Also: Because it was her IGm that is Pos. there is no way you could have passed it to her in utero, it is too large.
Uuuuuhh....HUH?

I didn't have the strawberry tongue, though. Also, there was no other kid with scarlet fever around and I didn't infect anybody else with it, myself. However, as in 1960 nobody knew about Lyme, I cannot blame him for that.

But later, I was the only kid ever heard of, who - according to him - got Mumps THREE TIMES!!! He said he had never heard of such a case before, but thought it was probably because I didn't have it properly the first two times ... haha!

I am sorry for laughing so hard about this. It really is quite sad.....but...I just can't help it right now.

I was reading these and getting so sad...but..CHEESE?????????? LOL!

From another local ID doc....."Even with positive blood work, you couldn't have lyme after three weeks on doxy. You clearly are mentally ill and in need of therapy." He then tossed all my records in the trash, turned on his heel and walked out.

he referred me to a guy on park ave, nyc, who did elaborate acupuncture on me.

he initially said i would be fine in 2 months. he later recanted that and said spring, it was fall. i started to become wary.

after 4 months i sent him a check (i owed him some money) and a letter thanking him for his time trying to help me and best of luck in the future. very congenial.

3 months later, when i was just dx'd with lyme (and herxing), he sent me a reply letter.

he said he was a :

master acupuncturist...
that he did help me...
that he spent his whole life fighting injustice and what had i done?...
that i had my head stuck between my tail and wouldn't get better until i faced my fears...

and on and on. this from a 'healer'.

i wrote him back a long, logically stated and eloquent letter. i never mentioned the lyme diagnosis.

he sent me back the letter with a note saying :

"i never read the letter... if you spent as much attention and time developing your body as you have your mind you would be healthy."

lesson : ducks are bad but they don't quack the loudest

ps :currently my brother is trying to drag me to another 'healer'. he wants to pay so i 'must' go and be duped again.... lesson : i'm a sucker.

Dr.#2 (ID) "I have absolutely no idea what's wrong with you, but it will prob. just go away"

Dr#3 (Yet another internist) "I hate when people get medical advice from friends or look up things themselves. People should just stay off the internet" "You don't have Lyme (Negative Western Blot). If I were to give you antibiotics and you started feeling better than you might live your life thinking you had Lyme dx"

I was referred to a neurologist for headaches and decline in vision. I played the game we all know and dummied up. I didn't offer any info unless he asked and I kept my replies brief. I thought I would see him once, but he kept making return appts. He kept finding odd things here and there and eventually noticed I had swallowing difficulties. He referred me to ENT. ENT found I had no gag/reflex and asked if I'd had a stroke. He also asked if I'd been tested for lyme. The ENT ordered a sleep study because of the paralysis. NOTE: The neurologist USED to be the only doc offering sleep studies in this city until the ENT came along.

Sleep study and MSLT were abnormal per ENT doc and I'm having PVCs. ENT doc already had copy of tests prepared for me to give to referring neurologist the next day. Dutifully handed sleep study results over to the neuro, he quickly flipped through 2 pgs. and said, your sleep study is normal! I think you need to continue to see your psychiatrist for your somatization disorder. (HUH?) The neuro raised his voice more said you have to stop seeing doctors and stop subjecting yourself to all of these tests!

I came unglued.

I yelled, you're telling me I need to stop seeing doctors but you referred me to the ear, nose and throat doctor! I didn't just get a wild hair up my ***, walk into the ENTs office and make my own appointment with him. You referred me to him!

He said, yes, but I referred you for your swallowing difficulties, not for a sleep study study!

I said, you're telling me to stop subjecting myself to tests but you decided to test my parathyroid glands twice, you ordered several blood tests, you wanted to do an EMG, you wanted to do a sleep study, you wanted to test my muscle strength, you ordered a pituitary MRI . . . I listed all of the tests he'd ordered for me.

HERE IT IS:

The neurologist said, Dr. Smith (the ENT) is playing games with me!

I lost it with the guy and said, If you believe Dr. Smith is playing games with you, then you need to take the matter up with Dr. Smith, not with me! Don't involve me in your silly doctor squabble because you're angry with Dr. Smith. I'm the patient and this has absolutely nothing to do with me!

He said, I'm not taking it up with you.

I stood my ground and said, yes, Dr. neurologist, you are.

He raised his voice and said, I am not!

We bantered back and forth a couple more times. I finally realized he threw a tantrum because the ENT gave me the sleep study and HE wanted to do it. Geesh.

Ended up he tried to tell me I didn't have lyme but hadn't ever asked me a single lyme-specific question. He tried explaining to me that lyme is caused by a tick bite. Rreally? I thought it was caused by ducks. Then he told me he was a leading authority on lyme disease in our state. Grrrr. Lyme disease is here now, but people like you are becoming hysterical about it. It's overdiagnosed. People are becoming fanatics about lyme disease.

I had a hardcover book in my hand, Bull's Eye, Unraveling the Medical Mystery of Lyme Disease. A few more words were exchanged and I got so angry I threw the book at his feet. The book went BANG on the floor and the appt. was over. He's my ex-neurologist and 12 days later I was diagnosed by someone else.

I was told by the cheif of the hospital
that i had WAY TO

(MANY SYMPTOMS)

for it to ever be lyme disease!!

then he ordered the house nut doc to do head evaluation on me

cause i was crazy!!

but head doc said to him that it wasnt my head,

so then he kicked me out of hospital

ONE MONTH later four positives on test
for lyme and co"s that was two yrs ago and im still sick and now been on iv for 8 month after year and half orals
stupid duck
wack ( quack quack

debbie from warwick

------------------
lyme diease coming to a family near you;;

staring the infamous spirochete;;

with special apperances by
coinfections.

"Well...I can tell you that you are clear of any disease or virus....in otherwords...the good news is...you aren't dying."

But....please keep testing....why does my spine swell up when I am exposed to chemicals and mold?

"My ASS-ociate and I are willing to meet with you once a week to help you deal with your pain."

So...you aren't going to keep searching?!?

"No....at this point we are going to just treat your symptoms."

Doctor....kiss my a**!!!

Door closes as I walk out.

"go home, take a hot shower for the pain and get on with your life"

Have you been sleeping more
Have you been more widthdrawn
Have you been sad?

I was crying every day and didnt have the energy to move.

After telling him that i was diagnosed with
CFIDS and fibro in my teen he said hmmm

then reached for some samples of lexapro and told me that what im suffering is common.

Its SOCIAL ANXIETY DISORDER

i wanted to bash his head in

What the hell did you go to school for.

To be ignorant!!!!!

He always called them KNOTHEAD DOCTORS, but likes ducks better.

At least he got some laughs out of the comments and asked me to send copies to several family members who can't seem to relate to why we have been to sooooooo many doctors to get diagnosis and treatment of his Lyme, babesia, bartonella, Borna virus,
CMV, HHV-6, and nanobacteria.

We have many classic lines to add to this post and I'll add one now and be back to add more in the future.

One classic line regarding another illnes, "YOU'RE GETTING BETTER, BUT YOU JUST DON'T KNOW IT."

Yeah, right!!!

Bea Seibert

-it's depression

-lupus

-fibermyalgia

- you shouldn't get your information off the internet

-you have polymyalgia rheumatica (I'm only 40)

-menopause

But the best duck story by far for me was:

My youngest son has had health issues since he was born, among them being heart defects, a hearing loss and growth hormone deficiency. He also has a learning disbility and his IQ scores are very skewed. One day I was on the internet and happened to come across a genetic disorder called Noonan's Syndrome. My son is not a Poster Child for the syndrome but he had a lot of the characteristics that pointed to the syndrome. Part of the syndrome includes puberty delay, so on his visit to his endocrinologist, I brought up my suspicions and since my son was at the age of puberty and showing no signs I mentioned that we should consider treating him for a delay. The doctor just brushed me aside and said, he"s not a Noonan's kid. I was really upset and wanted to put the issue to rest so I took him to a genetics doctor. Again, I mentioned that I thought he had Noonan's syndrome,

geneticists(sp) answer..."He's not a Noonan's kid, but to make you feel better I'll test him for it."

Three weeks later when the lab results come in I get a call from the doctor......He says...."Well, Just as I expected (meaning him the doctor) your son has Noonan's Syndrome"

DUHHHH....Thought you said he wasn't a Noonan's kid

Now the endocrinologist is pissed at me, because I proved him wrong (plus I think he noticed I took great pleasure in waving the report under his nose to prove him wrong).

This duck says that my 14 year old can decide when he wants to get treatment for his puberty delay.

Sure...the kid is going to just beg to start intramuscular injections on top of his daily subcue injections.

"I don't think blood work is necessary. Let's put you back on antidepressants"

Doctor 2 before positive Lyme test:

"Are you happy?"
"Are you married?"
"Do you have a happy marriage?"

Doctor 2 after positive test:

"I knew you had Lyme disease. See, I even wrote it as a possibility on your chart. And you know how I knew? Because you are 30 and you have the health of an 80 year old. Three weeks of antibiotics should take care of it. Come back in a month and we'll put you back on antidepressants" (Me: what's up with the antidepressants?)

Doctor 2 (back to see him because of seizures. I fainted in his office and began getting serious tremors):

"Here...breath in the paper bag and get a hold of yourself. You're too excited!"

A nurse at a neurological facility: "A tilt table? Well, I'm not sure what you're refering to...we have a regular patient exam bed..."

LL neurologist called for a complete neurological evaluation at my treating LLMD's request:

"Complete neurological evaluation is $400, but if you have Lyme, it's $700".

He said, "When was the last time you had a breast exam?" Would you like me to perform a breast exam for you?"

My symptoms started to get worse. I started to get a distended abdomen, so again my mom asked my doctor about it. He said, "Do 100 sit-ups twice a day."

Then I developed drop-foot. My mom again took me into the doctor and asked why I walked funny. He told me to walk for him, and he said I looked perfectly fine.

Had IV Rocephin for 10 days. I whispered to the doc: "I think I have a yeast infection in my mouth. My throat really hurts."

She replied, "Antibiotics do NOT cause yeast infections! Stick out your tongue! Nope, no yeast infection."

When I gave my response, he shook his head in a very grave manner.

He said, "Someone your age should be having sex every single day." (I was in my early 20's).

As if a little rumble tumble would solve all my problems!

"The patient may have ALS; MS; Fibromyalgia;Chronic fatigue;ankylosing spondilitis;....I don't think he has lyme disease but I will treat him for Lyme Arthritis.........."

What a MORON!!!!!!!..............zman

1) Before I knew what was wrong with me, and had multi system symptoms that waxed & waned...one doctor asked, " were you abused as a child?"

2) Most recently on a search for a new pcp: Frazzled looking doctor offered me a job as we walked into the examining room...her receptionist had just quit. Then she looked at my rather small list of problems...and of course at the top was "chronic lyme disease". She immediately looked frightened and said..."you know I have these get to know you appointments so I can reject patients...I am a mainstream doctor."

So I just tried another pcp today...who told me: "oh, I have treated a few "LymeS patients." The knowledgeable "S". There were only two pcps available in the Tricare network in my county... so he is now it. At least he accepted the brochure I offered...the first one said, "I don't have time to learn about it."

Quest

He also said ALL of my symptoms (muscle aches, twitches, stabbing pains, butterfly rash, electric shock pains, visual problems, memory problems, sleeping problems, etc) were caused by anxiety, allergies, rosacea and sleep apnea. Those were the only causes of everything (all 40 symptoms).

The other duck (my family physician at the time) told me that I wasn't in enough pain to have Fibromyalgia (this was before I realized I had Lyme). Guess she thought I should be crying, writhing in pain, in the hospital and not able to get out of bed (good luck with that when you have a toddler).

``Maybe you're just tired because you didn't get a good night's sleep or you're a little stressed.''
(Even if I don't sleep well I was able -in the past--to hike 17 miles quickly over a 13,000 ft mountain pass or carry a 45 pound backpack for 10 miles over rough terrain in the Grand Canyon. I'm trying to tell you I was too tired to walk across the room! The only thing stressing me out right now is doctors like you who don't understand their patients!!)

``You need to learn how to deal with the fact that you feel poorly. Here is the name of a counselor that I recommend.''
(If you can't tell a doctor that you feel poorly, who are you going to tell?! I don't need a counselor. I need a doctor who can help me figure out what is wrong with me!)

``If you lived in New York, you would have been tested for lyme right away.''
(Since when is lyme found only in New York??!!)

``You just keep going from doctor to doctor, don't you?''
(You would too, if you felt as poorly as I do.)

``I only treat nerves. If your joints or stomach are bothering you, you need to see a different doctor.''
(Now THAT'S tunnel vision! What if the same ``culprit'' is causing the nerve, joint and stomach pain?)

``If it's not hormones or iron deficiency, I don't know what is wrong with you!''
(Well, how about doing some research to help me?)

``You sure are falling apart. You need a 50,000 mile tune up!''
(I am well aware that I am falling apart, thank you for your assessment.)

``Try deep breathing exercises for the pain.''
(Do I look pregnant?)

``You look perfect on paper and on exam.''
(Then why do I feel so crummy?)

``How about a vacation?''
(Are you going to write a script so my insurance will cover it?)

I grew up in CT...multiple bull's eye rashes as a kid and tick bit scars that have flared up regularly for years.

10 years ago I mention this to a world famous MD homeopath, and asked to be tested for LD. I get told that if I had been bitten by ticks in the past I was certainly over it by now.

Next, LD was only discovered in 1977...that was when you graduated from high school, and you didn't grow up in Lyme Ct, so stop being a hypochondriac!

"You read too much."