Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Thank you Gael (I wouldn't be here without all of YOUR help and encouragement). You're the best! :)
Greta, that is fantastic you tried coffee enemas! It's amazing how many toxins they get out, not to mention parasites. Well worth it, IMO.
Did you like the sea salt enema as much as the coffee enema (I haven't tried a sea salt enema yet)?
Soccermama, adding salt/c to the herbs helped me to expel parasites too. Before that, I didn't see much. I was so chicken to try this, but once I did, out they came.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
posted
Gael, Catgirl - just curious - what herbs are you using?
Posts: 118 | From New England | Registered: Apr 2013
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
I'm on meds now, but I have used humaworm with success, but only once I added salt/c. I think any herbal product will help (with salt/c).
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Parastroy, Humaworm, Hanna Kroeger Wormwood Combo, Hulda Clark. Have used all of these with added salt/c.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
| IP: Logged |
surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
I FINALLY bought a coffee enema kit online- of course, needed it years ago. Thanks everyone for posting about them- it helped.
Tough week- feels like everyone needs stuff from me, and I want to hibernate as I treat and herx parasites before the full moon.
Right now I'm on 'Hilda's Formula' from Elk Mountain Herbs, 3x a day, and other herbs. Switching back and forth parasite drugs and herbs.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Right on Surprise (I love coffee enemas)! They really help me clear toxins.
How much of the tincture (Hilda's) do you take (2 tsp?)? I am not sure how much to start out with.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
posted
Okay, everyone. I have been considering starting the salt/c protocol. Now I have a story to tell that has convinced me it works.
It happened accidently. Yesterday, my youngest daughter woke up with a cold. I started her on powdered vitamin C giving it to her every half hour until she had diarrhoea.
Last night she wakes me up and tells me her bottom is itching and tickling. Lo and behold, pinworms.
Both my girls had taken paragone and kids humaworm for six months.
Now, I know that this protocol must do something. My daughter has not complained of that problem since we initially put her on antiparasitics.
So....Now I have to take the plunge. It will take awhile to gather the strength. I will order the book and when I get done, I will start it.
Posts: 538 | From kentucky | Registered: Nov 2011
| IP: Logged |
surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Soccermama, after I read the book I had a greater understanding, and felt very comfortable- and you start out slow.
I'm not doing it officially right now tho. Probably should be, but have other things going on- still take buffered C powder at night, about 2 grams, and am very liberal with pink Himalayan sea salt.
Thanks Catgirl :-). I just use the dropper, and put about 3 ish dropperfuls or so....
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
| IP: Logged |
GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Wednesday and Saturday coffee enema days.
Today, did salt water enema first. It is more difficult to retain than the coffee one. Creates peristalsis almost instantly.
Finished with that then did coffee enema.
Strange things...
In the toilet (squeemish folks skip this part), there were films of clear mucus with hundreds of tiny tiny orange red dots on clear film.
At first I thought it was blood but they were super bright red and super tiny. Smaller than a pen dot. And the red dots were only in the films. Not by themselves. They also had defined edges-they didn't overlap or bleed into the film.
When I tried to catch the film with chopsticks (god I can't believe I'm admitting this), the film was super slick and fairly heavy-slipped right back into the water. The red dots didn't wash off etc. Definitely part of the clear film.
Has anyone had these things in film?
Is this biofilm? Or is biofilm microscopic?
I also had a fair bit of nausea while enema-ing this time. Is this par for the course?
OK hope nobody has food tonight for dinner that requires chopsticks...Sorry!
[ 09-18-2013, 10:55 PM: Message edited by: GretaM ]
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Thanks Surprise.
Soccermama, that is great your daughter is noticing a symptom after adding powdered C (maybe pinworms)!
Greta I have to laugh (chopsticks)! Hey, whatever works for investigating (you're not alone here).
Mucus is a good indication of parasites. I am not sure if the mucus is biofilm though. I always thought it was yeast, but I don't know for sure. I passed lots of mucus for a long time, then eventually worms. Maybe those tiny dots were eggs (full moon)?
I have never had nausea with coffee enemas, so I'm not sure what's causing it for you (sorry).
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Thanks Catgirl Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
| IP: Logged |
surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Well, I am finding I have a rather serious liver fluke issue- after all this time treating, liver flukes- red- are now showing up- it's actually quite scary.
It's like I had to get through some other ones to get the flukes to show up like this-
I was feeling constipated (been eating more food) so I stopped all my herbals today, and took a Tindamax early a.m. (I'm not on antibx)
Why Tindamax? I don't know. It seemed like a good idea at the time. But I crashed a few hours later- took to bed, emotional, crying...
Then, did a castor oil pack, dry skin brush, Epsom salt bath, milk thistle, NAC, VSL, ate light, rest, drank magnesium citrate, rest again, some hours go by and,
Another very large expulsion of more liver flukes. Alarming. Looking forward to my coffee enema when it arrives.
Still, after all this time, stunned at these parasites in my body, what destruction it must have been doing.
Spending tomorrow doing more detox.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Right on Surprise! That's awesome they are exiting after all this time (and passing them twice in one day, wow!)! You sure hit them at the right time too (full moon).
And I know what you mean about the progression of things exiting. These parasites never cease to amaze me. Great idea about the castor oil pack and all the detoxing you did too!
I've never tried Tindamax, but heard it hits parasites. I also think just the act of rotating stuff hits them with their guard down, as they were probably already adapting to the previous meds or herbs. I hope you feel better soon. :)
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Thanks Catgirl! I also think it's the rotating of the parasites meds and herbs-
I did the tried and true Hilda Clark 3 over full moon, and Albendazole before that, both hit flukes, I think the 1 tablet of Tindimax
just got me sick enough to seriously detox, which got them out. I've been knowing I need to up liver clean and detox- got a little lazy, then stomach problems.
Feel like a veteran sharing war stories. Take care everyone, detox your livers----
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
| IP: Logged |
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
If you combine the antiparasitic herbs WITH the salt/c it can pack quite a punch. The parasites hate salt and they run for the hills and hopefully into the toilet. You can order the salt/c plus book from Amazon and get support from lymestrategies.
I am all for whatever works, but from what I have read from other posters, you have to stay on the pharmas for quite a while and they are hard on the liver. Some folks have success alternating both salt/c and herbs and the pharmas.
I also add Super Digestaway by Soloray (also antiparasitic) as well as combining Parastroy with Hanna kroeger Wormwood, extra cloves, and coconut water and coconut oil. Keep us posted with your progress and good luck.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
| IP: Logged |
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Bringing this up for all the newbies on the board who are struggling and searching for answers. Hope all you warriors are doing well.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
| IP: Logged |
surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
After seeing all the liver flukes, I decided to try and detox and repair my liver for a bit- off parasite treatment for a week,
and doing daily coffee enemas and castor oil packs- these alone and I'm expelling parasites- seems my body is ready to let go.
One thing: I see why it's better to treat parasites 'first' I am worried they are releasing bacteria, as I have been experiencing symptoms of this-(I'm off antibiotics)
Also, not to get 'woo woo' but as my liver gets cleaner, parasites leave, I have had emotional releases/ healing.
Warriors indeed, this hasn't been easy by any means at all. But, when I'm feeling 'good' it's some of the best I've had.
Planning on trying Biltricide on Saturday for the first time, hoping to get more (the rest!) of the flukes- very nervous. Actually, scared. But I'm on a roll here.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
| IP: Logged |
CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Wow, this is encouraging Surprise. Can i ask if you have had any "out of the ordinary" exposures to parasites....or do you think you just picked them up via the normal USA lifestyle?
Every morning I wake up toxic and tachycardic. Then around noon I get crawling scalp neuropathy and head squeezing feelings all over face and scalp. This is accompanied by brain fog and head pain between the eyes and top of head.
I have had some other psychiatric improvements on other treatments for which I am grateful.
High dose clove oil, pulsed artemesinin, one month long attempt at salt/C, an herbal preventative called Botanifuge, and every other day Ivermectin for 6 moths yielded no "hits" or improvements. What else should I try?
Posts: 3528 | From US | Registered: Apr 2007
| IP: Logged |
CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Wow, this is encouraging Surprise. Can i ask if you have had any "out of the ordinary" exposures to parasites....or do you think you just picked them up via the normal USA lifestyle?
Every morning I wake up toxic and tachycardic. Then around noon I get crawling scalp neuropathy and head squeezing feelings all over face and scalp. This is accompanied by brain fog and head pain between the eyes and top of head.
I have had some other psychiatric improvements on other treatments for which I am grateful.
High dose clove oil, pulsed artemesinin, one month long attempt at salt/C, an herbal preventative called Botanifuge, and every other day Ivermectin for 6 moths yielded no "hits" or improvements. What else should I try?
Posts: 3528 | From US | Registered: Apr 2007
| IP: Logged |
dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
CD57, I get the head squeezing feelings all over my face and scalp as well - especially in left side of upper jaw. I often wonder if this is parasites.
I also get bug crawling sensations in different body parts almost every day for a few seconds. Especially my shins, but also hands, legs, scalp, face.
I started MMS enemas not long ago. I am only at a few drops. It is potent. Still no visible parasites exiting. My LLND thinks that when I get up to 10 drops, it is likely I will start to see some 'wigglies' exiting.
It is frightening to think that these creatures could be wreaking so much havoc in my body, but I so want to get better like everyone here!
Surprise, thanks for sharing your experience - as it helps us all. Good luck to you!!
Posts: 2387 | From New England | Registered: Aug 2011
| IP: Logged |
CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Wow, this is encouraging Surprise. Can i ask if you have had any "out of the ordinary" exposures to parasites....or do you think you just picked them up via the normal USA lifestyle?
Every morning I wake up toxic and tachycardic. Then around noon I get crawling scalp neuropathy and head squeezing feelings all over face and scalp. This is accompanied by brain fog and head pain between the eyes and top of head.
I have had some other psychiatric improvements on other treatments for which I am grateful.
High dose clove oil, pulsed artemesinin, one month long attempt at salt/C, an herbal preventative called Botanifuge, and every other day Ivermectin for 6 moths yielded no "hits" or improvements. What else should I try?
Posts: 3528 | From US | Registered: Apr 2007
| IP: Logged |
surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Thank you for the support- I get very embarrassed with what I post sometimes.
Ironically (though now I know it's not) I have only travelled 1x out of US (to Aruba) have always asked for my meat well done (in fact won't eat it if not)
hate sushi, am fussy clean, always washing everything, never owned a pet! no pets in my house entire adult life (but mixed with stray cats 15 years ago outside, perhaps infecting me w/ Bart Lyme)
What I believe: everyone has parasites. But when the immune system is low (infections) it allows them to flourish. Their reproduction rate is horrifying.
I've treated and treated these things- but stopped or took breaks- months- off- I've had doubled over right side stomach pains-
can't get off the floor- can't move- had gall bladder and liver checked by western medicine Dr.s- all okay, they said. Haven't had an attack since I started treating parasites again.
It's very important to keep the bowels moving- I've used Oxy powder- glycine enemas- now the coffee enemas.
If you've tried herbs (the Hilda Clark 3, etc.) salt/C, haven't seen or noticed anything, I'd then try Albendazole - powerful.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
| IP: Logged |
GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Surprise -that is great news about the liver flukes!
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
| IP: Logged |
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
CD57,
Try adding antiparasitic herbs such as Parastroy to the salt/c. The combo seems to pack quite a punch.
The three most important herbs for getting rid of parasites are Wormwood, cloves and black walnut hull. Surprise, Please don't be embarrased about the parasite infections.
It has nothing to do with being clean. I am super clean about everything and was loaded with parasites.
When your immune system is compromised you are much more vulnerable picking up parasites even from green leafy veggies. Not to mention what the ticks are carrying, especially the Filarial worm co-infection.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
| IP: Logged |
GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Anyone else getting 3am wakeup calls from these bugs?
It seems like I wake up, feeling irritable, at 3am, and can't fall back asleep.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
| IP: Logged |
dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
Greta, this is the norm for me. It is so frustrating. I am not sure I ever got back to sleep this morning. I don't have any physical symptoms like stomach aches or cramping, but instead, my mind is too active to return to sleep.
Posts: 2387 | From New England | Registered: Aug 2011
| IP: Logged |
desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
I always wake at 3:00 am - especially when I am treating for parasites. Very interesting.
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
| IP: Logged |
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
According to what I have read in the past, that's when they are most active. Kinda like when spirits are said to appear between 3-6am.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
| IP: Logged |
GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Dbpei, Desertwind and Gael,
Thank goodness it's not just me.
Yes, at 3am, I don't have to go to the washroom, it's just like my mind becomes alert/active instead of being in a sleeping state.
And I feel irritable, but not sure if that's just because waking up at 3am on a workday stinks.
Haha.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
| IP: Logged |
posted
Gael, I too have heard that at 3:00 AM the spirits roam. A couple of times this week by different people.
Posts: 722 | From CA | Registered: Dec 2011
| IP: Logged |
dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
Up again since 3 a.m. Posts: 2387 | From New England | Registered: Aug 2011
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
I used to wake up at 3:00 like clockwork. My acupuncturist said it was a sign of adrenal issues and treated my adrenals. It helped, but didn't take it away completely. My sleep was light back then too. It felt like I couldn't hit rem sleep.
I think between treating parasites, detoxing heavy metals, and taking dhea/pregnenolone, it left. Turning off the wifi gave us much better rem sleep too. If only everyone knew about how bad wifi is for everything on the planet (cell phones, etc). It's ruining us, our environment, and helping the bugs grow (we deteriorate).
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
I'm back on salt/c and loving it. My adrenals must have needed it (feeling better). I'm never giving this stuff up.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Catgirl,
So glad you went back on salt/c! It has def been a game changer for me. It is excellent support for the adrenals and immune system. I will always stay on it as well.
I also take panothentic acid (b-5)(1000-1500mg a day) for my adrenals. Coconut water is also an excellent source for energy as well as balancing electrolytes especially when on salt/c.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
| IP: Logged |
surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
I'm back to taking pink salt w/ water and buffered vitamin C in the morning, and I also noticed a difference.
Biltricide yesterday wasn't as scary as I thought- just cranky- not too far from the norm ;-).
The coffee enemas, however, have been revealing. I don't enjoy the task/ etc. but made a pact with myself to do 1 a day 30 days,
they do flush out parasites.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Thanks Gael! I'm going to order some b-5. I wish I could do the coconut water (can't take the sugar), but b-5 I can do. :)
Surprise, coffee enemas, I know, right? It's a pain in the butt (lol) as it takes an hour out of my day and I have to time it away from meds/herbs/supplements, but IMO worth feeling better.
I'm glad bilt was okay for you. Have you seen any more flukes, or are you still seeing tape worms? I get a mix of different things (glad they are out).
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Hey Catgirl it is a mix. Can't bear to go into detail, but very plain as day. It's astounding, STILL.
So, glucose and the parasites: apparently, the anti- parasite drugs starve their glucose, and that is how they die (at least for biltricide and vermox)
I started Vermox/ Medbendazole - I have been craving sugar like crazy these last days, and yes, I am cranky.
Any ideas? I am doing detox, doubled probiotics. I actually started Diflucan again.
Does adding molybdenum help?
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
| IP: Logged |
gmb
Unregistered
posted
I plan do start a round of Parastroy within two weeks, and need some advise without wading through this long topic.
I've been off all ABX and Buhner type herbs since this past Sept 19 while on two rounds of Coartem. After a reasonable wait time I want to take one week of Diflucan before I start layering back ABX protocols.
Is it OK to take Diflucan then start Parastroy within a few days? Then how long would you advise I wait until starting Rifampin? .... then Plaquinel and then minocycline. I always add only one new ABX at a time just in case, even though I've taken all of these in the past without ill effects, but have not taken all together.
I will most likely go back on Salt/C within a week of adding Parastroy.
surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
gmb, sounds like a good plan, parasites and yeast stick together a lot.
The only thing I would say: Rifampin (my experience, and others I've read) becomes ineffective going on and off- and, it's a whammy to the liver with that weird pathway
anomaly, and interferes with other meds if you are on them...
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Surprise, wow I didn't know about the glucose with bilt and vermox/mebendazole. I am not sure if molybdenum would help. Diflucan helped me a little, but florastor seemed to help me more (not on diflucan days though--kills it).
Gmb, fantastic you are going after parasites! The diflucan and parastroy sound okay, but I would wait on the abx. I'm no doc, but diflucan is hard on the liver, and like Surprise said, so is rifampin (I think plaquinil is too).
I also wouldn't do salt C on top of all that. I can handle the herbs and salt C, but not abx and salt C. And I can only handle a tiny bit of herbs while on abx (just me). I hope this helps.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
posted
Good evening everyone! Thankfully I have a llmd who explores all avenues. I have been back in treatment now for 5 weeks (after 2years off) Mino, alinia, lots of herbals and starting this week (when I get order) parasite regimen. I'm nervous to start due to herxing and after my appt last week and starting new antivirals Friday, I believe I am herxing now as it is.
It is praziquantel, ivermectin, pyrantel pamoate and albendazole. I am admitingly afraid of the die-off reaction since I had such a horrific experience with chlorella a few weeks ago.
Any advice for me before I start this?
Posts: 93 | From PA | Registered: Nov 2009
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
That's great you're going to treat parasites!
If you haven't tried them already, coffee enemas really help. IMO, they are a must for anyone with detox issues. They help the body to remove lots of toxins that the parasites expel as they're dying.
Did your lyme specialist give you something else to bind it all?
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
Yes, I am taking pectasol clear twice a day. I haven't brought myself to check coffee enemas yet but do see them mentioned often so I better.
I could have die-off / herxing correct? According to my ART testing, I am loaded with parasites and virus so I am hopeful that this will put me on the path to remission.
I also bought the salt/c book to continue on when I am done with the rx meds since I gather this a lifelong commitment, correct?
Posts: 93 | From PA | Registered: Nov 2009
| IP: Logged |
gmb
Unregistered
posted
Suprise and Catgirl, thanks for the input.
When I plan to start layering on the ABX I would stick with them in combo for several months, not individually in short term.
Last time I was on Rif I had been previously on Zith/Mepron/Augmentin. I then dropped Mepron and Augmentin, stayed on Zith and added Rifampin. Then a few weeks later added doxy, and stayed on that 3 abx combo for several months.
Its the Paratroy that is new to me that I'm concerned with. I've handled some pretty heavy herbs in the past like Cyrto/Sida Acuta, and Alchornia, on top of Mino, Bactrim, Alinia, and Diflican (latter for only six week) with OK results. I always add only one new item at a time to be safe.
Maybe I should just do Diflucan alone for a week after stopping Coartem, then add Parastroy for two weeks, drop the Diflucan, continue to complete the Parastroy course while starting Rifampin and add from there.
As far as Salt/C goes, I had started ramping 1/4 tsp last January while on IV Rocephin, and Zith, Mepron, Bactrim combo. By March I was up to 1 full tsp twice a day with no adverse effects. So I think I can handle it and you all say its goes good with the parastroy.
This 24 day cycle of Coartem is my first time off all ABX since starting treatment back in March 2010. I was due for a break, and feel I got Lyme in remission, but I need to find out what is left to clean-up to get me beyond 80%.
So its one last pass at Babs, and hit parasites, then one last shot at Bart before the end of November when I will be on next year's health care plan. Whatever version I can afford won't be known for another 30 days or so.
If that doesn't help then maybe address Proto and go on that starve to death diet plan.
thanks again... I'll let you know how it comes out (no pun intended)
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Peyjad, die off herxing depends on how much stuff you are doing. Low doses of parasite meds don't do much for me, but higher doses make me herx. I think between the pecta sol clear and salt c you should be covered. Yeast inevitably pops up in the whole mix too.
Yes, I believe treating parasites should be a life long maintenance thing (like we do with cats, dogs, horses, etc).
Gmb, it really sounds like you know your body well and have a good plan of attack. I haven't taken parastroy, but Gael has. She can provide some great in put here.
I have needed to use diflucan during parasite treatment as yeast comes with the die off toxins. I just pulse it as I need it. I'm not sure if you are on binders, but they would be good here to help clean up the toxins.
Wow, that is great you were able to do salt c on abx. Goes to show we are all different with different tolerance levels. It sounds like you're doing things slowly and safely too (good thing).
Hang in there and keep us posted!
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
gmb
Unregistered
posted
I have the new script for Rifampin, mino and plaquinel that my LLMD wanted to try if Coartem failed. I spoke with my LLNP in last visit about parasites, but she thought it would be to much to treat right now.
In my "pharmacy cupboard" I have left over Diflucan, Zithromax and Bactrim from recent past protocols that I want to use up before they expire. Trying the Parastroy now was my idea to get this out of the way and gauge future therapy.
I'll see how I feel next week after another 5 days of Coartem. I say go for it. I've been a good patient up to now sticking with prescribed meds and sups and have been pretty aggressive.
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
gmb,
This is what I would do and have done for myself after abx. I did salt/c and antiparasitic herbs plus extra cloves, digestive enzymes (Super Digestaway by Soloray, coconut oil, kefir, and coconut water. I also gradually added Hanna kroeger Wormwood Combo to the Parastroy.
I am very conservative when starting anythng new, so ramping up slowly always felt safer for me. I ended up doing 4tsp salt/c in divided doses (ramping up 1/4tsp at a time)per day.
The KEY also for me was when I "SAW" the parasites being expelled. That was when I knew I was on the right track. This is what I would try first. You can always do the abx later on.
Hope this helps give you some insight, and of course it's just my opinion and not medical advice. Keep us posted.
Good Luck!
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
| IP: Logged |
gmb
Unregistered
posted
Thanks, it gives me a direction. I'll start Diflucan for a week or two and stop, then add in Parastroy and salt/C. I can then phase in some your other supplements as I go.
Would you consider buhner's herbs like Crypto, Sida and Alchornia OK at this phase? For a binder I'll stay on Chlorella.
I just took my first dose of praziquantel with dinner and am looking everywhere tryin to figure out how far to space all of these anti parasitic meds from other meds/herbal/supps..
I take minocyline, neem, mag tab sr, b12, florastor, body biotics, fish oil, caprin, A.D.P., fc-cidal, viressence, biocidin and PC- samento, chlorella and finally pectasol-clear...PHEW!
Now I have to fit in praziquantel, than pyrantel Pam & Iver and albendazole
Do they have to be 2 hours from all else or can I take them with all but probiotics? My Llmd only told me I could take all herbals with everything else and chlorella and pectasol separate and mag 2 hours away from ABX but didn't mention about parasite meds.
I don't know when to fit all this in, it seems I should be waking round the clock to fit it all in
Any suggestions? I don't want to take them wrong and have them not work properly
Posts: 93 | From PA | Registered: Nov 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Wink]](wink.gif)
![[Smile]](smile.gif)
![[Big Grin]](biggrin.gif)
![[Frown]](frown.gif)
Printer-friendly view of this topic