My pain was constant, extreme, horrible. On a scale of 1-10 it was always around a 9 or a 10. I had the "fibromyalgia"-like pains, everything ached, felt swollen, my joints, spine, hip pain was extreme. Every time I moved my joints would crack and pop. I started limping because my left hip started giving out on me. It was pain that painkillers and muscle relaxants couldn't touch.
Around 15 dives in (regular HBOT) I realized I had no more pain in these areas. The pain has not returned, as I continue to dive daily with mHBOT.
Posts: 96 | From USA | Registered: Sep 2013
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posted
levity, yes, on oral antibiotics. I have been on Biaxin + Tindamax the whole time with HBOT and mHBOT.
I would love to be able to get to remission with purely mHBOT treatments like Phoiph did... that way we wouldn't have to play the guessing game ...with so many variables affecting the outcome. Who knows which drugs are helping/hindering progress? But I'm not courageous to drop everything just yet.
An update for you guys. Saw my LLMD yesterday. Babesia is back, tested positive for B. Duncani again. I had previously treated for 9 months on Mepron and Biaxin. Did not have any babesia symptoms for the whole duration of HBOT. After a bout with the flu in January, (what I consider to be) coinfection symptoms flared up again. Air hunger, night sweats, fatigue, headaches, swollen lymph nodes, sore throat, spleen pain, liver pain.
Posts: 96 | From USA | Registered: Sep 2013
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oh no...sorry to hear that the Babesia is rearing its head again. My son and I have both relapsed several times with Babs...very tough to get rid of.
We used Cryptolepis and Sida Acuta after months of Malarone. Hang in there and hope you get it under control soon.
Posts: 688 | From Florida | Registered: Aug 2001
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posted
Spinning, are you taking any for of glutathione or glutimate or precursor supliments. I think Beau Seiberts article sheds some real important concerns on this.
Posts: 366 | From Kalamazoo, Michigan | Registered: Jun 2008
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posted
Right on JCarl... I read through whole thread about glut/glutathione and babesia a few days ago.
Unfortunately, too late... I had been getting IV Glutathione 3x a week for months during HBOT treatment. Have been getting it once a week since
I'm curious if others had any Babs flare up after glutathione supplementation. Input?
Posts: 96 | From USA | Registered: Sep 2013
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Phoiph
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posted
HBOT/mHBOT has historically suffered a "bad rap" when it comes to Babesia...(unfounded, based on my research/experience).
Maybe the actual connect is too much concurrent IV glutathione (which could possibly protect Babesia from HBO)...?
Posts: 2072 | From Earth | Registered: Jul 2013
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posted
First of all I am not a doctor and this question and the interpretation of the article should be addressed to your doctor. My son did HBOT last month beginning with improvement but crashed right around the time I.V. Glutathione was introduced. This needs further exploration by lyme literate doctors.
Posts: 366 | From Kalamazoo, Michigan | Registered: Jun 2008
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posted
I was done with my babesia treatment (Mepron+Biaxin) about three months before I started HBOT, so no I was not on any babesia treatment during.
Funny thing, I brought up IV Glut to my doc when I first started it, and he was not in support of it. I'm fuzzy about why he objected... something about how supplementing it naturally protected the bugs, decreased the immune system's own strength to fight off these infections (don't quote me! Lyme brain!) Anyhow, I decided to go ahead with it because so many people were saying that it helped with herxes detox yada yada.
JCarl, so interesting that your son crashed around the time IV Glutathione was introduced. Has he discontinued it? I didn't "Babs-relapse" until after I stopped regular HBOT.
Phoiph, good point regarding hbot+babesia, concurrent IV glut. The question you bring up about it protecting babs is not to far off from what my doc trying to tell me...
Posts: 96 | From USA | Registered: Sep 2013
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posted
JCarl, could you please point me to 'Beau Seiberts article', that you mention? thanks
Posts: 688 | From Florida | Registered: Aug 2001
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posted
OK, this is what happens when you try to reply on an Iphone, wasn't trying to make a triple point. I think this is a complex question with the possibility of a number of different conclusions but well worth being aware of.
Posts: 366 | From Kalamazoo, Michigan | Registered: Jun 2008
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Phoiph
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posted
One of the ways HBO works to kill pathogens is by "Reactive Oxygen Species" (ROS), also known as "Free Radicals". Our own bodies also produce these free radicals naturally in a defensive response to infection.
Fortunately, it has been shown that our natural antioxidant production also increases when using HBO to protect our cells, thus keeping a balance.
It makes sense in theory that too many supplemental antioxidants (e.g., I.V. Glutathione) may thwart the HBO process by upsetting that balance...causing an abundance of antioxidants that inadvertently protect certain pathogens...
Posts: 2072 | From Earth | Registered: Jul 2013
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posted
yes, very complex..thanks for the link.
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CD57
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posted
Phoiph et al....one thing I don't get about HBOT...if we are experiencing an abundance of free radicals with this treatment, shouldnt we in theory be taking anti oxidants exactly like glutathione to protect us? At the very least Vitamin E?
We don't hear too much about this. Does Harch or anyone else in the know recommend antioxidants when undergoing HBOT treatment?
Posts: 3528 | From US | Registered: Apr 2007
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Phoiph
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posted
CD-57...
The effects of mHBOT on oxidative stress and antioxidant status has been studied by Dr. Rossignol with children with Autism:
"...This prospective open-label pilot study in children with autism indicates, as measured by changes in plasma GSSG, that HBOT ranging from 1.3 to 1.5 atm and 24% to 100% oxygen was not significantly associated with increased intracellular oxidative stress..."
"...A review of the literature indicates that oxidative stress can occur with HBOT but appears to be less of a concern at hyperbaric pressures under 2.0 atm [58]. In fact, with long-term and repeated administration, HBOT below 2.0 atm can actually decrease oxidative stress [59-61] by reducing lipid peroxidation [62], and by up-regulating the activity of antioxidant enzymes including SOD [60,63], glutathione peroxidase [64], catalase [65], and paraoxonase [62,66]. Furthermore, at the pressures examined in this current study (1.3 to 1.5 atm), a search of the literature failed to identify any studies indicating that oxidative stress worsened with HBOT..."
I think it is very important to eat a diet rich in antioxidants, and possibly basic supplements, but am concerned that over-supplementation might counteract the mechanism that HBO uses to kill pathogens...which is, in part, via reactive oxygen species (ROS)/oxidative stress/free radicals. Apparently our bodies are able to compensate by raising natural production of antioxidants to protect our own cells...
Posts: 2072 | From Earth | Registered: Jul 2013
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posted
Great discussion. I put an update of my progress on the other mild hyperbaric thread.
Posts: 233 | From Hudson Valley | Registered: Jun 2010
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Not sure if the results are lasting but it is encouraging. Also, just mHBOT no supplemental oxygen.
Posts: 538 | From kentucky | Registered: Nov 2011
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CD57
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posted
Moderators what happened to Lookingforhope's post?
Posts: 3528 | From US | Registered: Apr 2007
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posted
CD57, The Powers to be here deleted it! I'm not going to repost here as it simply isn't worth the frustration. I thought this was an open forum conducive to helping one another for altruistic reasons? A simple reply from the moderators here explaining why my post which I was in the process of posting "Part 2", was rejected by the mods here?
Posts: 50 | From San Diego | Registered: Jan 2014
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posted
Looking4hope, PLEASE continue your posting on if and how you are improving from mhbot. Many of us (including myself) are watching this thread to see if mhbot is worth the investment.
Posts: 538 | From kentucky | Registered: Nov 2011
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Phoiph
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posted
I had a great visit yesterday from someone from Canada who I had helped get started with mHBOT via phone 1-1/2 years ago. We had not met previously.
She had been very ill with a long history of Lyme and Babesia...homebound...and needed 24 hour supervision at that time.
She has used her chamber daily since then, and considers herself well now.
She brought a friend with her who had been with her throughout her ordeal and subsequent recovery. Fortunately, they both allowed me to do a video recorded interview...
Posts: 2072 | From Earth | Registered: Jul 2013
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posted
The moderators only removed DUPLICATE POSTS. When I posted the above, LN was experiencing problems and things got crazy. That is probably why there were so many duplicates that night.
Feel free to post whatever it was again.
Thank you for eliminnating any duplicates that might occur.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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posted
I purchased a used Respiro a month ago so I have about 30 dives to give you feedback from. I do thank Phoiph for guiding me thru the purchase even though I did not purchase it from her connections.
As I told Phoiph in an email earlier I remember her saying after she did about 40 dives she considered returning the chamber.
In my case after 20 dives I would have said "over my dead body does this chamber leave this house"! Phoiph was more ill then me when she started out and I have my gb4000 with MOPA to thank for that. I still was not well enough to return to work though.
I was able to find a used 08 Respiro for 5,750.00 with oxygen concentrator. My only regret is that I wish I had purchased one years ago when I had a friend from a support group recover with a chamber. I thought he was just one of lucky ones as there no data for home chambers with lyme.
Since I'm only 30 days into this deal all I can say is that I'm pleasantly surprised at the direction my health is going in such a short period.
I continue to use IFR suana, supplements, collodial silver and rife which seems to be more effective combined with MHBOT.
posted
Phoiph,it's great to hear another success story.
JarJar, please keep us posted--really glad to hear of the direction that your health seems to be going.
It's too early to report much on our end. Took us a while to find a mask to fit my son, and now he's been up to 60 min/day with oxygen for the past week.
Editing with a question, Phoiph, was the Canadian woman doing MHBOT alone or did she combine with abx or other treatment?
posted
Not sure if this has been posted, thought it belonged in this thread. Notes from 2013 ILADS meeting,
Dr S** spoke on "Hyperbaric Oxygen Therapy in the Management of Lyme Disease".
There are soft shell and hard shell units available, but soft shell units cannot go to the depths of the hard shell units.
1 ATA is sea level. 3 ATA is 66 feet below sea level; a hard shell unit can go to this level where soft shell units can only go to about 1.3 ATA.
HBOT therapy can provide the body with 22 times more oxygen.
Stimulates over 5,000 genes. Increases growth factors, reduces swelling, promotes the growth of neural pathways, activates sleeping neurons, increases ATP, and downregulates inflammation.
Dormant mitochondria produce 2 ATP; whereas after HBOT, 36 ATP may be produced. VEGF increases which is associated with improved blood flow. Stem cells may be stimulated.
HBOT may have an antimicrobial impact being both bacteriostatic and in some cases bacteriocidal for anaerobic infections and even some aerobic. HBOT may create a toxic environment for Borrelia.
Interleukins, TNF-alpha, and others improve. If one has a genetic predisposition to biotoxin-associated illness, HBOT may improve outcomes.
1.5-2.0 ATA may support detoxification. 2.4 ATA may have antimicrobial effects and support reducing inflammation. HBOT may help minimize Herxheimer reactions.
posted
Below is what I originally posted here on Lymenet close to two weeks ago or March, 23 2014....hope this helps(-:
I'm relatively new to these forms so before I proceed I would like to give a brief history. I'm a 37 year old male who went from being a very busy Personal Trainer, working ridiculously long hours to near collapse over 2.5 years ago!
Like many hear my body was giving signs my "System", was breaking down (IE) frequent colds, headaches, and intermittent nausea. I attributed the above symptoms at the time to a very nasty divorce, coupled with work related stress, and poor sleeping patterns.
Around June of 2011, I became really ill with all the typical Lyme "Trimming And Fixings". I had a really stiff neck, excruciating headaches, intense nausea, relentless fatigue, dizziness, and an overall feeling of not feeling well.
I took a leave of absence from my job at the time....not exactly easy when you have anywhere from 26-32 clients and averaging anywhere from 120-140 sessions a month as a trainer.
Nonetheless, I left then came back only to leave for good in December of 2011, as I was now sicker then ever!
It should be noted during this time I voluntarily went to the ER, saw numerous Doctors, who all stated they couldn't find anything wrong with me. I became so sick, I had to move back home with my parents in another state.
2012 was filled with a series of "Ups And Downs". After doing a great deal of research I suspected based on my symtomology I was a fairly good candidate for having contracted Lyme Disease. I decided to consult with an LLMD or Lyme Literate Medical Doctor in July of 2012.
During the appointment I was given an Igenix testing kit. Feeling I was already getting better doing my own treatments at the time...I elected not to go through with the testing.
Looking back...part of me didn't want to face the grim prospect I had this "Big Green Monster", called Lyme Disease to possibly deal with!
So I packed up my bags, and headed back to where I was living before I fell ill.. where both my son and girlfriend were residing.
Within a couple months of moving back, I started getting sick again. The following year was in which I would get sick, then "Kind Of Rebound", then get sick again.
It wasn't until around April of 2013 that I awoke one morning to what can best be described as a "Living Purgatory". Everything was "Off",
I had trouble speaking at times, couldn't tolerate loud noises, couldn't think clearly, had intense head pressure, and had to force myself to keep my eyes open. I truly thought I had endured some sort of stroke during the night time hours.
These symptoms became progressively worse over the next month ultimately forcing me to move back home to another state once again.
Upon arriving home I had an MRI performed with and without contrast. The MRI showed small whitespots on my frontal lobes. My neurologist stated I had nothing to worry about, and there was no need to test for Lyme Disease.
I proceeded to tell her, I still wanted to go through with the test. Shrugging her shoulders and shaking her head she reluctantly agreed.
Two weeks later my test results come back "Inconclusive". She then states via the phone I don't have Lyme Disease and I'm simply wasting my time. I told her I respectfully disagreed with her and hung up the phone.
I then went back to the LLMD, I originally saw in my hometown and had my blood work sent to Igenix. Not to my surprise my test came back "Positive", for Lyme Disease meeting both CDC criteria as well as Ig Igenix criteria for diagnosing such.
I didn't test positive for either "Bart", or "Bab", however that doesn't necessarily mean I don't have either one or possibly other "CO-INFECTION"?
The last year has been filled with a very wide and dizzying assortment of "Lyme Disease" treatments.
The only thing that "Kind Of Worked", was various forms of Ozone Theraphy. With that being said I still intuitively knew after roughly six months of Ozone Therapy it wasn't going to do everything I was hoping it would do.
I continued to lose weight going from 5 "9" weighing 170lbs with 7% bodyfat in early 2012 to 140lbs.
My encephalitis also continued to spiral out of control! It was roughly 60 days ago....I won't go into all of the "Gory Details", however I really was losing all capacity to continue living on this great big old "Spinng Rock" also referred to as planet earth.
So at this point I'm basically homebound, spending a ton of time in bed. So there I was lying in bed with my Kindle Fire, which has a couple tabs opened one of which was "Lymenet".
I somehow stumbled upon this thread and just started reading. I had heard of HBOT in the treatment of Lyme Disease, yet I had never heard of "Mhbot".
The more I read the more interested I became. Let me rephrase that....I became as interested as someone with Lyme Encephalopathy might be able to become? I was still miserable, both Physically and Mentally yet I continued to read.
I saw these posts from someone in Arizona who goes by the username "Phoiph", here on Lymenet. After reading all of the posts I very reluctantly reached out to Phoiph via private messaging here telling Phoiph just how sick I was.
It was only after hearing about Phoiphs experience first-hand which BTW gave me the chills as they were earaily similar to mine!
I truley thought I was the only one on earth who felt the way I did. It didn't matter how many testimonials I read from others on various "Lyme Boards"....I truley thought my case was unique and different before hearing Phoips story!
Let me further state that no one can make this "Stuff Up"! It's one of those things where it "Takes One To Know One"!
I believe even the brightest of minds filled with compassion can't begin to grasp on the most elementary of levels just how painful this disease can become!
So after working with Phoiph for a couple weeks intermittently via email and such, and seeing my Dr I place an order for my chamber through Oxyhealth.
However before placing the order I went to a naturopathic clinic here in town and tried out "Mhbot" first hand.
Now remember at this point I had been basically homebound for months, and was extremely nervous even being around people.
After the treatment I wouldn't say I felt any different, with the exception of one little caveat. I drove myself to the store when I was done with the treatment....something I hadn't done in close to two months.
Four days later my chamber arrives, and I do my first official dive by myself with supplemental O2. Again when the session is over I get out and don't feel any different.
The next day however I'm herxing like crazy, yet I dive again for another hour with supplemental O2.
I reach my fith dive and I'm now looking at the chamber which lays on my bed next to me with "Great Despise"..LOL! I'm herxing like crazy, and decide to cut my dives back to 30 minutes.
It was after my "Ninth Dive", which I did without Oxygen for thirty minutes that I began to start feeling "Different".
I Can't put my finger on it...the only thing I can tell you guys is that it felt like something was working on a "Really Deep Level".
I can tell you without question that when the chamber was deflating it felt like my brain was "Waking Up", as I just lied there motionless in the chamber.
The last four days has been filled with energy, and my Brain fog has decreased by at least 50%. I know it's still to soon to tell what's going to happen as I continue Mhbot,
however these changes are near unbelievable for those who have seen me at my worst over the last couple years.
"Update" 4/3/2014...I continue to do Mhbot, for 30-40 minutes five times a week. I continue to make progress each and every day...with some herxing here and there.
I missed Four days due to travel...my first time on an airplane in three years followed by rigorous walking while away!
For now I'm SOLEY using just the chamber without supplemental oxygen or the oxygen concentrator. I Just couldn't handle the Herxs when using 02..again everyone is different.
Eventually I will resume with supplemental oxygen, which ultimately I feel intuitively heals me personally on a deeper level. I simply need to work up to it as this is a progressive processes.
I'm not a doctor, so please don't take what I'm doing as any type of medical advice etc. Everyone is different, in regard to how they handle dieoff.
I don't subscribe to the "More You Herx", the better camp. Most here have already been sick for far to long and don't need to feel even worse. As Phoiph, says here on these boards "Slow And Steady"!
I'm not using Antibiotics, just Mhbot and I'm following a Paleo diet 80% of the time. I should be Paleo 100% off the time, as it's not only condusive to treating LD, and Co-infections but also helps in my experience with my Herxs.
I also drink as much purified water as possible, which helps my Herxs.
If anyone has any questions feel free to "Fire Away", that's how we learn...good luck to all of you.
................................................
Breaking up the text for easier reading for any here -
[ 04-27-2014, 11:29 PM: Message edited by: Robin123 ]
Posts: 50 | From San Diego | Registered: Jan 2014
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posted
Hope, are you using anything to clear out the toxins when you herx? I have to keep chlorella, liquid bentonite clay and charcoal around.
You should be able to accelerate your healing when you are able to get the toxins cleared out of your body faster.
I will send a pm showing what I use and where I order.
Posts: 805 | From Utopia | Registered: Feb 2006
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CD57
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posted
Hope, I am so glad you came back to post! yay. I have also been working with Phoiph and she is a godsend and a savior. She was also very sick and abx did not work for her, nor have they for me (although they sort of seem to keep stuff getting worse).
What forms do your herxes or flares take? What kinds of symptoms do you have.....brain fog, psych, nerve pain, gut pain, muscle, etc?
So interesting that you are not using the O2 also....I think Phoiph has posted about another woman doing that as well.
You are very lucky that you have seen results so quickly, that is pretty amazing.
Posts: 3528 | From US | Registered: Apr 2007
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posted
My herxs are mainly deep throbbing headaches, with an occasional "Retracing", of old symptoms.
The old symptoms coming back are back pain, and nausea at times. When the body heals or begins to heal for that matter this phenomenon often occurs.
As far as my symptoms pre Mhbot go....I was pretty much as "Bad", as Phoiph at times. Horrible burning pain all throughout my body which literally felt like acid was being poured all over my body!
This coupled with intense nausea, chills, flulike symptoms, pain, numbness in both hands and feet, horrible fatigue, insomnia, sleeping to much, agoraphobia, depression, OCD, Anxiety, and Encephalopathy!
Out of all of these symptoms... I would have to say the encephalopathy was the worse hands down! I really have a tough time talking about it as it was the most traumatizing thing I have ever been through.
I would be willing to expand on this for you guys...however it's pretty frightening to say the least.
As far as detox goes Mhbot, will eventually do just that...especially when I add 02 again.
I have tried everything from IV L Glutathione, to my own Infrared Sauna, bentonite clay with Pyhsillium Husk, and to many other things to mention.
In my opinion the less variables the better. How can one truly know what's working, and what's not working if they add to many variables to the equation?
On top of that I believe you have to ask yourself the question....are all of these variables I'm adding even sustainable long term?
Mhbot is incredibly simple, even when following a Paleo Diet. With the aforementioned being said sometimes the simplest of things are the most difficult for many to execute.
As a formal competitive natural bodybuilder, and personal trainer....I had witnessed this for years observing clients who couldn't follow a very simple "Meal Plan", or regular training schedule.
[ 04-27-2014, 11:32 PM: Message edited by: Robin123 ]
Posts: 50 | From San Diego | Registered: Jan 2014
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posted
I also wanted to add that my "Brain Fog", is just about completely gone! Also worth mentioning is the inital surge of energy I get from Mhbot right after I get out of the chamber.
This burst in energy usually lasts for roughly 12 hours or so now, before a herx comes on. I then get complete wiped out..
largely attributed to all of the things I'm trying to do that I haven't been able to do both physically and mentally in three years.
I have a long way to go, however for now I will take "Colors Seeming Brighter", "No Sound Sensitivity", "A more relaxed disposition", and a more physically capable body.
I'm not benching 365LBS, Deadlifting 450LBS, and Squatting 315LBS as I used to before getting Sick.
For now my exercise simply consists of walking...often times barefoot to attract the energy from the earth. I also try and get moderate amounts of sunlight when available.
[ 04-27-2014, 11:33 PM: Message edited by: Robin123 ]
Posts: 50 | From San Diego | Registered: Jan 2014
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CD57
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posted
Hope did you not do any antiobiotics?
Posts: 3528 | From US | Registered: Apr 2007
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posted
Hey CD57, no I have never personally used antibiotics..in regard to treating Lyme Disease, and Co-infections. I truly believe I was infected when I was in the fifth grade.
I spent two hours trying to remove the ticks at the time which were deeply imbedded in my Private Area...Yah OUCH! Later that year I started experiencing horrible headaches.
At age 21, I had a catheter ablation surgery after being diagnosed with SVT, or Supra Ventricular Tachycardia. Now looking back I'm almost positive these were all early manifestations of LD.
[ 04-27-2014, 11:33 PM: Message edited by: Robin123 ]
Posts: 50 | From San Diego | Registered: Jan 2014
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CD57
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posted
That is amazing story. You have such good early results hope it keeps going. Keep posting! Didn't the LLMDs want to use antibiotics?
Posts: 3528 | From US | Registered: Apr 2007
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posted
CD57, My LLMDS and myself never really discussed the whole ABX thing simply because I never followed up with them.
I just found myself observing many spending both allot of money and time on both LLMDS, and ABX who were still sick years later.
ABX, do work for some no doubt about it. However I'm a very intuitive person and didn't feel they were for me.
I have many reasons for not going the ABX route personally.....most of which involves the duration of time I believe I have had LD.
Posts: 50 | From San Diego | Registered: Jan 2014
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posted
I also recently saw a very prominent Lyme Doctor, and actually have a follow up via the phone in roughly two weeks.
I will comment more on this experience if I feel any value can be extracted from it for you guys and gals here!
Posts: 50 | From San Diego | Registered: Jan 2014
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posted
Phoiph, thanks for sharing the story of the lady in Canada. The more "I recovered" stories the better.
It also dovetails with your personal story. Give it time and don't expect miracles overnight.
Posts: 805 | From Utopia | Registered: Feb 2006
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quote:Originally posted by Lymetoo: Looking4Hope .. Please leave more space between paragraphs for easier reading. Most here cannot read large blocks of print.
Thanks!
Betty G approves of this message!!
Sorry I couldn't resist. Posts: 805 | From Utopia | Registered: Feb 2006
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Phoiph
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Member # 41238
posted
I posted this experience I had recently on the "Family Diagnosed With Parkinson's" thread, but wanted to include it here also:
"...A volunteer where I work has a husband who was diagnosed with Parkinson's and dementia (no telling if it was Lyme induced), and she was unable to care for him anymore at home. He was using a walker and falling frequently, would sit and stare for hours, and needed 24 hour supervision.
She finally agreed to have him see my friend, who is a neurologist and also runs a hyperbaric clinic with a 6-person chamber. He was prescribed a block of 40, 1 hour treatments at 1.5 ATA (considered "mild" hyperbaric, or "mHBOT"), with further treatments if necessary.
At 20 treatments, there was no discernible change, according to the wife. At 39 treatments, the wife flagged me down as I drove into work, and told me her husband's dementia was "gone". She also said he was walking without a walker, using a cane only, on occasion.
A week later, I asked her how he was doing, and she said she had left him home, because he was busy building something in his workshop (using power tools). She said he had been talking about the future, and making plans to travel. She said he was "back". They plan to do another block of treatments, and/or possibly purchase a home chamber.
I spoke to my neurologist friend who had given him the treatments, and she said that he was one of 3 Parkinson's patients who had started treatment at the same time, and all 3 were doing well.
A great resource regarding mHBOT and neurological (& other) conditions is "The Oxygen Revolution" by Dr. Paul Harch, and also his website: hbot.com. Both include before and after SPECT scans which are remarkable..."
Update: I saw the volunteer (wife) again yesterday at work, and she and her husband are willing to do a video testimonial of their experience...
If they (and others I have videotaped) grant permission, I hope to post their videos on an educational website I'm working on...
I also think the fact that it takes many fewer mHBOT sessions to treat Parkinson's (and many other neurological conditions) than it does Lyme is a testament to the tenacity and complexity of Lyme disease...
Posts: 2072 | From Earth | Registered: Jul 2013
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posted
Soccermama! What a coincidence! I just logged on to report my experience with improved sleep and mHBOT...
It took me a while to realize this, but mHBOT has improved my sleep so much! I go to bed at a decent hour, am not tossing and turning for hours, or waking up every two hours, or waking up way too early and not being able to go back to bed. The sleep is refreshing and I'm able to hop out of bed rather early in the morning. No dragging around, or "just ten more minutes pleasssse"
I am 55 hours in, btw. So overall improvements: PAIN gone or greatly diminished (bone, joint, muscle, nerve, headaches). Insomnia gone.
I also sometimes take a nap inside of the chamber during my 1-hr dive. It is most refreshing.
Phoiph, I am so happy to hear about more success stories. Thank you for sharing, and I can't wait for your website!
Posts: 96 | From USA | Registered: Sep 2013
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CD57
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posted
This is really encouraging folks. Please keep posting!
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Phoiph
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posted
About sleep...
Severe insomnia was one of my first symptoms, and one of the last to leave. It returned to normal gradually; in increments, over time with mHBOT.
I asked my friend, the neurologist/HBOT specialist about this recently...and she said that sleep architecture is very complex, requiring many areas of the brain to be in synch, so can be one of the later symptoms to resolve.
This can take time...but improvement of sleep is a very good sign...
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Levity101...
"...Editing with a question, Phoiph, was the Canadian woman doing MHBOT alone or did she combine with abx or other treatment?..."
She had been off and on antibiotics over the years which had helped her temporarily...but this time around she was unable to take them, as they made her too ill (she said she "didn't think she was going to make it"). She was not on any other therapies when she began mHBOT 1-1/2 years ago, or throughout the subsequent daily mHBOT treatments.
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
I have recently begun diving with the help of Phoiph. I don't have much to report because I am not very far in and have not made it up to an hour per day consistently (recommended).
My symptoms are highly neurological and cognitive/psych in nature.
I have been diagnosed with two strains of bartonella, Lyme, the usual elevated viruses, and possibly FL1953, parasites, and/or babesia (not sure about those three).
I don't seem to fit the usual mold here at LN in that I have done a lot of treatment with IV and oral, herbs, silver, ozone, and seem to have killed off a lot of Lyme but possibly unable to touch "bartonella".
It *feels* to me that somewhere along the way my immune system lost the ability to kill anything, possbly induced by the treatment itself? very scary.
The treatment for "bartonella" made my symptoms swarm and worsen, flare, but never improved.
Now I am stuck with the symptoms that emerged during the time. Sometimes it is really hard to keep going.
Abx for me don't seem to really kill anything but seem to prevent my worsening...although I get toxic after 4-5 days on them.
I am really hoping that this treatment will help reboot my immune system and come back online and do what it is supposed to do.
posted
It's so great to hear of progress being made. What an amazing story, Phoiph, about the man with Parkinson's.
It does seem that Lyme takes longer and I'm guessing it's because we're not only addressing neuro damage, which seems to respond remarkably, but that those with chronic Lyme need a 'reboot' of the immune system, as CD57 so aptly put it.
The immune modulating effects have been documented--changes in stem cells and white blood cells, etc. but it will take longer because the system is so taxed and possibly still fighting active infection, which has to be dealt with as well.
...therefore, slow and steady...makes sense.
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Thanks levity!
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