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» LymeNet Flash » Questions and Discussion » Medical Questions » Newbie Learning Help Links 5/21/08 (Page 5)

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Author Topic: Newbie Learning Help Links 5/21/08
bettyg
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Cave and Tree, I copied & pasted Minou's link letting her decide where she felt it would be best in her links.

Tree, I don't think this is in your links but resurfaced lately; would be outstanding addition since it covers IV insurance coverage!

Could you show it as is in the links so folks know exactly what the link is? Thanks my good friend Tree! [group hug] [kiss] Bettyg [Big Grin]

Timaca's Appeal Letter to Insurance Company on IV COVERAGE
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=print_topic;f=3;t=014009

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treepatrol
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quote:
Originally posted by bettyg:
Cave and Tree, I copied & pasted Minou's link letting her decide where she felt it would be best in her links.

Tree, I don't think this is in your links but resurfaced lately; would be outstanding addition since it covers IV insurance coverage!

Could you show it as is in the links so folks know exactly what the link is? Thanks my good friend Tree! [group hug] [kiss] Bettyg [Big Grin]

Timaca's Appeal Letter to Insurance Company on IV COVERAGE
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=print_topic;f=3;t=014009

2/3 way down I put it in on Page 4.

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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treepatrol
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Updated a bunch

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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treepatrol
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updated page 3


Page 3.
Flagyl,= List of ****dazole's that I have found
Cyst's Treatment

ABX= Antibiotics
ABX's SpreadSheet
{Compounding Pharmacy} Give me your links to each State,Local.

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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treepatrol
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The top 10 things most important to know about lyme tx
The Top 10


updated p 5.

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

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treepatrol
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Updated section on troll behavior.

Interested in what Trolls are?
1. 1

2. 2
3.Sorry to See it
4.Sorry to See it Happening
pq's Article on Trolls
The latest example 9/12/06

The highlighted bold one is the updated near bottom of page 5.

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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treepatrol
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Page 3. Update


IntestinalFlora
Supplements
Bulk Supplements

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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treepatrol
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updated page 3.

Itching ??? This Helps!!!

Itching??? THIS HELPS!

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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treepatrol
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page 3 update


Alzheimer's
Images of Borrelia in Alzheimer's Cave76
Borrelia in Alzheimer's disease
Elderly Alzheimer's
Dr Macdonald's Pod Cast Plaques in Alzheimers Not Just ALZ

Dr Macdonald's Pod Cast Plaques in Alzheimers resurrect the NeuroSyphilis Literature

ALS

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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treepatrol
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Updating

Here
Studies LYME DISEASE MEDICAL LITERATURE

Dr Macdonalds Website on What's been found in Alzheimer's Definite Lyme {{in all it's form's}}Correlation's
Medical Literature

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Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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Tincup
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Woah! TREE!

I hadn't checked in for a while.

This is fantastic! Looks REALLY nice!

Thank you!!!

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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treepatrol
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I have been trying to hold my end up since went the more direct route [Big Grin] TC good to cya here

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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treepatrol
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Iam on vacation from 10/07/2006 until 10/16/2006


[Big Grin] [woohoo] [Big Grin]

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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bettyg
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Tree, please add after you get well-rested from your much needed vacation!

OSTEOPENIA, OSTEOPOROSIS from Kitycat. 2002
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=print_topic;f=1;t=007952

Thanks Tree! Bettyg [Big Grin]

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bettyg
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DRUGS ASSOCIATED WITH LIGHT SENSITIVITY by Minoucat
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=048201
******************************

please add as time permits Tree! Hoping you're enjoying all the fall foliage colors everywhere you go...Bettyg [Big Grin]

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treepatrol
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updated page 5.

Interested in what Trolls are?


Lou B's Troll Link

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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treepatrol
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Flouroquinolones, and Quinolones by PQ
1

2

3

4

5

6

7

8

9

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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treepatrol
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updated your gona have to seach to see whats new this time! [Big Grin] [hi]

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

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AP
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Betty Suggested I bring this to your attention:

Hello fellow Lymies, I've been reading the posts about citruslyme, and know others are in need...

I don't know why this didn't dawn on me earlier (probably the neuro problems), but there's a website called Live for the Challenge ( liveforthechallenge.com ) that is a registry for "everyone wo is currently struggling with medical difficulties."

Basically, those who register, pick out things that they need to survive, and people come around, read about you and your needs, and donate what they can. The perk to this is that people know exactly what you need.

--------------------
Sometimes when I say �Oh, I�m fine� I want someone to look me in the eyes & say �tell the truth�

Myspace: http://tinyurl.com/5p64ed

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treepatrol
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updated

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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bettyg
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Hereditary Angioedema by BLACKBIRDSINGS 11-3-06

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=3;t=016282

Tree, would you add this next time; DON'T think you have anything about EDEMA swelling like BBS has. HOPE YOU ARE BEGINNING TO FEEL BETTER!
Bettyg [group hug] [kiss] [group hug]

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lymedad
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We were able to purchase the following Rocephin (Ceftriaxone) and infusion supplies from a pharmacy in Anaheim California.

The total cost is $1300 and the supplies are for 30 days.

Of course we had to provide a prescription from our LLMD and the pharmacy required a credit card payment up front.

Our health insurance company has already denied payment on these supplies more than three months ago.

I have to mix the antibiotic and sterile water, load all of the syringes and make sure everything stays sterile, but compared to the $760 per week cost of our previous supplier, it's well worth the effort.

Unfortunately I haven't received a cost per item breakdown on the supplies.

1. Ceftriaxone 2 Gram Vial Powder Form - 30 each

2. Sterile Water 20ML Vial - 30 each

3. Sodium Chloride 0.9% 30ML Vial - 22 each
(10ML NaCL for each flush - 30 X 22 = 660ML total, enough for 66 saline flushes)

4. Heparin flush 30ML Vial - 5 each
(5ML Heparin at end of each infusion - 30 X 5 = 150ML total, enough for 30 flushes)

5. IV 12'' extension tubing - 10 each
(Change extension each time bandage changed)

6. Syringe 20 ML - 30 each
(Used for reconstituting antibiotic and for infusion)

7. Syringe 10 ML - 90 each
(Used for infusing saline and heparin)

8. Dressing Change Kits with Chloral Preps - 5 each
9. Alcohol prep pads - 200 each
10. Latex Gloves - 100 each
11. Sharps Container 8 Qt size - 1 each
12. 18gauge X 1'' needles - 30 each
13. Stat Lock dressing - 5 each

The procedure for infusing the antibiotic is always:

SASH

Saline - Antibiotic - Saline - Heparin

I'm certainly not a medical doctor, nurse or anything else other than a father with a daughter who needs my help.

I have had several extensive classes in first-aid over my 25 years in the military.

But to be honest with you, my daughter does her own infusions about half the time.

In addition, she's even been doing her own dressing changes. She's had the PICC line since June 13th and it still looks great.

When or if I get a complete itemized cost breakdown I'll share it with you.

I hope this has been beneficial for some of you. I do know the Rocephin has worked wonders for our daughter. She's gone from a stooped over zombie in great pain to at least a human being again.

We still have a long road ahead, but we can see the light ahead. Thanks to all of you on this board who have helped with your knowledge, encouragement and prayers, they're working.

LymeDad

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treepatrol
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up dated

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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treepatrol
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Fixed a bunch of links and added new ones. Sorry I havent been doing much lately but this is the first day since my vacation return {{oct19th till nov 13th}}that I havent felt really bad.
I started feeling relly crappy even before mepron&biaxin xl treatment started nov4th/06 now Iam hoping its effecting whatever I have.I havent been sweating hardly at all thank god. I even stained front porch posts and allmost all the railing on 11/10-11/06 and no sweating but really sore whew. I hope this continues to get better.

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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treepatrol
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updated abx's bloodbrain barrier stuff bottom page 2.

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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bettyg
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http://flash.lymenet.org/scripts/ultimatebb.cgi

Tree, please add the above please; thanks!

Hope you are FINALLY feeling better and like your OLD/YOUNG self again! [Big Grin] [group hug] [kiss]

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lymedad
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TreePatrol,

I was asked to post the following letter here. If you think it inappropriate, please don't hesitate to delete it, or let me know and I'll delete it.

Betty G thought other newbies might get some benefit from our story.

LymeDad

------------------------------------------------

A couple of weeks ago I read two separate posts from young people suffering from Lyme who were really struggling with convincing their families that their disease was real.

I offered to write a personal letter to their families highlighting what we have gone through as a family for the past 5+ years (my daughter suffers from Lyme and 3 co-infections).

One of the posters to whom I sent the letter has asked that I post it here in the General forum. My only reason for doing so is in the hope that someone else might benefit from our experience and be able to share our story with their family.

I've included the letter below (I deleted all the personal references from the original letter).

-------------------------------------------------

I'm not really sure where to start so I'll just write what I know.

My name is XXXXXX. I am a retired SMSgt (4 years in the Seabees, 21 years USAF), living in southern California. I'm 59 years old, a veteran of two tours in Vietnam and a Christian man with a family that is hurting.

I'm not trying to sell anything and I'm certainly not trying to get involved in anyone's family business.

I just know that my family has been through a nightmare for the past 5+ years and I thought that if I could help anyone else by simply writing a letter, I would certainly try to do so.

I hope that you will take the time to read the following and see if maybe your family is experiencing some of the same things we have.

My daughter, Nicole (28 years old), has Chronic Lyme disease. She suffers every day from pain in most of her joints and muscles.

She also gets migraines so severe that she's unable to get out of bed for days at a time. She's had flu-like symptoms so bad she's been unable to keep much on her stomach for weeks at a time.

She's experienced time where she's been unable to speak clearly and she has problems with her short term memory.

This has been going on since January 2001.

Nicole was and is a very bright, engaging young woman who is now stuck living with her parents.

She has been so ill that she was forced to move back home and that is probably the worse thing about this illness, she's just not capable of taking care of herself.

Her first family doctor diagnosed her with Fibromyalgia Syndrome, Chronic Fatigue/Chronic Pain Syndromes.

The typical treatment for these ``diseases'' was to prescribe pain medications, antidepressants and anti-anxiety medications. Of course this only treated the symptoms, not the cause.

Nicole then began the rounds of being tested by all of the specialists. For a period of more than 4 years she saw so many different doctors we've lost count.

She's been to a rheumatologist, a cardiologist, two neurologists, a psychiatrist, a psychologist and two different family doctors; you name it she's seen one.

She's had at least six MRIs of her brain, two spinal taps, so many x-rays we've lost count.

She's been to the Emergency Room of our local hospital so many times that they know her by her first name.

She's been admitted to the hospital on three separate occasions for more than a week each time.

She's had so much blood drawn that she no longer even cringes when they stick her with a needle.

It wasn't until we were referred to a doctor in northern California that we finally found out what she has.

She and I made the 9 hour drive up the coast to see this doctor. He spent more than 3 hours just talking with us. He then drew blood and had it sent to a laboratory that specializes in testing for Lyme disease.

The results were just what he predicted, she tested positive for Lyme disease and three other co-infections.

All of the bacteria in her body came from a tick bite. In fact we even remember when she was bitten.

In 1996, Nicole and several of her friends went camping in the mountains above Ojai California.

When she returned four days later, she discovered a fully engorged tick in her scalp. We didn't think much about it.

We now know what it has done to her.

Nicole has been taking several courses of oral antibiotics from late 2005 until June of 2006.

In June she had an intravenous tube placed in her arm, called a PICC line. She now infuses antibiotics through the PICC line directly into her blood system.

This IV infusion has made a world of difference.

She no longer needs her wheelchair, she is able to get out of her room for about 6 hours every day and her ability to communicate with us and her doctors has improved tremendously.

We're starting to get our child back.

I wanted to tell you that when she first became ill I thought it was just her imagination. I thought she was just being lazy.

She would call me from work and say she was just too sick to drive home. I'd go to her job and drive her to her apartment.

I wasn't very patient with her. I just didn't understand.

The cause of the pain and other neurological symptoms she goes through doesn't show up on an x-ray or in routine blood tests.

She doesn't look sick from the outside. It was an extremely rough time between her and I the first four years of her illness.

I am probably the world's biggest cynic (must be the military training).

If I couldn't see the problem, I didn't believe it existed.

How could my daughter be so sick and not have it show up on any routine blood test or x-ray.

I assumed she was either faking it or like I said, just lazy.

The real problem with this disease is that there just isn't much known about how it works in the body. In fact many doctors don't even believe it is real.

Most health insurance companies won't even cover the procedures needed to treat this nightmare.

We've had to pay for about two-thirds of her treatments out of our savings.

Let me tell you, it's been a tough ride. I've gone to almost all of her doctor's appointments over the past five years.

I've listened to them tell her nothing is wrong. I've seen the disappointment on her face, especially when she and I have had arguments about her illness.

I've not been the easiest person to get along with, in fact, at times I've been a real jerk.

Her mother and I have watched and listened when she has been so sick she can't get up off the bathroom floor for hours.

We've watched as the paramedics have come into our home to take her to the hospital.

We've watched as she has become so ill she has to have a wheelchair to even get to her doctor's appointments.

I've done all the research I can over the internet and from books.

Lyme disease is real.

I'm not sure where you and your family are with this problem. I just know it's been one of the toughest things I've ever had to face.

Well that's about it. That's our story. I hope I've been able to convey to you and your family how real this thing is.

It wasn't until I saw a difference the antibiotics have made for my daughter that I finally became convinced that she has been suffering beyond anything I could have imagined.

Maybe I just didn't want to admit I couldn't fix it, so it couldn't be real.

I have a lot of things to work out with Nicole when she is well enough. I've hurt her and I have a lot to make up for, but that's going to come.

I'm convinced we will lick this thing.

I only hope that others can read this and understand that someone else has gone through the same things as you are.

You are not alone.

If you'd like more information, one of the best sources I've found is at the LymeNet website.

I've spent many hours reading of other peoples struggles and advances on this site:

www.lymenet.org

Your family is in our prayers.

Sincerely,


LymeDad

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bettyg
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tree, i thought this would goo added around the BUT YOU LOOK SO OOD/ NO SLEEPING.

tree, thx; nd hoping youfeeling bettefr.

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bettyg
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hi tree, how are you feeling now? over that crap you got while on vacation in oct?? hope so!

just readthis about someone's bad dr. visit, igenex testing, and this poster's response was very enlightening;

not sure where you can post this, but good stuff here!


radiogirl
Frequent Contributor
Member # 9202
posted 14-12-2006 06:31 PM

Hi Panic,
I wanted to tell you that first your concerns are valid.

But science is leeps and bounds ahead of your ID doc.

What scientists learn now could be 10 to 20 years away from your doctors office.And IM not talking about big pharma scientist.Interests are different there.

If you would like to investigate a microbial basis for your condition you might be surprized to find that infection should be considered suspect number one according to some of the worlds leading scientist.

Start with www.immed.org look at the qualifications of the people associated with that organization.My panel of ID docs couldnt hold a candle to those scientists read the bios of the doctors there.

You can also go to www.roadback.org and chat on the bulletin board and speak with many who treat diseases with abx alot of those diseases people are given no hope in the traditional world and treated with chemo-like drugs and immune suppressing drugs.

On abx they go on to live normal lives.But of course the earlier the better for recovery

I am a former radio show host who had CFS/FM and treated by a panel of doctors because friends of the family were large contributors of the hospital and I was feeling so ill.One member of that family passed away yesterday and Espn has run tribute to him all day .Well deserved I might add.I dont watch alot of football but my husband is from Kansas City and adored said philanthropist who played a huge part putting together NFL.

The point Im trying to make is I thought I had the best care anyone could have and yet I was getting sicker.The more I tried to tell the ID docs to look at infection (I felt sick) I just became an annoyance.Their tests always showed nothing so It was all in my head after that.

Then one day I had Dr.Katherine Poehlmann on my show and a whole world opened up.She led me to many resources that said of course if you feel sick you probably are.She was ill herself.She is no slouch as she was a part of the Rand think tank.And cured her RA with abx not immune suppressing drugs.

Her website is www.RA-Infection-connection.com its about alot more than RA .Many illnesses explored there being of microbial origin.

I went to www.immed.org and my regular GP said what the heck lets try it.You can find treatment considerations on the site.Three days into doxy I sware I wanted to die and I even called Prof.Nicolson and said are you trying to kill me.

He said you are now on the road to regain your health.Keep going and I did.You see the microbes are many and I understand you wonder if its Lyme.

There are many bacteria that can cause all kinds of havoc in the body.But testing is another matter .Its not like House where they scratch their heads and he looks under the microscope and says AH-HA.I tested with Igenex one doc said it was neg one doc said positive.

I also tested positive for C.and m.pneumonia with c.pneumonia out of range .I went ahead with the abx knowing that I might not ever know exactly whats running around in there as Ive been so immune compromised.

Dont ever let a doctor ID or otherwise tell you lyme or any other illness is a fad or unreal.They ARE NOT QUALIFIED to tell you that.

Go ahead and begin your investigation and you will find that there are many doctors who do subscribe to the infectious theory behind disease.
Lyme as well as other microbes.

Roadback.org helps autoimmune patients find them and when you read the history and maybe the book recommended there it will help too.Although I am not on the marshall protocol a very serious protocol not to be taken lightly but there are many infectious conferences and access to published material you can look at on that board but I am not promoting that treatmant.(contriversial)www.marshallprotocol.com

Well Ive rattled on abit but if you get a positive Igenex believe it.And give yourself a shot at health if you have felt unwell.ABX will either help or not.But be informed.I wasnt and I paid a price.I hope Ive helped somewhat.

And if anyone comes along and reads this and is a football fan or from the great state of Mo.Im sorry for your loss of the gentle giant who so loved your state and the game of football....Lamar Hunt one fine fine gentleman,RG
------------------------------
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hshbmom
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The CDC published their case definition of Lyme disease for Public Health Surveillance to provide uniform criteria for reporting cases of Lyme Disease. Part of this definition is listed below.

(Revised 9/96) Clinical description http://www.cdc.gov/mmwr/preview/mmwrhtml/00047449.htm


Get your county declared endemic!

The CDC's definition of an endemic county is a county with 2 confirmed cases of Lyme disease. TWO!

You may know of at least 2 confirmed cases of LD in your county.

We can get our county declared endemic for Lyme disease. This step will help overcome one familiar obstacle to the diagnosis of Lyme disease...the "We don't have Lyme disease here" syndrome.

A history of "exposure" depends on whether your county is considered endemic.

Also, many of us have photos of our EM rashes...and have been diagnosed with LD on the basis of having this EM by a LLMD.

Once a county is recognized as being endemic for Lyme disease it should be easier to get a correct diagnosis.

Your input is welcome. I need someone to take this idea and put legs on it.

Nancy

"Case Definitions for Infectious Conditions Under Public Health Surveillance

State and local public health officials rely on health-care providers, laboratories, and other public health personnel to report the occurrence of notifiable diseases to state and local health departments. Without such data, trends cannot be accurately monitored, unusual occurrences of diseases might not be detected, and the effectiveness of intervention activities cannot be easily evaluated.

In the United States, requirements for reporting diseases are mandated by state laws or regulations, and the list of reportable diseases in each state differs. In October 1990, in collaboration with the Council of State and Territorial Epidemiologists, CDC published Case Definitions for Public Health Surveillance (MMWR 1990;39{No. RR-13}), which, for the first time, provided uniform criteria for reporting cases.

This report provides updated uniform criteria * for state health department personnel to use when reporting the nationally notifiable infectious diseases listed in Part 1 of this report."


The following is a part of the CDC's definition of Lyme Disease:

"Definition of terms used in the clinical description and case definition:

Erythema migrans. For purposes of surveillance, EM is defined as a skin lesion that typically begins as a red macule or papule and expands over a period of days to weeks to form a large round lesion, often with partial central clearing. A single primary lesion must reach greater than or equal to 5 cm in size. Secondary lesions also may occur. Annular erythematous lesions occurring within several hours of a tick bite represent hypersensitivity reactions and do not qualify as EM. For most patients, the expanding EM lesion is accompanied by other acute symptoms, particularly fatigue, fever, headache, mildly stiff neck, arthralgia, or myalgia. These symptoms are typically intermittent. The diagnosis of EM must be made by a physician. Laboratory confirmation is recommended for persons with no known exposure.

Exposure. Exposure is defined as having been (less than or equal to 30 days before onset of EM) in wooded, brushy, or grassy areas (i.e., potential tick habitats) in a county in which Lyme disease is endemic. A history of tick bite is not required.

Disease endemic to county. A county in which Lyme disease is endemic is one in which at least two confirmed cases have been previously acquired or in which established populations of a known tick vector are infected with B. burgdorferi."

This web page is huge, use "Control" and "F" to search for Lyme.
******************

Betty broke this statement up to make it easier to read. She also posted the statements at the bottom.

Erythema migrans. For purposes of surveillance, EM is defined as a skin lesion that typically begins as a red macule or papule and expands over a period of days to weeks to form a large round lesion, often with partial central clearing.


A single primary lesion must reach greater than or equal to 5 cm in size. Secondary lesions also may occur.


Annular erythematous lesions occurring within several hours of a tick bite represent hypersensitivity reactions and do not qualify as EM.


For most patients, the expanding EM lesion is accompanied by other acute symptoms, particularly fatigue, fever, headache, mildly stiff neck, arthralgia, or myalgia. These symptoms are typically intermittent.


The diagnosis of EM must be made by a physician. Laboratory confirmation is recommended for persons with no known exposure.
*********************************

Now for us to take action!


so we call our COUNTY HEALTH DEPT. to get our county declared endemic

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bettyg
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hi my dear friend tree! hope you get to feeling better soon; we have missed your replies to posts! here's to a healthier new year!


COMPILED BY MELANIE REBER 12-30-06:


Victims of Domestic Violence help:

* Crisis Support Network: http://crisis-support.org/index.html
Family Violence Statistics: http://crisis-support.org/family.htm
24 hour help- 1-800-435-7276

* Office for Victims of Crime (OVC): http://www.ojp.usdoj.gov/ovc/welcovc/welcome.html
Help for Victims: http://www.ojp.usdoj.gov/ovc/help/welcome.html
National Organizations: http://www.ojp.usdoj.gov/ovc/help/dv.htm
Programs and Online Resources: http://www.ojp.usdoj.gov/ovc/help/dv.htm#2
Pennsylvania Victim Assistance: http://www.ojp.usdoj.gov/ovc/help/map/pa.htm

OVC Victim Assistance for Pennsylvania
Phone: 717-787-2040
Web Site: http://www.pccd.state.pa.us

OVC Victim Compensation for Pennsylvania
Phone: 717-787-2040
Web Site: http://www.pccd.state.pa.us

VOCA Funded State Wide Analysis: http://www.ojp.usdoj.gov/ovc/help/map/pava.htm
List of VOCA Victim Assistance grants/programs funded for the State of Pennsylvania listed by city.

* Pennsylvania Coalition Against Domestic Violence: http://www.pcadv.org/hotfiles/Final%20PressRelease11_15.pdf

* Pennsylvania Child Support Program: http://www.tiny.cc/str9u
Child Support Helpline: 1-800-932-0211

Domestic Violence Program Information: http://www.tiny.cc/WDWeO

Helpline Telephone Numbers:

Welfare Helpline: 1-800-692-7462
Medicaid Information Helpline: 1-800-842-2020
CHIP (Children's Health Insurance Program) Helpline: 1-800-986-5437
LIHEAP (Low- Income Energy Assistance Program) Information: 1-866-857-7095
SSP (State Supplementary Payment) Hotline: 1-866-502-9105

Non-custodial Programs and Projects: http://www.tiny.cc/RQETt

* Pennsylvania Domestic Violence Crisis And Support Resources: http://www.aardvarc.org/dv/states/padv.shtml


Keeping you and your family close in my Heart and Prayers...hope some of this information is helpful.

Much love, now as always,
Melanie
--------------------
The National Lyme Disease Memorial Park Project
[email protected]

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MariaA
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This post is crossposted from here:
]http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=050753


The following are links to a few threads in which herbal medicine is discussed for Lyme and yeast- mostly those herbs from Stephen Buhner's protocol from his book Healing Lyme.
I've included a few which come from Dr Zhang's protocol, and some candida/yeast probiotics discussions.

Please note: although these herbs can be purchased without a prescription, there can be side effects and you should do this under a doctor's direction. Some posters below indicate they have had serious side effects from some of the herbs. Do not take these herbs without AT LEAST reading Stephen Buhner's book. This thread does NOT give you enough information to self-treat safely!!!

Remember that some of the positive experiences on this forum are the same people posting over and over again. Not everyone has the same experiences with herbal treatment or herbal-and-antibiotic treatment. Some of the posters who report positive experiences are doing many other forms of treatment besides Buhner herbs alone.

The Buhner book contains a 30-page bibliography of studies which support his conclusions, and those references are a good start for more information that may help you evaluate whether to try this treatment.

Our testimonials on the Internet are not a substitute for a decent LLMD's advice and guidance.
********************

Stephen Buhner's book Healing Lyme:
http://tinyurl.com/y4wgbk (amazon.com link, includes good reviews)

Buhner's website with book updates/corrections:
http://www.gaianstudies.org/lyme-updates.htm

Buhner's advice column on Planet Thrive website:
http://planetthrive.com/cgi-bin/members/pub9990215891170.cgi?categoryid=9990235248536


***********************************************

questions about where to buy Buhner Protocol herbs:
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=050713
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=050113

********************
member experiences with Buhner protocol, sources of herbs, and mentions that Raintree cats' Claw uses gelatin capsules and why:
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=050113

more 'member experiences' threads (some of these are the same people reporting in multiple threads):
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=048986
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=050014

Robi initially feeling better on herbs, then relapsing, and others talking about boneset, artimisin, and Buhner herbs:
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=046141


**************

bee venom therapy (mentioned in Buhner's book, though not part of the core protocol):
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=045611

***************

discussion of Dr Zhang's recommended herbs and a little discussion of Buhner protocol:
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=048986


***************

encapsulating your own herbs:
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=050738

***************

thread about a 34-page paper by Dr. Dietrich Klinghardt, MD PhD (Seattle), who incorporates Buhner's protocol (along with detoxification, treatment of coinfections and parasites, various naturapathic methods, salt/C, and many other treatment methods)
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=050656

******************

poster reporting heart issues on artemisin:
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=050316

artimisin/artimisia/artesunate
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=050530

*******************

garlic threads (buhner does not recommend garlic for treating Lyme itself mentions this in his online column):

liver safety animal study
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=050113

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=049438

******************

reishi and other mushroom products (mentioned in some of Buhner's other books):
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=050274

******************

yeast threads:

oregano oil and a herx or a yeast die-off:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=050518


yeast and sexual transmission, and some suggestions for controlling the yeast:
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=050613


thread discussing an OLD (2000) study on potency of various brands of probiotics:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=049257
more on probiotics:
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=050683

*************************

milk thistle discussion:
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=050531

--------------------
Symptom Free!!! Thank you all!!!!

Find me at Lymefriends, I post under the same name.
diet: http://lymefriends.ning.com/group/healthylowcarbrecipes
Homemade Probiotics thread
Herbal Links Thread

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treepatrol
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Updated 1-12-07

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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bettyg
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if anyone else prints out TREEPATROL'S NEWBIE LINKS after he updated, you might want to hold off today for a bit.


i found 4-5 links he posted in computer questions that i think he meant to add to his ORIGINAL NEWBIE LINKS HERE. so this way when you print this off, you'll get ALL OF HIS LATEST WORK! [Big Grin] [Wink]

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trueblue
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Tree! Good to see you! [hi]

How are things?

--------------------
more light, more love
more truth and more innovation

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treepatrol
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quote:
Originally posted by bettyg:
if anyone else prints out TREEPATROL'S NEWBIE LINKS after he updated, you might want to hold off today for a bit.


i found 4-5 links he posted in computer questions that i think he meant to add to his ORIGINAL NEWBIE LINKS HERE. so this way when you print this off, you'll get ALL OF HIS LATEST WORK! [Big Grin] [Wink]

{BettySaid} i found 4-5 links he posted in computer questions that i think he meant to add to his ORIGINAL NEWBIE LINKS HERE.

I said, They are in NewbieLinks Betty I post them in computer questions more room there then I link to them in Newbie Links.

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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treepatrol
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quote:
Originally posted by trueblue:
Tree! Good to see you! [hi]

How are things?

Thanks true things are bad right now in my life. Thanks for asking.

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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treepatrol
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UPDATED BABESIOSIS

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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treepatrol
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Ehrlichia, family Rickettsiaceae Order of Rickettsiales 07


Georgia USA Ehrlichia Cowdriosis Heartwater


Updated 1,26,07

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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bettyg
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http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=051350#000015


tree, would you add this later:

it's OFFICIAL ALZHEIMER'S HEADQUARTERS POSITION ON LYME AND ALZHEIMER'S ... NO CONNECTION! thanks my friend. [group hug] [kiss] [group hug]

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bettyg
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page 5

tree, somehow this important link below wasn't shown with this info

"It tells about the brain and all testing for it.
Exceptional is the Brigham/HARVARD site shown that has SLIDES showing MRI, CT, etc"


http://brighamrad.harvard.edu/education/online/BrainSPECT/Lymes/Lymes_Images.html


next time you add/edit, would you add this above the " " paragraph; thanks my friend! [group hug] [kiss] [group hug]

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treepatrol
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updated

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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treepatrol
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All on page 3.

Mycoplasmal Infections
Mycoplasma? How to get tested? Treatment?
Mycoplasmal CDC
Mycoplasma
Autoimmune Debate
Mycoplasma Treatments
Autoimmune patients
radiogirl Posted 14-12-2006

Parkinsons
Parkinson or Lyme with links on page
Should read this also it relates to PD
Antibiotic hope for PD
Lyme-Associated Parkinsonism


--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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bettyg
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http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=051656#000016

hi tree,

can you add this advise from NANNIE about fighting denials of health insurance approvals for testing, etc? outstanding advise. thanks my friend! [group hug] [kiss]

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bettyg
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http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=3&t=016914#000010

tree, this is OPTIMISTICK'S ADVISE ON COLLEGE ASSISTANCE; outstanding advise!! [Big Grin]

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treepatrol
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{Ann - OH} Insurance commissions for every state


OptiMisTicK Advice College aid

nannies advice Insurance Company made me cry
UPDATED [Big Grin]

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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treepatrol
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Updated:Page 2.

New Test for Lyme Disease
CENTRAL FLORIDA RESEARCH


Western Blot Info

Band 41kd Most important?
More on 41K
FDA It is important that clinicians understand the limitations of these tests
ILADS W Blot
Explaining Borreliosis (Lyme) Western Blot Tests
Explanation of Western Blot Bands
Igenex Labs on the Western Blot
Melissa Kaplan's Lyme Website Explains Western Blot
Dr. C Explains Western Blot
Western Blot

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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bettyg
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TREE, please add; thanks!

donating $$ to charities, like
LDA & LYME RESEARCH CENTER; legal wordage needed.


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=052294

also, lyme research center $$ can be sent to LDA headquarters EARMARKED FOR LYME CENTER!!

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treepatrol
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Updated this section

Deer Meat CWD Link A & B Below
A Link
B Link Video CWD

Genetics Animations
Biochemistry Animations
Immunology Animations
Physiology Animations
Microbiology Animations
Max Animations


Max Animations

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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Tincup
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Tree...

You continue to amaze me.

TC

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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