Topic: 1/19** Please Pray, Update, Mom's CT found a new spot!
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Prayers going up,in agreement w/ all those at prayer in this matter.
For <<<<< Sammy and her Momma >>>>>,
Lord, please wrap them in your healing love,and we ask for angels to comfort them both thru this ordeal.
We know you love both these dear ones, more than all of us could. Thank You Lord,for hearing these prayers !!!
In Jesus Name Amen!!!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Dekrator48
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posted
I am praying for your Mom, sammy, and you too.
Encourage your Mom to lean on the Lord for confidence. He can see things so much more clearly than we can.
Big hugs!!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Dogsandcats
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God bless you both, will pray.
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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momindeep
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posted
Just checking in to let you know I am still praying and wanted you to know that...I am certain others are too.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Rumigirl
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posted
Oh, sammy, I just saw your recent post. I am so, so sorry to hear about the most recent obstacle. Of course, you would both be depressed and scared, and your mom would not feel confidant.
I pray that your mom's pancreatitis heals well and quickly, that it stop leaking, and that she can come home in much better health.
I pray that both of you will feel comforted and optimistic. I pray that you get over your virus, and and that your mom feels much, much better soon. and that you both can get good rest.
Much love and healing to both of you.
Posts: 3792 | From around | Registered: Mar 2008
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Dekrator48
Frequent Contributor (5K+ posts)
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posted
Still praying for you both, sammy!
May Our Heavenly Father provide all that you both need.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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susank
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posted
Oh, Sammy! More prayers from here for you both.
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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Jane2904
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posted
Prayers for your Mom and you too!!
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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Dekrator48
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Member # 18239
posted
Asking our God to have mercy on both of you and grant complete healing.
I saw this book on Suzy Cohen's facebook page. She is known as America's Pharmacist and provides very good info on various topics.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Sammi
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posted
sammy, how are things going? I hope much better for both of you. Prayers continue.
Posts: 4682 | Registered: Oct 2000
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posted
Praying for you and your Mom. So much suffering...my heart just breaks for everyone.
May the Great Physician have mercy on both of you and all those suffering with illness. May He provide the healing touch and make all things well and new.
Listen to "I'll Praise You in This Storm" by Casting Crowns found on this link:
If you have K-LOVE radio station in your area, then you will find positive, uplifting, life-changing music and support there. If not, then you can listen online at www.klove.com They also have a prayer line.
Posts: 9020 | From Illinois | Registered: May 2006
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Lymetoo,
I just read that review...thanks for pointing it out.
Suzy Cohen is lyme literate and does a great job educating the public.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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momindeep
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Member # 7618
posted
Talking to our Heavenly Father for/with you...hope things are steady.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
<<<<< Sammy and Mom >>>>>,
Prayers continue, for both of you...
Dear Father in Heaven,
Sammy and her Mom need Your healing love and peace, please let your love descend on them. And let the Moms Pancreas heal properly and swiftly!
Both these dear dear Ladies need peace and rest,please keep them surrounded with Your Angels,and don't let them give up!
In Jesus name Amen!
Jus' Silverwolfi thinking of y'all
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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momindeep
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posted
How is it going Sammy?
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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sammy
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Member # 13952
posted
**Update 3/7**
Dear friends, Thank You for sticking with us, encouraging us, lifting us up in your prayers. Words cannot express how much I appreciate what you have done for us.
Thankfully, this is a good news update. I got mom home late yesterday! Oh, this has been such a battle, I feel so relieved to have her home where I can take care of her now. I know that she will get better here.
When mom got home from the hospital she confided in me that the doctor told her that they had wanted to keep her 3 more days! I told her that was ridiculous.
I had to get her out of the hospital because when she was in there she was not fighting for her life. She had lost all of her drive to live. They were treating her like she was a long term cancer patient that was never going home, never getting better. It made me so mad!
I had never seen my mom with this flat empty attitude. I would call her at night before I went to bed and she wouldn't even want to talk to me. That would make me so sad but it would make me want to fight even harder to get her out of there!
Oh, so now she is home. It is like the light switch flipped back on inside of her. She is alive again! She is up walking more and that will help her recover so much faster. She is talking to me normally again! She has her drive back! She is glad to be home.
I knew that if I could just get her home that I could take care of her and things would be OK, that I'd get her back on track. It's going to take awhile for her to heal and even get back to where she was last week before the pancreatitis and all this set her back. But we will take baby steps, little goals and be happy.
This was the scariest event that has ever happened to us. The longest scariest week. Thank you all for praying for us and encouraging me.
I am so tired now! I think that the gravity of it all has truly hit me and now I feel totally exhausted!!!
Oh, thank you all, thank you so much Posts: 5237 | From here | Registered: Nov 2007
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Sammi
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sammy, thank you for the update. Our prayers have been answered!!
It sounds like the way the staff was treating your mom led to her not wanting to fight. She is so lucky to have you fighting for her!
I am so glad she is home and that she got through this setback with your help. I am sure you are completely exhausted in every way. Please take care of yourself. Prayers continue for you both.
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momindeep
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Your update is like hot chocolate with real whip cream on top...like hand-made mittens...like toes burried in warm sand!
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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Jane2904
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Thanks for the update.
So happy your Mom is home and doing better.
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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momindeep
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How are you two doing?
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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2roads
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Member # 4409
posted
hey Sammy,
It isn't uncommon for family to ignore their own members needs and focus on a strangers/friends.
My MIL is majorly that way. She moved into our town 5 years ago, and helps the homeless...etc, but can do little for us. it's usually us helping her.
I know why. She can't face the fact that her own family has problems. it's easier to deal with other's issues. Also, I think it is therapeutic for her to dabble in the worlds issues, feel better about her own, and then step out of the nightmare while those left within it have to endure. if it were her family, she couldn't do that. sadly, others misery is elevating for her....and protective.
it's rather disgusting and infuriating. I imagine your sister is not this way, but maybe it is just to much to bear.
Hope your mom's surgery went well and she is resolving into better health.
Hugs,
2roads
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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sammy
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Member # 13952
posted
**UPDATE** 3/25
I'm so sorry for my lack of posts. Within this next week I'll try to catch up on what's been going on.
I've been so terribly ill with constant high fevers (miserable), extreme exhaustion, and severe sinus infection symptoms like face,eye,and ear pain. Cough, sore throat, and bright green to dark yellow nasal discharge.
Worst of all are the migraines.
This has been going on now for two weeks so I'm wondering if it may not be viral and I might need something to clear it.
So if you will, say a prayer for healing for me. I would greatly appreciate it. I will also follow up with my LLMD on Thursday so pray that he will be able to help and that appt will go well too.
Thank you friends, may you be blessed as you have been such a blessing to me Posts: 5237 | From here | Registered: Nov 2007
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Sammi
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sammy, I am very sorry you are feeling so terrible. You have been through so much.
I pray these symptoms let up for you very soon and that your appointment goes well on Thursday. You deserve a break!
Posts: 4682 | Registered: Oct 2000
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Dekrator48
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Praying for you and your Mom, sammy.
It sounds like you need an antibiotic for the infection.
Please take care of yourself!!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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momindeep
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Prayers for you Sammy...poor darling...I feel bad for you.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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posted
PRAYING!!! So sorry to hear that you are so ill!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Rumigirl
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Member # 15091
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Oh, sammy, I pray that your appointment goes well tomorrow, that your infection clears promtly, and that you get relief from your migraines!!
Do you have injectable Sumatriptan? Please get an rx for that, as it gives the fastest and best relief by far. It is not fun to give yourself the injection and feel strange from it sometimes, but it works the best.
Also, if you could get someone to rx IV magnesium (Infuserve compounds it), and your doc rx's it (did for me), that would help to prevent them and head them off when they start. It is a life=saver!
Also, would someone rx IM or IV ketorolac for you to do prn? It also is a life-save with the blasted migraines. That is beyond the scope of what this doc will likely do, but you could always ask. They definitely do IV magnesium though.
Feel better soon!!
Posts: 3792 | From around | Registered: Mar 2008
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susank
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Sammy - worried about you.
Can you use a Neti pot to help with your sinuses/discharge?
Your IVIG's on schedule?
You and your mom always in my prayers.
Hope you get answers/relief soon.
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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momindeep
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Hoping that you and your mom are feeling better and praying that you are improving...hope also, that sunshine and warmer weather helps you.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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Sammi
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sammy, how are you feeling? I hope better! How is your mom? Thinking of you both.
Posts: 4682 | Registered: Oct 2000
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Dekrator48
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Praying for you and your mom, sammy!
How are you both doing?
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Sammi
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sammy, how are you and your mom doing? I hope you are feeling better.
Posts: 4682 | Registered: Oct 2000
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momindeep
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Yes...I am wondering about you and mom too?
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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Dekrator48
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Praying for you both, sammy, and hoping to hear some positive news soon.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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momindeep
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A little worried about you two.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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Sammi
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Yes, I am worried also. sammy, please check in with us when you can.
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Dekrator48
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posted
Praying for you and your Mom, sammy!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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susank
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posted
Also worried.
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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sammy
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posted
**Update 5/2/14**
Dear friends,
Thank you for continuing to pray for me even in the absence of my updates. I've been so very ill, every day has been a struggle.
I've missed you all and thought of you often but haven't been able to get online. Sitting up and reading for more than a minute makes me sick, so I'll keep this update short today.
My mom is doing remarkably well. She still lacks her old energy and stamina but otherwise appears to be back to "normal". She tested low on her hemoglobin and iron so she is getting iron infusions over the next couple months to increase her levels. Hopefully that will help her feel her best again.
She got her first test scan and blood work to watch out for the cancer relapse last week. Thankfully everything came back clear
As for me, things are not going so well. That infection that I had was very serious. I ignored it and tried to push through it to care for my mom for too long. I should have realized that I needed to care for myself too. Anyways, it made me very ill and even set me back in my Lyme treatment.
I am now also dealing with a flare in severe GI symptoms, my gastroparesis has gotten worse to the point where my doctor has put me on a liquid diet and I am being evaluated for Crohn's disease.
There is more going on in my life. I feel sad and overwhelmed by it all. So out of control. So scared.
Thank you for caring. Thank you for praying for me and my mom during this time.
Posts: 5237 | From here | Registered: Nov 2007
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Sammi
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sammy, I am so glad you posted. We have all been very worried.
I am glad you mother is doing much better and that her tests are clear. I am very sad you are so sick. I am sure everything you have been dealing with over these months has caught up and taken a toll.
I am sorry you are dealing with so much at once. I hope you don't have Chron's and that things start improving for you ASAP. Please put yourself on your priority list.
Hang in there sammy. I continue to pray for you and your mom.
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