neuro sympthoms and I could no longer walk right let alone train. I gained weight at an extradornary rate I gained almost 90 lbs in 1 year. But at the time it was about 60 extra pounds. My ID said to me, you have had the IV Rocefrin now you are cured, the reason you cannot walk is all the weight you gained! I asked what about the absence of reflexes on my left side? and the diminished reflexes on my right? wouldn't that effect it. He just gave me a stupid smile. He told me when I walked into his office for the first time I was the ONLY PT he had ever even heard of whos blood tested negitive but spinal fluid tested positive for lyme. He had to "look it up" but in the following 4 weeks he became an expert.

My latest neurologist just droped me: "Your beyond my ability to treat. I just don't know what is going on with you or how to treat you" She said this as she handed me back Dr B's guidelines that I was courtious enough to get for her.

No wonder I look to God for my healing. These morons aren't goning to do it.

Sent

one of the sympthoms of lyme is repeating yourself

The duck's notes on the first visit said "the patient promptly forgot what was just told to her and repeats herself multiple times. Her speech sounds odd but I wouldn't quite call it slurring." He gave me a diagnosis of Post Traumatic Headache Syndrome and sent me home with a common antidepressant.

I laid in pain for 2 days crying and went back to the duck. I told him that "everything in my head feels like it is so swollen that my skull bones are going to split apart. I don't feel like I am getting enough oxygen to my brain"

His response was a chuckle "Ha...., trust me you are getting plenty of oxygen, you just need to increase your trazadone. Take 4 this time!"

Doctor: "Well she looks healthy"

Me: "And does AIDS patients, what's your point?"

ME: Sweaty, shaky, stoopy grin: "Guess what,
doc? I know wut it is! LD !!"
DUCK: Fabulous, flashy, totally blindingly white new ,but her own, toothy smile:
1. "Cannot be LD as there is no LD in British Columbia."
2. "I do not know anything about LD, anyway"
3. "But! Will do Provincial lab test"
done & sent that day, jumping ahead: results
neg as totally bogus anyway
ME (couple days later): "Send sero to LLMD"
DUCK: "I am not prepared to do that. You do not have LD. Test was not for LD anyway.
Why u want go to another dr??" "You are of an age (51) so sweaty is normal!"
ME THINKING: later for you, sweetheart, will deal with that pile when stronger.
PS Prov lab results were in hands by fax of LLMD next day,
so she's not entirely stoop eh? Crafty duck even tho we here in Canada are not known (erroneously so??) to be litigious(sp).

So off I go to LLMD only about 1 hr from my
house. Incredible for a place in SW Canada
that has NO LD. Clin dx of course LD.
Antibs that day. Two biggest are EM and
unable walk soles feet so incredibly sore;
but walked yesterday around house a bit and
am paying dearly for it today. Igenex test kit on it's way to me now, should arrive by end week. Later on that.....

"oh, that's a sure sign of leukemia."

He said I had the flu.

And this was after he knew I had been sick for 6 MONTHS!

It must be one of those rare permanent cases of the flu.

What a dumba*s!

she asked me if the swelling, cracking and bleeding in my feet might be due to depression.

i looked at her with an evil eye, so she said she would ask the doctor. she came back 45 minutes later and said:

"we think it's connected to the lyme."

"There's no such thing as chronic Lyme"

Lishs ID doc when the picc line broke and we needed to put in a chest port to continue ABX.

Because of ringing in my ears, I was told to have my hearing checked (1991). Asked the dr what causes the ringing and he said that about 80-85% of cases are from unknown cause.

Situation I:
Exam room "discussion" w/rt the most pertinant aspects of the dignosis and treatment of lyme, and having seen comprehensive, exhaustively detailed medical records, including one West. Blot for lyme Ab (Igenex) according to the CDC, one lyme west. blot from Stonybrook, with an insufficient number of positve antibody bands, 1-2 bands being specific for Bb; Lab corp results = totally negative; 110+ photos of disseminated rash from two separate occasions when I was bitten, darkfield microscopy results, actual medical images(MRI,CTSCAN), and results of specialized blood work.

After "discussion" and presentation of the foregoing "evidence-based medical facts," one of my doctor's explicit statements were:

"Well, you can't prove a negative."

His in-office conduct verbally low-key pretension to "deep" consideration of data, but comportment, countenance, ocular dialect was quite hostile:

Translation:
I'll say anything I want in the service of my hidden agenda(s), come up with every psychiatric label and character assasination against you and you can't prove otherwise.

Situation II: In Office:

Infectious Diseases Specialist's statement to me: "I want to see 5 bands on the IgG and 2 bands on the Igm..."
I only wish I had a hidden tape-recorder, or transmitter when this was said.
This statement was after all healthcare providers received the explicit warning from a Federal agency about the "...widespread mis-use of the lyme western blot results..." as the sole diagnostic criterion of lyme disease.

Situation IIIOne phone discussion:

Me: " If labcorp's results comeback with insufficient number of bands to test positive, then what..."

Infect. Dis. Specialist: "We'll put 'em all together." Meaning combining the lyme West. Blot results from Stonybrook and Labcorp's lyme west. blot results.
He said this in a low-keyed, vocal tone of quiet-confidence, and inherent sarcastic, dupping laugh.

Dq

[This message has been edited by DiffyQue (edited 22 July 2003).]

[This message has been edited by DiffyQue (edited 23 July 2003).]

Even though your western blot is positive, it doeasn't mean that you actually have lyme disease. You could have just been exposed.

This was a few months after reveiwing the same results and saying......

This looks like you have an active infection

Ahem I am a 37 year old male.

I hope he was kidding.

Never the less he said it as he was perusing my chart.

1) Lyme doesn't exist in Ohio. Then the doc pulled out a map of the border of Ohio and NW Pennsylvania. He then told me that the area where NE Ohio borders Pennsylvania was the only place in OH where I could have gotten Lyme. He never asked any further questions of me and left the room.

2) I was recently in the hospital where the neurologists ganged up on me and told me Lyme does not exist in OH. I was having vision problems and speech problems at the time and they told me AIDS was a possibility for causing my symptoms. I agreed to give blood. I tested negative (like I was worried). The neuros also told me they ran an Elisa against my blood fo Lyme and it too was negative. They obviosly did not know the first thing about Lyme.

2) Years ago I went to a neurologist. I asked him for a Lyme test and he got really angry with me. He threw the paperwok at me with the script for an ELISA bloodtest. He then proceeded to tell me that he didn't know why I was bothering with the blood test because they always come back negative. He did not even listen to my request for my blood to be sent to IGENEX.

I have many more examples of stupid docs stories!

My GP is on vacation, so another doc in the practice sends me for bloodwork. They do ELISA and western Blot. Elisa is elevated and WB is "negative". (a local lab did the work)

The doc who ordered the bloodwork says "your pneumonia can make your titer go up."

The nurse says well "you only have lyme if both the ELISA and WB are positive"

The doc returns from vacation and says that the pain in my wrists and hands are carpel tunnel flaring up, the pain in my chest is heartburn and when I told him that I wasn't sleeping at night, he asked if I'm having some sort of anxiety.

Then he diagnoses me with ehrlichiosis and gives me 4 wks of doxy to shut me up.

3 yrs later I relapse and here I am a year later still dealing with this #$%!%%~@#$#.

Sheesh!
Pea

He said "Could be a brain tumor, could be a growth on the brain or spine. But I think as you are self-employed and under a lot of stress, you just need a vacation with no phones ringing."

I told him my husband had an appt with a neurologist scheduled and he said "Oh good idea."

ER Duck: Everything checks out fine; blood, CT scan.
ME: What do you think it is?
ER Duck: You know, she's a girl, 13... It's a rough age... there's no many pressures nowadays...
ME: And you are suggesting -- what?
ER Duck: Take her to therapy for emotional issues.
ME: She's SICK. She doesn't have emotional issues.
ER DUCK: There's too many symptoms.
ME: Too many symptoms should be a CLUE to something!
ER Duck: I'll give you a referral to therapy.

Help yourself...

Up for new members...

#1- (PCP) If your b/w is normal you're manic depressive (2 weeks later 2 IGM 7 IGG w/b)

#2- (PCP) Herxheimer reaction? Ohh it can't be that bad take 2 alleve...

#3-(nurse) What sort of tests do you need to see if you're having this 'herxheimer reaction?'

#4-(PCP and a LLMD) You have Fibromylagia now, take these....

#5-(ID) Even IF you had Lyme, you're allergic to the antibiotic I would use, so.. Don't worry about it... I think it's your thyroid.

#6-(PCP) You have a brain tumor (after a neuro exam-pin pricks etc) I said-"I have a negative triple phase bone scan, and negative brain MRI-no I don't..." (She walked out...)

#7-(PCP) You have tattoo's it's probably Hepatitis...(after flipping thru my b/w from another PCP mind you...)

#8-(immunologists) You have 'chronic hives' and the western blot results mean nothing more than you had it, I don't know what's causing your meurological symptoms.
(University of Medicine and Dentistry)
-BTW- I tested + via LP 2 years later for Lyme...

#9-(PCP) The # of bands on a western blot mean nothing, it just means you're positive for Lyme... (questioning my 2 IGM, 7 IGGs) same dr gave me an initial treatment of 3 weeks trimox..

#10-(allergist) With all your allergies, you must have AIDS......(over active immune system=allergies).... my reply- I just got a 200k life insurance policy 2 months ago, and they tested me for AIDS- it was negative.

#11-(allergist) Even IF you had Lyme, I won't desensitize you unless it's out of your pocket, as insurance won't pay me enough to spend the time in the hospital w/ you for something YOU think is Lyme...
(2 yrs later + LP to Lyme)

#12-(Allergist) I don't know why when you're placed on steroids you can't walk....

#13-(Rheumatologist) It could be Lupus, as you have a 'malar' flushing on your face, but you tested negative, I think you DO have Lyme, but I am afraid to treat you due to all your allergies....

#14-(PCP) Your sons EIA is .30 he's negative for Lyme, I don't know what's causing his symptoms.

#15-(PCP) I don't know why your son walks weird while on Biaxin, it could be that the allergy is settling in his joint....

#16-(Dermatologist) You REALLY need to be evaluated by a University...
(just came back from UMDNJ)

#17- Have you traveled out of the country?

#18-(PCP)I don't know if that's ringworm or Lyme...Ohh you're going on IV soon-good don't worry about it...

#19-(neurologist) You're having uncontrolled seizures, you need to see a neurosurgeon..(misdiagnosed w/ seizures)

#20-(neurologist) Ohh that LP was POSITIVE for Lyme? Ohh, I don't know how to read those tests....(swear to god this lady was a nut)

#21-(neurologist) My patient does NOT suffer from seizures, she infact has Neurological Lyme Disease.... (re instating my drivers license from her misdiagnosis)

#22-(PCP) Your 2 swollen ankles COULD be due to an exisiting Lyme infection, but let's do a stress test on your heart to be sure.....

#23-(PCP) I don't know why when you're on steroids you can't walk, and you need them for this allergic reaction...take some alleve then....

#24-(immunologist) You don't have anything that shows up from our exam (bone scan, cultures, entire workup of 40 blood tests, skin tests for allergies, stool tests for parasites, test for TROPICAL diseases) I don't know what's causing your symptoms, and you DID have Lyme, but it's negative now.

#25-(PCP) I don't know why you think your heart is beating weird, there's nothing wrong-(he leaves nurse comes in) I said, listen to my heart okay? She says okay- she listens, I move my finger to match when its coming-she goes back out to PCP and insists I get a holter monitor.....

#26-(cardiologist) I don't see anything wrong w your heart besides MVP and regurigtation, and I dont know why your ankles are killing you so badly on the treadmill- do you have arthritis or something? (had just explained the Lyme tests and my symptoms)

#27-(ID) your brain MRI and LP are negative for MS, and for Lyme, and the antibodies can carry over so the + western blot means nothing, you'll haveto come into the office to discuss this...

#28-(ER) Why did you have a LP? (for Lyme), well we are going to give you an IV line incase you need antibiotics-(I relpy I am allergic to antibiotics) she says- well what ones? (I roll my eyes, and state it's on the CHARTTT duh) and refuse the IV...

#29-(Neurologist)-You DO have Neuro Lyme, here fill this perscription (as he pushes me towards the door at 4:45 pm) I say, am I allergic to this??? He says-Ohh you have allergies??? Let me see that script...
(I say-well what family is it?) He says it's Rocephin, it's a Cephalosporin, ( I say- I went to the ER w. a SEVERE reaction to Ceftin- I can't take this it will kill me) Yoins script out of my hands and starts making phone calls...

Thats all of them I can think of for now... but I am sure more will come for me to add..

Rose

Me: I was diagnosed with Lyme disease which I have had for at leat twelve years.

Duck: If you had Lyme disease for twelve years, you would be dead.

Me: Well, I'm not. I've been in treatment for six months and getting a lot better.

Duck: If you take a bunch of antibiotics, you are going to feel good.

..........................................

1st: "If the blood is flowing properly to your heart it's flowing properly all over your body"

This was after concerns that blood flow to my head wasn't right.

"Don't come back unless you drop to your knees or lose consciousness"

Duck 2: "You do not have Lyme. You have a psychogenic disorder (Its all in your head)"

Duck 3: "You could not have Lyme. You did not travel to a Lyme area (I did) and you can only be infected by a fully engorged adult tick. They are big not the small thing you are describing"

An allergist told me that there is no chronic Lyme and it was made up by doctors in Lyme Clinics to make money. He added that people, especially women, have little to do so they create these symptoms.

I asked him if the bite could be causing my symptoms. He said, "No, I doubt it. We don't really have Lyme and all of those other tick diseases here in Texas."
He said, "Don't worry about the bite and let's wait and see if the symptoms go away."

ARGH!

To make a long story short, after 2 years of neuro problems and numerous neurologists........beginning with what was diagnosed as Bells Palsy.........which I was told "moved" and has caused numbness and tingling in my arms and legs, in addition to pain I was sent to see the "top neurologist" in the southeast. A professor emeritus at a the large teaching hospital in my state. He reviewed my records, this 80 year old expert, spent 10 minutes with me and then said, " There is no "objective" reason for your symptoms..........what you are feeling is "subjective". Do you know what "subjective" means?" . Before I could answer he went on, "It means you think you have these symptoms". Mind you I am 6'3", about 250 pounds and before all of this I bench pressed 400 plus pounds, 3 times.......:-). Then he said, "You understand...you think you have these symptoms"...........I had to laugh.

Then............"you have a good quality of life...........be thankful".........of course he didn't hear me when I said there was a problem with my symptoms and my career.........namely that I am unable to draw a firearm from my holster.........because I can't feel it.and haven't been able to for over a year.

When I reminded him of this aspect of my condidtion he said, "Well you will just have to find another line of work".......I left before I was tempted to tear his arms off.........:-)

Other student health doc told me I may have benign ataxia. although her assumption is wrong I am very thankful for her help. she got the ball rolling by referring me to outside help. she was truly concerned and wanted to find the cause of things.

Neurologist said I was depressed and wrote on his report that he suspected drug use once we acquired records. also found a memo that I was not told about where he suspected Wilson's disease.

After serological positive IgG by the CDC standards mine you on top of that, my infectious disease doc concluded after a lumbar puncture for a PCR test (which has as low as a 5% yield that I have read in some studies) that I didn't have lyme disease and that false positives were very common and that I may have been infected long ago and just show left over antibodies

Actually his assistant was insisting on IV Rocephin for 3 months but he quickly said it wasn't necessary and prescribed 200 mg of doxy a day for 2 weeks as a precaution.

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My next ID Doctor(in Princeton area..didn't i learn from my first mistake..also found out they knew each other.,.she said to me "You may very well have what we call chronic lyme but until you test positive you won't find a doctor in the PRinceton area who will treat you with antibiotics."

#2 - Lyme disease does not exist in Florida.

#3 - Babesia and Erichlia are extremely rare diseases, we don't need to test for those.

#4 - A diagnosis of Lyme Disease would be opening up a can of worms, lets look for the real reason why she's not feeling well.
(said by my daughters pediatrician)