posted
Yellow used to be one of my favorite colors because it was a "happy" color! NOT ANYMORE! lol
Yeah, the 51 vials of blood was crazy. Half of them were the big vials, the other half were the small ones. Still, it took forever, and my vein collapsed and they had to move to the other arm.
I really am amazed I didn't pass out, since sometimes with Babs I feel like passing out anyway. A few times I almost lost it, but my husband kept joking me through it and I just kept saying to myself, "I can't pass out, I can't pass out!!"
It was really cool to find out so much about what's going on in me, though...like some genetic markers, cancer markers, ability to remove molds and toxins, etc.
-------------------- "Never underestimate the power of a few committed people to change the world. Indeed it is the only thing that ever has." --Margaret Mead Posts: 290 | From New York | Registered: May 2007
| IP: Logged |
cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Gena, did you have a flare up after having all that blood drawn?! Yikes, that's a lot.
My LLMD did a ton of tests, too, but she asked me to split it into 2 batches a week apart - she thought doing it all at once could cause a flare up of symptoms.
The most I had was 34 drawn in one day - so it was nothing like your experience, wow.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
| IP: Logged |
posted
You know, I actually didn't flare up after that experience, I actually felt a little better!
I have heard that sometimes after having a lot of blood taken it can almost be purifying in a way. I had a little more energy and it almost felt like a lot of the "bad blood" was taken out. Weird, I know.
The reason I had so much blood taken is because I was traveling about 4 hours to see my LLMD, and I had to go back home that night--and he only trusted this one lab. I didn't want to use the lab at home and I wanted to get it over with!
-------------------- "Never underestimate the power of a few committed people to change the world. Indeed it is the only thing that ever has." --Margaret Mead Posts: 290 | From New York | Registered: May 2007
| IP: Logged |
kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
I had nine drawn last week and asked the nurse how much each tube takes out.
The largest tube takes a little more than a tablespoon.
That surprised me.
Why didn't they just fill up a pint bag with your blood?
posted
I'm still amazed I didn't pass out, really. My doctor told me to have something in my stomach and also sip gatorade throughout the process. I didn't have time to eat before the lab closed, but I did stop and buy a gatorade and every time I felt I was going to pass out I drank some.
I never looked at how many vials there were. I didn't really want to know. Then I saw my husband's eyes get really big when he saw them and I had to ask how many. "27!" He exclaimed--and the girl taking my blood said, "What?! It's ALL of these!!"
Ugh.
-------------------- "Never underestimate the power of a few committed people to change the world. Indeed it is the only thing that ever has." --Margaret Mead Posts: 290 | From New York | Registered: May 2007
| IP: Logged |
Vanilla
Unregistered
posted
If you take one Malarone pill in the morning is it okay to take CO Q 10 at night hours away from my half a dose of Malarone?
sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
I was told to discontinue CoQ10 with Mepron. I'm sure it's the same for Malarone since it has the same drug.
If you feel it's really helping, call your LLMD and ask them if you can do that. Is it really helping, or is it causing less of the Malarone to be absorbed making you herx less?
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
quote:Originally posted by Vanilla: If you take one Malarone pill in the morning is it okay to take CO Q 10 at night hours away from my half a dose of Malarone?
Anyone know?
CO Q 10 really helps me.
hi vanilla,
I am in the same situation. CoQ10 really helps me, but I am taking malarone. I stopped CoQ entirely for 2 weeks, but missed it.
I now take a small dose (30mg) of CoQ10 anyway, as far apart time-wise from the malarone. I still herxed mightlily from malarone, and still the malarone has helped my breathing and babs symptoms.
So, it is my unscientific opinion (but I know my body!) that it has been OK to keep taking a small dose of CoQ10 far apart from malarone.
Posts: 2557 | From home | Registered: Aug 2006
| IP: Logged |
cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
I don't know about adding the CoQ10, but I miss it as well... I just did some checking, and now I can't seem to find my original source that said not to take them together, oops. It's here somewheres...
Is anyone else experiencing nausea and cramps shortly after taking their meds? ...I've tried several tricks for getting this under control, but to no avail. This is a new one on me, and I don't like it.
Taking 250mg zith in the am & pm has helped some, rather than the full dose at once, but it has not alleviated the problem.
I've been taking all abx (zith, omni, plaq, mep) in the am & pm, with supplements and probiotics at mid-day. Artemisinin sometime in the middle of the day as well.
Maybe I need to split it up more - just afraid I'll start missing doses if I do!
How do you take your meds, what is your dosing schedule, if you don't mind my asking?
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
| IP: Logged |
lymeberry
Unregistered
posted
Just reading this thread is making me hallucinate yellow.
IP: Logged |
posted
Vanilla, Laughter is the best medicine. Your humor is heard by these twisted ears! You make me laugh 'till I have tears in my eyes. Thank you.
Yes, many of us are bonkers for Mepron!
I keep thinking about all of those people at the carnival with giant salty pretzles and corn dogs slatherd with that golden sauce...
I always wondered why nobody liked the ketchup. I get it now. Boy do I ever.
Feeling a little Blue? Take your spoonful of Mepron and hold it just under your chin. Does your chin glow yellow? Of course it does! See? Bright and sunny as can be.
-------------------- Be Well Posts: 103 | From Out West | Registered: Jan 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic