Topic: 1/19** Please Pray, Update, Mom's CT found a new spot!
Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
sammy,
Thanks for the update.
I will continue to pray for you and your Mom. I'm so sorry that you are struggling so much.
Heavenly Father, please have mercy on sammy and her Mom. Please heal both of them completely and provide for all of their needs. In Jesus name I pray, Amen.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Sammi
Frequent Contributor (1K+ posts)
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sammy, I hope you are starting to feel better. I am thinking of you and your mom and continue to pray for you both.
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
sammy, how are you doing? Please check in with us when you can.
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posted
Sammy .. we're still praying for you two and thinking about you. I've been worried that we haven't heard from you.
Hope you are OK.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
**Update 6/11/14**
Thank you all for remembering us. Things are still stressful and challenging.
My mom is getting better, still struggles with energy and has to get iron infusions every other week. She also has to be careful to watch out for infections now that her spleen is gone.
She will have her follow-up blood work and CT scan at the end of this month to make sure that no cancer has returned so we could use lots of prayers for that.
I've been struggling with my health lately. GI doc can't quite pin point what's going on and how to help me best. I've had tons of testing.
We found out that my gastroparesis is flaring badly, food was still in my stomach after 17hrs for prep for an endoscopy. So now I'm on double my Reglan dose and it is not helping enough, I still vomit if I don't follow my strict diet.
We also found that I had elevated pancreatic enzymes and probably passed a gall stone at some point. That is what the doctor thinks caused all my pain problems after eating.
Oh and I had ulcers in the stomach and small intestine. I was put on a liquid diet with Carafate for awhile to help heal the ulcers faster.
I've been feeling super tired lately, like I could sleep all the time. I take long naps when I can. Still, my body feels like molasses!
I finally had my f/u appt with my hematologist earlier this week and found out my iron level was 12. Tanked. So I'm supposed to get 3 infusions over the next 3 weeks. Hopefully that will help me feel better
So much has been going on, I haven't felt well and I've kinda felt down lately.
I need to feel better so that I can get back into my old habits of hanging out here more often I miss you all!
Hugs, you all made me feel better today!
Posts: 5237 | From here | Registered: Nov 2007
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
Oh sammy, I am very sorry you are dealing with so much still. An iron level of 12?! No wonder you are exhausted. I hope the iron infusions really help you.
I am sure it is very frustrating to have such severe stomach issues.
You and your mom continue to be in my prayers. Let us know how her tests come out.
Hang in there okay? I am sending you a big hug.
Posts: 4682 | Registered: Oct 2000
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
I am thankful for your update since I think of you often and your mom too. I had low iron like you and after getting my levels back up I felt way better and wasn't exhausted anymore and my depression was removed...it had caused me to be profoundly sad and depressed.
I will continue to pray for you and your mother.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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Dogsandcats
Frequent Contributor (1K+ posts)
Member # 28544
posted
Take care, I will be praying for both of you.
I have a 55 pound doggie climbing on me or I would write more. He wants lunch!!
Hugs.
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I am praying for you and your mom, sammy.
I am believing that God has good plans for both of you!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
**Update 7/19**
It's been quite awhile since I posted my last update. I hope this doesn't get too long!
My most serious concern, mom needs to have surgery again this week on thursday 7/24.
She's developed a large incisional hernia in the middle of her abdomen. The doctor is concerned because it is growing so rapidly. He's going to place mesh over it to repair the weak area in an outpatient surgery.
I don't know how long her recovery is expected to take for this. It concerns me because it is just the two of us here and I've been so sick, she's been doing most of the work again. Now with the surgery I'll have to take over and care for her and everything. It's just overwhelming to think about as I have no energy.
The GI doctor never gave me a solid diagnosis for my last severe flare up. He said that he "couldn't rule out Crohn's disease" because of the ulcers in my small intestine and my high sed rate, previous imaging, symptoms, etc. That's scary.
My GI symptoms have calmed down so now it is mainly the gastroparesis that I have to deal with. It is difficult but at least it is manageable with strict diet.
I've also had a follow-up with my bone doctor recently. Good news is that my dexa scan showed that my bone density improved over this past year. Unfortunately, my bones are not strong enough for me to have my much needed back surgery. I'll have to wait another year to see how things progress.
Lyme wise it is hard for me to know if I have plateaued or not in my treatment because I have so much stress in my life and other health issues that play a role in how I feel on a daily basis it makes it hard to judge progress.
For example, my thyroid was 9.1 when I went to my PCP last week so that may be a big contributor as to why I've been so tired.
Oh, life!
Dear friends, I've rambled on enough. Thank you for continuing to think of us when you do. Please continue to pray for us if you can.
Please pray for my mom on Thursday as she has her surgery. Pray also for her doctor, and the medical team that will be caring for her. That she will recover quickly and completely without any complications.
*Hugs* and blessings to all our friends!
Posts: 5237 | From here | Registered: Nov 2007
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
sammy, I am so glad you posted. I was thinking of you today and I was going to post.
I am sorry your mom has to have surgery. I am glad it is outpatient though.
I am also very sorry things have been so challenging for you on so many levels. You are dealing with more than anyone should have to. A TSH (I am assuming that is the test you had) of 9.1 is very high! This alone will cause multiple symptoms. I hope you were started on a thyroid med. It can take some time for it to help. Thank goodness you were tested before it got even worse.
It is encouraging that your bone density has improved some. I pray it will keep getting better.
I continue to pray for you and your mom. I hope that her surgery and recovery go well. I really wish you had people to help out.
Please post when you can after her surgery so we know how you are both doing. Hang in there okay?
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I am praying for you and your Mom, sammy.
Thanks for updating us.
It sure does sound like you need some T3 or a combo of T4/T3....not Synthroid which is only inactive T4. No wonder you have no energy.
I listened to 14 hours of presentations during the online Thyroid Summit.
The presenters I listened to recommended that one's TSH be 0.1-1.0.
Unfortunately, many Drs only look at the TSH level, which they said was so wrong and almost worthless.
I hope they are checking your free T3 and free T4, reverse T3, etc also and not just your TSH.
Jonathan Wright MD said that the most relevant test was the Free T3 because it is the loose, unbound and available thyroid hormone.
Have you had the TPO and TGA antibody tests to check for Hashimoto's Thyroiditis?
Praying for you!!!!!!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
"poppy" just posted a thread the other day asking about you. I had really been wondering how you and your mom were doing. So happy you checked in with us!
I've been praying for you and will step it up a notch! I will pray especially for your health and your strength as you care for your mom and for yourself.
Please DO speak to your Dr about that TSH!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
I wish there was something I could do for you. so much on one plate.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Thinking of you both. Seems u should prioritize correct meds for thyroid. It might make a big difference for both of you
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Dogsandcats
Frequent Contributor (1K+ posts)
Member # 28544
posted
My goodness you have a full plate-
May God's angels continue to surround the two of you and strengthen and heal you both.
Hugs....
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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momindeep
Frequent Contributor (1K+ posts)
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posted
Awww...will continue prayers for you Sammy and thanks for posting the update. Sorry for your troubles, I really am.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
sammy, how did things go today? Still praying!
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
**Update 7/24**
Thank you so much for thinking of us and praying for us. My mom's surgery went well this morning.
The doctor found a bunch of adhesions and "gunk" from her previous surgeries and complications, he cleaned that up and looked around inside her abdomen to make sure that everything was OK before closing and all was well.
She's not allowed to lift Anything for 2wks and then she can't lift anything over 15lbs until 6wks. She's bummed about that.
Right now she's in a ton of pain, her medicine is not keeping it under control well. She's having trouble moving and resting.
Please continue to pray for her as she heals. And for me as I try to take care of her and myself!
Thanks so much Posts: 5237 | From here | Registered: Nov 2007
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
sammy, I am glad your mom's surgery went well. I pray she heals quickly with little pain and that you both get enough rest.
Please take care of yourself.
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I am praying for both of you, sammy!
Thank God that your Mom's surgery went well.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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payne
Frequent Contributor (1K+ posts)
Member # 26248
posted
sammy, we are pleased that your mother has overcome again, many of the trials and test of this day and age health issues.. We praise and find comfort In HIM daily, He waits for US.. in our daily path,
He is already sitting on a stump looking back down the path. thinking where is that child of mine ? could they have become lost, He is a jealious Lord and wants you and wants to be OUR LORD. I take this as Good news ! one of the Brighter reads and find in my day also
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
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LisaK
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posted
I am praying for you both!!! GOd bless!
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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