-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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Vanilla
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I had it the whole time and hated it so when my babesia returned my new LLMD switched me to Malarone instead and I no longer get the yucky disgusting Mepron depression or have to taste that junk either.
I am not at all fond of the stuff and 4 months of it did not kill off my bugs either.
Oh and I only have to take one Malarone pill a day (half a dose) and there is no after taste.
My Mepron blues lifted as soon as I got off the stuff and it felt heavenly to feel half way normal again.
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cactus
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Hi Vanilla,
It's great to hear the malarone's working for you - I envy you.
I did 6 mos on malarone last year, after 6 mos of mepron, and darn it, the little bugs are persistent.
So my LLMD switched me back to Mepron. Believe me, it tastes just as bad the second time around, ick.
I don't remember if my Mepron blues went away before I finished the first 6 months - I think they did.
Can't handle another 6 months of this, that's for sure, our house will float away in a sea of tears!
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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Vanilla
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I do feel for you and hopefully the Malarone will work for me...
If it makes you feel not so alone my LLMD is making me keep my stash of Mepron for a year incase I have to go back on the stuff. I would love to just flush it down the toilet instead.
If I have to go back on it I will be singing the blues big time too!!! Hopefully the Tibetan herbs I am on and diet changes I made may save me from the evils of Mepron - I can only pray in the direction of Glaxosmithkline. You would think they could flavor that stuff better it really tastes terrible.
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YES!!! I have been on Mepron and was wondering if it was giving me depression.
I was out in town a week ago and walked past an x-girlfriend from many years ago that ended in a bad breakup.
Ever since I've felt down in the dumps like I needed to talk to her. I saw what car she was driving. So, when I've been out in town, I've been trying to keep my eye out for it.
I've seen her a few times before, thought about her for a few moments and then went on my way. But for some reason, this time was different. I say it must be the Mepron as I had been taking it already for a month.
Posts: 310 | From TN | Registered: Jan 2007
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Vanilla you say "I am not at all fond of the stuff and 4 months of it did not kill off my bugs either."
I can remember that in addition to mepron you used zithromax.
Could you please tell what your dosage was (of both mepron and zith)? I'm going on babs treatment soon, and I'd like to collect as much data as I can before that ...
..Thanks Vanilla!
Posts: 275 | From Home | Registered: May 2007
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posted
I only did 11 days of Mepron before having to switch to Malarone as the Mepron gave me a really bad allergic type rash all over my body.
The gloominess had already kicked in at that stage, and has continued now into my 4th week on Malarone....and gotten worse, I guess. So for me, Malarone also seems to cause black moods, although I'm on a low dose.
Posts: 261 | From Herx-ville!! | Registered: Aug 2006
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beachcomber
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Oh yeah, Mepron can sure bring on the blues. Between that and constant sweating and feeling like my earth is rocking, I can only hope it makes the critters feel as bad as it makes me feel.
I do recall that after the 2nd month (on my first round of Mepron) that the emotional roller coaster did level out somewhat. My short fuse did not. I am normally a mellow person but, any comment about my weight or diet or lack of stamina would set me off. I took EVERYTHING personally.
I had the same issues with Malarone.
I am on week 3 of this round of Mepron. I am ramping to full dose slowly, as I don't want to completely crash right off the bat. This has enabled me to get used to the side effects, including the crummy mood. I am thinking clearly enough to know when the feeling of overwhelm is coming on and can often talk myself out of getting too worked up or depressed. Sometimes I just walk away from whatever is triggering the feelings. I will literally excuse myself and go outside and breathe.
I was taught Tonglen Breathing recently. Although I am a newbie to the technique, it is helpful. You might want to Google it and just try it out.
CaliforniaLyme
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I was on it two YEARS*)!*)*!)!
And after the first 6 months I didn't feel that way anymore*)!*)!*)!!!!!!!!!!!!!!!!!
And haven't felt that way *since*!!!!!!!!!!!
6 years+ now*)!*)!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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tdtid
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You people are making me nervous. I started Mepron 15 days ago, been on artemsia for six months with various other antibiotics and yesterday just had the Zithromax added in.
So far, the only thing totally different that I have felt from the Mepron is the bedwetting soaks. And I'm talking floods. It's not even hot in air conditioned places and I'm still sweating up a storm and my LLMD said that was saying the Mepron was working.
But I don't think I've had a slip in mood YET. How long into the drug was it that most of you had that happen IF it was going to go that path for you?
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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cactus
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Wow, I had to just turn off the computer till now - you guys are great... At least I know I'm not alone!
Vanilla, you crack me up - I'll be praying in the direction of GSK, too, for less of the blues! I hope you don't have to go back on it, I'm going to cross my fingers for you, ok?
So we're all in the same boat, rehashing old issues, with short fuses & taking everything personally - at least we're in good company.
I'm going to check out the breathing technique (thanks for the suggestion, beachcomber!), and reread my copy of the "The Four Agreements" (especially the chapter titled, "Take Nothing Personally")...
This will pass. That's what I really needed to hear...
Hangin' in there, Cactus
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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Vanilla
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Cact this well pass and hopefully some bad bugs will pass out too.
Peter I think you already asked me the same question on another website but correct me if I am wrong and I will post my Mepron dose and no I have no Zith bottle left but I am sitting on a Mepron stash because as we all know I just love the stuff the color the scent every dang thing about it and I can not get enough of the stuff.
Heck I washed my face in it first thing this morning and I will be soaking my toes in it tonight for a sunflower yellow pedicure. Call it Mepron addiction or whatever I just can not get enough of that liquid gold.
They say it well be the next black gold after we run out of oil and water.
Hey does bart make one go crazy? I am trying to self diagnose here...... until someone answers that question I will be dabbing liquid gold behind my ears so I can smell it all day long.
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CaliforniaLyme: two YEARS! wow, that's a long time!!
Please, could you check what dosage you were at?
and if you used other drugs as well, please post the dose (this is very important to me, ..thanks!)
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savebabe
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I am currently on Mepron and as ususally, I do experience depression but I feel the anxiety is worse.
Posts: 1603 | From ny | Registered: Aug 2006
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cactus
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Mmmmmmm, Mepron behind the ears... Vanilla, I'll join you for a Mepron pedicure, or maybe we can call it our Mepronicure? Nothing like Mepron yellow toenails.
Thinking of writing a letter to Crayola and insisting they add a new crayon to the box - I looked for the Mepron Yellow crayon in my son's box this morning. Can't believe they haven't made one yet.
Savebabe, the anxiety hasn't hit yet this time, but I remember it from past run-ins with Mepron. It was the bad, waking-in-the-night kind of anxiety.
For now, the Mepron Blues have let up a bit. Whew.
Now I'm (anxiously) awaiting whatever comes next...
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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kelmo
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My daughter hit the skids...weepy and very sad. She's having a better day today. Had to work back a little bit.
cactus
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Hi Kelly, I remember when your daughter hit the mepron skids... Have you found anything that helps or do you just ride it out?
Guess it's just part of the experience...
Hoping tomorrow is a better day, Cactus
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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trueblue
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Thanks you guys
I'm on Malarone and feel less alone and whacked reading this. The weepiness comes and goes, to some extent, but so does the irritability. A lot of the time they just stay.
I know this is not me but that doesn't make getting through the day any easier. Sometimes I'm completely fine and cannot predict it. *sigh*
I vote for easier days all around! *nods*
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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cactus
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Hey true, oh no, you too?
If it will make you feel better you can join us for a Mepron yellow pedicure
Yep, weepy and sad, or cranky and jumpy - we're all deserving some better days...
And so are the people who live with us!
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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Vanilla
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The Mepron foot soak and massage before the Mepronicure well make anyone feel better more relaxed and happy.
I am all up for the Mepron hot springs. Last one in has to make the Mepron umbrella drinks with a lemon slice hanging over the side of the glass with a strawberry slice floating on the top. Yellow is such a happy color.
trueblue
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Oooo- I wonder if the Mepronicure would stop the annoying foot and hand sweating. Hmmm...
Anyone else having Artemisinin Dreams? Way freaky (but a kind of cool name for a band; don't you think?)
I really am not sure if the mood stuff is the Babs treatment or hormonal, maybe both. The Artemisinin Dreams, though... I'm sure about those.
Thanks for the reports of things getting better, those of you that mentioned it. It's good to know that it can/will change (ha, hopefully sometime soon).
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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cactus
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Oh yes, Vanilla, yellow is such a happy color! And a Mepron soak, maybe even a Mepron wrap is a sure fire cure for the blues. Yay for the GSK spa! (Just hold your nose while you're there)
Rianna, thank you for the hope - 10 days sounds doable. I'm glad you're back to feeling like yourself.
True, great band name! I get the dreams, too - must be babs treatment. My guess is the mood stuff is,too.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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Vanilla
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Oh a Mepron seaweed wrap sounds delightful and then into our yellow thick terrycloth robes that say GSK on them to wait for our Mepron curry at the Golden Door Spa. Nothing like a 24 carat gold resort.
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cactus
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-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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posted
I have noticed more intense dreams, and I wake up more. Sometimes when I wake up, I'm delusional.
I had this before, but just every once in a while. Now, it is more frequent.
And, I'm guessing my depression is a sign that my body is actually able to absorb the Mepron? I was doing 1 teaspoon twice daily. But I did ramp up to 2 teaspoons twice daily. How much do you guys do?
I'm also on the Bactrim/Septra too.
I plan on adding Art. When do you guys get your Art from? I'm thinking Zhang, but he is expensive. Though a capsule has 400mg compared to others.
Posts: 310 | From TN | Registered: Jan 2007
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Vanilla
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I did one Mepron happy yellow teaspoon twice daily but I relapsed after I was taken off of it at 4 months...
Mepron is the same happy sappy color as the smiley faces..
My poor hubby we are soul mates but I was convinced I hated him and he was having an affair, we laugh about it nw but I brought him to tears at the time.
Rianna
When I took mepron the first time for 4 months with ketek - I did this as well and it wasn't funny. It was very real and ugly when it happened. We can look back and laugh now but it had the ptential to destroy our marriage if I would have kept on for a longer time.
I also saw things. I told my husband that we needed an exterminator because we had ants all over the curtains. They weren't there. My kids and husband agreed with me but none saw any ants.
I started taking mepron again alittle over a month ago. I have lots of temperature variations and I'm emotional. Not seeing anything and I'm not disliking my husband. Hoping my iron levels will go up from none. I'm tired and lack energy.
Taking mepron 1 tsp - 2 x @ day with azith - 500 mg - 1 @ day. Pulsing art 400 mg - allergy research m-w each week
Zhangs art has a tendency to make liver enzymes go high from what I have been told and from a friend that has used it.
elle
-------------------- When I feel blue . . . . . . its time to take another breath Posts: 296 | From East Coast | Registered: Aug 2005
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cactus
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Hi guys,
Looks like we need to start up a new Mepron Buddies thread!
Jason - I get the vivid, weird Mepron dreams, too - it's happened every time I've been on Mepron so I chalk it up to that. Happened with Malarone, too, to a lesser degree. Can be really disturbing.
I'm on a wimpy 1 tsp 2xdaily. Plus zith, omnicef. Will be adding plaquenil and art soon.
My art is from Allergy Research, I think they're good & reliable.
Elle, I have to laugh a little, because I had olfactory hallucinations my first time around with Mepron - I was convinced that we had mice! (We didn't) This sounds a little odd, but I kept smelling the strangest odors, like maybe a dead mouse? Sounds gross, I know. I even went shopping and came home with a cart full of air freshener type things.
I also have the wild temp variations...
The blues seem to have let up a little - maybe thanks to Vanilla's great visuals - now I just picture a Mepron soak and wrap whenever I take my meds...
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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sixgoofykids
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I take 2 tsp. twice daily, and Zhangs Art. I also take mino, Biaxin, and Plaquenil.
I'm on an emotional rollercoaster ... my husband's cell phone's ringer didn't work today ... that was a major problem. LOL
I wonder if you put some Mepron into clear nailpolish, if you can then paint your nails Mepron yellow?
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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trueblue
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a day in the life of trueblue:
I'm less sad and weepy but still fell all over the place.
It must be time for my nap.
My fevers resolved after having my gallbladder out and returned a couple of months into restarting Babs treatment. The seem to be increasing as do my other symptoms. I'm not sure that sounds right for 4 plus months of treatment. ^shrugs^
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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quote:Originally posted by sixgoofykids: I take 2 tsp. twice daily, and Zhangs Art. I also take mino, Biaxin, and Plaquenil.
I'm not a doc so check what I say . . . when I went on mepron, I was made to give up my mino because you are not suppose to take cycline meds with mepron. From my understanding they interfere with the potency of the mepron.
I really do well on mino and would have kept it if I could . . .
-------------------- When I feel blue . . . . . . its time to take another breath Posts: 296 | From East Coast | Registered: Aug 2005
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tdtid
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posted
Elle,
I was told the exact same thing about having to stop the mino when I started the mepron. And I too thought I was doing well on the Mino, so would have liked to be able to continue it.
But with the cost of mepron, we surely don't want to take anything to make it lose it's potency. hahahahaha
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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posted
We just picked up my husband's first prescription for Mepron. It was prescribed over a month ago but we decided to get the plaquenil started while we wait to see if our PCP couldn't convince insurance to pay for it. I've been pestering my husband to just bite the bullet and pay out of pocket when the PCP came through and actually got the Mepron authorized. Don't know how many bottle we will get authorized but will take as much as we can get!
Anyway now I'm staring at this bottle that looks to be a combination of salvation and damnation. I'm hoping for the best here but if it's as bad as the plaquenil herx he went through it's going to be a rough ride.
I think you spa girls should add some tonic water to your Mepraquiris. I'm still thinking of that as something else to add to the arsenal but will wait till I talk to our LLMD. I did e-mail Q tonic about pricing or selling to individuals but they haven't gotten back to me.
Posts: 984 | From San Diego | Registered: Nov 2006
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beachcomber
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I went off Minocin also before starting Mepron. I was told to clear it out of my system for 10 days.
2 tsps./day isn't so wimpy. That is equivalent to 6 Malarone. Much more than that and I would think you would turn yellow!
Funny about the ants. I walked into my bathroom this morning and could have sworn I saw bugs scatter across the white tile floor. I haven't seen them again. Am quite sure they were Mepron hallucinations. I forgot about those. Ugh!
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sixgoofykids
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quote:Originally posted by elle: I'm not a doc so check what I say . . . when I went on mepron, I was made to give up my mino because you are not suppose to take cycline meds with mepron. From my understanding they interfere with the potency of the mepron.
I'll ask on Monday at my appt. I see Dr. H in NY ... I think he knows what he's doing. Thanks for pointing that out.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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trueblue
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quote:Originally posted by Parisa:
I think you spa girls should add some tonic water to your Mepraquiris.
Or our Mepraritas? Heehee...
I hope he does well with it, Parisa.
If I'm not mistaken... I'm almost sure... I was supposed to be taking Doxy along with Malarone and a Macrolide... had I not had a toxic reaction to Doxy.
The amount of Atovaquone in Malarone is equal to 1/3 tsp Mepron but then there's also the 100mg of Proguanil to consider. Although, I've not tried Mepron... this is my first try at Babs. I'm getting pounded either way.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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cactus
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I don't know about the mino, but True and I have the same malfunctioning memory - I *think* I remember a year ago I was supposed to be taking doxy along with Mepron and Biaxin.
Hmmmm - pretty sure it was at the same time. I couldn't handle the doxy at 400 mg, but still did 200mg while treating babs.
Parisa, you got it right - it's salvation and damnation in a bottle. Who ever knew they would both be such a lovely shade of yellow?
Anyone up for a Mepron and tonic?
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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posted
For sure you shouldn't take CoQ10 with mepron and taking flagyl with doxy or mino (tetracyclines) is a no-no - those 2 are listed in B's Guidelines.
Mepron is so expensive. Its over $20 a tsp. out of pocket with no discounts.
I think (or have been told) that many of the failures from treament happen because the mepron kills babs but the eggs don't completey leave the lower intestine/colon and then rehatch/reinfect over time. The art is suppose to help kill the egg form, I believe.
I wonder . . if the pepto, zantac that Marnie mentioned in the colitis thread recently would have any effect on babs in eggs form in the colon?
Hulda Clarke uses 3 different herbs in her protocal to kill parasites, black walnut & wormwood (artemesia) to kill adults & cloves to kill eggs. I'm not a follower of Clarke but I think some of her stuff is interesting.
The ants - I hope I don't see them this time. The last time they were walking in a straight line. You would of thought I would have known they weren't real. My llmd at the time said what I was seeing was mild compared to what some of her patients see. . . .just as long as its not scary . . I don't do scary stuff
elle
edited to take out the dr's name associated with ethe guidelines - don't want to post a docs name
[ 21. May 2007, 10:59 AM: Message edited by: elle ]
-------------------- When I feel blue . . . . . . its time to take another breath Posts: 296 | From East Coast | Registered: Aug 2005
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Vanilla
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Anyone know if it is true or a rumor that you are not suppose to do take milk thistle while you are doing either Mepron or Malarone because it interferes with the absorption like CO Q 10 does?
I think I over did it today or something I have a sinus headache... the thought of Mepron yellow is making me feel worse. I guess it is time for me to take my toes out of the Mepron soak.... and think about switching to silver nail polish.
I hope everyone who is on Mepron or Malarone starts feeling normal and better soon.
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cactus
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Hey Vanilla, Milk Thistle & Co Q10 are both no-nos... me thinks...
Also, in one of the old Mepron Buddies threads there was a lot of discussion about not using almonds or almond butter as your source of fat when taking your Mepron... Something about almonds blocking the absorption of Mepron, too.
If I remember right, my malarone pills were a lovely shade of pink... wonder if they make Malarone Pink toe nail polish?
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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trueblue
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I do take CoQ10 but as far as possible from the Malarone. (I take a select few antioxidants with it.)
No milk thistle, though, I've only ever taken that when I am off meds. And my understanding is you need something to rebuild or support your liver when taking it. I'm not sure how protective it is on it's own. (I could be very wrong about this, btw.)
Malarone, these days, is a lovely pinkish-brown-rust color.... A few shades lighter than the ever lovely reddish brown, rusty looking Nystatin tablets. Either would be lovely as nail polish, lipstick or blush.
I can't even believe I'm saying this. I wear neither nail polish or makeup.
No one has mentioned anything about almonds to me.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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I like putting Mepron on my hamburgers! Posts: 310 | From TN | Registered: Jan 2007
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cactus
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Ok, so I just searched a little bit for info on almonds and Mepron - in some of the old mepron threads from 2004 - 2005 there's some discussion about it.
Not sure if it's a rumor or if it's true that it stops absorption. Looks like Trails was trying to find the answer, too, back then.
I love almond butter, so if anyone finds the answer for sure, I'd love to go back to almond butter with Mepron...
Oh, yeh, I'm not much of a nails girl either, but if it's Mepron Yellow polish, I'll make an exception!
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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posted
My llmd wanted me to take mepron with fish oil - I wanted to ask her if she would like me to also stab myself in the eye every morning with the spoon . . . I'm glad I'm not married to the male version of her.
I usually take it with a spoon of ice cream or peanut butter or popcorn or some milk.
elle
-------------------- When I feel blue . . . . . . its time to take another breath Posts: 296 | From East Coast | Registered: Aug 2005
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I don't know how many antibiotics which has been combined with mepron, with regards of testing the plasma concentrations of mepron. I'd suspect that there are others as well which has not been tested in conjuction with mepron
(doxycycline is a tetracycline antibiotic ... )
Posts: 275 | From Home | Registered: May 2007
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Vanilla
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posted
I would love to try some Malarone pink nail polish and I am wondering how it would look on my crusty fungi toe nail?
Actually after having my nose torched by the dermatologist from hell on Friday I think I better try some on my nose too which seems to be turning into a big ugly scared blister.
Never trust a duck!
trueblue with such exciting new shades of nail polish to chose from Mepron or Malarone you have got to start wearing more nail polish.
I was wondering how it would look if I did my toes in Mepron and my finger nails with Malarone? It might clash but it would take the attention off the ugly nose blister filled with liquid which might be attractive if it was a crystal with water in it but alas it is a nose blister.
Charlie are you done borrowing my berka? I really would like it back just incase I need to go the the grocery store today for a Sunday Chron. I do not think the cyber perv stalker is going to find you in Texas so could I have my berka back like today? Chat can now return to its normal dress down casual status.
PS How am I suppose to take doxy for my new possible tick bite if it will clash with my Malarone?
posted
I've read in Dr. Schaller's Babesia book that Labcorp has a test to measure the amount of the Mepron substance that is in your blood.
Posts: 310 | From TN | Registered: Jan 2007
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posted
Thanks Peter for posting this link, I thought I remebered this but couldn't find anything to back up my memory.
Jason - When I was first bit and placed on mepron in 05, Dr B had told my llmd at the time, that he was doing mepron blood levels on his patients. I think there is suspect that some folks maybe having absorption issues while others take mepron and do very well.
IgA deficeincy affects absorption as well as other conditions.
elle
-------------------- When I feel blue . . . . . . its time to take another breath Posts: 296 | From East Coast | Registered: Aug 2005
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quote:Originally posted by elle: Thanks Peter for posting this link, I thought I remebered this but couldn't find anything to back up my memory.
Jason - When I was first bit and placed on mepron in 05, Dr B had told my llmd at the time, that he was doing mepron blood levels on his patients. I think there is suspect that some folks maybe having absorption issues while others take mepron and do very well.
IgA deficeincy affects absorption as well as other conditions.
elle
Is there a blood test to look for general absorption problems? And did Dr. B use Labcorp for his Mepron blood level tests?
Posts: 310 | From TN | Registered: Jan 2007
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