momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
Thinking of you today...praying for a steady, forward, recovery.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Ty. Ive tried all night to give nurse benefit of doubt...but i swear shes a control freak...she apologizes for being late. Ptomises a time for nrxt pill..then comes late again. Its like torture
And then she put on gloves, changed the bandage, then took off the gloves to use her nails to get tape cuz.she did it wrong. Wheni asked the aide if it was ok she found a two in sspace that was open
All of this is mmotivating. Me so much in therapy...it scares. Me here-i want to go home...but it would be really hard now
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
don't hesitate to call on your son again to help you either- you are going through a lot- sending you hugs and prayers for rest tonight. Posts: 428 | From Midwest | Registered: Dec 2012
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Praying for you LP. Hope you have a speedy recovery so you can get back home soon.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i had another productive day and i am very tired and sore. again i am in family room and using their computer.
what happened is the surgeon changed orders and saaid it was ok for me to use left leg (the sone that still needs surg) until now i supposed to work the leg that had surgery without using the good leg...IT WAS HARD!!!
i finally got the hang of it and was building up(or destroying) my upper body when doc changed order. now most is easy...but i have worked really hard when on many meds
i have myoclonus pretty bad. in reading about it it can come from many drugs and mixing drugs and also anesthesia
since i can use the other leg and every thing will be easier i am going to start cutting back on the meds i take by choice-starting with the ones you can get addictive to.
this answer isnt perfect...cuz i will be huring the leg that still needs surg and that can make the chance of success much lower...but i will get home sooner and the other problems here are pretty significant.
so if all goes well i will go home friday and sllep with etta that night
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Kayak... Don't cut back so much that you can't get your legs rehabbed the way they need to be! I understand your concern about addiction, but I doubt you will end up there.
So sorry to hear about the myoclonus. Just one more thing! Maybe when you get home you can detox better and get the drugs out of your system.
Etta will be SO HAPPY! you should get someone to tape the "homecoming" with her!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- myoclonus (sorry to hear) - magnesium is one of the best remedies (PubMed even suggests that) and they may be able to give you IV or shots there. If shots, B-12 with them help take out the sting. Alone, it can really burn. But not with B-12 added. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Kayak.. I would ask your Dr about the mag IV .. to see if it will help you. May as well while you are there.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
I hope you get much better. Its a long rough road but you're getting care and attention you need and deserve.
We are all pulling for you
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i got another shower! i feel like i hit the jack pot
i think the problem here is it used to be rehab...now there is a wonderful rehab attached...but the nursing part where you sleep and go when not in therapy is set up as a nursing home...its hard to fit the two together...
gotta go to many therapy sessions today
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Yay! I bet that shower made you feel so much better! Just two more days, right? You are almost there!! Posts: 428 | From Midwest | Registered: Dec 2012
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
GOOD NEWS!!! i did not need any oral pain meds all night and had minimal pain. i am on fentenal patch.
i go home to morrow. in half hour my thereapy is getting in and out of car.
my pain level with patch feels like i dont need any help at home...but i will not be allowed to drive for awhile.
im not sure what it will be like to get off patch. i guess i will need orals and then have to wean off orals. hope it still goes good like this.
cant wait to see etta. i wonder if she will remember me.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
lp, I could have sworn I told you to take one thing at a time. Why would you be worrying about getting off the pain meds today?
Getting home is going to be sweet. Enjoy your time of healing.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
hurray glad to hear you are heading home.
Etta will be over joyed
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i did good at my discharge eval...ii will be glad to get out of here. there are a few good staff...but meany are really scarey to me. i hate the way some of them treat the patients with dementia
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
So happy to hear that you're going home! But glad you had a good stretch of time to get the pain under control and to do PT. Enjoy all the doggie affection tomorrow--of course she'll remember you! Posts: 431 | From New England | Registered: Dec 2011
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posted
Yay! So glad you are going home!! Posts: 428 | From Midwest | Registered: Dec 2012
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Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
Your four legged furry baby will be sooo happy to see you. Speedy recovery in the comfort of home.
You have shown amazing strength lp. God bless.
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
So glad you are going home.
Best to you for a speedy recovery!!
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
im home...thanks for all the company while i was there!
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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