![[Smile]](smile.gif)
quote:
Originally posted by CD57:
Up. Phoiph I just PMed you.....I did 40 dives at 2.4 ATA at a clinic, it helped me to feel better during that time and a few weeks after, but did not help at all with my disease it seems. I?wonder if mHBOT may be different>
My LLMD also said it was contra-indicated with babesia, but also bartonella loves oxygen, or we should say, these two infections use oxygen. It's borrelia that hates it, and in theory that means oxygenating the body would make it unhospitable for borrelia. However.....what does it do for the other two pathogens, who hang out in the RBCs and endothelial tissue where the oxygen is?
Maybe mHBOT is different?
quote:So, how do you know that an oxygen concentrator will be powerful enough to be used with mHBOT? Do you need a certain amount of airflow to compensate for the additional air pressure?
Originally posted by Phoiph:
The oxygen concentrator must be of a specific power to be used effectively with a hyperbaric chamber, but has the advantage of not needing refills of oxygen cylinders, etc.
quote:Oxygenbabe...
Originally posted by oxygenbabe:
By the way, phoiph, why don't you go public with your real name and story? If you honestly are in this to pay it forward and not to earn commissions. If you think it's curative used daily long term. I admit to wondering why you are ardent bit anonymous.
quote:Ah yes that is good advice indeed!
Originally posted by Phoiph:
Also, a precaution...don't ever turn your concentrator off before the chamber is depressurized completely; the backflow from the chamber can damage it...
...![[Wink]](wink.gif)
quote:Soccermama...
Originally posted by soccermama:
I have not done any other research but the Lyme MD posted this on July 22, 2013. He was talking about biofilms and hyperbaric.
"Hyperbaric therapy, in addition to producing reactive oxygen species, also produces reactive nitrogen species. One of these products is nitric oxide.
The effects of this compound are complex and protean with literature that goes on forever. But one demonstrated effect is the dispersal of biofilms. This may be of additional benefit."
So, maybe it has an effect on biofilms. If it truly does, then hbot may dissolve the biofilm and allow the medicine to get to it. Wouldn't that be awesome.
Another thought is that mhbot works on many, many levels. Maybe its mechanism isn't killing like antibiotics or antimicrobials.
Maybe, its mechanism is supporting and healing the body. Keeping the detox pathways open etc.
As a result, the body does not have to work on repairing etc. and has the resources to actually attack.
Just a thought.
quote:I'm currently using Tindamax with mHBOT. I'd love to try out Will's protocol with mHBOT though I don't know how I'll be able to convince my doc to prescribe so many antibiotics at once.
Originally posted by JCarlhelp:
Did/does anyone use a cyst buster like Flagyl or Tindamax while doing any form of oxygen treatment. Any thoughts on this?
quote:That's correct.
Originally posted by Phoiph:
MichaelTampa...
Just to clarify...you were using an oxygen concentrator alone, without a hyperbaric chamber, is that correct?
Thanks levity!
![[Frown]](frown.gif)
quote:-
Originally posted by JCarlhelp:
OK, this is what happens when you try to reply on an Iphone, wasn't trying to make a triple point.
quote:Betty G approves of this message!!
Originally posted by Lymetoo:
Looking4Hope .. Please leave more space between paragraphs for easier reading. Most here cannot read large blocks of print.
Thanks!
![[Razz]](tongue.gif)
quote:Mental clarity and energy/stamina.....two of my worst symptoms.
Originally posted by BBinme:
jarjar, would you mind telling us what has gotten better since adding mhbot? Thanks
![[Cool]](cool.gif)
Right now I'm just trying to find the time to finish my website...!!!
I was thinking it might have something to do with my carbonmonoxide poisoning or my 92% of failing mitochondria slowly awakening... I mean any change, I feel both, sort of herxing and sort of healing. It’s a bit ‘shakening’ after every dive.
![[kiss]](graemlins/kissing.gif)
. Using the canes more for support has really aggravated my left shoulder. I also seem to be walking a bit more strongly. )
)
I'll keep it in my chamber, so I won't forget. Do you write something everyday or weekly or ?
quote:I am now actually following the GAPS introduction diet (stage 2), without vegetables except for sauerkraut juice.
Originally posted by Peimomma:
Interesting read CD57. Has anyone tried this diet?
![[Big Grin]](biggrin.gif)
quote:Hi A.G.
Originally posted by A.G.:
I couldn't get past 5 minutes in my Drs office. It made me flare so bad I was bedbound for 2 weeks.
I don't know if it's because I cannot genetically detox, or what.
I had such high hopes because it took away my neuralgia and myalgia immediately while I was in there.
Anyone have this problem and still keep going and make progress?
![[group hug]](graemlins/grouphug.gif)
And welcome to all the new mHbot-ers. It is incredible to see some of you making such rapid progress. ). Yes I would say minor results, but there are days that I feel the results are more significant than I realize... For example - I had live blood analysis on Friday. I decided to tape the conversation with the practitioner because he talked a lot. I listened to the 45 minute recording and realized that I AM better. I usually would have a very difficult time conversing, comprehending, but the conversation flowed and I did not feel completely drugged or floating as I usually did in the past. Also, I'm reading some difficult books which I seem to take in, I may not remember everything, but it seems the synapses are firing to some degree! ![[sleepy]](graemlins/sleepy.gif)
I will definitely go about this cautiously and methodically and let you guys know how I am doing in about six weeks.
. That's really the key to success with this I think.
quote:Hi joahsark...
Originally posted by joahsark:
Hi Everyone, just doing the final research into choosing a chamber for our home. I have reached out to Phoiph and am waiting for her to respond.
Wanted to ask if anyone has any positive or negatives about the Newtown Hyperbaric chambers compared with the Oxyhealth which I know are the top. I have found only one or two reviews on them which are pretty good but want more feedback before deciding to purchase/rent/lease.
We are planning to treat myself and my 14 year old daughter.
EXTREME brain involvement, constant (20 years) pressure and pain as well as all the joint stuff. But really praying for the brain healing. Any feedback is appreciated. Thanks so much!!
quote:
Originally posted by joahsark:
Hi Everyone, just doing the final research into choosing a chamber for our home. I have reached out to Phoiph and am waiting for her to respond.
Wanted to ask if anyone has any positive or negatives about the Newtown Hyperbaric chambers compared with the Oxyhealth which I know are the top. I have found only one or two reviews on them which are pretty good but want more feedback before deciding to purchase/rent/lease.
We are planning to treat myself and my 14 year old daughter.
EXTREME brain involvement, constant (20 years) pressure and pain as well as all the joint stuff. But really praying for the brain healing. Any feedback is appreciated. Thanks so much!!
![[confused]](graemlins/confused.gif)
.quote:
Originally posted by Beloved:
Greetings All,
I've been off the Grid for a couple years, but I'm resuming my HBOT dives. It's been quite a year.
Back in January I started the LDN (Low Dose Naltrexone) Protocol, to relieve my Lyme etc symptoms. It kicked my pain levels down from an 8 to about a 3-4 (though stuff's been kicking up again over the past month because of ABx, getting off Elavil & starting up my HBOT dives again.) As a result of being on LDN I have been able to extricate off Lortab, Ultram, Cymbalta, Pyridium (for the bladder urgency), Klonopin (last year. Ugh! Nasty sleep drug to detox!). The last 2 were 1/4 tab Xanax (for sleep) and FINALLY 100mg Elavil at bedtime for sleep. The chief goal for me has been a clearer head & less brain fog. The Elavil was cold turkey 2 months ago. I had left my new Rx in the car and was too beat to go get it at bedtime. When I woke up the next morning it was, Oh my Gosh my Mind is so clear I am Never going back! I then stood up out of bed & my #2 completely evacuated (courtesy of cold turkey off Elavil).
It's been like a return from 20 years in prison for my brain. The other symptoms of Lyme pain, fatigue etc are still there. Also My sleep and my bowels are whacked. The sleep Dr said that my brain's neurons are permanently changed & will not be able to sleep w/o synthetic assistance. She also suggested going back on less Elavil; I said Nope, not gonna happen. Also the bowels are whacked somehow from being on Elavil for 20 years. That's a work in progress that I'm still trying to figure out. Though an occasional Ultram helps bind me up I can't let that be a regular thing.
Paraplegics and our neurogenic digestive tract; ever a topic of table talk-
Right after quitting the Elavil I got hit with an ESBL E.Coli UTI, something tenacious like MRSA. I've been through 4 rounds of Antibiotics over 2 months- 3 of Macrobid and a final 1 of Levaquin. The Macrobid was so bad I spent most of it in bed; though not AS bad the Levaquin was still pretty bad. I did not realize it until last night that the 2 ABx were hitting the Lyme disease- MacroBid the Bart & Levaquin the Babs.
So, all that said I'm finally back in my Respiro, the Blue Womb, 1 hour a day. I'll keep pushing for 6-7 days a week for now, maybe taking Friday night's off for a bit so I can have an easier Saturday.
When I went thru my first set of 10 Dives I had one day of perfect bliss right after the 10th dive. So since it was that way before I'm praying that the rhythms of wax and wane begin again around 10 dives. When I first did my introductory 10 Dives 4 years ago at my LLMD's there were no H2O masks in the chamber! I held the cannula close to my nose much of the time but don't know how much that helped- of course I complained.
So that's my Journey update. Phase 1 was the LDN & getting off my brain fog meds. Phase 2 is getting back on the Hyperbaric wagon.
Over at Health Rising Cort wrote an article on how our Reward pathways, the 'runner's high', the bliss,the Joy, are somehow blocked or somewhat suppressed deep in the brain. Titled, Are All the "Feel Good" Pathways Blocked?" (October 21st), there could be a blockage in the basal ganglia and dopamine pathways. That hit me like a lightbulb. If there is inflammation going on in that nexus, then Hyperbaric Oxygen would be treating that inflammation, giving me that One Good Day of Joy after 10 Dives.
In the 3 years before I was officially diagnosed, I was sick at least 2 times per year with cold/flu/pneumonia. I would get real sick, end up with pneumonia and need a course of antibiotics. I was having weird reactions to the abx, which I now realize was herxing. I've had "mono" twice and my blood tests continue to show active EBV and chlamydia pneumonia. My hopes with improved diet and the MHbot is a healthier gut and immune system! My Dr. wants me to work up to two hours. I can't find anyone who does hbot this long. anxious to see how you all continue to do as well! Go soccermama!
Thanks for the encouragement!! Means a lot...
you'll be happy to hear that I finished another quarter at school with straight A's..only able to take a couple classes at a time but working my way through slowly but surely.
) tend to give me migraines (I have not figured out why yet), but I wouldn't necessarily recommend it for anyone else? Basically, you have to work out what works for you since we are all unique and special little snowflakes quote:
Originally posted by Phoiph:
Hi Everyone...
I don't know if any of you have been following Lymeboy's thread, "Pericardial Effusion", but he's been in a precarious crisis state, and I have been very concerned for him:
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=133186;p=0
He has tried it all, as many of us have, and is out of options and at the end of his rope physically, mentally, and financially. I suggested that he consider mHBOT, but the cost is completely prohibitive for him, even if there were cooperative sharing options.
So...he decided to start a "GoFundMe" campaign in hopes of raising funds for a chamber...
I know of another person who raised the funds for a chamber this way. And...when I recently checked out the site, I was surprised to see, for example, that $11,000 was raised for a pup's vet bills in less than a week...
If this works out for him, it could be a possible option for others.
Since Lymeboy's campaign isn't included on a public search engine, he needs our help to post and share his link with any promising contacts, groups, and resources we can think of...
https://www.gofundme.com/tdhtwkm4
Many thanks in advance!
If you care to expound more on this Phoiph, I would appreciate it!
quote:Yes thanks I totally agree. Also in Harch's book The Oxygen Revolution mild hbot for chronic problems seems to be the best in multiple ways.
Originally posted by Phoiph:
I would wager that lower pressure over time would be safer and more effective, especially if it is chronic-Lyme induced.
quote:I'm sorry that you've gone through all that. And it's always good to hear how mhbot helped you tremendously. I'm also so glad I've started it. Thanks for helping out.
Originally posted by Phoiph:
I had screaming tinnitus when I was very ill, which has resolved to pre-Lyme levels. Torturous "brain static", auditory hallucinations (always music I hated) and severe hyperacusis also resolved, thanks to mHBOT.
quote:Yes good point susan, we have to change that...
Originally posted by Susank:
Folks don't know the treatment is available - where to get it - or that they could even get a home chamber.
![[tsk]](graemlins/tsk.gif)
Progress has been hard to see. Phoiph and I were talking and long story short we discovered my original used oxygen concentrator was not working properly. I do not know how much 02 it was delivering, how long it began to malfunction, and if the malfunction was consitent or not. not sure if it is oxygen caused or disease progression. ![[dizzy]](graemlins/dizzy.gif)
. All is good here, plugging along.
quote:up
Originally posted by Phoiph:
Hi everyone...
Not sure how many of you follow Lymeboy's "Pericardial Effusion" thread, but we're trying to gather support there for him in his effort to obtain mHBOT treatment:
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=133186;p=2#000130
Many of you are on Facebook (I am not), and other social media sites...so if everyone could please spread his twitter page, it would be greatly appreciated.
This is one of the latest updates from his thread:
"...Thanks to everyone's generosity, he has finally received his chamber, and we are going to get things set up and started via phone in the next few days.
As I have mentioned, his concern now is that although he has enough raised funds to cover 3 months, there is still the major issue of ongoing financial support that will be necessary to provide uninterrupted treatment after the 3 month budget runs out. This needs to be planned for now...
I am not allowed to provide a direct link to a "GoFundMe" account here on LymeNet, as that is considered "solicitation".
Instead, I will share with you John's twitter page, on which you can find related information and links:
https://twitter.com/JohnnyLyme
I am hoping that if this method of acquiring funding for mHBOT works for him, it may also work for others who can't afford their treatment...
yay, SusanK! Happy for ya!!!
. Might not be what a young fella wants to hear though.
quote:Susank...
Originally posted by susank:
How can the O2 be dehydrating?
Not from the pressure, right - but the O2 from the concentrator?
(FWIW I have dry eyes/mouth so know about low humidity, wind, not putting my face to a fan, etc.)
Why do some folks have trouble with the O2 from the concentrator - and do better with pressure only? (separate question from dehydration).
Also.......could someone explain why getting to 2 PSI is more difficult (for some) than getting from 2 to 4.2?
Thanks.
quote:Soccermama...
Originally posted by soccermama:
I have a couple of questions also. I started full hour dives with supplemental oxygen on 3/14. Did 13 dives and experienced a few problems with chamber that we fixed. Restarted on 4/4 and did 11 dives when I got sick with a bronchial infection.
Finally, restarted today. The question I have is do you lose progress if you have to miss a period of time from diving? My next question is I feel some symptoms coming back that had "resolved" like stomach pain, nausea, and anxiety. Plus an increase in restorative sleep. Could I be herxing already? I've only completed 25 dives.
" still chugging along..
mostly I hear "crashes" that sound kind of like a bomb going off in the noggin.' The company said they would look at it but would charge me anyway... even if nothing was wrong. quote:Hi Digby...
Originally posted by Digby:
Hi Everyone,
This is my first post here but I've been on LymeNet since 2005. I don't post much as I try to keep the drama in my life to a minimum!
I'll introduce myself at a later date but suffice it to say, I have done over 400, one hour mHBOT dives in my Vitaeris Chamber with considerable improvement in my condition.
I just want to say to Susank that there should be no suction at the pressure gauge port. That is where your leak is. Probably one of the connectors in your "extender" but it could be a leaky gauge too.
Thankfully, the man I borrowed mine from had this vendor's number. Thanks for the direction Phoiph.
It isn't as loud as my old one, but I am assuming they all do a bit?quote:I had trouble progressing through the GAPS introduction diet. Finding a source of fiber was very problematic for me. Adding veggies would make symptoms worse. But i discovered it was the fermentable veggies that mostly did it. FODMAPS. They feed intestinal flora (good and perhaps some bad types) and can trigger all kinds of different reactions.
Originally posted by susank:
Pho - questions about diet.
I have been trying to follow the GAPS diet as best I can.
I note where you did that as well - and I eat much like your (famous) six foods. Except I could not do sardines.
My sister cooks for me.
Perhaps the last batch of broth was bad - anyway - something made me real sick - so I can't much think about broth for a while.
But wanted to ask - did you have veggies in your broth. What veggies did you eat?
I really don't want to eat.
I try to eat salads/greens daily - but tonight just threw it all out.
I'm trying to eat real/raw/fresh, etc.
I know we need veggie/fruit fiber.
Probably should not be eating fruit (sugars).
Truly the only vegetable I can think about is an avocado - and IIRC they're not even vegetables. ??
I have had a rule for years - must eat one green veggie a day.
What did you do for fiber if I might ask?
WBT
quote:Here are some random thoughts on this issue...
Originally posted by soccermama:
Any thoughts or comments on the Lyme MD's thinking that 2 hours or more per day is needed? He was addressing cognitive issues in his post. Just wondering what people on this thread thought?
![[bow]](graemlins/bow.gif)
quote:Hi Monti...
Originally posted by Monti:
Phoiph,
Thank you for all the time you spend answering posts and helping others.
If someone isn't able to tolerate 02 thru a mask but can tolerate it flowing into the chamber near their head, would diving once a day for 1.5 hours be a good treatment plan compared to two one hour dives w/out 02?
My preference would be to do it all at once but I don't want to sacrifice benefit.
quote:project...
Originally posted by project:
I tried my first mHBOT session at a local chiropractor's office yesterday. I believe it was an Oxyhealth Respiro with supplemental oxygen via a mask.
I was in for 60 minutes and I think it did trigger a mild herx. However I feel pretty good today.
I've been researching them a bit more and came across this statement:
"A typical mild HBT session will involve pressurisation to 1.3 ATA breathing 30% oxygen for about one hour. Under these conditions, each breath has an oxygen pressure of 0.4 ATA (296 mmHg) and the arterial pressure is likely to reach a more modest 0.3 ATA (230 mmHg). This is the same oxygen pressure that can be attained by breathing about 35% oxygen at sea level. To put it another way – this amount of oxygen can easily be achieved with out the use of the chamber at all."
http://wesleyhyperbaric.com.au/treatment-information/for-patients/therapeutic-hbot-v-mild-hbt-synopsis/
Can anyone confirm if this is accurate? Has anyone tried breathing oxygen without a chamber?
![[woohoo]](graemlins/woohoo.gif)
WHAAAAAA (mini tantrum) just waiting on getting new equipment now so I can continue my dives..miss clear brain, no-pain so much... sending my best and will shoot you an email soon <3
He said all his patients do better with two and a half. . In other words ask me next September haha!
I won't ask till next year!! quote:jcarlnew...
Originally posted by jcarlnew:
Phoiph, so do you take anything specific for MBOT?, not for other supplementation.
quote:Hi Spinning...
Originally posted by spinning122:
I have been contemplating this issue of supplemental antioxidants interfering with oxidative therapies... doing a lot of reading scholarly articles lately.
I am aware of the hormetic response to this therapy etc. and am worried that my intake of vit c could possibly have gotten in the way of my treatment since I did two straight years of daily hour dives and I am still slowly, progressively getting worse...
Problem is I'm stuck between a rock and a hard place because I have tried to go without supplementation and rapidly developed signs of scurvy which resolves or at least lessens when I take my daily 1g of vit c.
I understand that real food always trumps supplementation but I have severe intolerances that don't allow me to stomach much fresh veg/fruit. I try to time my supplementation as far away from dives as possible.
Is the 1g too much, in your opinion? (Phoiph or anyone else). Do any of you take supplements? Any input is appreciated!
I am honestly thinking about restarting abx again, if only for a brief period to get my infectious load down to a manageable stage again..the stress of fire disaster sent me into a spiral and I feel as sick (and in some ways worse) than when I started the treatment journey four or something years ago..
. Thank you so much for bearing with me! Hugs!
I have not tried a zapper but I read somewhere that it only agitates the parasites... I do have a violet ray now that I want to test out, after I get my amalgam filling out... quote:Dan67…this is a question that comes up often...so I would like to share my experience.
Originally posted by dan67:
Can people comment on Babesia and Mhbot? I have observed with some clarity that my Babesia gets re-activated when I increase oxygen therapies.
![[bonk]](graemlins/bonk.gif)
quote:Have you considered that breathlessness can also be caused by an acidic PH and/or chronic dehydration, which is common in chronic illnesses?
Originally posted by dan67:
Jolley, do you feel like the breathlessness could be Babesia? Just wondering. That is one of my big remaining issues.
)
quote:Kristine...You had mentioned that your PVCs were worse when you are lying down. Were you lying down when you did this?
Originally posted by Kristine001:
I put on my O2 mask outside of the chamber and went 75 minutes with zero PVCs, so if anything it helped.
I am so frightened that the mild hyperbaric has held me back! quote:The mold study was done with supplemental 02:
Originally posted by foxy loxy:
Very interesting Dan. I wonder what simply diving without the o2 would do to the Babesia?
I think. Somewhere in the back of my head... that there was a study with mold. and that mild hyperbaric was very helpful but there was no supplemental oxygen.
)
Thanks all and KGG and Digby hope you both are great too!
I like diving!
. It is great to read all of the updates! And YES, I may just bug you again about it one day!
quote:Great advice!
Originally posted by Digby:
...I do recommend that you pinch the O2 supply line so the concentrator doesn't get damaged by the back pressure...
quote:The biggest obstacle that I face in helping people with mHBOT is cost/affordability, so I truly hope Newtowne will stand the test of time. So far, so good.
Originally posted by jcarlnew:
...I know she wants more experiences with Newtowne before she can recommend, but everybody I know so far has been happy.
It was short, but good. Onward, right?
Thank you so much...
I don't think she will want to be on steroids... She is pretty naturalistic kind of person.
Here's to more energy and health!!!
the poor dogs!
![[Eek!]](eek.gif)
Five Years Free! Phoiph... Thank you! You INSPIRE us all!
quote:Possibly like "chronic fatigue" symptoms, from what I can gather.
Originally posted by Jolley:
What does metabolic fatigue look like?
Onward and upward!!
I am navigating the ketogenic diet (had some food allergy flares- macadamia nuts and avocados) but it seems now that I cleared those out, I am in a better place. Just ordered a ketonix. Found a good deal on ebay. That way I can measure my ketones without pricking. I found I was not too good with that. ![[loco]](graemlins/loco.gif)
it is humid and moldy.... I run dehumidifiers as if they are non negotiable here because they are.
quote:The oil-less smaller compressors do get hot.
Originally posted by BryanRosner1:
Hi everyone, I need to catch up on this thread, but for now I need help with what could be an urgent question:
My compressor gets VERY hot to the touch after a 1.5 hour session. So hot I could only touch it for about 3 seconds before I pull my hand away. This obviously scares me since, if it lit on fire while I was IN the chamber, I wouldn't even know it. Can people confirm if this is normal, or an issue and I should get a new compressor?
Thanks for your input.
) So, here's to dedication and time with his mode of treatment. Keep diving team... HUGS!
but climbing in and out goes very okay now and I’m zipping easily with one hand.
We are about 3/4 done with our move (Kgg... showing house and moving.. ugg, I get it) Kgg- hope you are doing well too. Getting the thyroid figured out is a dance too. Know we will both be feeling better soon! Keep Diving team!
quote:
Originally posted by lapis29:
bryan -
Have you had this looked at by a doctor? what did they say?
quote:HW88~
Originally posted by HW88:
She lives in OH. She doesn't have diabetes. At this point it is idiopathic. She's down to 74 lbs and has been at the children's hospital for 4 days now. I think she will have to get a feeding tube.
My gastroparesis has cleared a lot with treatment, but since I don't think she has lyme, I don't have many suggestions for her. It is a miserable disease.
I will mention it to her mom, though. See if there is someone knowledgable to talk to. If you know of anyone in the cincinnati area, let me know.
quote:do you have a script for your b12?
Originally posted by kgg:
Over the years, two things have been my foundation in treating my fatigue problems: IM B12 and Magnesium. If I could tolerate oral I would be taking it. And perhaps take a biofilm buster with it. fwiw
quote:Chronic inflammation drives biofilms, and magnesium reduces inflammation (among many other benefits).
Originally posted by BryanRosner1:
What is the consensus on taking magnesium? There are many studies that show it builds biofilm. But it is also a nutrient we can be deficient in. Apparently the topical spray is best used for easy absorption. But a good idea to use? or bad idea?
quote:Hi Jolley~
Originally posted by Jolley:
Phoiph
I just ran my O2 concentrator without the external filter for an entire dive. Do I need to worry about anything?
So thankful for mhbot.
Excited more and more people are starting their mHbot journey. Glad we're here for each other too; it's a tough road.
quote:Yes, I had extreme insomnia for years when I was ill. I do sleep well through the night most of the time now (unless my dog wakes me up...lol).
Originally posted by HW88:
Hey phoiph ( or anyone else that had sleep issues that resolved)
I remember you saying you had severe insomnia. I was wondering if you are sleeping through the night now?
I know it's better, but I was wondering if you sleep from the time you go to bed to the time you wake up in the morning.
Gosh knows I hope you know that... God bless you... I tell him all the time, it was the best gift.... why try for something else ) quote:I don't think there's any data unfortunately.
Originally posted by HW88:
QUESTION: My Dr. is suggesting join up in my dive time to 2 hrs. I remember there was a conversation on here at some point about dive times, but I'm horrible at finding what I want on this site. Can someone direct me to that conversation?
quote:I live at altitude now, but I had the same experience when I lived closer to sea level. I didn't feel a noticeable reaction till I hit the hour and half mark.
Originally posted by willbeatthis:
I've tried to go back to an hour but it seems 90 minutes is the best for me. I think you have to figure that part out.
quote:You've been using your chamber for two years?
Originally posted by Peimomma:
I'm feeling fantastic and would say I'm at 100% so I'm going next month to have all my tests run one last time in hopes they are all normal and I can move on to improving the residual damage the LD left behind.
I am hoping for an improved version
quote:I've noticed some weight gain. I don't know if related though.
Originally posted by HW88:
Did anyone else notice weight gain after starting mhbot?
LOL
So happy!
This is a good space to be in. quote:Hey Phoiph,
Originally posted by Phoiph:
Here are some links for you, Homina. Dr. Harch treats his neurological patients with MILD hyperbaric (1.5 ATA or less):
More is Better: The Recurrent Illusion of Higher Pressure HBOT in Chronic Brain Injury, by Dr. Paul Harch: www.wisconsinhyperbarics.com/research-pdf/more-is-better.pdf
Before and after mHBOT SPECT scans of patients with different chronic brain conditions (download PDF from icon at bottom of page): http://www.hbot.com/SPECT-imaging-PDF
"The Oxygen Revolution", an informative book by Dr. Paul G. Harch and Virginia McCollough, along with his website: http://hbot.com. Dr. Harch has been researching and utilizing hyperbaric oxygen treatment for over 20 years. Includes compelling SPECT scans.
quote:After about five dives and old root canal started acting up it seems to be related to HBOT
Originally posted by Haley:
Is anyone having tooth pain? I am having excruciating pain in one of my root canal teeth. I have had pain in other teeth as well. While researching I noticed there is an entire specialty called aviation dentistry. Apparently, pressure on the teeth can cause cracks and other issues. I think I'm going to have to have a large molar pulled. Yikes. Any help appreciated.
quote:I plan to use mHBOT with antibiotics and with an herbal formula based on stephen buhrer's book
Originally posted by HW88:
How many people do mhbot along with antibiotics and how many are solely using mhbot?
quote:Hey, I've been diving for 20 months, about 5 times a week. I mostly did 90 minutes sessions the last months. But I've increased it last weeks to about 1h45 min or so. The vivid dreams have come back, just like the other times i increased my duration in the chamber. I consider it a good sign though (brain healing) and it makes me think i still have "stretch" on hyperbaric therapy use. I use supplemental oxygen, and the oxygen is flowing just fine.
Originally posted by Phoiph:
Originally posted by Legolas:
"Hey Phoiph,
I've been diving now for about 20 months. I've clearly improved but i'm still far from being recovered.
You're a strong advocate of mild HBOT as it has helped you to fully recover. I wonder if i could somehow improve/accelerate my healing by trying a HBOT pressure greater than 1.3 ATA or even greater than 1.5 ATA.
The article above by dr.Harch seems to be about brain injury and pediatric disorders. We have trouble with our brain, but the underlying cause is immune/metabolic dysfunction. Our brains never suffered an acute lack of oxygen. Do we need to stick to that 1.5 ATA limit? In the study of the fibromyalgia patients they used 2 ATA for 90 minutes, 5days/week and 100% oxygen. Patients improved dramatically after only 40 sessions.
Since CFS and fibro are related, maybe a higher pressure (not 2 ATA) could benefit us too??"
Hi Legolas,
Brains with Chronic Lyme often suffer from hypoperfusion as clearly demonstrated on SPECT scans. In other words, there is a lack of blood supply and oxygen reaching parts of the brain, causing cellular damage, and a cascade of reactions and dysfunction in the body (including immune and metabolic).
So, IMO, it makes sense that Lyme is treated with mHBOT in a similar way as one would treat a brain or other neurological injury, with lower pressures (especially when it has been shown that higher pressures can cause neurological conditions to become worse).
In the study I read, the CFS patients were only given 15 sessions. Their symptoms improved, but they were not cured, and unfortunately, we don't know how long their improvements will last. It takes time to reverse chronic conditions, and higher pressures cannot be sustained over long periods of time safely. I wish it were that easy!
Please let us know more about your situation/treatment so we can try to help. For example, what is your diet like? Are you doing other treatments concurrently? Are you on medications/supplements?
Also, Peimomma asked about the frequency/durations of your mHBOT sessions and whether you are using supplemental oxygen?
https://www.ncbi.nlm.nih.gov/pubmed/23682549
quote:Doing okay
Originally posted by HW88:
How is everyone doing?
Wasn't too happy about that, but I'm glad it's still under warranty.
Thinking of you...
Hugs!
quote:Homina~
Originally posted by Hominahomina:
Informal Poll
Hello All
How many of you believe your Lyme disease was triggered or exacerbated by some stressor in your life ?
Emotional physical etc?
Thanks very much
quote:Hi Toyswalk,
Originally posted by toyswalk:
Hello. I have posted in awhile, but I have been diving (about 825). I have some catching up to do on reading posts! While I work on that, I have a question.
I know that hard chamber HBOT is contraindicated for patients with COPD. But, what about mHBOT? Has anyone researched this or have an opinion based on personal practical experience? Thanks!
quote:I drink coffee, but it’s worth mentioning that caffeine is an immunosuppressant.
Originally posted by Digby:
Coffee has lots of beneficial components, the only problem is if you are drinking more than ~ 3 cups a day in which case you could find it irritating to the intestinal tract. Of course depending on your genetic snps and liver detox pathways, too much caffeine can be a stressor to the central nervous system and the adrenals. Moderation grasshopper!
quote:I’ve been sick for nine years now. I’ve been diving for ten months.
Originally posted by Peimomma:
I was 20 plus years sick as well and I believe Phoiph told me it’s one month of treatment for every year you have been sick, minimum.
quote:That makes sense to me. My vision sometimes improves when I have a few cups.
Originally posted by Digby:
If anyone is concerned about the immunosuppressant action of caffeine, here's a deep dive into it: https://bpspubs.onlinelibrary.wiley.com/doi/full/10.1002/prp2.180
From reading this my take away is that it is immunosuppressant but in a way that reduces inflammation. Moderation is the key.
quote:At 60 minutes I don’t really feel much of a herx. At 90, I do.
Originally posted by Digby:
20+...I think most of the people on this forum who have had success with mHBOT (myself included) have done 1 hour/day at pressure. My experiments with 90 minutes dives made it clear to me that less is better.
If I had the time to do it, I would experiment with 2 30 minute dives a day. I have reason to believe that may work better but it's just too much of a time investment now that I'm feeling better.
code:HBOT Partial Pressures of
Oxygen Table
Room Air Nasal Cannula Simple Mask EWOT Mask Pure Oxygen
1.0 ATA 160mmHg (1.0) 182mmHg (1.1) 380mmHg (2.4) 532mmHg (3.3) 760mmHg (4.8)
1.3 ATA 207mmHg (1.3) 237mmHg (1.5) 494mmHg (3.1) 692mmHg (4.2) 988mmHg (6.2)
1.5 ATA 239mmHg (1.5) 274mmHg (1.7) 570mmHg (3.6) 798mmHg (5.0) 1140mmHg (7.1)
1.75 ATA 279mmHg (1.7) 319mmHg (2.0) 665mmHg (4.2) 931mmHg (5.8) 1330mmHg (8.3)
2.0 ATA 319mmHg (2.0) 365mmHg (2.3) 760mmHg (4.8) 1064mmHg (6.7) 1520mmHg (9.5)
. quote:Many drugs work this way. Artemisin does, for example. The immune system too.
Originally posted by Hominahomina:
Charles that is an interesting point
Do you have any support for the idea that oxidative stress is the principle action of HBOT
Thanks
quote:Yes
Originally posted by Hominahomina:
Thanks Digby that is helpful and that helps to explain why it is so hard to get rid of
The longer it has been in your body the longer it has to infiltrate right?
quote:Digby~
Originally posted by Digby:
Phoiph... Thanks for the clarification. I guess it's back to the drawing board.
quote:Digby~
Originally posted by Digby:
Phoiph... Not yet!
quote:It appears you may very well be going through "Klonopin Withdrawal"!
Originally posted by HW88:
I'm not sure if I had a stressor that triggered it. I know it was gradual and that I had 'episodes' before it full on took my life.
Soo, venting. . . And I'm sorry for this, I just need people that understand what I'm going through to hear me.
I didn't sleep well last night... again. I don't feel like I"ve slept hardly at all since coming off my antibiotics in December and even before that, it wasn't great.
I'm an emotional ball. The Anxiety shoots through the roof when I don't sleep and my brain and eyes just feel like they are on fire. It just WON'T SHUT OFF. I literally feel I'm going to have a break down at times.
I did have about 4 pretty good days again... I'm slowly adding in the above mentioned meds. But I feel like if I don't get consistent sleep soon, I really am going to lose it.
I'm sorry to be debbie downer today, I just cry and want this to all end.
BLAH, ok, I'm going to stop crying and go for a short walk. then maybe try and rest. I don't know how much longer I can do this. I need sleep!
Sorry again.
quote:So I just finished my "Second Dive" after not diving for over 12 months! The dives have both been 60 minutes in duration without supplemental oxygen! I'm going to consider using my "Oxygen Concentrator", this go around if I can control the "Herx's"!
Originally posted by Hominahomina:
Looking4hope
You say you are starting to dive again after 12 months
Can you describe how you feel the first few dives?
Thanks
quote:Please research "Benzo Kindling"...just looking out for you friend(-: The Ashton Manual is located here https://benzo.org.uk/manual/
Originally posted by reminder:
Hello Phioph,
Symptoms started before...weeks ago
Back to benzos yesterday.....no choice,a real roller coaster...with new symptoms
thought i was at the tail end of this...not so sure
now,
r
quote:Hi Rodge~
Originally posted by Rodge:
Hey guys, hopefully someone will see this sooner than later. I know its in the thread somewhere but should i dive if i have a head/chest cold or wait? Thanks!.... :)
My knees and legs feel better!!! SO GRATEFUL for your helpful insight! Thank you....
quote:I dive for an hour from the start, the last 2 weeks I am experimenting with 2x a day, 12 hours apart. I'm taking on Low Dose Naltrexone and am on the Zhang Lyme protocol. I also take Lions Mane also I hour before treatment for nerve/brain regeneration.
Originally posted by willbeatthis:
Hey Tom- I am sorry your getting some burning. I’ve gotten some of that and even a vibrational feeling in my legs. Look forward to hearing others experiences. We all learn so much from one another. Hang in there! Congratulations on your dives!!
Here is to every day after! I believe it would be that much of a difference after today! So thankful to know now to do this You are one smart cookie! ONWARD AND UPWARD!!
You are a fighter too! GOD BLESS YOU PHOIPH!
Did not know about the fuse! quote:ATA and small numbers can be confusing. To compare 1.3ATA to 1.5 ATA, subtract the 1 (since we are starting at 1 atmosphere) to see the relative change.
Originally posted by Happydays:
With 1.5 still being such minor pressure, you'd think that it wouldn't have a detrimental effect, but it sure did produce a much greater herxy effect than 1.3. So now I am back to 1.3 and feeling much better.
quote:
Originally posted by Phoiph:
zeitgeist~
Important question:
During your 3-4 hour daily sessions...
Are you breathing supplemental oxygen via an oxygen concentrator with your chamber?
Or, are you using the chamber with compressed room air only?
quote:7 months 60% improvement. I'm having rapid improvement since adding the Wheldon antibiotic protocol. I'm having severe burning and pain when adding the bacterialcidal antibiotic in the protocol. I'm having zero immune response with improvement as if my immune system cannot see the pathogen.
Originally posted by tom f:
I'm 5 months in with a 20% improvement. Great improvement, but I seem to have plateaued for almost 3 months - while treating at 5.2 psi and utilizing all 92%+ oxygen. I have decided to go on the Dr. Wheldon combination antibiotic protocol with Hbot to eliminate chlamydia pneumoniae, borrelia or borrelia-like organisms. I am no longer intolerant to antibiotics as I was previous to Hbot.
Oh well. I don't love veggies that much!!
) and sharing it so no one else (myself included tries). Thank you all for your support!! quote:If I recall correctly, this study is more of a compilation of general questionnaires.
Originally posted by lymenotlite:
https://www.lymedisease.org/mylymedata-alternative-lyme-disease-treatment/
These lyme advocates put hyperbaric oxygen therapy very low on the list of effectiveness.
They also put sauna very high. I'm presuming they mean infrared sauna but do not know.
Anyone have any insights on this? I'm looking into these therapies. Thanks.
quote:Hi jcarlnew~
Originally posted by jcarlnew:
I met a very nice young lady from Phoenix Arizon that has long term Valley Fever and recently diagnosed pulmonary hypertension. Any thoughts on with soft or hard shelled hyperbaric oxygen treatments would have any contradictions or benefits for these issues. Pholph, I know you probably may know a bit about Valley Fever.
Thanks
quote:Kaibird~
Originally posted by Kaibyrd:
So I’m pretty sure mHBOT is causing the diarrhea. We took a 5 day vacation (was planned and paid for before I started hbot) and I had no problems while away. I got back late last night so didn’t dive until today. No issues before the dive but now it’s baaaa-aack. 🙁 I have no idea what to do for it since the usual treatments aren’t working.
quote:Hi Carbokitty~
Originally posted by carbokitty:
Good morning all~
...So my question is what do you record on your log of dives? I have created a spreadsheet to record the date, the time, how I felt. Then because my primary symptoms I am trying to address are my stools and my sleep, I am logging how those are the night and day after that particular dive. Also in the mix are any supplements or changes in supplements as I find those can have a substantial affect on those 2 events. After I've had more dive time under by belt, I will record an track any foods I try as I attempt to expand my diet (but for right now, I'm leaving that alone and sticking with what I know works). I'm just curious if you log anything else. Do you use a notebook? Or electronic?
Happy diving!
Carbokitty
quote:Phoiph, it’s gone again the past two days. I had gone back up on my magnesium while away from home. I can’t always eat well when eating out and magnesium keeps my IBS in check. I forgot to reduce it when I first got home so that could be the culprit but I thought that before the trip and it wasn’t. Since going down on it after returning back home, the diarrhea has dissipated, for now. Still waiting and watching. I’m off the mask still. My body just can’t tolerate it and let me still function so I’ll probably stay off for another week, then try 15 minutes a dive. I’ll keep y’all posted if anything changes.
Originally posted by Phoiph:
quote:Kaibird~
Originally posted by Kaibyrd:
So I’m pretty sure mHBOT is causing the diarrhea. We took a 5 day vacation (was planned and paid for before I started hbot) and I had no problems while away. I got back late last night so didn’t dive until today. No issues before the dive but now it’s baaaa-aack. 🙁 I have no idea what to do for it since the usual treatments aren’t working.
This might seem obvious, but what happens if you take a 5 day vacation from mHBOT while you are at home? Do you still have the symptoms?
In which case it would more likely indicate a reaction to something in your home environment, not mHBOT.
quote:It's probably just my immune system, and the way it works, and doesn't work.
Originally posted by Phoiph:
Charles12~
I am wondering if the continual inflammatory reaction originates in the gut.
quote:It depends on the period. There were times when my Bartonella would creep in. So I'd take Rifampin. There were times when Babesia was a bigger problem. And I'd be on Mepron.
Originally posted by Digby:
Hi Charles12, Thanks for the update. May I ask the protocol that you have been following for the last 1.5 years?
quote:One hour, once a day.
Originally posted by Digby:
Charles12...I didn't make that clear, I was wondering specifically about your mHBOT protocol.
quote:It’s not my diet. It’s how my body responds to infection. Inflammation and specifically neural inflammation was my first symptom.
Originally posted by Phoiph:
And I was wondering specifically about your diet...
quote:If my gut was the issue, I wouldn’t have relapsed.
Originally posted by Phoiph:
Hi Charles12~
Thanks for the background.
So, my thoughts are still the same...the gut would need to be addressed, especially since you had been on 6 months of antibiotic therapy, which certainly affected it.
quote:If my gut was the issue, I wouldn’t have relapsed. [/QB][/QUOTE]
Originally posted by Charles12:
[/qb]
So many unknowns with Lyme and various health histories. Even with this increased air hunger I've had enough hints of other improvements to keep at it. Hopefully a positive update in a few months.
quote:For some fortunate individuals, I'm sure that's true. It was not for me.
the immune system has to have recovered enough to fight the Babesia and prevent relapse. Since most of the immune system resides in the gut, then IMO, attention to healing it has to be part of the larger treatment strategy.
quote:I suspect mhbot kills gut flora.
I have not known of anyone with chronic tick borne infections (and especially those who have been on multiple antibiotic/drug therapies) to have become completely well without working on their gut health (even with mHBOT).
quote:
Originally posted by Kaibyrd:
I noticed the woozy and still do. I think it’s toxins. I have so much detox that I just have to skip a day every now and then but I’m a 20 year Lymer. They’ve been attacking my body for a very long time.
For sleep aid you could try l-tryptophan, Pharma GABA or Valerian or try combination supplements such as Gaia Herbs’s Sleep Thru.
quote:
Originally posted by JCarlhelp:
Here is another interesting piece of information. Byron White of Byron White formulas that are well recognized on this site wrote an article many years ago on MBOT. I contacted his office with the following responses:
1. Am not at liberty to speak for Byron's personal life and what he used but know he advocates for mild hyperbaric.
2. Yes our formulas can be utilized at the same time as using hyperbaric. In fact some people take the formulas 30 min prior to using their MBOT.
Seems that some people use these two in combination. Lots of unanswered questions that only time and further experiences will tell.
I am not a doctor so none of my posts should be taken as any kind of medical advice.
quote:Kaibyrd,
Originally posted by Kaibyrd:
For me, it could have been the noise from the hbot that increased the ringing. I started wearing ear buds to drown out the constant noise and then I got a silencer a couple weeks ago and that is helping but now I have a faulty release valve that is buzzing really loud. Is your hbot loud?
quote:What chamber do you have?
Originally posted by Hominahomina:
I would like to know too
quote:Homina~
Originally posted by Hominahomina:
Phoiph
Thanks for the article on How Hbot can affect the immune system It was rather deep but the gist I think was oxygen can help the immune system I say that because when I dive I get die off
My question on bacteria running from oxygen is if one uses Hbot like an antibiotic hitting it hard rather than systematically ie daily a little at a time
Does the bacteria see it and hide from the threat like it would abx
If what you say is true that oxygen under pressure goes places where the bacteria hide then it would have no place to hide but I am not sure about that
If the slow bit by bit method is used then it seems likely the immune system aided by oxygen with all it's complexity would find a way to kill off the bacteria little by little
quote:Broxin~
Originally posted by Broxin:
Ok i stopped on three days ago and would say the jointpain is much better.
Could it be that my body cant keep up with producing antioxidiants (SOD) and that the cartilage of the bones gets oxidized by the excess of oxygen?
Phoiph, what would you say causes this?
quote:Possibly
Originally posted by Phoiph:
quote:Homina~
Originally posted by Hominahomina:
Phoiph
If the slow bit by bit method is used then it seems likely the immune system aided by oxygen with all it's complexity would find a way to kill off the bacteria little by little
Your last statement is right on...
quote:Homina, when you are traveling with your chamber, you don't need to take the frame and mattress, just the bag, compressor, and concentrator.
Originally posted by Hominahomina:
When you travel and bring your chamber
What chamber do you have?
How do you transport such a bulky thing?
Thanks
quote:Thanks for that Phioph I can call Marie and see.
Originally posted by Phoiph:
Homina,
You can contact Marie at NewTowne, and she will send you "improved" zipper pulls, which are less likely to drag against the zipper teeth and damage them.
quote:Carbokitty Please tell me how you manage the zippers
Originally posted by carbokitty:
Hi Homina and others~
I also have the Newtowne 34" and I am happy with it (after the learning curve and early frustration with the 3 zipper system.
quote:Can you tell us who this is? It would be good to know
Originally posted by Phoiph:
Gabbyson,
I recently asked my very knowledgeable and trusted concentrator resource about this, and he has not had issues over the past year with AirSep, nor have I with the new unit I recently bought. I have also not heard of any problems from anyone who has bought them.
H
quote:I have not had any of these problems using a remote with my concentrator
If you use a remote once you are inside, you run the risk of forgetting, waiting too long, or even falling asleep before you turn it on. (It is ok to use a remote for the compressor, just make sure you attach it somewhere so you don't fall asleep and roll over on it and turn it off accidentally.)
Plus, concentrators have a warm up period while they reach optimum oxygen purity. You want to monitor this by waiting for the yellow light to turn off (on the AirSep) before you get in your chamber. [/QB]
, I'll be able to dive 4 times a week, one hour each time, with oxygen.quote:Peimomma
Originally posted by Peimomma:
Yes on the Coronavirus and it’s what I use for all viruses every year with colloidal silver.
https://thesilveredge.com/colloidal-silver-beats-coronavirus-the-clinical-documentation/
quote:Thanks Phoiph
Originally posted by Phoiph:
Homina,
Yes, I recovered from severe Bartonella with mHBOT; it is the only thing that worked.
quote:Nice to hear Can you tell me
Originally posted by dbpei:
I just finished my 33rd dive and I have to tell you all, it is totally helping!!!!! My tinnitus is so much more tolerable and I feel different and better!
My guess is that the mHBOT has been hitting areas that antibiotics and herbs could not reach. I feel things happening in my most symptomatic areas (left side of skull, sinus, ear, face...) I know it is too soon to know for sure.
But I can't keep this in any longer! (afraid I would be jinxed if I spilled this too soon!) Thank you Phoiph - for sharing this invaluable mode of healing with us!
quote:I listened to most of it Thanks
Originally posted by Digby:
FYI, The Ben Greenfield podcast has done one on mHBO with Jason Sonners, DC, DIBAK, DCBCN.
It's interesting but I kept wishing I could add my 2 cents all the way through. Here's the link: https://bengreenfieldfitness.com/podcast/recovery-podcasts/hyperbaric-oxygen-therapy/
One bizarre take away is that Ben occasionally sleeps for 8 hours in his tank!
quote:Well you said two cents which made me think it was a little comment or two but in this case two cents is more
Originally posted by Digby:
Hominahomina, sorry way too much to share. I would have to listen again and take notes. I just don't have the time or energy.
quote:Just out of curiosity how many dives have you done so far and at what pressure ?
Originally posted by Kaibyrd:
My herxing seems to be constant most days no matter what detoxing I try. About a week ago I decided to to take my mask off yet again and dive with the O2 flowing into the chamber. I’ve been feeling better since and feel like I may just need to continue this way because I’ve done this before, several times. I work back up to the hour with the mask or cannula on and then start feeling bad all the time again. I can’t live with this constant herxing, I need time without it to be able to cook so that I’m not eating restaurant food and to clean so I’m not breathing dirty air. Maybe I just need to dive with very low O2 all the time.
quote:Have you tried NAC on an empty stomach a couple hours before a Coffee enema?
Originally posted by Kaibyrd:
Hominahomina,
I never was good at counting my dives. I’ve probably missed 15-20 days since starting a year ago January so I’ve been trying to figure out what my body needs for quite some time now. I’m at the usual 1.3 ata.
quote:No, I have tried NAC years ago alone but not with a CE. I’m kinda afraid to take things on an empty stomach though. It doesn’t like that. I end up really nauseated.
Originally posted by Hominahomina:
quote:Have you tried NAC on an empty stomach a couple hours before a Coffee enema? [/QB]
quote:I take it on an empty stomach because it absorbs better ( I think) that way
Originally posted by Kaibyrd:
quote:No, I have tried NAC years ago alone but not with a CE. I’m kinda afraid to take things on an empty stomach though. It doesn’t like that. I end up really nauseated. [/QB]
Originally posted by Hominahomina:
quote:Have you tried NAC on an empty stomach a couple hours before a Coffee enema?
quote:Like Carbokitty said
Originally posted by Kaibyrd:
My naturopath had me on glutathione before I started mHBOT but she went out of business. I still have some but was afraid to finish it. NAC is better?
quote:That is interesting Can you share some reference material on that Thanks
Originally posted by Digby:
Kaibyrd...You basically want to avoid strong antioxidants. The thinking is that because one of the beneficial actions of mHBOT is to upregulate endogenous antioxidant activity within the cell, taking antioxidants could blunt that response.
quote:I don't think anyone here can answer those questions with authority we can share our research and personal experience but we are not Doctors versed in mHBOT as far as I know
Originally posted by Kaibyrd:
So my takeaway from this is to not use NAC and definitely don’t use glutathione. Am I getting it?
I’m sorry, my brain fog has become so bad that I can’t grasp things easily and studies are just a jumble of words for me now. I need a “Dummies’ guide”. 😝
I tried googling “strong antioxidants” but couldn’t get a good list but I’m only taking magnesium (low blood levels), Pharma GABA (helps with anxiety and mood), P5P (doc recommended because I’m low), ashwagandha (for menopause help) and vitamin D. Am I taking anything I shouldn’t be taking?
quote:Homina~
Originally posted by Hominahomina:
Okay specifically Digby
Something That states taking synthetic antioxidants like NAC can blunt increased antioxidants produced by mHBOT
I read over the articles that phoiph supplied Neither of them as far as I can see addressed that
Thanks
quote:First I want to say that I agree with Phoiph's reply regarding the links she sent.
Originally posted by Hominahomina:
Okay specifically Digby
Something That states taking synthetic antioxidants like NAC can blunt increased antioxidants produced by mHBOT
I read over the articles that phoiph supplied Neither of them as far as I can see addressed that
Thanks
quote:KB, I shouldn't have use the phrase, "strong antioxidants" in my post as that won't help your searching. Perhaps "powerful" or "potent" would be a better search term????
Originally posted by Kaibyrd:
So my takeaway from this is to not use NAC and definitely don’t use glutathione. Am I getting it?
I’m sorry, my brain fog has become so bad that I can’t grasp things easily and studies are just a jumble of words for me now. I need a “Dummies’ guide”. 😝
I tried googling “strong antioxidants” but couldn’t get a good list but I’m only taking magnesium (low blood levels), Pharma GABA (helps with anxiety and mood), P5P (doc recommended because I’m low), ashwagandha (for menopause help) and vitamin D. Am I taking anything I shouldn’t be taking?
quote:Thanks for the recommendation, Phoiph! I’ll look into those products.
Originally posted by Phoiph:
Kaibyrd~
I add ReMag magnesium and Concentrace minerals to my filtered drinking water. They are both liquid.
You must follow the directions and work up gradually to the desired amount.
Please remind me, are you are off of gluten and grains? Do you do bone broth regularly? Are you eating good fats?
quote:Digby, p5p is activated vitamin B6. My Doc put me on it before I started mHBOT and she’s always happy with my blood work now. In my experience, blood work only tells a tiny bit of the story though.
Originally posted by Digby:
quote:KB, I shouldn't have use the phrase, "strong antioxidants" in my post as that won't help your searching. Perhaps "powerful" or "potent" would be a better search term????
Originally posted by Kaibyrd:
So my takeaway from this is to not use NAC and definitely don’t use glutathione. Am I getting it?
I’m sorry, my brain fog has become so bad that I can’t grasp things easily and studies are just a jumble of words for me now. I need a “Dummies’ guide”. 😝
I tried googling “strong antioxidants” but couldn’t get a good list but I’m only taking magnesium (low blood levels), Pharma GABA (helps with anxiety and mood), P5P (doc recommended because I’m low), ashwagandha (for menopause help) and vitamin D. Am I taking anything I shouldn’t be taking?
Of the supplements you listed, only Ashwagandha has a lot of antioxidant activity, however I don't know what "PSP" is. You can probably still take the Ashwagandha but perhaps, dose it away from when you dive. Hope that helps.
quote:Carbokitty,
Originally posted by carbokitty:
It's been 5 weeks since surgery, 6 weeks since the accident. I would have thought the same ~ although if that's the case with me, it's all been a delayed reaction. My stools remained good after the accident, after the surgery and anesthesia and during my taking of ibuprofen to manage the rib pain. It was also all good during the 8 dives I took at a local clinic. My heart rate had started to go back down to what I feel is a comfortable level. As soon as I started in my own chamber again in this rental house, my stools started to get loose and my heart rate started to climb.
I've switched out the pillows I use in the chamber and I dove without the mask on, but O2 streaming into the chamber. I've noticed a bit of improvement, but its only been 2 dives. Time will tell. And then we will pack up and head home on March 16.
Thanks for your thoughts. I am very open to ideas or experiences others have.
Carbokitty
quote:Kalbyrd
Originally posted by Kaibyrd:
So my takeaway from this is to not use NAC and definitely don’t use glutathione. Am I getting it?
I’m sorry, my brain fog has become so bad that I can’t grasp things easily and studies are just a jumble of words for me now. I need a “Dummies’ guide”. 😝
I tried googling “strong antioxidants” but couldn’t get a good list but I’m only taking magnesium (low blood levels), Pharma GABA (helps with anxiety and mood), P5P (doc recommended because I’m low), ashwagandha (for menopause help) and vitamin D. Am I taking anything I shouldn’t be taking?
quote:Thank you Digby!!!
Originally posted by Digby:
KB, Oops sorry, I was rushing through and thought it said PSP. My bad.
I don't know of any studies suggesting P5P is contraindicated to take with mHBOT.
quote:Thank Homina!
Originally posted by Hominahomina:
quote:Kalbyrd
Originally posted by Kaibyrd:
So my takeaway from this is to not use NAC and definitely don’t use glutathione. Am I getting it?
I’m sorry, my brain fog has become so bad that I can’t grasp things easily and studies are just a jumble of words for me now. I need a “Dummies’ guide”. 😝
I tried googling “strong antioxidants” but couldn’t get a good list but I’m only taking magnesium (low blood levels), Pharma GABA (helps with anxiety and mood), P5P (doc recommended because I’m low), ashwagandha (for menopause help) and vitamin D. Am I taking anything I shouldn’t be taking?
I presented the question about the use of supplemental antioxidants and HBOT to Dr Jason Sonners He has a clinic in New Jersey and uses Hyperbaric Oxygen in his practice and has several years experience with HBOT
I was surprised that he responded at all
https://oxygennj.com/
His response was supplemental antioxidant are not an issue when using mHBOT (mild hyperbaric oxygen therapy)and could be preferable. But the answer could be different when going to high oxygen high pressure (HBOT)
He also said he does phone consults and you can contact him via email and take it from there. He seems like a nice guy and he might help you out with a little expert advice as he helped me
I will send you a private message with my email address. If you send me your email I will forward Dr Sonner's comments and his email
Also Here is a Facebook group on mHBOT
https://www.facebook.com/groups/515147305319202/
I am not sure of how competent the members there are because I just joined but it could be another resource and a place to get a more comprehensive answer to your questions
With non experts like us here and on facebook do your due diligence and vet the responses you get
quote:That is a good point
Originally posted by Kaibyrd:
quote:Thank Homina!
Originally posted by Hominahomina:
quote:Kalbyrd
Originally posted by Kaibyrd:
So my takeaway from this is to not use NAC and definitely don’t use glutathione. Am I getting it?
I’m sorry, my brain fog has become so bad that I can’t grasp things easily and studies are just a jumble of words for me now. I need a “Dummies’ guide”. 😝
I tried googling “strong antioxidants” but couldn’t get a good list but I’m only taking magnesium (low blood levels), Pharma GABA (helps with anxiety and mood), P5P (doc recommended because I’m low), ashwagandha (for menopause help) and vitamin D. Am I taking anything I shouldn’t be taking?
I presented the question about the use of supplemental antioxidants and HBOT to Dr Jason Sonners He has a clinic in New Jersey and uses Hyperbaric Oxygen in his practice and has several years experience with HBOT
I was surprised that he responded at all
https://oxygennj.com/
His response was supplemental antioxidant are not an issue when using mHBOT (mild hyperbaric oxygen therapy)and could be preferable. But the answer could be different when going to high oxygen high pressure (HBOT)
He also said he does phone consults and you can contact him via email and take it from there. He seems like a nice guy and he might help you out with a little expert advice as he helped me
I will send you a private message with my email address. If you send me your email I will forward Dr Sonner's comments and his email
Also Here is a Facebook group on mHBOT
https://www.facebook.com/groups/515147305319202/
I am not sure of how competent the members there are because I just joined but it could be another resource and a place to get a more comprehensive answer to your questions
With non experts like us here and on facebook do your due diligence and vet the responses you get
I’m already a member of the Facebook group. It’s ok but there are so many different issues being treated on there that it’s hard to get advice specific to Lyme.
I will look into this doctor though, thanks!
quote:Phoiph
Originally posted by Phoiph:
quote:Homina~
Originally posted by Hominahomina:
Okay specifically Digby
Something That states taking synthetic antioxidants like NAC can blunt increased antioxidants produced by mHBOT
I read over the articles that phoiph supplied Neither of them as far as I can see addressed that
Thanks
The first article illustrates that oxidation (free radicals, or ROS/reactive oxygen species) produced by HBOT is a necessary and beneficial mechanism of the therapy.
The second article discusses how supplemental antioxidants can be ineffective or counterproductive to the oxidation process.
Here is an excerpt from the article:
"...6.2. Increased “Antioxidative Stress”
Inappropriate antioxidative intake may cause increased “antioxidative stress.” Antioxidants can neutralize ROS and decrease oxidative stress; however, this is not always beneficial with respect to the development of a disease and its progression (e.g., cancer) or for delaying aging [32] since antioxidants cannot distinguish among the radicals with a beneficial physiological role and those that cause oxidative damage to biomolecules.
Individuals who overdose antioxidant supplements could enter the status of “antioxidative” stress (Figure 3). If administration of antioxidant supplements decreases the level of free radicals, it may interfere with the immune system to fight bacteria and essential defensive mechanisms for removal of damaged cells, including those that are precancerous and cancerous [84]. Thus, antioxidant supplement overtake may cause harm [35, 36, 56, 85, 86]. When large amounts of antioxidant nutrients are taken, they can also act as prooxidants by increasing oxidative stress [87, 88]. Pro- and antioxidant effects of antioxidants (e.g., vitamin C) are dose dependent, and thus, more is not necessarily better. Our diets typically contain safe levels of vitamins; therefore, high-level antioxidant supplements may upset this important physiological balance between the ROS formation and neutralization."
And...
"...Presently, the use of supplemental antioxidants could be advised only in cases of well-known conditions, where the depletion of antioxidants is known and can be predicted. Daily use of synthetic supplements has not been proven as beneficial, and excessive use may be harmful. Balanced food still seems to be the best option..."
I hope this helps clarify my point.
Also, as Digby has suggested, you can research "Hormesis". This may further illustrate this process.
quote:Thanks for your response Digby
Originally posted by Digby:
quote:First I want to say that I agree with Phoiph's reply regarding the links she sent.
Originally posted by Hominahomina:
Okay specifically Digby
Something That states taking synthetic antioxidants like NAC can blunt increased antioxidants produced by mHBOT
I read over the articles that phoiph supplied Neither of them as far as I can see addressed that
Thanks
Unfortunately I can't find a study that specifically addresses your concern, so I have nothing definitive. Here are a couple of studies that may help you to come to a conclusion on this.
https://www.ncbi.nlm.nih.gov/pubmed/15147832
https://www.sciencedirect.com/science/article/abs/pii/S0024320504002863
https://www.sciencedirect.com/science/article/abs/pii/0002934380905094
https://www.ncbi.nlm.nih.gov/pubmed/2610268
My take away is that exogenous antioxidants (AO) do affect the reactive oxygen species (ROS) produced by HBOT at least in high doses. It is also mentioned that endogenous AO work better. We do know that mild HBOT increases ROS and subsequently increases endogenous AO.
So, I would conclude by saying that taking high dose exogenous AO may interfere with the AO upregulation that occurs with mHBOT. You may come to a different conclusion. If so, please share.
quote:I don't know what others here do
Originally posted by Kaibyrd:
Questions about detoxing and mild exercise.
I just can’t seem to get it right. I feel better for a couple of days then crash hard and can’t figure out the best routines.
When you started exercising, did you have to push yourself through crashes for a while or did you tend to listen to your body and ease up during crashes. Am I easing up too much, I guess is my question. What was your routine to begin with? I get a few days of relief from the crushing fatigue so I walk a bit on the treadmill then pause a day then walk again then crash for a week.
When is the best time to detox? How often? I find my infrared sauna to be my best form of detox but I’m not sure if that’s causing the crashes as well.
I’m sorry, I know these questions have been asked and answered many times but finding those posts in this huge thread is just beyond me right now. Thanks, y’all!
quote:I don't know if this qualifies as detox but I do coffee enemas daily and when at the gym I do the sauna
Originally posted by Kaibyrd:
Homina, that’s pretty much what I do for exercise too.
How often do you detox?
quote:Being able to do that much exercise is impressive
Originally posted by kgg:
I personally, am not a fan of yoga. For the 2 plus years I did my treatment dives, I practiced Tai Chi. I specifically practice Dr. Paul Lam's Tai Chi for Health. It is the Sun (pronounced soon) form. This form has less impact and less low forms. So it is easier on the body. My favorites are the Arthritis and Diabetes forms.
Since feeling better, I have in the last year started water aerobics. Yes, aerobics! I can now raise my heart rate to aerobic levels and not have PEM. Yay!! I started with once a week. A year later I am doing 3, 2 hour water aerobic sessions. Definitely has something to do with the water pressure that makes is doable. I still pay if I push it too much on land.
I don't do anything formal for detox except make sure that I am drinking plenty of water and not constipated. =)
quote:Just use the same 50/50 solution of water and hydrogen peroxide on your mask.
Originally posted by Hominahomina:
How is everyone cleaning their masks and is there a way to disinfect the tubing
Thanks
quote:Hello Digby
Originally posted by Digby:
Carbokitty...One of the big benefits I got from diving is that I no longer have the food and airborne sensitivities that plagued me before. I can now have a glass of wine on occasion. In the past 2 sips would make me feel miserable. I can also go to a toxic place like Walmart and not feel sick. Just stick with it.
quote:Ha
Originally posted by Charles12:
This is amusing, but it's something I've noticed over the last year.
Mhbot turns my hair grey.
I assume it's the oxidative stress, but I'll get patches of grey hair when I dive.
On the other hand, my skin looks younger when I dive consistently.
quote:Welcome
Originally posted by Cass A:
Hi, Friends and Fellow Divers,
I want to thank you all for your contributions to this thread! By going through the whole thing and getting the book by Dr. Harsh, I decided to get onboard!
Thanks to Phoiph, who helped me procure my set-up and has consistently answered my questions!!!
And, thanks to Digby for his personal help, also.
I've done 21 dives now, and am just composing a list of symptoms I relate to Lyme at this point, so I can do a "comparison chart" over time.
I already do a daily diary of symptoms, meds, activities, etc., and have since 2007. I use one of those daily office type two-page calendars so I can note things in the same place, making changes easier to see.
I have quite the encyclopedia of medical tests, and get some of the same ones every few months: some of them were started as far back as 2005.
LymeNet has been my go-to resource for many years! I made a donation today, and I hope others will, too.
Anyway, glad to be in on the conversation.
quote:Thanks it sounds pretty serious I am hoping mHbot will help you You say you have done 21 dives so far .. can you say how long each dive and are you experiencing dieoff?
Originally posted by Cass A:
OK--as requested, here's a list of CURRENT symptoms:
leg cramps overnight that wake me up 1-4 times a night (for the last 7 years or so) (chronic sleep deprivation)
blank spots in memory. thinking
can't find words for things or remember names
short-term memory poor
mis-perceiveing
thinking instead of perceiving, then do the wrong thing
knees achy
fatigue
Temperature sub-normal (since at least 2000)
ears itchy
hearing loss
study retention very poor
food sensitivities
losing things
sweaty at night
I have had very bad brain fog, was sleeping almost constantly for 1-3 years, had seizures from 2007 to 2019, have brain damage that shows up on an MRI, whole areas of my past are completely gone, could not persist at doing anything, could no longer do any task requiring concentration when I used to handle state legislation for a non-profit!
quote:Thanks
Originally posted by Phoiph:
Homina,
Here's a theory for you:
Taking in supplemental oxygen (even without being used with HBOT) is temporarily vaso-constrictive Vaso-constriction has been linked to tinnitus. (I have experienced this temporarily on a few occasions when I have stayed in the chamber too long due to sleeping through my alarm).
It sounds counterintuitive, but when oxygen is used with mHBOT, it is still vaso-constrictive (which is one of the reasons it reduces inflammation), but even so, more oxygen will reach the tissues better due to the pressure. In fact, HBOT has been successful in treating tinnitus over the long term.
So, it may be that even though you might experience heightened tinnitus temporarily after a dive, it may be helping the overall condition over the long term.
quote:I do not but my understanding is it is not as good as HBOT because it does not saturate the body with oxygen as well.
Originally posted by Gabbysson:
I was recently reading about exercise with oxygen therapy (ewot). Once one is healthy enough to exercise normally, it sounds like a good option to continue to use oxygen therapeutically.
Does anyone have experience with ewot?
quote:The O2 always makes my Babesia come back.
Originally posted by S13:
So 40 minutes basically gave me the same lyme suppressing results as 60 minutes. And i dont even use supplemental oxygen any more.
More than 40 minutes and it would aggrevate some of my mast cell symptoms, such as restless legs, fatigue, heart palpitations/rhythm and depression.
So at a certain point i realized that more isnt better and the less i can trigger my mast cells while still keeping lyme suppressing effects, the better.
Right now with my mast cells better under control by diet and supplements i could actually do longer dives without too much problems, but i just feel it isnt necessary.
For vitamin C i only use pure powder ascorbic acid. I think some mcas patients report difficulties with vitamin c derived from corn, but im not sure if that is the problem for you?
quote:It happens if I just use the concentrator separately too. I also begin to react to Babesia medications again if I use it for a sustained period.
Originally posted by Phoiph:
Charles 12~
It is common to have "flares" of symptoms with mHBOT, as your immune system improves and begins to fight pathogens, including Babesia.
It doesn't mean that the 02 is making your Babesia "come back". It is more likely that Babesia (and/or other pathogens) are still latent in your system, and when your immune system begins to fight, you have a flare.
In my case, consistency over time with mHBOT got me through this phase, and took care of my severe Babesia.
quote:If I supplement with O2 by using the concentrator by itself, my Babesia symptoms return, and grow worse.
Originally posted by Phoiph:
Charles12~
Not quite sure I am clear on your last post.
Are you saying that if you use just oxygen from the concentrator (not with the chamber) you have a flare of symptoms?
And, if you use "it" (the chamber, or just oxygen?) for a sustained period, you begin to "react" (how?) to the Babesia medications you are on?
Just trying to understand...
. And S13!! That is awesome. I am still diving daily and I would say my bart, babs and Lyme is SO much better. Thank you to Phoiph, Digby, Peimomma etc on guiding me. quote:I actually had it back in April.
Originally posted by Digby:
Even if I was not using my chamber anymore, I would not sell it during this Covid-19 issue. Great first line defense against the virus both prophylactically and if you were to get it.
JMHO
quote:No, not grateful.
Originally posted by dbpei:
Charles, that is wonderful that you were able to survive your milder case of Covid. You must be very grateful.
quote:I found that opening the valve and waiting for it to just sound the same so the same amount of air was coming in as was going out was not enough to make it safe for the zippers to open them.
Originally posted by dbpei:
I am going to look into that device from Amazon, Red101! Thank you!
I just want to make sure I understand correctly... So accroding to Newtowne seller, it is okay to turn off the compressor (using a remote switch) before opening the valve? But before unzipping, you would need to release the pressure by opening the valve and wait until the chamber is soft?
quote:That's correct--I vacuum the rooms with the Rainbow vac. It is not attached to the chamber. I do use the available humidifier on the oxygen concentrator as an additional level of filtration for the air I breathe.
Originally posted by kgg:
Homina, I believe CassA is saying when she vacuums that it is a unit that also filters the air through water. I did not get the impression that it is attached to the chamber.
quote:Homina,
Originally posted by Hominahomina:
dbpei
How I did it with my setup
I ran a wire from the ground socket on my extension cord to the air control valve on my newtowne chamber. Then I ran a wire from the air control valve inside the chamber and put in under my back so it touches my skin while diving. I used a multimeter to make sure the ground worked. You can go on youtube to see how to use a multimeter to test ground. If you want I can send pictures just PM me. If you ground from a wall socket make sure you connect to the ground, you don't want to shock yourself
quote:Hi Phoiph,
Originally posted by Phoiph:
Hi Red 101,
It doesn't sound like you used your chamber much...just wondering why you decided to sell?
quote:Thank you! That is kind. I'm motivated to sell it, as I'd like to get it out of my home soon, but do not want to pack it up just yet in case someone wants a zoom "tour" of it. But having two mHBOTs in one home office does not leave much room for my walking to my computer desk. :-)
Originally posted by Phoiph:
Red 101,
People often contact me looking for used chambers, so I will let them know.
quote:I had this problem. My doctor said that some of his patients experienced this.
Originally posted by Red101:
Similarly, if I added supplemental oxygen (with or without diving), I got sicker.
quote:Red101,
Originally posted by Red101:
Phioph,
May I ask you a question about using my HBOT? I have had ME/CFS/Lyme for decades. I'm pretty sick, mostly homebound and often bedridden. I started mHBOT spring 2020 and slowly titrated up to about 20-30 minute dives without supplemental oxygen. If I did more, I felt too toxic the next day, even with using dry skin brushing and apple pectin for detox. Similarly, if I added supplemental oxygen (with or without diving), I got sicker. So my regime was simple: No supplemental oxygen, and nearly daily dives of about 20-25 minutes each, sometimes twice a day. I was thrilled when I slowly started to be able to go on pleasurable nature walks for the first time in years and years. Then I crashed. Hard. I lost all gains. I crashed hard for 2 months (no idea why), and only did a dive once every 4-5 days. Now I've restarted a near daily routine, for the last month or so, but with no gains. I'm not sure why I crashed. Could it be due to oxidative stress? Any hints welcome. Thank you for your thoughts. Thank you to others for their thoughts too!
quote:Thank you - Yes, please. Could you give some background on your treatment as well? How long you have been treating, for what specifically, and when did you add the mhbot in and your experience?
Originally posted by Hominahomina:
Lassie27 I wanted to mention to the group
I use herb in conjuntion with mHBOT
mHBOT seems in enhance to efficacy of the herbs
I can list the herbs I am using and where I am getting them if anyone is interested
quote:Lady T,
Originally posted by LadyT:
Phoiph - thank you for your wonderful reply!
Does anyone know what the rules are for mHBOT and flying in a plane? Is there a certain time frame before or after that I need to not use my chamber?
Thank you!
quote:Yes, please share
Originally posted by carbokitty:
I've really debated whether to share my vaccine story or not. I guess I'll ask first if it's ok to talk about?
Carbokitty
quote:Dr. Cameron is conducting a survey to understand the impact of COVID-19 on individuals with Lyme Disease and other tick-borne illnesses. You can participate in the survey if you have had Lyme or tick-borne illness and any of these criteria:
Originally posted by Phoiph:
An informative review of people's personal experiences with Lyme and Covid "vaccine" reactions. Scroll down to blog section:
https://danielcameronmd.com/opinion-low-covid-19-vaccine-trust-among-lyme-disease-patients/
quote:
Originally posted by Digby:
LadyT, I have wondered if CCI is the cause of my chronic headache. Here is a link to an alternative approach to treating it as well as lots of information about it: https://regenexx.com/search/cci/
I have considered seeing the doc that wrote these articles but it involves travel and is very expensive.
I have tried multiple upper cervical chiropractic docs with no results. I think that only works on people whose ligaments aren't too stretched out. They typically apply a specific adjustment to the atlas and realign that vertebrae but if your ligaments are too lax, it doesn't hold. Hope you find a solution!
quote:Hi Digby,
Originally posted by Digby:
LadyT, I have wondered if CCI is the cause of my chronic headache. Here is a link to an alternative approach to treating it as well as lots of information about it: https://regenexx.com/search/cci/
I have considered seeing the doc that wrote these articles but it involves travel and is very expensive.
I have tried multiple upper cervical chiropractic docs with no results. I think that only works on people whose ligaments aren't too stretched out. They typically apply a specific adjustment to the atlas and realign that vertebrae but if your ligaments are too lax, it doesn't hold. Hope you find a solution!
quote:Kaibyrd,
Originally posted by Kaibyrd:
"...I usually fall into my deepest sleep between 4/5 am to 10/11 am. Then I’m so exhausted that it takes me a while to get my brain functioning and get out of bed..."
but have been at this 15 years now. Thank you for the advice, yes I will back off for a day or two and see if it clears up. quote:This has happened to me several times. The chamber will initially deflate rather quickly on its own when power is lost, as the air will continue to escape through the exit valves due to the residual pressure.
Originally posted by dbpei:
I have often wondered about the same thing with regard to losing power while in the chamber. I usually like to take about 10 - 15 minutes depressurizing and have worried that it might hurt my ears if we were to lose power and things deflate to quickly. Maybe there is someone here who this has happened to that can chime in.
quote:Lady T,
Originally posted by LadyT:
Has anyone heard of any stories of mHBOT healing autoimmune diseases, like rheumatoid arthritis and lupus? And how long it took?
Thank you
So do you still get in the chamber daily for short a sort time with the O2 flowing in or do you take a break for a day. I was thinking about getting in today for like 20mins to see what happens. quote:Kaibyrd,
Originally posted by Kaibyrd:
No, I don’t really dive much any more. Every time I try, I end up much worse fatigue wise and my sleep gets worse if I try to push through. I tried again last week but I have a vacation coming up next week that I need energy for so I stopped after 3 days at 20 minutes. I’ll try again after vacay but I think I’ll try every other day this time. I did a sauna session after the first dive last week but I think I need much more detox. My brain is so scrambled and so much of life is a struggle that I forget to do things like detox every day.
quote:Kaibyrd,
Originally posted by Kaibyrd:
Phoiph,
I thought that sauna use would help transport released toxins from the body through sweating. 🤷🏻♀️
I’ll try to get some yoga in instead after vacation and recovery from vacation. 🤪
Thanks!
quote:LadyT,
Originally posted by LadyT:
Hi All, Does mHBOT heal histamine issues - so after diving for a certain period of time, you no longer need to watch histamines, eat low histamine diet, etc. Thank you!
quote:Hi Miriama,
Originally posted by Miriama:
Hi guys,
When people refer to a certain amount of time in the chamber, does that mean total time or time at high pressure? I had to dial down to only 15 minutes at the top pressure on my Newtowne gauge (4.4?), but I'm in there for a half hour total.
I've been treating for over a year, since Feb. 2021 with a 2 month break, but honestly a lot of my sessions were very short, especially in the first 5 months. After that I was doing an hour without a concentrator. I was even up to 2 hours for a while. Then I got a concentrator in September. I was hitting the treatments hard for a while, at an hour, but I had to dial it down not to be insane. I mean, I think I have friends who don't write me back because I was too wound up. I really had my heart set on the idea that if I could treat for an hour a day for 2 to 2 1/2 years I'd be somewhere between 60 percent better and in a remission. But at this rate that will take the rest of my natural life.
On a positive note guys, when I took 2 months off after 13 months of treatment, I was the sanest I've been in 12 years maybe even 19 (that's how long I've had Lyme). I was like myself again psychologically speaking, well, sort of. I had fatigue and all kinds of symptoms for sure, and no way could I keep down a job, but I'd say that 90% of the anxiety and agoraphobia were gone. But as soon as I started treating again, I could feel the acid trippyness creep back in.
That's my experience so far, just to share. Kaibyrd and Keikko, I feel your pain, really. It's been hard. But it has helped a lot in the end too. I hope you can treat enough to get to that point eventually. Good luck to you all.
quote:Keikko,
Originally posted by keikko:
Thank you Miriama
What is final word on HBOT and parasites. Ive been looking through the thread for a couple of days and cant find it of course.
Im pretty sure I have an underlying parasite infection that doesn't help things. I think I remember reading that eventually the immune system gets back on line and these things are not a big issue anymore but I could be wrong.
Honesty, I have no idea anymore what the biggest issue is. I sort of dont care, but if HBOT doesn't help parasites I may have to treat. Im so thin with no appetite but eat no matter what.
Im still not up to full protocol but still diving at least every other day and sometimes two days in a row depending on the reaction and how bad my brain gets...about 40 minutes with O2. Ive pretty much given up on supplements at the moment except probiotics and CBD oil for anxiety.
I got covid this year so I think that was a set back for sure but I'm sure the chamber will help.
I do remember one day in the recent past getting out of the chamber feeling sort of clear headed and calm. It was nice. Short lived but nice.
I have not noticed a whole lot of forward improvement yet but as I said I got covid and seems like Im always catching something lately. Well one thing that has improved is my digestion is much more stable which is awesome. Brain is worse but gut is better. Fatigue worse. I am not discouraged though. Feel calm or maybe just really tired. I dont know. Thank you
quote:Update Carbokitty?
Originally posted by carbokitty:
I ended up doing a 30 min session and it went well. I felt better for a few hours. I will do 30 again today. Thank you for your words of support.
Carbokitty
PS My Sp02 has gone up so that's a good sign. Not sleeping any longer than 4 hours/night but I wasn't sleeping at all, so that's progress.
quote:Hi bodhi:
Originally posted by bodhi:
Does anyone here have experience preventing or working through panic attacks during mHBOT?
Please let me know if you have any other suggestions or experiences to share.
quote:
Originally posted by Jazzman:
quote:Hi bodhi:
Originally posted by bodhi:
Does anyone here have experience preventing or working through panic attacks during mHBOT?
Please let me know if you have any other suggestions or experiences to share.
When I first started diving I did suffere a panic attack, here is the post I made on it.
Hi Everyone,
After weeks of reading I have finally completed this entire thread. I wanted to say thank you to all who have posted their stories and also say a hello to the lurkers, as I was until now, who follow this thread. I confess, towards the last few pages, I started to feel a bit of anxiety, as the stories I have read have offered me hope that I may one day get better. As I went from page to page, and saw your updates and histories, each new page offered hope and encouragement, and a bit selfishly, I did not want the pages to end. I see myself reflected in so many stories here. My story is I have come to believe I been sick since I was in my teens.
I went un/misdiagnosed for many years, until, like many, I narrowed my issues down to Lyme (have vague memories of a bad insect bite as a teen camping). Managed to get my blood sent to a US lab (I live in Canada) and it came back positive for Lyme and co-infections. I am in the club of 10s of thousands of dollars spent, over the years trying to get well, or better at least. A few years ago I thought I was on my way out, looking positively skeletal, GI issues (antibiotics were hard on me), and no appetite, super fatigued and mush for a brain.
I decided to look into oxygen therapies as a kind of last hope of stopping my decline. I looked at ozone (MAH) and hyperbaric. At the time I decided to go with ozone and I feel like it saved my life. Even from the first treatment I could feel the fog and fatigue lift from my body and at the end of 6 months I was having people tell me how great I looked. I did feel better, not great, still lots of joint/muscle pain, but my weight is back on, GI issues cleared and I could read and think again at a level that was tolerable. That was 4 years ago and although I am maintaining, I am not advancing, after the initial progress, in any meaningful way I can discern. I came across Phoenix Rising and that lead me to here. After reading the first page I knew I was going to go diving. I purchased a chamber, Airsoak model “Nova” and have been diving for 43 days. Made the decision to purchase the Nova, as living in Canada, 1.5 ATA is permissible and the Nova is built for higher pressures and ships with both 1.3 and 1.5 ATA valves. One on the earlier links posted in this thread showed a graph where it showed 1.5 ATA at the top of the bell curve for oxygen saturation, and if I figured it couldn’t hurt to have that option.
Thanks to you guys, and especially Phoiph, I had clear path to follow on just how to correctly do this. I was even more conservative than the recommendations, I started my first dive at 1.15 ATA (the Nova has both internal, and external, pressure gauges, and I used the internal relief valve to control things manually) for 15 minutes. I did this for 3 days, and then went to 1.3 ATA for 4 days at 15 minutes. Then added 5 minutes every 3 days until I hit 30 minutes, this was done with oxygen flowing into the chamber, but not directly breathing it
At thirty minutes, I decided that I would start to slowly add oxygen to my dive sessions; I would start with 5 minutes and increase every 3-4 dives. However, after my first oxygen session I had an attack of vertigo. Now this was not my first time experiencing vertigo, but not for many years. It unsettled me a bit, so I went back to diving without oxygen with the idea of working my way up until 1 hour, then adding back the oxygen when I reached there.
Things went smoothly for me, uneventfully working my way up until an hour and then when I added back the oxygen once again, an event, I suffered a panic attack later that night, first in over 2 decades. As an aside, I would add that my dreams had become more vivid, not nightmares in any way, just colourful and “bright”. As a note, I have zero issues with claustrophobia or small spaces.
The panic attack did not unsettle me too badly, not as much as the vertigo did, as I had them for many years, about 20 years ago, so I knew what I was experiencing (after being diagnosed I learned panic attacks/vertigo were not uncommon in Lyme patients). So once again I returned to diving without oxygen, trying to settle in once more. After a few days, I decided to try to add back in the oxygen, but this time I changed things up. Instead of starting it at the beginning of the dive, at full pressure, I am now doing it at the end. I have been adding 1 minute each day and today did 5 minutes with no issues, feeling good so far. I figured if I started at the end, the oxygen I am breathing will not be under pressure the same way starting it at the begging would have it, giving my body more time to becoming more acclimatized to getting saturated with oxygen.
I will be adding a minute a day over the coming weeks until my oxygen matches my diving time. My thoughts are that this is a very powerful therapy, to be treated with a lot of respect. I started out with what I thought was a conservative program, but those critters in me let me know they did not like me poking at them with oxygen under pressure. I say under pressure because I have breathed pure oxygen before for long periods of time, over the years, and never had any aberrant reactions at any time before,
I figured I will give this at least a year before I make any real pronouncements on its effectiveness for me, I have been ill with this disease a long time and I am prepared to give mHBOT the time it needs to hopefully help me become well/better again. Plus, I kind of enjoy the quite time alone inside the chamber.
quote:
Originally posted by Phoiph:
Jazzman,
Are you doing 1.3 ATA, or 1.5 ATA?
quote:Hi Peimomma,
Originally posted by Peimomma:
Hello everyone,
I’ve had some health stuff pop up recently, R/A starting in my finger joints which led me to get some labs drawn and of course my ANA came back positive but there was also Sm/RNP antibodies was positive. Does anyone have any history with this marker? I’m getting my referred to a rheumatologist to do more testing since my finger joints are definitely looking and feeling like R/A.
Im wondering if the markers being positive are for the R/A.
I’ve started diving to see if this will change the labs.
quote:
Originally posted by Phoiph:
This link came from Marie at Newtowne, demonstrating how someone with mobility issues can enter a chamber by using an elevated platform.
The 2'x 4' tables serving as a platform can be set at 3 different heights, and are available at Costco:
https://drive.google.com/file/d/1jzaIKOMUeDMjzwF4V0DxFGMjI3_Ocsjo/view?usp=embed_facebook
quote:That was VERY helpful! Makes me want to consider building a custom platform with shelves underneath...
Originally posted by Phoiph:
This link came from Marie at Newtowne, demonstrating how someone with mobility issues can enter a chamber by using an elevated platform.
The 2'x 4' tables serving as a platform can be set at 3 different heights, and are available at Costco:
https://drive.google.com/file/d/1jzaIKOMUeDMjzwF4V0DxFGMjI3_Ocsjo/view?usp=embed_facebook
quote:
Originally posted by Phoiph:
Miriama,
As you know, consistency is crucial with mHBOT, so I am glad to hear you are committed to that now.
Good news regarding your question about not being able to continue to do antibiotics, and wondering if this will slow down your progress with mHBOT...
In my experience, people who are on antibiotics often take longer to experience results with mHBOT, as they will need to take the extra time/sessions to wean off of them slowly once they are more stable on mHBOT.
Also, as you mentioned, gut healing is a crucial factor for healing, which is difficult to achieve when on antibiotics.
I am optimistic with time you will get there; you've already experienced some positive changes which are good signs!
quote:My experience is that it is best to keep it simple and let mHBOT do its job in assisting your neuro-immune system to recover and take care of the pathogens.
Originally posted by Miriama:
Thanks Phoiph and Kgg, I really appreciate you getting back to me.
That's really good news about the antibiotics. Do you think the antibiotic herbs also slow healing...
quote:
Originally posted by kgg:
I could have sworn that Dr. Perlmutter over a decade ago, said that Parkinson's was from Babesia. But I can't find it now. I vaguely recall an IV therapy he was using. Probably long gone.
I did find a page on his site that has a few articles on Parkinson's. He specifically states that a keto diet is helpful.
https://drperlmutter.com/focus-area/parkinsons-disease/
quote:Thank you!
Originally posted by Phoiph:
Hi LadyT,
Although I am not qualified to recommend any specific medical treatment for Parkinson's; I have witnessed what has been recommended for (and helped) patients by my neurologist/hyperbaric specialist contact. She mainly recommends a home chamber for long term treatment, and monitors her patient's progress with brain scans. She also may have specific individual recommendations for each patient regarding diet, supplements, etc.
It is not clear at what point antioxidants start to interfere with mHBOT's efficacy, but it is my understanding that people with Parkinson's can be severly deficient in Thiamine, and supplementation can reduce (or even reverse) some neuro symptoms.
In which case, you are not just "supplementing", but treating a severe deficiency, so I wouldn't be overly concerned about combining the therapy with mHBOT.
Since everyone is different, I would also consult a knowledgeable nutritionist about the keto diet for your dad personally, as I know it can be very helpful for Parkinson's (and other neuro conditions) but is also difficult for some metabolisms to handle. Some may also benefit by a paleo-type diet which may be easier to adhere to.
Also, FYI, here is a video which explains the general relationship between antioxidants and hyperbaric:
https://www.youtube.com/watch?v=HIrl3-CcR9U
quote:Hi Clint,
Originally posted by Clint31:
Would 10 sessions of a hyperbaric chamber ($2000 at our local treatment center) even make a difference ? I know there are a lot of factors but is that a waste of time?
quote:Thank you for the reply Kaibyrd. Is that Gabapentin?
Originally posted by Kaibyrd:
I take Pharma GABA for anxiety issues. It calms them down pretty quickly without having to use Rx drugs.
quote:No, Gabapentin is a very strong and in my opinion dangerous Rx drug. GABA (Gamma-aminobutyric acid) is a natural relaxation supplement , Pharma GABA is the best form as far as I can research on it. I get it from Amazon or iHerb dot com.
Originally posted by Determinedtobeatthis:
quote:Thank you for the reply Kaibyrd. Is that Gabapentin?
Originally posted by Kaibyrd:
I take Pharma GABA for anxiety issues. It calms them down pretty quickly without having to use Rx drugs.
quote:You may be getting a double whammy by doing mHBOT and carnivore. Try a supplement of some sort for the anxiety and if need be, add some carbs to reduce the possible oxalate dumping that could be causing other issues. We’re all so different so we have to keep trying different things. I’m constantly stalking carnivore groups to see what may be causing my issues and trying different things. How long have you been carnivore?
Originally posted by Determinedtobeatthis:
Phoiph and Kgg,
Thank you for the replies. I do take Armour Thyroid but I had it checked and it’s actually bordering on too high of TSH because I’ve only been taking it half as much since my PCP warned that I might need to lower it due to my carnivore diet. I did have a time where it went too low (hyperthyroid) and it felt exactly like this. However this time it seems related to both my neck stiffness/flu like feelings. It could also be related to chamber bc it’s almost always later after I’ve been in there, maybe like a detox reaction. It’s so frustrating and scary. I never expected old symptoms to become my worst ones.
quote:KB,
Originally posted by Kaibyrd:
quote:You may be getting a double whammy by doing mHBOT and carnivore. Try a supplement of some sort for the anxiety and if need be, add some carbs to reduce the possible oxalate dumping that could be causing other issues. We’re all so different so we have to keep trying different things. I’m constantly stalking carnivore groups to see what may be causing my issues and trying different things. How long have you been carnivore?
Originally posted by Determinedtobeatthis:
Phoiph and Kgg,
Thank you for the replies. I do take Armour Thyroid but I had it checked and it’s actually bordering on too high of TSH because I’ve only been taking it half as much since my PCP warned that I might need to lower it due to my carnivore diet. I did have a time where it went too low (hyperthyroid) and it felt exactly like this. However this time it seems related to both my neck stiffness/flu like feelings. It could also be related to chamber bc it’s almost always later after I’ve been in there, maybe like a detox reaction. It’s so frustrating and scary. I never expected old symptoms to become my worst ones.
quote:Kgg,
Originally posted by kgg:
Determinedtobeatthis, (I still love that name!)
The only other thing I can suggest is until it clears, modify your dive routine. I know when the road got bumpy I would take a day or two off, until I was back to my "normal". Or consider shortening the dive to see if it is tolerated better. That way you maintain consistent diving, until this passes. Which I truly think it will.
I hope it resolves soon for you.
quote:I did when I first started this way of eating after 3 months. I slept better and had more energy as well as better balance but then like you, Christmas came along and I fell off the wagon. I still try to stay on carnivore for the vast majority of the time but I think the vacations or just dinners out with friends occurs often enough to keep me away from that first success.
Originally posted by Determinedtobeatthis:
quote:KB,
Originally posted by Kaibyrd:
quote:You may be getting a double whammy by doing mHBOT and carnivore. Try a supplement of some sort for the anxiety and if need be, add some carbs to reduce the possible oxalate dumping that could be causing other issues. We’re all so different so we have to keep trying different things. I’m constantly stalking carnivore groups to see what may be causing my issues and trying different things. How long have you been carnivore?
Originally posted by Determinedtobeatthis:
Phoiph and Kgg,
Thank you for the replies. I do take Armour Thyroid but I had it checked and it’s actually bordering on too high of TSH because I’ve only been taking it half as much since my PCP warned that I might need to lower it due to my carnivore diet. I did have a time where it went too low (hyperthyroid) and it felt exactly like this. However this time it seems related to both my neck stiffness/flu like feelings. It could also be related to chamber bc it’s almost always later after I’ve been in there, maybe like a detox reaction. It’s so frustrating and scary. I never expected old symptoms to become my worst ones.
Ok thank you for the explanation, I thought pharma meant pharmaceutical. I will give that a try. I started carnivore right after Halloween, however did eat some things for the holidays/daughters birthday so it’s more like 9-10 weeks without cheating. I am doing it for the SIBO, otherwise I would opt for keto. I did try keto but didn’t help my digestion. Have you been seeing any progress on carnivore?
quote:Determined...
Originally posted by Determinedtobeatthis:
On another note, is it normal for the chamber PSI to drop slightly over the course of the dive after getting up to full pressure? Or is it supposed to stay at exactly the same number (on the barometer iPhone app) as right when getting up to full pressure?