posted
Welcome back ! Take advantage of rehabilitation .work hard but smart. Great news made my day. Posts: 47 | From new england | Registered: Jul 2013
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Catgirl
Frequent Contributor (5K+ posts)
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posted
Right on! Feel better soon!
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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kam
Honored Contributor (10K+ posts)
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posted
good to hear from you....
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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momindeep
Frequent Contributor (1K+ posts)
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posted
Yeeha!...good news for the very soul!
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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GretaM
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Member # 40917
posted
Yay-good stuff LP!
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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posted
Great to hear from you! Really glad you're in rehab. Welcome back. Heal well.
Posts: 431 | From New England | Registered: Dec 2011
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posted
Posts: 428 | From Midwest | Registered: Dec 2012
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MannaMe
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Member # 33330
posted
Get well soon!
Posts: 2601 | From USA | Registered: Aug 2011
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
lp, take care of you. I'm going to be watching you to make sure you don't go back to juggling to many balls at one time.
I'll send the lymenet patrol after you.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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steve1906
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Member # 16206
posted
Hope you feel better soon!!!
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Is tylanol an anti inflam? Can u take it with ibu? Plz help
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Dogsandcats
Frequent Contributor (1K+ posts)
Member # 28544
posted
Take care and keep us posted when you are able!
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
I believe u are correct but all here insist it is anti inflam and should b taken with tylanol...they arr making me crazy
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
Tylenol is NOT anti-inflam. It masks pain.
Ibuprofen is an anti-inflam. It's an NSAID (non-steroidal anti-inflammatory drug).
Drugs like Excedrin combines the active ingredient in Tylenol with aspirin (an NSAID) and caffeine.
Excedrin was one of the best pain-relievers when I could tolerate it.
Also NSAIDs can make you have photosensitivity (I just learned that the hard way). Stay out of the sun if you use them.
Posts: 2839 | From California | Registered: Jul 2012
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-------------------- I'm not there yet but I'm closer than I was yesterday.---- Lyme Band 31,41,58. Being treated for Lyme and Bartonella. Posts: 149 | From Maine | Registered: Oct 2010
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beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
Glad you're in rehab. Sorry to hear they're driving you nuts! I agree that the tylenol isn't a good idea FWIW.
Posts: 1885 | From here | Registered: Jul 2012
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Kudzuslipper
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Member # 31915
posted
Good to see you post kayak. Hope you rehab well and quickly.
Posts: 1728 | From USA | Registered: May 2011
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lyme in Putnam
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Member # 11561
posted
Feel good. God bless.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
They had a meeting. My pain should be controlled by tomorrow. Hope it happens so i can go forward not backward. I feel like it is a joke to them. They get off on seeing me in pain
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Kayak told me today that she was having "weird pains" and they were making sure she didn't have a blood clot or something.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
Sending prayers your way, Kayak. I hope the pain and inflammation go down. Praying you do not have a blood clot.
Ditto to above info that ibuprofen is anti-inflammatory but Tylenol is not. For some reason, docs and nurses like to recommend tylenol to control the pain. Motrin or ibuprofen help with inflammation (and reduce pain as a result).
Posts: 2387 | From New England | Registered: Aug 2011
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posted
She told me last night that they started the PT again so she must be OK. She said they didn't TELL HER she was OK, but she is "going with it."
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Praying she is improving every day and feels more human each day
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
Ip, keep arguing with them. This means you are getting well. If this was a spa setting, you and everyone else wouldn't want to leave. Just about the timeyou want to stomp out of there because of the food or meds or whatever issues, that is the time you will be released to home. Hang in there!
Posts: 482 | From Oregon | Registered: Feb 2011
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
By 2pm sat i finaly started to get pAine meds right feel better-do better. In PT
Also able to deal with a few extra things
Will try to get some sleep now
TY for being here
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Thanks for the update LP. Glad you were given some pain meds and are sticking with the PT
You're a strong woman Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Didnt have a great nite because i still had to fight for pain meds. But i did get them and did get some sleep
I am now fighting for a.m. pain meds and so far am suceeding
Hope i get them b4 PT at 11
Im hoping for my 1st shower in 9 days also
Also have to figure how to do laundry
Spent time with pretty english pointer therapy dog yrsterdy
My uncotrolled body movements are increasimg
What r they from...maybe cuz 90% of food is procrssed? ??
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
kayak...There are times I so wish I could help someone on lymenet...come and clean and cook and advocate for them...you would be one of those people...hands down.
I am asking the Lord to set you up with all the things you need...everything...He can do exceeding, abundantly and more than anyone. That is my prayer for you.
.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Ty mom..so nice of u
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Lp its great to see your postinng,, don't over do it. Feel good D.
Posts: 47 | From new england | Registered: Jul 2013
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
kayak....it will be good to hear when you are home. When do you think that will be??
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
HI Kayak, just checking in on you. How are you doing? glad you are getting some pain relief. uhhhg.rehab food.
Posts: 1728 | From USA | Registered: May 2011
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posted
Kayak.. good to hear from you!! Keep after those folks!!
As for the body movements, you are not getting your usual supplements! The most likely reason!
All drugs deplete magnesium, so there is another problem. Even the anesthesia depleted you of many nutrients.
So that on top of lousy processed food = YUCK!
Take care, we'll keep praying!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Hi Kayak, I've been following all of your updates, thinking of you and praying for you often.
Rehab is tough, it is certainly not home. I hope that you can heal quickly and regain your strength so that you can get back home soon. It's hard not being able to do all your normal things and care for yourself as you like.
Keep up with the positive attitude to get you through. You've only got a little more to go, each day you get stronger and closer to home.
Posts: 5237 | From here | Registered: Nov 2007
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Thx for replys. I never got pain meds right and exhausted myself trying so they wouldnt let me do therapy. That made me cry but then i called my son and told him to call whos in charge and tell them i am paying a lot of money to improve here and their excellent therapy dept cant do anything if nursing doesnt. Get the pills in me
In short time a new nurse was here...she caught up pills...put on mmy blod clot sox that werr 6 hrs late. Ihad excellent therapy hr
Back in room i just collapsed. I didnt think about pills. Nuse came in quiet twice and gave them to me...she was so on top of it i didnt feel i had to keep track
I really rested...ate...no comment...and will finish up laundry and early bed
At one point morning nursr sort of yelled me saying it was my fault i had asked 3x for mylanta cuz the floor director had been speaking with her for an hr-i guess about me-but then she was gone
An np and doc also came in
It feels good to trust the nurse will give the meds right...really hope it stays this way
Im real tired now but wanted to let u knoe. Talk soon
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Sorry you've had to fight for pain meds, LP. Brilliant strategy re. your son! Hope the nurses keep on top of the meds--and stop yelling at you. Good luck with PT. Healing and strengthening wishes!
Posts: 431 | From New England | Registered: Dec 2011
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Thx for replys. I never got pain meds right and exhausted myself trying so they wouldnt let me do therapy. That made me cry but then i called my son and told him to call whos in charge and tell them i am paying a lot of money to improve here and their excellent therapy dept cant do anything if nursing doesnt. Get the pills in me
In short time a new nurse was here...she caught up pills...put on mmy blod clot sox that werr 6 hrs late. Ihad excellent therapy hr
Back in room i just collapsed. I didnt think about pills. Nuse came in quiet twice and gave them to me...she was so on top of it i didnt feel i had to keep track
I really rested...ate...no comment...and will finish up laundry and early bed
At one point morning nursr sort of yelled me saying it was my fault i had asked 3x for mylanta cuz the floor director had been speaking with her for an hr-i guess about me-but then she was gone
An np and doc also came in
It feels good to trust the nurse will give the meds right...really hope it stays this way
Im real tired now but wanted to let u knoe. Talk soon
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
thanks for letting us know kayak. Yes. It is very good to be able to trust the nurse who is giving you the meds.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
You call "S" if they backslide again. You are so right .. you are paying for them to take care of you! Now they are on notice.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Hope things improve for you and they get the pain meds on track.
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
<<<<< 'kayak >>>>>,
Prayers going up for a good quick recovery for you. Glad you spoke to your son re: the pain meds.
When TxC' was in rehab for 5 wks. after his first knee replacement,we had some trouble getting them to keep his meds straight.
We are keeping you in our tho'ts.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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just don
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Member # 1129
posted
best wishes
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
hi don...glsd you're back
im in the family room using their computer...i dont know thei keyboard...
really hard but good day. 3 nurses in a row were trustworthy...tonihgt a little shaky again
i had to be a pain today too...but the PT stuck up for me before and after therapy-and it worked
i having to learn to walk using only the leg surgery was done on...and very minimal use of other leg so i dont ruin it b4 it gets replaced.
the thinking part was hard for me to get...after a surg like this the last thing you feel like doing is walking ont the leg that had surgery. i am getting it tho.
instead of passive range of motion machine they have me on one where i have to work and will make muscle. it is like a recumbant bike and i hope it will get my gi tract moving too
it was sad in PT when i saw ppl who i swear have lyme and they are ignoring the lyme sx-like severe headach-and pushing these pple to do stuff...i rarely had headaches but i had a best friend with lyme with headaches and i saw what she went thru and heard on here about all the problems...i willl keep my mouth shut tho and mind my business,,,this is not the place...
OH...guess what the doc in charge of my unit is a NP. we have met a few times because of the problems. i know i drove him nuts at first but he really handled it well. i could see right away he was pretty smart.
so after a long talk and me picking his brain about leaky gut and other stuff...esp gi and bowels...i asked him if tylanol is an anti-inflammatory like my surgeon insisted it was. the NP said no adn began to explain to me the difference betweee antiinflams and tylanol...which is what i already know but every nurse and aide in this place will insist tylanol is an inti inflam. they were all taught that.
what ever. i like this np and he told me his boss(who taught him) had a private practice in my town so i plan to change to him for my primary
i napped inbetween therapys but seem to have a second wind now.
im looking forward to tomorrow ... thank you guys for beiing here for me thru all of this
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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