posted
Anyone doing salt/c and antibiotics at the same time????
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Catgirl
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Nefferdun, headaches could be bart, light sensitivity--lyme.
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posted
I'm on antibiotics and just started salt/C today. That's ok right?
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glm1111
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Many people take abx while doing salt/c. You can also check out the lymestrategies forum salt/c group and pose the same question.
Gael
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Is lymestrategies forum a yahoo group or is it a facebook group?
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glm1111
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yahoo group. Just google lymestrategies
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glm1111
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nefferdun,
Filarial worms and other parasites can cause eye infection. I have had bloodshot eyes and when I tx with salt/c and antiparasitic herbs, small parasites started to exit in the form of "grit" through the tear ducts.
Maybe consider salt/c along with antiparasitic herbs.
Gael
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posted
Would just the salt of the salt/c protocol aid with getting rid of parasites?
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CD57
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Hi all, I had been on once/week Ivermectin and my twitching/fasciculations (happen a million times a minute, even my tongue!) were drastically reduced if not gone. Then they started to creep back and now they are fully back!
I didn't herx on Ivermectin, I don't herx on anything, just flare or improve (herx implies improvement follows). Now Ivermectin seems to be failing. Should I move it up to every other day?
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CD57
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Hi all, I had been on once/week Ivermectin and my twitching/fasciculations (happen a million times a minute, even my tongue!) were drastically reduced if not gone. Then they started to creep back and now they are fully back!
I didn't herx on Ivermectin, I don't herx on anything, just flare or improve for a little while, then go back to where I was (herx implies that improvement follows). Now Ivermectin seems to be failing at this once/week dose so it appears to have been suppressing something but not killing it.
Should I move it up to every other day?
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glm1111
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CD57,
Sounds to me like the parasites/worms are acting up and the Ivermectin dose you are on is not strong enough. Have you tried the combo of doxy and Ivermectin? Doxy is supposed to kill the baby worms. Or the salt/c antiparasitic herbal combo?
Herbs and salt/c would really be my first choice for killing both the adults and the babies along with extra cloves. Ivermectin does not kill the adults.
Either way, when dealing with a hyperinfection of parasites you have to be VERY diligent and not complacent. The eggs and larva will keep hatching and the cycle will start all over again.
Gael
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Catgirl
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I have taken it every day with no problems. I feel great on it. You can always try every other day as some other people have done.
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lpkayak
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im back on but with only 1/8 tsp salt and i get a stabbing in my chest each time i take it-with c and much water. trying to ignor it...i think have eaten that much on food in the past. got my pink salt on sale today...
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posted
Hello- new to this awesome thread. My husband tmcm has been posting on here the last week. Started salt/c last Monday.
Had two awesome days then hit a brick wall. Today I am recovered from the herx and starting tomorrow with the 1/8tsp dose of Hsalt with the C.
I was in a lot of pain, seizure like spells, trouble walking,tremors, numbing and tingling throughout body, nausea and brain pressure and pain. My lymph nodes under my arms were also throbbing. I pretty much slept in between spells, tremors and pain the last 48 hours and I finally felt recovered this afternoon. I think if possible sleep is important also to getting through a bad herx. I have a lot of symptoms from babesia, borrelliosis and bartonella and a lot of nuero/CNS symptoms, so my herxes are doozies. Hard on my family.
I have so much neuro involvement it seams any treatment or protocol I do hits me really hard. Does anyone else have this problem?
Gael- we have the book on the protocol. Good information. It talks about drinking clay along with the salt/c and 75% veggie diet. Working on the diet. But I am not ready to add the clay drink. I am going to stick to clay detox bath once a week.
Catgirl- I have considered the enemas, but these have always been very painful for me (I believe due to my IBS). I am considering diet of fruits, veggies, rice and I am drinking 100 ounces of water a day. I tried charcoal once before and had painful vomiting. Probably needed to get junk out, but not sure if this is ok for stomach etc.
I take VSL probiotics. They very much help. My doc said I also need nyastatin because it kills the yeast and then probiotics replenishes good bacteria. Especially while on abx. Curious if anyone else is using this combo for yeast protocol.
I am having a lot of problems with GERD, painful or I would add lemon water to my detox plan.
Hope all are doing well
-------------------- Molly Posts: 7 | From Illinois | Registered: Feb 2013
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dbpei
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Molly, I am sending a PM your way. Posts: 2387 | From New England | Registered: Aug 2011
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-------------------- Molly Posts: 7 | From Illinois | Registered: Feb 2013
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glm1111
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Tmcmhope,
Your welcome! As far as the Green clay goes, I didn't take any myself.
I did however add antiparasitic herbs, extra cloves, Super Digestaway by Soloray Plant enzymes and HCl. I also suggest drinking coconut water (anifungal, balances electrolytes)
Plain kefir is a good idea as well as the VSL probiotics you are on. I also took coconut oil which is antifungal. Welcome to the group!
P. S. I had SEVERE neuro Lyme with my LLMD finding a bullseye on my head.
It takes getting rid of the infections until the neuro symptoms clear up. The digestive enzymes and coconut oil/water helped a lot. Keep us posted.
Gael
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lpkayak
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i think i might have bought too much pink salt-xtra fine. does anyone in new england want some cheap? it is too heavy to mail...but i might be able to deliver. pm me.
still in 1/8 ... very very sleepy but i did shovel a lot of snow
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Catgirl
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Welcome Tmcmhope!
Gael and Nefferdun, I had that weird grit in the corners of my eyes too (like tiny seeds)! These parasites are a trip.
Does anyone know what alinia hits?
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quote:Originally posted by CD57: Now Ivermectin seems to be failing. Should I move it up to every other day?
Hi CD57--You can certainly increase the ivermectin if you want to try that. I've been taking it every other day mostly. I also take albendazole with it.
Internationally, a combo of albendazole and ivermectin is used to treat many serious parasite infections. It's recommended by the WHO. As Gael mentioned in her post, the ivermectin probably doesn't hit all forms of the parasites so using it in combo with something makes sense.
Be careful with albendazole and start with low doses if you try it. It was very effective for me and I herxed bad.
Another good combo to try which might be a gentler step is to add pyrantel (PinX) in with the ivermectin. This was also effective for me!
Personally I do not rule out the salt/C route at all, and I am grateful to Gael and everyone for describing their experience with it. I just wanted to try the meds first--in the future the salt/C is my backup plan!
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CD57
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I am also on Alinia and malarone.
I think this is bart! I have a stabbing icepick headache on one side and jaw pain, and last night the twitches turned into full blown seizures. I have always had trouble with not responding to ANYTHING which was why I was really hoping that parasites were the missing link. Last night my mouth started spasming, my teeth were clicking, my head jerked and legs, and the twitches turned into full blown fasciculations. SO SCARY. My LLMD has always said it was Lyme and bart!
I don't herx in the classic way and don't improve either. A med either makes me feel better, which doesn't last, or doesn't work at all. Has this happened to anyone else? what if I am a non-responder! I AM so scared that death is the only way out of this. My poor family.
Tammy/Gael anyone--please post about how you treated and with what before your discovery of parasites? I am having a hard time believing this is parasites but I am regressing so quickly.
Tammy N.
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CD57 - I am so sorry for your struggle.
Before my discovery of parasites, I did several abx long-term....doxy, zith, rifampin throughout the years. I never really did combination therapy. In addition I did a lot of integrative things....Cat's Claw, Olive Leaf Extract, etc and tons of other supps.
Nothing could really get my buzzing, tingling, vibrations to stop until I finally started treating for parasites. I can't believe I am still so loaded with these things. I am committed to staying on this path.
It sounds like you may need to be doing more on a daily basis. See what you and your doc can come up with.
Hope you find your answers soon. Sending hugs your way.
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Catgirl
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CD57 I'm so sorry you are regressing right now. I think you're on the right path with parasites. I'm sure all of us have them.
Some people just don't herx (been told this before by another LLMD). And not everyone gets better. I've been told that some people who don't herx do get better too.
I've gone up and down the past two years of treatment (better, worse). I felt really good last fall, then bam, the lyme started to come back after some stress.
Remember in Under Our Skin that Dr. Burrascano said he couldn't help some people? I suspect those people had a rather large imbalance of parasites. I'm no doc, but the twitching sounds like parasites.
Were you on iver, alinia and malarone last night? Do you think the combo may have had something to do with your seizures? Maybe what you experienced was due to your attack on parasites. Most of us have many co infections attacking us at once, so it's hard to tell. Hence, the long climb out of it. We are all different, so each one of us experiences something different altogether.
I know from looking at my treatment during the past two years that regressing all of a sudden didn't necessarily mean I was on the wrong track. It meant that something else was going on. Sometimes it took months for me to discover what was likely going on.
I have many co infections, and while fighting them, trying to get rid of heavy metals and parasites, all sorts of weird setbacks popped up for me. Last summer I started on parasites and felt better. Then I had a setback. Then better, then another setback. This is how it goes for many of us.
Hang in there CD57. I think you're on the right path. Just keep pushing forward.
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glm1111
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CD57,
I took abx for 4 yrs including 6 mos of IV Rocephin and 2 yrs of IVIG and was still very sick. The antiparasitics and salt/c saved my life, but I herxed like crazy. The difference was the parasites were exiting in the toilet!!
Given that you are on antiparasitics, the symptoms you are describing are a herx. You are responding to the drugs as they kill the parasites. Killing parasites can be difficult, so try and hang in.
It took me a long time to get rid of these parasites and I am still getting rid of some tiny ones. I am 97% better than I was six yrs ago. Have you seen any parasites exiting? Have you done any warm water enemas?
The other thing is, you might want to take a little break from the meds until the seizure activity and other symptoms calm down.
Sorry, I know this is so difficult, but we are here for you.
Gael
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gigimac
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Is there a way to tell the difference between candida and parasites after they have exited?
Still trying to figure out what I have coming out.
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CD57
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Did anyone have these internal tremors/vibrations CONSTANTLY? Or head jerking/mouth snap?
Gael did you have ANY symptoms from neuro Lyme and bart or was everything parasites?
I have not seen anything exiting, no. I keep hoping to. Everything has been very hard and dry and compacted.
It's possible that this is from the meds I'm on....it's day 10 of them and only recently did I get to full dose of 3 Alinia per day with 3 malarone 2x day. I don't think the malarone is doing this, rather the Alinia as I can feel it cross the BBB.
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glm1111
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Can you describe what it looks like gigi? There are pictures of parasites on line.
Gael
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My son (12) did three days of salt/c and started to have crazy anxiety, same as he got from antiparasitic herbs.
Took 2 days off salt/c
Now one day back on.
The good news is that his stomach pain has diminished dramatically, only coming on near the end of the day.
His anxiety is less, but again peaks at the end of the day.
Questions:
Thoughts on treating every other day, or two on one off?
Do parasites "act up" during certain times of day?
Don't know if any thing is exiting, he wont let me look. Too embarrassed.
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glm1111
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CD57,
Given what was exiting from my scalp eyes, nose and mouth, it was mostly about the parasites. (I know it sounds gross) but hey, these ticks are spitting out some pretty bad critters into our bloodstream)
Remember, Willy Burgdorfer found Adult Filarial worms in the ticks he dissected. This is what exited in the toilet for those newcomers that haven't seen this. www.lymephotos.com
I am convinced that Lyme disease is mostly parasitic in nature and that is why so many here are chronically ill. Given the fact that these parasites were exiting from my scalp, it would stand to reason that's what was causing my neuro symptoms.
It wasn't until I added the salt/c did I see anything exit. I think the combo of the salt/c and herbs are deadly to these parasites. I am just wondering if in your case the salt/c would make them exit.
P. S. I had Internal vibrations constantly and also head jerking and heard loud snapping sounds in my head.
Ten years ago, before antiparasitics, my head, chest, and pelvis went completely numb and my whole face turned a bright red. Just trying to give you a picture of what you're asking.
Hope this helps clarify.
Gael
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glm1111
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canadianmama,
If his anxiety is too bad, there is no reason why he can't do salt/c every other day. In fact, I would wait until the anxiety calms down completely before giving him another dose.
I would also really tell him how important it is for you to look in the toilet after he goes. Emphasize that it will let you know how much or how little salt/c to give him and it will help in his healing.
Not sure when the parasites act up except during a full moon. The anxiety could be from dieoff. Glad to hear things are calming down for him.
Gael
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Tricky Tickey
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Gael, hon, I've got to ask about the parasites that exited from your scalp. What did they look like, how big were they? Did you actually see these repulsive things in your eyes?
I'm tough, I can take the truth.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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gigimac
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Gael, I could post some pics from curezone that look very similar to what I have if that is ok?
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glm1111
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Tricky,
GO FOR IT! Some of the ones I had looked like the colored thread looking ones on www.lymephotos.com I had green, red and eggshell blue ones come out of my scalp. This is like a Stephen King novel.
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I am on my 16th month of severe neuro spells, my LD says they are seizures. This is in addition to the muscle weakness, internal buzzing/tremor/vibrations. The spells make my face jerk and i have trouble talking, my mouth clenches shut and my gait is very uncoordinated and I often fall if i try to walk. My breathing is also effected and i have felt popping in the side of my head as well.
I have had vibrations in my spine since I noticed the muscle weakness and brain fog that started in 2006. I was diagnosed with Lyme disease in nov 2009 and immediately started abx treatments.
I am now focusing on the babesia and parasites. I have had times that I felt like my brain was boiling and my body shakes from the inside out.
I also have the constant internal vibrations. Sometimes it includes my legs, feet, arms, hands, spine, face, jaw and back of head all at once. Recently the spells have been more violent- my body jerks and i have no control of my hands. I definitely have a high disease/parasite load in the brain/CNS and spine area and also my eyes. I often can't focus them- pulling and pain from behind. Sounds like you may as well.
I feel your pain!! It can be hard with the treatments because it effects our central nervous system. My hope is that those buggers are getting mad and moving out.
Not sure if this is what you needed, but I know their are so many symptoms it is hard on all of us and its nice to know we aren't alone.
To fellow warriors: I had a rough first week, but I'm back on and some good news- I have tiny hard pin point bumps on my forehead and the sides of my face. I also have sores on my head, kinda blistery like, that are popping up. I'm hoping these are parasites leaving my head (and my brain for good!)
I pray that all get relief soon. My heart goes out to all.
-------------------- Molly Posts: 7 | From Illinois | Registered: Feb 2013
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glm1111
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Tmcm. The bumps you describe are most likely parasites. They can't stand the salt. It puts them into osmotic shock (dyhydrates them)and they can't get out fast enough.
You might want to consider adding some antiparasitic herbs such as Humaworm or Parastroy and doing some warm water enemas to release some of the dead and dying toxins.
Sorry you are so sick. Such a horrific disease, but with persistence you can get rid of it.
Gael
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MannaMe
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my husband is using DE - he recently got what looks like scratches on his back from fingernails. Sort of like gouged and then scabbing over.....
Is that from parasites? We can't think of anything that would have scratched him there. Its in the mid-back area on either side of the spine, on top of the band of muscle running down your back.
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glm1111
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Yep parasites along with bacteria. I have gotten the same kind of scratches in the past. This is a VERY good sign that the DE is working and pushing the infection out.
These parasites have invaded the organs and tissues as well and can appear anywhere on the body as they are being pushed out of their comfort zone.
I had a fierce looking rash come out from under my breasts several yrs ago. I also had small red rashes appear on my stomach, chest and wrists. They would scab over and then eventually heal.
Gael
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MannaMe
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Yes! Then that means we are making progress!
The other thing is, he is doing foot bath detoxes. On the inside of his foot / ankle area, at the water line - he has small bumps that stand out more after the detox.
They also get a scab on them - mostly just pin head sized. Though he did have one bigger bump more on the top of the foot that he dug into to try getting something out of it. Wonder if that was a parasite of some sort?
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Once I get a few days under my belt back on the salt/c I'll add the humaworm.
I'll look into enemas, I know it's inevitable, but they are so painful. No pain no gain tho right
Sounds like you have been going through your own neuro battle. I was on IV drugs for two years, I feel your pain. Hope you are doing better
-------------------- Molly Posts: 7 | From Illinois | Registered: Feb 2013
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glm1111
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Okay, As scary as this sounds, I have had a parasite come out of my toenail. That's not the weird part. It was toenail material and in the shape of the same parasite I had seen emerge from my skin.
I actually felt it pushing out and thought my toenail was expanding! I have also had the pinhead sizes and they resembled a cherry stem.
If you want to pick it(not always suggested) wait until it fully dries to a scab so you don't get an infection. Here's what I finally realized.
These suckers have disseminated from the top of the head to the bottom of the feet and everywhere in between. Some of them lay 200,000 eggs a day.
That's why it's important to take at least 6 extra cloves a day to kill the eggs and larva. If your hubby can stand some salt/c that would even be better.
Gael
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lpkayak
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yes-be careful about infection. i have a lot of seseme thing seeds come out of my skin -way more when i am on salt/c...and when i feel them coming i want to dig them out and have to stop myself.
i got a really bad infection once from a mosquito bite-if you are out and about you have no idea about mrsa and other carriers. the carriers dont get sick but they leave the critters on door handle s in bathrooms etc...be careful when you break the skin-i almost died once...from a mosquito bite!
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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So does anyone think salt/c works for babs too? This is my 3rd day at 1/4 tsp only and I'm so short of breath I can hardly move, shaky and weak inside.
Posts: 908 | From Albany | Registered: Nov 2008
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I'm doing only Paragen now because of strong Neuro reactions I've been having.
My ND believes my neuro problems- tremors, overstimulation reactions, word slurring, etc. are all due to ammonia being released into my system by parasites and other infections.
Basically, I was already toxic before starting to treat parasites, and the extra toxins from die-off pushed my system over the edge.
I started taking Molybdenum for the ammonia and Neuro-Antitox II 4x a day. I cut out Salt/C and Humaworm for now until I am able to handle the full dose of Paragen without the neuro problems.
I am still seeing parasites DAILY. This is just amazing and never stops shocking me. My gut is slowly feeling better- I will be adding a different probiotic soon- but my diarrhea/constipation is much less severe.
Anyway, this has been really hard so far, but very worth it. And it makes me feel like I am winning to actually "see" the progress I am making as these invaders leave my body.
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glm1111
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jicd1
You could also be short of breath from lung worms. You are herxing!! STOP the salt/c until the herx calms down. A warm water enema could help the dying parasites exit.
Since you are so symptomatic, it would be a good idea to get the e-book from lymestrategies or order it from Amazon to help you get through this.
P. S. the salt/c and herbs also kills babs.
daynise,
That's GREAT that you see parasites exiting daily. You are on your way to better health now that you've uncovered the enemy! Feel better.
Gael
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Thanks Gael. Lots of top of head pressure so I hope babs is dying.
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CD57
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BTW I wanted to post that my bizarre twitching/seizure stuff the other night my LLMD said is a Lyme flare and RXed Augmentin with my malarone and Alinia.
I have quit the salt/C for now but was not getting much of a reaction at 1/4 tsp 2x day.....does that mean it's time to go up? I know some people didn't feel anything until the higher doses.
My stool has been very hard and dry with lots of mucous but I have not "seen" anything
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CD57
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Member # 11749
posted
Manna Me, I wonder too if DE could be hitting bart? Bartonella is notorious for causing those types of rashy things....anyone heard of DE actually killing bacteria vs parasites? Bacteria don't have that exoskeleton thing (I don't think) the way parasites do....
Posts: 3528 | From US | Registered: Apr 2007
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
CD57,
Didn't you start to experience seizure activity and twitching after you started salt/c? FYI, The parasites are carrying bacteria, fungus, yeast, and mercury in their coats and is released when they start dying.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Nope, Gael, I stopped the salt/C when I started malarone and ALinia on Feb 1. Haven't used it since then, was getting ready to add it back in.
Oh, and I upped my ivermectin from once / week to every other day.....undoubtedly a connection with this anti-parasitical combo of Ivermectin/malarone/Alinia! Light bulb moment. By the way, the next night (last night) I had one of the best nights and mornings I had had in a LONG TIME!
Posts: 3528 | From US | Registered: Apr 2007
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