posted
tree, would you add my newbie links/advise LINK to yours since i'll be off internet 7-10?? days for my hip surgery; thanks tree! bettyg
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Started new page page 6. also put betty's help links in on 3-26-2007
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
updated this area
Herbs Peppermint Original CheapHelp PDF Large6.98MB Ken Lassesen Cheap Help
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
hi my friend, tree! what did you add this time? very handy to show the highlites here!
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treepatrol
Honored Contributor (10K+ posts)
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posted
quote:Originally posted by bettyg: hi my friend, tree! what did you add this time? very handy to show the highlites here!
fixed some links added one or to hunting is fun
>Nose Bleeds < BLOOD SUPPLY
hunt the other one
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
Much appreciate the work you have done on this vast amount of valuable information.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
updated
Guidelines for Infectious Diseases Specialists Serving as Expert Witnesses IDS Guidelines they should read them! top of newbie links
this is in tick section Respiration in Ticks
Plastron respiration in ticks
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
WOW TREE, you've been editing your whole format here with all your links, etc. FANTASTIC JOB organizing this WEALTH OF GOOD INFO!
well done my friend; what a labor of love you have given to your project sharing it with ALL OF US LYMENETTERS!
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bettyg
Unregistered
posted
for your site IF you already don't have....
from JAKKI, new member:
Here is the link, it pretty much covers just about every type of vasculitis, however there are no boards associted with it, it's just an information site. Hope it is helpful!
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
added page 3
Herxing *@*^#*Or Ouch
New-->Treating the Herxheimer (JH) Flare Reaction
Jarisch-Herxheimer reaction spirochete:Google Scholar What Is a Herxheimer Reaction? What Is Herxing? The Herxheimer Reaction The Herx Reaction Herxheimer Reaction Explained Endotoxins -- Is This What Causes Herxes???(Long) Posted by : seibertneurolyme What is happening when you stop herxing on abx
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
what did you add this time as i went to last post, and it still shows 8-16 date?
thanks! i looked thru first 2 pages but didn't notice anything.
thanks big guy; you tower above all the rest of us! lol
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Victims of Domestic Violence Compiled By Melanie Reber 12-30-06
this one added Wild Condors Newbie Help
Guidelines for Infectious Diseases Specialists Serving as Expert Witnesses
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
Good thing to check out for peace of mind if you are taking medications.
Thanks! Looking
Posts: 590 | From Canada | Registered: Oct 2007
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
up added FDA link towards bottom
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Disabilities Links Social Security Disability FAQ IDA = Invisible Disabilities Advocate
Page 4. updated
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Updated page two 2.
Aristo Vojdani
WesternBlot and Elisa tests explaining differences between tests developements and this guy uses both antigens from cultured Bb and Cultured from mammal blood give it a listen Here Pick this one bottom page:NeuroScience Inc. (2..> 28-Jan-2008 12:19 2.5M
Drawbacks of Serodiagnosis of LD In vivo-induced antigen technology: the most sensitive method of detection for Lyme disease and other tick-borne diseases, Part One of a two-part article
The use of lymphocyte proliferation assay and cytokine production in seronegative patients with Lyme arthritis or neuroborreliosis
Western Blot Info
Betty G I am working on integrating your info but its given me a headache Ill get it eventially.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
"Spirochetes are the other major type of bacteria that we look for under the microscope. These are corkscrew type, snake-like bacteria. Although there are different types of spirochetes, the one in the mouth is called Treponema Denticola. As an aside, the spirochete called Treponema Pallidum cause syphilis and another type of spirochete called Borellia Burgdorferei causes Lyme disease. All three types of spirochetes are bad guys. But in terms of periodontal microscopic assessment we are concerned when we find the spirochete Treponema Denticola, which has been shown to be associated with periodontal disease."
=============
There is more info at the link above than what is posted here.
Band 41 might show up in the absence of Lyme IF you have a gum disease as stated above.
However, if you're having other Lyme symptoms, it would be reasonable to check that out thorougly.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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daise
Unregistered
posted
Hi Treepatrol,
BettyG thought I should add this. I dearly hope it helps people.
They claim if your insurance company denies coverage for medicine, as long as the other qualifications are met, they will supply meds for $7.00 for each med, per month.
ps I have been having trouble updating links I sent a letter to Lou so he could talk to his compter wizz.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
Please consider adding where to take a biopsy for those with EM rashes....
If you're sending the biopsy to Igenex Labs in California....
Collect several 3-4 mm punch biopsies from the inner edge of the expanding part of the rash...the inner edge of the outer part of the expanding rash.
Put the biopsies in a dry, unused sterile urine specimen cup. Do not put the biopsies in formalin or alcohol.
Ship the biopsy by overnight express to Igenex Lab in California on a Monday through Wednesday. Do not ship on a Thursday or Friday or your specimen may get ruined over the weekend.
I wasted $300.00 on a PCR biopsy because my helpful, but uninformed physician took the biopsies from the center of the rash where the tick had been attached, not at the active (expanding) part of the rash.
Also, please remind others to take sequential photos of their rash(es) with a ruler in the photo and the date written on their skin...include a photo so you can see the rash and the person's face, if it's possible.
Taking photos got me classified as a "Suspect" case by the state health department. I was told confirmed and suspect cases are the only ones included in the state's Lyme case counts.
I was told I'd be added to the Lyme case count that year, but someone failed to amend the case count and I was excluded from the official statistics.
The health department was too bothered to amend the Lyme case count after they waited 6 moths to contact me and verify my positive Lyme Western Blot test.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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bettyg
Unregistered
posted
hi tree,
please consider adding this info on DRY MOUTH by i broke up today...
Xerostomia information for dentists .... *************************************
Helping patients with dry mouth 7.08
By Cathy L. Bartels, Pharm.D., assistant professor, pharmacy practice, School of Pharmacy and Allied Health Sciences, University of Montana
very interesting! thx; hopefully tom brown will have things fixed so you can update again! betty
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Still having trouble updating newbie links.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
I'm new, and absorbing everything this wonderful community has gathered.
Great to be here. Thank you.
Posts: 1 | From Florida | Registered: Jul 2008
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Your welcome silkyrose read newbie links mine and betty g's
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
This is a four page pdf file. You should print out a copy for future reference.
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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bettyg
Unregistered
posted
hi tree,
fyi, lou b deleted my bettyg's newbie links today since i maxed out the system where i could NOT edit/update anything!
i'd edit all places, and then when downloading; it would not complete loading ... some UBB problem of some sort.
lou tried too without success.
if/when i bring it back ... it will have to be divided up into medical vs. support for ssdi info, etc.
unsure if i want to continue tackling this or not! i'm burnt out; you know how it is.
i know you can't update your huge file either.
just thought i'd let YOU know what happened to it.
seemed so strange to have to remove my link from my signature line referring folks there as well as my welcome letter to newbies who post!
hope you are doing as well as possible; how are you coming on your weight loss?
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emla999/Lyme
Frequent Contributor (1K+ posts)
Member # 12606
posted
MOLD TOXICITY, MYCOTOXINS and FUNGALBIONICS
Several years ago three doctors from the World Health Organization (WHO) Collaborating Center For Mycotoxins in Food wrote a book about the negative effects that toxic mold/fungi have on the body. This book was called FungalBionics.
In this book the authors describe how the exposure to toxic fungi/molds and mold mycotoxins either directly cause or contribute to many of the major health problems and diseases of today.
Dr. Constantini spent much of his life studying the effects that toxic mold/fungi mycotoxins had on human health. And much of his life's work and findings can be found in the FungalBionics book series.
Posts: 1223 | From U.S.A | Registered: Jul 2007
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
KNOW YOUR MOLD & LYME RISKS THREAD: The symptoms of lyme and mold sickness are basically the same. There could be people on this board, especially those with only clinical diagnosis of lyme disease, who may actually have undiagnosed mold sickness!
Please take the time to read this entire thread and become aware of your possible risks. It is a long thread but information packed with critical information on symptoms, testing your body and testing your home living environment as well as work environment.
When mold is a factor it has to be treated first, before lyme. Mold illness will de-regulate and undermine your immune system. In other words you can spend thousands on lyme treatment and not get as effective results if one of the underlying contributing problems is mold sickness!
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Lupus and lyme disease:
I have read numerous lyme articles that state that some people are misdiagnosed with lupus but really have lyme disease. The symptoms cannot be distinguished.
It may not be that simple in all cases, but it can be that many cases of lupus will respond to antibiotics for a variety of reasons, including lyme and other infections as part of the problem.
Take a look at this article. It mentions lupus throughout.
At any rate, if I were to be given the diagnosis of lupus which has no cure, I would want a lyme disease test and would want to try antibiotic protocols to see if I could get rid of my lupus.
Look also at The Road Back Foundation website which talks about successful treatment of lupus with antibiotics:
Cerebral malaria is a rapidly developing encephalopathy, but much pathology of is not clearly understood. Malaria occurs in millions of people, but only 20-50 % of the cases develop into cerebral malaria. It is unclear why some people develop it and others do not.
Cerebral malaria develops when parasitized red blood cells (PRBCs) adhere to the cerebral microvasculature, causing blockage of the blood's pathway (see photos 6-8). This blockage stops blood flow, leading to a shortage of oxygen and nutrients those areas of the brain. The occlusion of the small vessels occurs diffusely throughout brain. This phenomenon seems to occur in all patients with cerebral malaria, although there are numerous other complications that occur as a result of this disease.
Approximately half of the patients with cerebral malaria have elevated intercranial pressure and seizures. Patients in the Gambia, in West Africa, had rings of PRBCs form around the normal RBCs, which will also lead to microvasculature occlusion.
On rare occations, the parasite causes cerebellar ataxia, but no loss of consciousness. The ataxia can occur up to 4 weeks after a malaria attack occurs, but will disappear after 1-2 weeks.
Physical manifestations of the disease may be an abnormal EEG resulting from the lack of oxygen, loss of sulci, and a MRI may show hemorrhagic lesions and infarction.
A common cause of death for patients with cerebral malaria is acute respitory arrest, which may be a result of the intracranial pressure causing a fatal brain stem herniation.
Most people who survive cerebral malaria have no residual neurologic problems. Only about 10 % of patients surviving cerebral malaria suffer from neurologic deficits such as hemiparesis, hypotonia, or spasticity.
We know we have an unclear understanding of the disease because so many people survive the disease without any neurologic problems. This fact leads us to believe it is unlikely that there is complete obstruction of blood flow.
One hypothesis is that the parasite indirectly causes an abnormally high release of nitric oxide in the brain, which changes brain function in the same way as ethanol. This would result in a unconscious state. However, this state would be reversible without residual neurologic probelms.
This hypothesis explains the reversability of the coma state, however, it does not explain many of the other problems associated with the disease, such as the blocked microvasculature.
look at the 3 photos there folks ... interesting. betty
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Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
Dear Friends,
Here's a link to a very important article about Cipro, Levaquin, Avelox, and Floxin.
There is also a 6-part video.
Apparently, these drugs all contain FLUORIDE, which is a known neurotoxin that can get into the brain, etc.
OBJECTIVE: To describe the clinical features of cardiac manifestations of Lyme disease, the most common vector-borne illness in North America, which occasionally results in cardiac involvement.
DATA SOURCES: A review of the English-language clinical literature pertaining to Lyme disease and Lyme carditis indexed in MEDLINE from 1975 to 1995.
DATA EXTRACTION: Studies describing diagnosis, clinical features, treatment or outcome were reviewed.
DATA SYNTHESIS: Cardiac complications of Lyme disease may occur in up to 8% of patients.
Cardiac manifestations occur in the early phase of the illness, at a median of 21 days from the onset of erythema migrans.
Temporary cardiac pacing may be required in up to a third of cases and complete recovery occurs in most (greater than 90%) patients.
The overall prognosis of Lyme carditis is very good, although recovery may be delayed and late complications such as dilated cardiomyopathy may occur.
CONCLUSION: Lyme disease is a tick-borne spirochetal infection caused by Borrelia burgdorferi.
Cardiac complications of Lyme disease generally occur in the early phase and include conduction system disturbances, myopericarditis and congestive heart failure.
PMID: 8640597 [PubMed - indexed for MEDLINE] no copyright shown....
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nenet
Frequent Contributor (1K+ posts)
Member # 13174
posted
Art Doherty's list of Lyme Disease symptoms & misdiagnoses
Main site with links to many resources (some of the links might be dead, but some are still good):
To get to the list of possible misdiagnoses and symptoms (that could in fact be Lyme), here is the link via the "Way Back Machine," courtesy of www.archive.org -
The only catch is that if you want to follow any of the links that go off of Art's site (like to Medline, etc.), you need to peel the url back to the original link.
So, say you want to learn about the Lyme Disease symptom, Anxiety.
1. You click on the Symptoms List page, then click "Anxiety",
2. then click "MEDLINE - Anxiety Disorders or anxiety AND Lyme disease - 18 on 21 Sep 99"
3. You get an error page. Go to the url box at the top of your browser window, and delete everything that comes BEFORE the http://www.ncbi.nlm.nih.gov part of the address. (You basically want to go to the live version of the site link, if that makes sense.)
4. hit return, and if the link is still valid, it should take you to the correct webpage.
I hope that made sense, and helps anyone that was looking for this old website that was helpful to so many before it stopped being updated.
posted
Just curious as to why sticky's have replies in them. Its so confusing!
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bettyg
Unregistered
posted
condor, tree's post is NOT CLOSED; that's why we can reply and add more info even though he himself can't add it to his "links"; he maxed it out as i did mine.
Medicare and IV ABX Policies read MY3BOYS comments, 9-28-09
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