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» LymeNet Flash » Questions and Discussion » Medical Questions » Vitamin C/Salt Who is doing it and What do you know.? (Page 3)

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Author Topic: Vitamin C/Salt Who is doing it and What do you know.?
glm1111
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Deb,

The worms coming out of the ears , nose and mouth are tiny, except I had some come out of my mouth that look like eggshell blue sewing thread just like from the Lymephotos! E-Gads!!!

I swear, Steven King couldn't have even written this one.

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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DebAz
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Yikes How long did it take for you to see that after starting??

PS sorry for the post that went up 3 times I tried to delete them and even checked the box that says delete post and waiting and when i went back they were still there. It sure looked like it was working.>? HM
>

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DebAz
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This is from another post.. But this lab is quite extensive and has testing for all the parasites and just about anything .. As well people were talking about they also have found some sort of bug that might be the same bug that Dr. F has been talking about well its interesting ..

Take a look

http://www.clongen.com/index.php

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c3mom
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Hi Deb, are you going to be taking your abx as

well?I asked my Dr. yesterday about natural

remedies and he gave me the OK. I'm going to do

more research, but I must say glm and lyme

strategies gives me great hope. Keep us posted.

char

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FancyRatFan
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HI,


Great stuff I'm reading.


I started my C and Salt about a week or so ago. I started with a 1/8 tsp of salt and equal gram of /C. a Day

First I would get the chills than a little dizzy but not bad.

Yesterday I went up to 1/4 tsp. No more chills. I do feel instantly slightly better.
It is subtle but there.


I bought the Natrol Ester C that GlM is taking. Alot easier to drink than the powdered C I was taking.


I'm looking forward to seeing these buggers come out of me. It would really freak my boyfriend out. LOL

Fancy [Big Grin]

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seekhelp
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I suppose this protocol is a death wish if you have hypertension??
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glm1111
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Seek,
Salt and vitc are water soluble. It is possible that this disease is causing your high blood pressure. I posted something last week about salt DEFICIENCY can RAISE your blood pressure as well as cholestral.

I would be happy to research this angle more for you if you want me to. I also encourage you to do some research on that as well as the relation to sea salt and blood pressure.


Remember, there is always a cause as to why things are out of balance. How many years has your pressure been elevated, and how long have you not used salt in your diet?


We are 75% saline, which is very close to sea salt. Just some thought for you. Have you tried other herbs beside Humaworm?

Hang In There,

Gael

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PARASITES/WORMS ARE NOW
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glm1111
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Seek,
Salt and vitc are water soluble. It is possible that this disease is causing your high blood pressure. I posted something last week about salt DEFICIENCY can RAISE your blood pressure as well as cholestral.

I would be happy to research this angle more for you if you want me to. I also encourage you to do some research on that as well as the relation to sea salt and blood pressure.


Remember, there is always a cause as to why things are out of balance. How many years has your pressure been elevated, and how long have you not used salt in your diet?


We are 75% saline, which is very close to sea salt. Just some thought for you. Have you tried other herbs beside Humaworm?

Hang In There,

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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DebAz
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Hi

Sorry i missed the comment on breaking up posts. I will from now on do that. I totally understand and i should have caught on ..

I went back and deleted duplicates and broke a few up as well. This is becoming quite a long subject.

Well update...

I woke up feeling pretty bad today. Maybe the change in salt and C as I did get much more pure types or it could be that this is Day 3.

I want to say ahead of time that if I do herx badly I will have to keep the option open of pulsing as I have the abx.

Yes I am staying on the abx for now and for sure until more time goes by. I am taking abx just 3 days a week and every other week even if I start building into herxing.

I made an agreement with my doctor after years of severe herxing and no life that i can take them in what manner works but he does direct me after I report how I am doing each month.

So the Ketek is the only abx I am on and trying to take it MWF of each week but skip weeks at times.

Thats my status.

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glm1111
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Hi Deb,

Yes, duplicate posts happen once in a while from hitting the reply bar more than once because we don't think it went thru.,


I could only delete one of my duplicates, but will try again. Thanks for breaking up your post.

Much, much easier to read.,

Gael

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PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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DebAz
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Maybe we should write a chart for each of our start points.

SUCH AS

DATE STATED SALT C :
KINDS OF SALT:
KIND of C :
AMOUNT STARTED :
HOW IT IS SPLIT UP :
PILLS OR LIQUID :
ABX ON or OFF :
ABX KIND DOSAGE:
CHECK IN FOR DAY # :

For Me

DATE STATED SALT C : 12-2-08
KIND OF SALT : Eden Sea Salt French Celtic
KIND OF C : Bluebonnet Buffered C Crystals
AMOUNT STARTED : 1/4 tsp (I am 6ft tall and 215lbs)Optional
HOW IT IS SPLIT UP: 1/8 tsp am +1/8 tsp pm
PILLS OR LIQUID : Liquid drink combining Salt/C
ABX ON or OFF : On
ABX KIND DOSAGE: Ketek 400mg M W F weekly

CHECK IN FOR DAY # :# 2 - Felt quite great for 4 days prior taking Kosher Salt (a no no) and Vitamin c Emergen C pack of a combo of 1/8 tsp salt and 2 1000mg packets am and pm. (sorry if that confused you but I am considering Yesterday my first day because I found out I was not supposed to take the Kosher salt.)

CHECK IN FOR DAY # :# 2-Adding the new Salt and C on Day 1 i feel like a herx hit me and I feel painful and achy and flu like and icky today. But not too horrible as I am up and around this afternoon and I usually stay in bed all day on a severe herx.

Just wanted to add the details because I find that odd. I was feeling like I had not felt in a long time. Very weird. But I will keep on this therapy and back off on the amount or take breaks if I stay herxing.

Take good care. Looking forward to hearing for you. Deb

[ 03. December 2008, 06:24 PM: Message edited by: DebAz ]

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Keebler
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-

In addition to the necessary kidney function tests before beginning to add salt,

the links below are with the intention of helping in basic research for anyone exploring this. Salt poisoning can be fatal. Here are some things to watch out for:


www.ncbi.nlm.nih.gov/sites/entrez

PubMed Search:

salt+poisoning - 77 abstracts


=======

Google Search:

"Salt Poisoning" - over 24,000 results

This is just one of those:

--

www.bmj.com/cgi/content/full/326/7381/157


BMJ 2003;326:157-160 ( 18 January )


Distinguishing between salt poisoning and hypernatraemic dehydration in children


Malcolm G Coulthard . . . Department of Paediatric Nephrology, Royal Victoria Infirmary, Newcastle upon Tyne NE1 4LP, b Guy's, King's, and St Thomas's School of Medicine, London SE1 9RT


Hypernatraemia caused by salt poisoning or dehydration must be distinguished correctly, as the two situations need different legal and medical approaches. Two nephrologists discuss the physiology of hypernatraemia and explain how to differentiate between cases caused by salt poisoning and dehydration


- Full article at link above.


-

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Hoosiers51
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In some cases, I believe salt can help you stay hydrated.

Marathon runners and people cycling in extreme conditions sometimes take salt pills. (or at least they used to, I'm sure some still do)

Yes, salt provides electrolytes, but I believe it also has a role in maintaining hydration.

I think the pills athletes take are one gram (1,000 mg) each.

Also, the thing about high sodium casing hypertension has been debunked to a certain extent.

It isn't necessarily the high sodium that hurts you, it is when your ratio of sodium to potassium is too unbalanced.

Instead of restricting sodium, I have read of people with hypertension instead just maintaining an adequate balance of potassium to sodium.

Of course, if someone has poor nutrition and doesn't eat right, they probably don't get enough postassium, so you may be better off as an MD just telling them to restrict their sodium. But scientifically, the problem isn't merely "too much sodium."


If you have hypertension or are at risk for it, please don't take my advice as medical advice, because I am only reporting things I have read in articles, not scientific abstracts.

BUT, I will say that I believe there is some truth to them. I would never tell someone what is right for their body because I'm not an MD and I don't know what is right for each person....but I feel obligated to share what I have read because I think there are some misconceptions going around.

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DebAz
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Thanks for the information. The article that you gave a link to is about babies and deliberate overdosing for the most part so it was not that informative to me.

But I found another page that is overall good on risks and sodium details. Look at the site for more but here are are a few excepts,

http://www.cnn.com/HEALTH/library/NU/00284.html

Interesting -since I do not eat any processed food...

The majority of the sodium -- 77 percent -- comes from eating prepared or processed foods that contain the mineral.

National Academy of Sciences' Institute of Medicine, have published recommendations for daily sodium intake. Most recommend between 1,500 and 2,400 milligrams (mg) a day for healthy adults

Some people are more sensitive to the effects of sodium than are others. People who are sodium sensitive retain sodium more easily, leading to excess fluid retention and increased blood pressure.


Bottom line is we all have to do our research and be careful in areas that are of concern related to sodium and each of us is different with different diagnosis and issues. The article is good to read I think.

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DebAz
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Hello everyone. I went ahead and started a NEW post that is for those of us trying it and want to keep track of the data and share progress.

Hope that is ok and if you want me to change the name or use something else just let me know..

Deb.

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sammy1
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in order for this protocol to be successful you need to have patience and you need to be diligent....

i have not missed a dose of salt c in 7 months..

back off when the herxes become too rough and listen to your body..

determine which paths you are going to use to detox..i use enemas and saunas

remember this is not a quick fix and takes lots of time but the results are solid if you stick with it...

not many people can stick with it becuase the herxes are that hard...
good luck

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glm1111
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Hi Everyone,

Thanks Keebler for stating that you have positive intentions with your research even though the research links may come with some negative data.

That's okay. Since salt is water soluble it just makes more sense that cases of salt poisoning would be caused by dehydration.

What kind of salt was being ingested? Table salt or secondary salt sources from chemical salts? I have to research this to get better insight.

Hoosier,
very good insight as to sodium/potassium balance that we all need. VERY, VERY IMPORTANT FOR ANY ONE DOING THIS PROTOCOL IS TO DRINK A LOT OF WATER!!!


Deb, have to find the post you are talking about.

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PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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glm1111
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Sammy is absolutely right about sticking to it. As I mentioned before, I have been doing this for 2yrs and have not missed a dose.


I am up to 20 grams a day of both sea salt and vit c taken in 4 divided doses. I always drink water with it and keep sipping it all day long.

The herxes can get very rough, but worth the effort. Just like with any protocol if the herxes get too rough, back off.

Thanks,

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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DebAz
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THanks for the comments and support and ideas from you two who have been through this before.
Slow and steady.. I gotcha.


Deb

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DebAz
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I was noticing how many people have looked at this post .. and how many people have posted things.. quite a lot compared to the other posts.
What is the interest or controversy or intrigue in this/? I guess I stumbled onto this without realizing it was a subject that would get a lot of attention...

I appreciate all the warnings and worries and be careful coments and all those with support and sharing of positive results and details of how to do the protocol and what to expect.

This has been a great post and experience for me... I hope for others. I know this takes a long time and I am going into it not blindly and open to the possibility that I may have problems that do not allow me to continue or that I may not do respond like others.

But for me it is worth a try and I continue to stay educated and listen to everyone..

Deb

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glm1111
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Could it be fear, intrigue AND an underlying gut feeling that it could possibly be the answer for putting this horrid disease into remission.


For the life of me, I can't figure out why some of the naysayers of this protocol are the same people that will run and have chemotherapy (HIGHLY TOXIC POISONS) if they have cancer.


Or ingest medicines that have soooooooo many "dire" warnings" and side effects. Just really thinking out loud. [bonk]

Well, just hoping we all can get on with our lives,

Gael

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PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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DebAz
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Hi all Gael forwarded a great site for more reading on the Salt issue. I guess none of are worried about to much C! : )

Here is the link and some of it below..

This is all from the above site and in referring to natural sea salt and not processed table salt...

"High Mineral Sea Salts - Gods Gifts..

1. Salt is most effective in stabilizing irregular heartbeats and, contrary to the misconception that it causes high blood pressure, it is actually essential for the regulation of blood pressure - in conjunction with water. Naturally the proportions are critical.

2. Salt is vital to the extraction of excess acidity from the cells in the body, particularly the brain cells.

3. Salt is vital for balancing the sugar levels in the blood; a needed element in diabetics.

4. Salt is vital for the generation of hydroelectric energy in cells in the body. It is used for local power generation at the sites of energy need by the cells.

5. Salt is vital to the nerve cells' communication and information processing all the time that the brain cells work, from the moment of conception to death.

6. Salt is vital for absorption of food particles through the intestinal tract.

7. Salt is vital for the clearance of the lungs of mucus plugs and sticky phlegm, particularly in asthma and cystic fibrosis.

8. Salt is vital for clearing up catarrh and congestion of the sinuses.

9. Salt is a strong natural antihistamine.

10. Salt is essential for the prevention of muscle cramps.

11. Salt is vital to prevent excess saliva production to the point that it flows out of the mouth during sleep. Needing to constantly mop up excess saliva indicates salt shortage.

12. Salt is absolutely vital to making the structure of bones firm. Osteoporosis, in a major way, is a result of salt and water shortage in the body.

13. Salt is vital for sleep regulation. It is a natural hypnotic.

14. Salt is a vitally needed element in the treatment of diabetics.

15. Salt on the tongue will stop persistent dry coughs.

16. Salt is vital for the prevention of gout and gouty arthritis.

17. Salt is vital for maintaining sexuality and libido.

18. Salt is vital for preventing varicose veins and spider veins on the legs and thighs.

19. Salt is vital to the communication and information processing nerve cells the entire time that the brain cells work - from the moment of conception to death.

20. Salt is vital for reducing a double chin. When the body is short of salt, it means the body really is short of water. The salivary glands sense the salt shortage and are obliged to produce more saliva to lubricate the act of chewing and swallowing and also to supply the stomach with water that it needs for breaking down foods. Circulation to the salivary glands increases and the blood vessels become "leaky" in order to supply the glands with water to manufacture saliva. The "leakiness" spills beyond the area of the glands themselves, causing increased bulk under the skin of the chin, the cheeks and into the neck.

21. Sea salt contains about 80 mineral elements that the body needs. Some of these elements are needed in trace amounts. Unrefined sea salt is a better choice of salt than other types of salt on the market. Ordinary table salt that is bought in the super markets has been stripped of its companion elements and contains additive elements such as aluminum silicate to keep it powdery and porous. Aluminum is a very toxic element in our nervous system. It is implicated as one of the primary causes of Alzheimer's disease.
22. Twenty-seven percent of the body's salt is in the bones. Osteoporosis results when the body needs more salt and takes it from the body. Bones are twenty-two percent water. Is it not obvious what happens to the bones when we're deficient in salt or water or both.

CLICK HERE For more and full article;

Welcome to the Frontpage

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sparkle7
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Thanks for the info. I was getting this protocol confused with the Marshal Protocol... I'm not really interested in the Marshal Protocol but this info that you have provided is intriguing.

I'm going to look into it when I'm able to start new therapies. I'm not a big salt eater but I can see that it may be useful.

Vitamin C flushes were suggested to me as a way of detoxing in relation to Dr. Shoemaker's detox. There is a particular special vitamin C that is used. I think it's Perque brand...? I think you are supposed to get a prescription for it.

-----
Vitamin C calibration flush -
http://www.perque.com/pdfs/Pt_Ascorbate_Slush_FIN.pdf
-----

Just a note - my doctor suggested to take something with fats as a way of dumping toxins from the bile after taking Chlorestramine (spelling?).

He said to take something with a "healthy" fat like cream cheese or a hard boiled egg about 40 or 45 minutes after the Chlorestramine or Welchol (which is what I was taking).

I'm sure it's good to proceed with caution as with any protocol. I think alot more people have died from pharmaceuticals or doctor malpractice than alternative medicine.

I don't see it as being necessary to dislike people if they chose to do one protocol or another... It makes no sense to me why people are so wrapped up that their opinion is correct & others are not.

We are all different. Lyme & company is complex. I don't know why it's so offensive to people to experiment to find what is right for "you" as an individual.

I guess people feel threatened by things that are different & they lash out... I feel you just have to do the research & make a decision that is best for you.

Please keep posting your results.

-----

PS - About Perque Vitamin C - (I don't sell it!)

Which Ascorbate Is Best to Use

It is preferable to use a 100% l-ascorbate, fully reduced, buffered mineral ascorbate form of vitamin C that
contains a proper balance of the major essential buffering minerals:

1) potassium, 2) magnesium, 3) calcium,
and 4) zinc.

No dl-ascorbate or d-ascorbate should be used as the d-ascorbate form is not absorbed by
humans; people take up only the l-ascorbate. Per gram of ascorbate, we find best outcomes, patient
compliance, and satisfaction from a balanced mineral content of potassium (66 mg.), calcium (27 mg.),
magnesium (11 mg.), and zinc (400 mcg.).

* This means that if you were taking a half-teaspoon of buffered ascorbate that has no masking or
``inert'' agents in it, you would have 1.5 grams of ascorbate containing potassium, 99 mg.;

calcium, 40 mg.; magnesium, 16 mg.; and zinc, 600 mcg. If there is less than 1.5 grams per halfteaspoon,
there is likely to be a hidden or masking agent that may cause digestive or immune
problems.

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DebAz
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Hi.. I am doing the Cholestymine for awhile now and yes.. It is supposed to be good to eat about 30 minutes after and that is how I do it..

I am a bit confused by the later part of your post about the vitamin C. ?? Not sure if you were giving info or asking and I also did not follow the info too well. >Maybe it is just late for me. Sorry.

Debbie

PS there are other posts I put up about DR S and Dr T and the Vitamin C Flushing and the Cholestrymine (not just for mold issues like a lot pf people think).

The post is now current as I was just talking to another person about it and the VCS testing..

Take a look if you like

Whats your protocol now??

I too have avoided the Marshall Protocol and it can be confusing how one doc can and does contradict the other at times so obviously.

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DebAz
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To Gael and Sammy
You have said a few times the Herxs can be hard and I was wondering if you could elborate such as how long after you started the protocol and what the symptoms were and how long the herxing lasted

As well was it in cycles that the herxing came. Did each time you did an increase in the amounts of the Salt and C did you again go thorugh the same Herxing?

I would like to hear more specifically your stories on the tough part of the protocol from the start to where you are now.

It would be very helpful to hear for me and others.

THANKS SO MUCH
Look forward to hearing from you.

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sparkle7
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I just figured that the Perque vitamin C might be good to use since it's good for the flush, too.

There seems to be a similarity/overlap between the 2 protocols in this way.

Re: chlorestramine - FYI - my doctor said to eat something with fat in it for the bile to dump - not just anything.

PS - I may be off line for a couple of weeks (just in case I don't reply). We are relocating soon.

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sparkle7
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PPS - I'm doing the full Cowden protocol. It's just temporary since we are going to be moving soon. I don't want to go into a big herx for the time being.

I have been herxing but not in a severe way.

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Keebler
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-

Sparkle,

About your doctor having said " a "healthy" fat like cream cheese or a hard boiled egg . . ."

Well, an egg may be healthy but still would not be the best choice if you want concentrated therapeutic oil. And cream cheese certainly is not a healthy fat.


Organic (if possible), extra virgin Olive oil or Organic, extra virgin coconut oil - and fish oil would be top the list of healthy fats. Organic nut oils, too.


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Keebler
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Sparkle,

About your doctor having said " a "healthy" fat like cream cheese or a hard boiled egg . . ."

Well, an egg may be healthy but still would not be the best choice if you want concentrated therapeutic oil. And cream cheese certainly is not a healthy fat (although if one chooses this organic and from cattle free of rBGH is best.)


Organic (if possible), extra virgin Olive oil or Organic, extra virgin coconut oil - and fish oil would be top the list of healthy fats. Organic nut oils, too.


-

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FancyRatFan
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Debaz,

What's the new thread called? I'm having trouble finding it.

Fancy

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FancyRatFan
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Good Questions Debaz,

I'd like to hear from Sammy and GLM on the Herx's

thanks

Fancy

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DebAz
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Hi there
The new post for us who are starting the protocol is

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=074996

Topic: Vitamin C Salt Therapy Group Data - Feedback on how it is going for those trying it

Looks like some who were going to start with me this week are delaying it for various resasons like holidays or family visiting or such as you moving

But there is the thread link and maybe it iwll be easier to locate.

But sadly .. I was hoping it would be just a reporting data spot and it is becomeing more like this one with people coming in and out with comments about the protocol.

So it did not work so far as I wanted or intended but everyone has the right to jump in any time.. That is what this forum is..

But I anyway... Maybe it would be bettter just to keep it all here?
Do not know..

What ever everyeone thinks is better and easier is good with me.

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FancyRatFan
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Hi Debaz,

I was hoping for the same kind of thread you were.

I thought this thread could be the comment thread and the other as you said.

Shucks what can you do? [Smile]


Mabe I'll state something on the other thread of what we would like it to be. Hopefully people will respect that.


Fancy

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DebAz
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CHECK IN FOR DAY # :# 3 - Feeling pretty good today . Not great but not a Herx type day. . MIDDLE GROUND What I call Level 2 type of day. See below

DATE STATED SALT C : 12-2-08
KIND OF SALT : Eden Sea Salt French Celtic
KIND OF C : Bluebonnet Buffered C Crystals
AMOUNT STARTED : 1/4 tsp (I am 6ft tall and 215lbs)Optional
HOW IT IS SPLIT UP: 1/8 tsp am +1/8 tsp pm
PILLS OR LIQUID : Liquid drink combining Salt/C
ABX ON or OFF : On
ABX KIND DOSAGE: Ketek 400mg M W F weekly

How I rate days..
I usually use 3 words as of now to rate days and working on 4th.

1 = Herxing -In bed all day for the most part

2- Middle ground -where I am up by noon and get about 6 hours in that I am up.

3 - Good -day where I am up before noon and I have about 6-12 hours i am up and around.> low energy but up out of the bed

4 - Very Good- not only be up and about but to start getting energy to do things and to be productive.

5 - Great -feeling close to Normal again, still have many symptoms to manage and can think of working part time maybe

6. Last goal and I still hope to feel NORMAL one day.!!


Even on the first 3 levels I can not work or do much of anything strenuous. I got to a level 3 One year and was able to swim each day and take walks.

I use this with my doctor too because those hours also coincide with pain and fatigue levels and it works out for us.

He used to ask me to put down 1-5 my pain and fatigue levels and it always coincided with the above type of days. So now that is why i can lump them all into one reporting.

For me typically... While on treatment I feel worse such as level 1 or 2. I then feel better off treatment like 3 .

But when I get the flu or when I cycle after months I can go down again off treatment. But the odd thing is that the treatments is usually what creates the fear in me of feeling worse. That is what everyone says is a Herx Reaction and that it is a good sign.

Well I hate to accept that, as I HERX usually for long long periods of time so instead i have tried to find a middle grown on the treatment and meds where I do not HERX so severely I am bedridden every day.

Or I cycle things one week off and one week on or even one month on and one month off. I think my body is very appreciative of that and can try to work on being itself again.

I hope that all makes sense..

Debbie..

THANkS for listening..

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DebAz
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Is there any way for me to change the title of the post as the person who started it?? I do not see a place I can do that.??


As well for now I am posting on both.. But that might confuse things more.. I can delete them..

[ 04. December 2008, 04:41 PM: Message edited by: DebAz ]

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FancyRatFan
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Debbie,

Yes there you can since you are the original topic provider.

Go into Edit mode and you should see your topic in a small rectangle space above your post.

You can edit that just like your post.

Fancy

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sparkle7
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Keebler - No - my doctor said it should be more of a food - not like fish oil... if that makes sense. I told him I was taking fish oil & he didn't think that was the right type of fat. Maybe it needs to be a food as opposed to a supplement? Coconut oil on bread might work.

I know "healthy" fat is a relative concept.

My doctor is a good guy but he's not perfect. I think he tends to be moderate in regards to diet & lifestyle. I don't have any health conditions that I would have a problem with eating cream cheese or eggs.

PS - editing - click the icon with the little white rectangle & the pencil. You will be able to edit your posts from there.

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sparkle7
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I think if you click on the first post in the thread, it will let you edit the title... Is this what you mean?
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DebAz
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Yep Got it thanks
I was trying to delete my question so i would not bother anyone but your fast..

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DebAz
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OK i saw your start comments.
Have you posted on the other site your details and progress notes??
I will go look for it.. : )

DEBBIE

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DebAz
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For any who are on or starting the protocol..
I would LOVE LOVE to see you post your data on the new post for
people who want to learn from others experiences..

at

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=074996


Hope to hear from you there..

Can Gael and Sammy Post your information in a nutshell there at least once for us to review???

Just use the format I started and cut and past and that will keep it simple and easy to follow if you do not mind??

I do not mean to bug you>>>
I appreciate all the time you already have taken..
So if not thats cool too..

Debbie.
Sincerely

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glm1111
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Hi Guys,

As requested, I will do my best to give you the details of what took place over the last 2 1/2 yrs since I started the salt/c.


Going back 2 yrs trying to remember sequencing of things since I started the salt/c can be a little vague.


This I do remember.I was taking strong Chinese and South American antiparasitic herbs for 6 months starting in mid 2005.


I was having severe internal vibrations, (like a riveting machine) tachycardia, bad brain fog and severe burning pain thru my body. All the other aches and pains associated with Lyme & co.


I decided to start the salt/c while on the herbs and 2 days later, all hell broke loose. Approx May 2006.

( I also do clear water enemas) I take coconut oil and lots of kefir/yogurt and probiotics. That's it.


Everything that you see on the lymephotos site came pouring out of me including very large ascaris worms 18-20" Other filarial worms(looked like colored sewing thread(eggshell blue) came out of my scalp, my mouth.


Microscopic worms came out of my eyes,and nose.(Occurring over months)Horse hair worm,(8") and filarial worms and creatures I couldn't identify as well as hundreds of eggs.


This die off has been occurring intermitently over the last 2 yrs. It is still occurring but not as massive of an exodus.

I can't really explain why these herxes are so severe other than to say everything is really intensified.


I have not missed a single dose of salt/c. I also have had a lot of emotional herxes as well. A lot of heavy crying.


This might be too much info, but this is my experience. I have seen other people post the same info that have done the salt/c.


I posted some peoples experiences a few posts back. SALTYDOG member #6253(sept 21st)........FITSTICK member # 6812.......PHIL RICH member # 6817. I have seen GiGi post similar info.

No, this is not what is referred to as Morgellons. 97% of people who think they have Morgellons have been diagnosed with Lyme.


I believe they are one and the same. Burgdorfer found adult FILARIAL WORMS in the ticks and as an aside found spirochetes. These worms are also producing bacteria.

A lot of people want to stay in denial and think they are just chasing borrellia and other bacteria.


I think that is why antibiotics are not the sole answer and why people relapse. I am still on salt/c and getting rid of stuff daily.


I am definitely seeing a light and feeling a lot better. Pain almost gone. Brain fog lifting,vibrations are still there but slight.

I have been sick for over 30 yrs, and I think the longer you are sick with this the longer it takes to get rid of.


There is no doubt I needed antibiotics in the beginning, but antibiotics can't get rid of worms and parasites.

I hope this is the info you wanted to know. Sorry Deb I couldn't quite get it into the format you suggested.

Peace & Light everyone,

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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Brussels
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I've been on good salts (in my food) forever, I guess. For decades, certainly. The last 3 years since I caught lyme, I went into Himalayan salt 95% (the rest were from sea, non processed).

And I like salty food and never had high blood pressure, except during the salt-C protocol.

Adding more extra salt for the salt-C protocol DID cause my blood pressure to raise 3 times, measured by a pharmacist and a doctor. And I was on 100% Himalayan salt.

When I stopped the protocol, my blood pressure went down. It happened twice, in a couple of days, my blood pressure regularized. The third time I stopped it, it took more than a week to get my blood pressure down.

High blood pressure caused me insomnia, so I got tired during whole days. By getting tired, I had less energy to perform my survival daily tasks that were already hard to perform due to lyme.

I do know my tinnitus started during salt-C, and it was one of the longest lyme symptoms to go. If it was caused by salt-C, I don't know. But CERTAINLY, my high blood pressure was caused by it.

Knowing that my heart had inflamation due to lyme, that I was having problems to breathe due to babesia, that high bllod pressure can kill, and that I was getting more and more tired due to sleepless nights, well, I thought it was more advisable to stop salt-C.

I did. And I never regretted.

In my case, herbs like Buhner's herbs, some of the Cowden herbs never caused my blood pressure to raise, they helped cleaning my body, and are much milder and I improved slowly but steadily with them. I think I never got sleeping problems once I started on herbs.

The electrolytes that one needs can be added to diet only with very minor amounts of good salt, no need to exxagerate. I still take my electrolyte 'juice', but with just a few grains of Himalayan salt a day.

I continue eating my salty food as before. Consumption of good salts much before lyme didn't prevent me to fall sick with lyme.

No, the protocol is not the answer to all. Some people that got trouble with the protocol got banned from lymestrategies forum.

I was not banned but figured in the Success Stories of the site!! Even though I said I was leaving salt-C BECAUSE I couldn't stand it.

If you have to be many years on a protocol to feel great and when one misses one day, you feel crap again, well, I would just question if one is really healing with it.

I treated with herbs and other stuff, now I'm OFF all lyme herbs and lyme symptoms don't come back because I'm a few days without herbs. Not at all. I'm even a few months without them now.

It took me less than 3 years to be free of lyme treatment.

I don't like to post about salt-C because people on salt-C are so defensive. I wonder why. They get mad when someone says s/he can't stand high salt consumption. That's my overal impression. They love to say we are lying or we did the protocol wrong.

Nope. If it works for some, great. But it certainly doesn't work for all. For the ones it didn't work, it was sometimes a dangerous protocol. This has been said over and over again here (not in lymestrategies!!)

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seekhelp
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I'll be a watcher on this protocol. I just will not consume 20 gr of sale per day with hypertension. I have read evidence that sea salt is supposed to be good and can lower BP to some degree. However, it didn't say 20 gr.

I wish everyone the best. For me, the risk / reward seems too high. I'm sure others feel much differently.

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kelmo
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Deb, I think there is a Yahoo Group that focuses just on this protocol. I think you would find some good information there.

For here, I think it was a passing fancy that was tried and tossed aside.

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DebAz
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Hi.. Is the yahoo group Lymestragies. I have looked around there.
I am playing this by year.. Taking it slow. It may be just right that 1 gram a day is a good enough addition and when i go up it may not be a good thing.. or it might be.. All ears and eyes open.
I am not defensive and i am glad for all those that post thier negative experiences and actually I learn the most from them as I go forward and it makes me be careful. I may get my own blood pressure cuff to watch myself. I do not have High blood pressure but it is not low either. usually pretty normal.
So that is how it is going to go for me..
I read that you start on like 1 gram a day and 18 should be the highest but that 3 grams a day even is a good in between number to shoot for for theraputic levels. I think I have seen some that keep going and pushing and if their bodies are responding well.. they thats good for them and if you are more sensitive you may need to stay at a lower number.. And overall the whole concept of errdicating bugs and parasites by making the environment for them non livable make sense for me.. i also have had acute and rpeated intestinal infectxions that end me up in the hospital and I am hoping this may help make sure they do not keep reocccuring. I guess we all have our reasons.
Thanks for the ideas and comments..
ALL THE HEALTH and WELLNESS to everyone..
Bless You all
Deb

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glm1111
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Hi Brussels,

Thanks for your feedback. I am glad you are feeling better. Some people are salt sensitive, so it would make sense for them not to do the protocol.

This is just an objective view, but I think the tinnitus and insomnia sound like a herx.


Regardless, if you were uncomfortable with your pressure elevating on the salt c it is totally understandable that you backed off of the protocol.

The other thing I would like to address is this. If someone presents an adverse reaction to something and it comes directly from that person in a constructive way, it is not objectionable.


But when people attack a protocol using fear tactics with anecdotal information that is not credible that's just not acceptable to a lot of people.


I did a search on here and found that Scott F said his B/P elevated while on the salt/c. The other reports were anecdotal and fear based.

No one said this was the only defense against this disease, but it could be a great defense. People should be able to research and make up their own minds.

We really don't have that many options. A lot of people including myself have done herbs, antibiotics and other modalities to get rid of this and are still struggling.

If salt/c works for hundreds of people and they can tolerate it, then it is a great option.

Take Care,

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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DebAz
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I agree...we do what works for ourself and we choose what we want to try and do ... as well as choose what we want to think and read and write.. its all so great the freedom we have in the USA!
D

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FancyRatFan
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I agree too! Thanks Brussels I found your experience informative.

Some precautions

If one starts gaining a pound a day they should quit.

Check blood pressure often.


If ankles start to swell quit the protocol.

Friendly advise from my Father the Pharmacist.


[Smile]

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Brussels
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Gael, I don't know for you guys, but high blood pressure killed almost all of my family members, even though a few died of cancer instead.

If salt raises blood pressure for some, it is dangerous, and there's no policy of fear in it. It is fact.

Heart disease was the first cause of death worldwide until recently. I think only recently, cancer is taking the front line. It is not policy of fear, I've seen it in my family.

I'm not against salt consumption, not at all, I love salt. But it's the excess of salt that my body cannot take.

Both my parents are salt sensitve, and so two of my brothers (only one is not, like me). They all get a rise in blood pressure and eat most foods almost without salt I mean.

Not everyone gets any symptom with high blood pressure, so it may go unnoticed. Not all have insomnia, not all have jitterness, rage. Only measuring it can say.

In my case, having seen what hypertension can do (it crippled my grandparents before killing them), well, I preferred not to risk lyme for hypertension, if you see what I mean.

I'm not making a policy of fear, I'm just saying what I thought when I decided to quit the protocol.

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