dbpei
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kgg - we must have been writing at the same time! When I first joined the LDN group, the admin did not allow vaccine discussion, but they do now. When it gets to be too heated, the admin will kick in and close discussion or provide links for more information.
LDN is among the arsenal of support for long Covid also. And many have tolerated covid and the vaccines better with the use of both.
I am really grateful to have my soft hbot chamber and LDN in my arsenal!
Posts: 2387 | From New England | Registered: Aug 2011
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kgg
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dbpei, thanks! I found it and they were quick to allow my membership. I truly hope I am not one of the ones that puts weight on!
Yes, I follow FLCCC.net for covid and vaccine injury. I praise God that there are still physicians out there that don't go along with mainstream. But stand for truth.
Thank you for the offer to private message. As I start, I may take you up on that! Much appreciated.
Posts: 1856 | From Maine | Registered: Jun 2004
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kgg
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Well, just for the sake of keeping record. I ended up needing to go on prednisone and Doxycycline. I am a bad patient. I feel well enough to have a life so my diving was cut down to 4 days a week. I thought it might be enough to keep things in check. Nope.
I had the recurrence of dry lips, dry mouth and the rash that started with Covid. Not as bad as not diving, but still noticeable. Then the rash spread to both legs and one arm so far. I started the meds last night.
I keep hearing from the experts at FLCCC.net that the vaccine or having Covid can make chronic conditions like Lyme flare. For me, it definitely went autoimmune. I am hoping the Doxycycline will knock down the Lyme some and/or keep it from flaring more while on the Prednisone.
I continue to ramp up on the LDN. But I am only at 0.5mg currently. I started extra low on 0.25mg. So far the only side effect I had was a headache one morning when I took too much of a dose one evening. You can get a rash as a side effect. But since this is the rash that I got with Covid, I am not leaning towards blaming the LDN.
This getting old is not fun sometimes. =)
Posts: 1856 | From Maine | Registered: Jun 2004
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posted
Hey everyone. The ENT checked me for damage and I'm ok apparently. I still have massive apprehension about using my chamber as I cannot detect any pressure in my ears at all at the moment.
Side note: I have trouble sensing pressure, temperatures, hunger, bladder etc. and I think this is related to Lyme or Bartonella giving me some kind of connective tissue disorder since I have crunchy/clicking/cracking joints all over to go with it.
In any case, I'm going to try going in the chamber again soon and wanted to ask ... how do we verify the flow rate of the oxygen coming out of our masks when we are in the chamber under pressure? Is there any way to do that?
P.S. To the people trying LDN, I had initial good success with it. Started at 0.5mg taken as a liquid(I took a 50mg tablet and diluted in 50ml of water then drew with a syringe). I worked my way up to 4mg which is about the sweet spot for me. It provided a lot of symptom relief, most notably a loosening of the Iron Collar symptoms. I stay on LDN for about 3 weeks and have been mostly off it for about a month. I just don't need symptom or pain relief most days (I can tough it out) so I don't take it as I'm the kind of person who'd rather not take stuff if I don't really feel like I have to.
-------------------- Putting lyme, bart, bab into remission Posts: 9 | From Europe | Registered: May 2022
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Phoiph
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chillpill~
Depending on your concentrator, the "sweet spot" setting for LPM (liters per minute) is 8 - 8.5LPM when used with a home chamber.
Set it too high, and you will sacrifice oxygen purity and possibly overtax your concentrator.
If you want to monitor the LPM flow rate from inside the chamber (it should stay steady, or drop just slightly due to the backpressure of the chamber), just move the concentrator near the chamber window so you can read the gauge while you're inside.
Sometimes it might seem as if there's no O2 coming out of the mask...try wetting your lips and you will feel it.
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kgg
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Thank you chillpill about the LDN. I am not taking it for pain, for which I am very grateful. I am trying to take it for autoimmune modulating to keep my Sjogren's in check.
My goal is to avoid Plaquenil that gives me horrible insomnia. I am a flower farmer. It causes sun sensitivity. I am out in the sun 10 hours a day during the season.
Otherwise, a good med I guess as far as meds go. It worked. But I need sleep and no bad sun burns.
Posts: 1856 | From Maine | Registered: Jun 2004
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Phoiph
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Dr. Paul Harch interview on mHBOT and Covid-19, long hauler syndrome, and vaccine injury:
posted
Thank you Phoiph! Can't wait to listen. Hope you are doing well. Miss our chats.
Posts: 566 | From NW Arkansas | Registered: May 2003
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Phoiph
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Me too, Digby!
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dbpei
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Thank you for the link to Dr. Harch's interview, Phoiph! It was very informative and makes me happy to have the use of my chamber!
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Phoiph
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dbpei~
I agree. I'm so happy he is now supporting the use of home chambers and lower pressures for many patients.
I recall contacting their office 10+ years ago after I had become well with a home chamber, as I wanted to share my experience in case he wanted to include it in his research.
At that time, they were very against home chambers, and basically dismissed my account.
I still continued to recommend his book and follow his research, as he has been a pioneer in this field.
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kgg
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It is my understanding that yes, he is supportive of mild hyperbarics now. But you have to be his patient and buy the chamber from him, if you want to consult with him. He thinks that we who have a chamber on our own are out there and have risky behavior. =)
Meanwhile, I like his interviews. So thanks for posting.
Posts: 1856 | From Maine | Registered: Jun 2004
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Phoiph
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kgg...yes, I have heard that, too.
Well, considering I would not have survived (and thrived) without it, I guess that "risk" paid off!
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kgg
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Amen to that!
Posts: 1856 | From Maine | Registered: Jun 2004
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kgg
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I am checking in to bump this thread back up. Since my growing season has started as a cut flower farmer I have been diving less. And we have had company that has been using the room the chamber is in, as his office.
Soon when the weather turns hot, I will be diving during the noon hours to avoid the sun and take a health break. Right now they are talking a high of 40 on Thursday!! Which is really unusual, even though I am in north central Maine.
I have been feeling extra tired lately, but that is not unusual for any flower farmer at the planting time of the season. My Sjogren's symptoms are being kept controlled by the Plaquenil and Doxy I am on. I am thinking of dropping the Doxy after I start diving on a regular schedule when the weather turns hot. We shall see.
Hope every one here is doing well.
Posts: 1856 | From Maine | Registered: Jun 2004
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kgg
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I forgot to say, the LDN was a no go for me. At least for now. I broke out with a rash covering my legs. I may give it a try again next Fall but not now in the growing season. Perhaps I am in the minority that does not tolerate LDN?
Posts: 1856 | From Maine | Registered: Jun 2004
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dbpei
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Hi kgg, Thanks for the update. It sounds like you are doing something you are passionate about and that you enjoy! That is wonderful and a goal that so many of us with chronic illness have - to do things that are meaningful to us in our lives... I like your plan to use the chamber when it is mid-day and the sun is too hot for you to be out there.
I am sorry the LDN was not a help to you. But it sounds like you are doing okay without it. It is not for everyone, but helps some in a major way. Good luck to you this summer and thanks for keeping us posted!
Posts: 2387 | From New England | Registered: Aug 2011
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Does anyone have any information on mHBOT and Vitiligo? I have a friend that claims his Vitiligo is getting worse after diving for a few months.
Posts: 566 | From NW Arkansas | Registered: May 2003
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posted
Checking in and giving an update on what’s been happening with me.
I don’t know if I updated that my finger joint pain is osteoarthritis so I’ve been playing with supplements and diet.
I’m not sure if I posted about some pain I started having in my joints. Anyway, I thought maybe it was Lyme, maybe low hormones so I started diving but found no relief. Had labs drawn and found a few things off.
I finally found a functional med provider and we started at the foundation with a 💩 test looking at everything to include if I got rid of the h-pylori from 3 years ago. What we found is I was not breaking down or absorbing fat or protein which means I probably haven’t been absorbing nutrients. I will find that out for sure later this month when we get my hair sample results back. I never had my gut really addressed from all the damaged done from treating Lyme so it didn’t really surprise me.
However, the pain in my joints was still there. I went on vacation for 3 weeks in May 2023 driving hundreds of miles, spending time with family and friends across Idaho. I wasn’t eating my normal meals, hardly any vegetables for the first two weeks. The third week I was able to get some vegetables and started consuming them to my delight. I was nearing the end of my vacation and started not feeling well but thought it was the long vacation and driving. I just wanted to get home and started eating my big salads again.
I arrived home and started complaining of joint pain to my husband and told him I don’t remember being in pain in Idaho except the last few days of my trip. I was beginning to believe we needed to move again for my health but told him I would really pay attention next year when I go visit.
I was watching YouTube one night about 6 weeks ago and a video popped in my feed with a guy talking about a carnivore diet and how it cured all his medical issues. Of course after I watched one video a bunch started coming in and we kept watching and I told my husband that all their skin looks really healthy for eating this way. He said he noticed their brains were very alive. After finding some great doctors talking about the benefits I told my husband I’m going to try it for 1 month and he said he would try it with me.
I’m in week 5 and the joint pain is gone. After much research and my vacation experience I’ve decided I believe it’s the vegetables. On the way of eating we consume animal products to include seafood, and dairy. My fingers pain has decreased and some of the swelling but I don’t know if this can fix osteoarthritis. Many people have said their RA has gotten better or resolved. For now, I’m going to continue to cut out grains, fruit and vegetables and after 6 months or so start food testing.
This has been hard for me because meat was always. Condiment for me. If anyone is interested you can look up Dr Ken Berry, Dr Anthony Chaffee and you will begin to find other doctors explaining the health benefits.
Posts: 238 | From AZ | Registered: Jan 2015
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Digby we did actually buy his book The Carnivore Code. We will probably land somewhere in the ketovore way of eating once we understand what’s been giving me the inflammation. My husband says he doesn’t wake up with stiffness in the morning.
A weird benefit of carnivore is no more sore muscles after a workout. I’ve had no bubble gut or passing gas since starting this way of eating.
I first heard Dr Jordan Peterson talk about eating only red meat last fall and thought what a nut, he’s going to die. Now after much research we’ve been lied to again about the food pyramid. No big surprise considering the last few decades of government lies.
I was tested for the meat allergy years ago and was negative. I thought I was because of the nausea I would get after eating meat. Come to find out it was lack of digestion from no bile and my gallbladder under performing.
It’s all so interesting.
Posts: 238 | From AZ | Registered: Jan 2015
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posted
I’ve been seeing a lot on my YouTube feed about the carnivore diet but have been ignoring it because I just can’t see me on yet another diet that takes away more foods I love but I may look into these links. I know my gut is messed up but I have no idea where to even start to heal it. I’m currently seeing a Lyme doc who is trying to get my detox system moving again. I can’t dive until I can get this resolved.
-------------------- KB Posts: 176 | From Northern VA | Registered: Apr 2015
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posted
I use an online practitioner if you are interested in checking her info out you can send me a message.
[ 07-10-2023, 09:44 AM: Message edited by: Peimomma ]
Posts: 238 | From AZ | Registered: Jan 2015
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kgg
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My husband and I went keto/carnivore a couple of years ago. It was the first way of eating that did not leave me craving or hungry. At the time I was finding that I could not tolerate dairy or eggs which made keto a little more of a challenge. After two years, I can tolerate some dairy once in a while. I have yet to challenge eggs, although I can have them in something just not plain eggs. I found it helped with my energy the most. At least prior to my last Covid bout.
Peimomma, I am really glad you are finding it helpful with joint pain. I found it helpful with my fibro pain in my shoulders.
Digby, I heard Dr. Ken Berry say Alpha gal lasts a few months. I think that is too short. N=1, I have a friend who's son developed Alpha gal after a tick bite, that he was not treated for. (They did not treat in spite of my attempts to educate them). His lasted 2 years. It made me think it is not a lifelong condition, which initially I had heard that it was.
Kaibyrd, I hope you can find a way to clear that so you can dive again. Initially starting keto you can get diarrhea. Which I did. But it doesn't last long. I found it helped my constant nausea. But I get being reluctant because you are yet again eliminating more foods. I felt so much better that I did not mind. This is from someone who has been gluten free since the late 90's before it was a fad. And also was on the Low FODMAP diet which my gut found helpful. So I have eliminated many food items over the years.
Posts: 1856 | From Maine | Registered: Jun 2004
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Alpha-Gal has many presentations. Some people become super sensitive to anything related to mammalian meat, including cosmetics, dairy and even the smell of meat cooking.
Others, like me, are only sensitive to eating the meat itself. I can even eat small amounts of pork occasionally (epi-pen in hand). Oddly, without any new tick bites recently my titers have gone way up, suggesting there is another process that affects the immune response to Alpha-Gal.
It can be self limiting in some people, however in my case, I've had since 1998, which is before it was discovered. I haven't had a hamburger or steak for 25 years.
Posts: 566 | From NW Arkansas | Registered: May 2003
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kgg
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Digby, that is just not fair!! That is interesting about the titers going up. Our bodies can be so complicated!
Posts: 1856 | From Maine | Registered: Jun 2004
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Ok, I’m seriously considering the Carnivore diet. Is there a book I should read or a video I should watch that helped those of you who are doing this?
I think what I find the most difficult about starting a new diet is, I just don’t have the energy to do much meal prep or counting or figuring out what is allowed and what isn’t, so maybe Carnivore will help in that regard. I’m just not real sure where to start.
-------------------- KB Posts: 176 | From Northern VA | Registered: Apr 2015
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posted
KB check out Dr Ken Berry, Dr Boz, Dr Anthony Chaffee. Any and all of their youtube videos have a lot of information. Some of the books I’ve seen recommended are Nourishing Fats, why we need animal fats for health and happiness, The Canivore Diet by Dr Shawn Baker, stay off my operating table, Lies my doctor Told me. I’d also recommend looking for Dr Elizabeth Bright on YT and her book. She’s very big on fat for hormones.
You can find many FB groups to join, many carnivores on Twitter and IG if you are on any of those.
Posts: 238 | From AZ | Registered: Jan 2015
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kgg
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I second Dr. Ken Berry. I also follow Chiropractor Eric Berg on youtube. Dr. Ken Berry's wife does videos as well. They do a live youtube Q&A on Monday evenings.
Ease into it. You can get a withdrawal like a herx if you start cold turkey. Take a couple of weeks to begin. I find it simplifies eating. Now after a couple of years, I am more ketovore. I add in some veggies. My gut seems to tolerate it well.
I do no counting. I do not do net carbs. I look at total carbs. I do not test my urine for ketones. I could not be bothered. One thing to keep in mind though is make sure you are eating enough fat. Fat is the key. It is easy to go carnivore and consume too much protein and not enough fat. Bacon is my friend. =)
Posts: 1856 | From Maine | Registered: Jun 2004
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Funny, I sent my LLMD a question about going carnivore and he told me to watch Dr. Ken Berry so I’ve been watching some of his videos already. I’ll check out all the other suggestions too.
I ate only bacon for a meal the past two days and was up with diarrhea last night so, yeah I better ease into it.
Is there a thread here on carnivore?
-------------------- KB Posts: 176 | From Northern VA | Registered: Apr 2015
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kgg
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Kaibyrd, sometimes it is the extra fat that loosens the stools. But it also it not uncommon the first few weeks as the body adjusts to no carbs. You will hear Dr. Ken Berry talk about it.
Peimomma, is in a carnviore FB group. I only know because it ends up on my feed sometimes. Must be a public group. I don't think I seen a thread on here though.
Posts: 1856 | From Maine | Registered: Jun 2004
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Kaibyrd I took a quick look and didn’t see any diet related folders but one could be started.
I’m in several groups on FB, some private and some public so if you are on there you can ask and people are very helpful.
I believe Dr Jordan Peterson’s daughter at one point thought she might have Lyme as well as a host of other illnesses. She has a page called The Lion Diet and talks about her illnesses and how just beef, salt and water healed her and her dad. Jordan Peterson has talked a lot about his only beef diet for the last 5 years. His lab reports are posted on this site also. https://liondiet.com/my-story/Posts: 238 | From AZ | Registered: Jan 2015
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posted
Hi. Wondering if anyone has had a leak in their AC system while having or using a chamber?
I just found out I had an AC leak on the inside of the house this week that they say has been there for some time.
I have not been using the chamber at all for several reasons but maybe it has been challenging because I think I have had this leak for a year.
thanks!
Posts: 137 | From ATX | Registered: Nov 2011
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kgg
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Keikko, twice I have used chambers in houses that had water/mold damage and did not know it. The first chamber had a zipper break. Instead of fixing it, we sold it (the buyer knew of both the zipper problem and the mold exposure).
With the second chamber, I washed it down with Windex on the inside. (I read somewhere that it was good to get rid of mold spores. No clue where). Usually I only use H2O2 and water for inside cleaning. But did not think one time using Windex would be a problem. Changed the filters in the oxygen concentrator, wiped down the inside of the cabinet and continued to use it.
I continue to find diving helpful in spite of the water damage exposure. Frankly, we did not have the $$ to buy new.
Posts: 1856 | From Maine | Registered: Jun 2004
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Phoiph
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More support for the benefits of hyperbaric for long-term Covid/cardiac function:
dbpei
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posted
I wonder if this has happened to anyone else with the DeVilbiss O2 concentrator. The green light turns yellow sporadically during my dives. I thought this might be due to a loose connection, but if that was the case, I don't think the chamber would stay on.
I wait for the light to turn green before going in my chamber, but now am worried about its safety. I have a call into Newtowne Hyperbarics, where I bought both my chamber and O2 concentrator. I clean the filter weekly. Any ideas what might be happening?
Posts: 2387 | From New England | Registered: Aug 2011
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Phoiph
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dbpei,
The yellow light is a low oxygen indicator. Do you also hear an audible signal?
By chance is the concentrator too close to a wall, curtains or in a corner? Does it feel hot?
Could there be a kjnked hose/tubing or blockage in mask?
What LPM do you have it set at?
Are you using a humidifier bottle attachment?
I would disconnect it from the chamber, remove tubing, and run it for an hour as a first step to troubleshoot.
Let us know what happens, and we can go from there...
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dbpei
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Hi Phoiph, thanks for responding.
The only audible signal I hear is when I first turn on the concentrator. It is a loud, high-pitched sound for a few seconds. I have heard no other sounds like this while in the chamber.
I will move the concentrator a bit further away from the wall, but it is about 1 1/2 feet from the wall now. We have never noticed it to be hot to touch.
I checked the hoses and did not find any kinks.
I usually set it for 8 LPM.
I don't use a humidifier bottle attachment.
I will try following your suggestions and follow up with you. Thank you.
Posts: 2387 | From New England | Registered: Aug 2011
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dbpei
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Phoiph, I was able to run the concentrator for an hour unconnected to my chamber and the light stayed green the entire time. Does this mean that the problem might be in either the outside or inside plastic tubing? I can replace the mask, but where do you get the other plastic tubing that allows the O2 to flow from the concentrator to the chamber?
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Phoiph
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Next, I would re-attach tubing and mask and hook it back up to the chamber. Try running it again with NO pressure in the chamber (compressor off, zippers open).
Keep it at 8LPM as you have been doing.
Make sure the brass oxygen valve on the 02 hook up port on the Newtown chamber is all the way open.
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Phoiph
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And yes, depending on how warm the room is, and how close your compressor is to your concentrator, you may need to move it further from the wall and your compressor when in use to prevent overheating.
This happened to my AirSep, and I solved it by putting it on a large piece of tile (instead of directly on carpet), moving the unit further from the wall/corner when in use, and directing a small fan toward the area.
But do continue to go through the troubleshooting in the previous post as well...
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dbpei
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Phoiph, thank you for all of this help. I did run the concentrator for an hour with the tubing attached, the valves opened, and without using the compressor and I did not zip it up. The green light stayed on the entire time.
Do you think a slight kink in the hoses might have been the culprit? If the yellow light returns, I will try to move the compressor further away from the concentrator and do this type of trouble shooting again. Thank you so much for your help!
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Phoiph
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A kink in the tubing could definitely cause the yellow light to go on.
The next step I would try would be to do a trial run with you outside of your chamber, this time zipping up and running everything just as if you were inside.
If the yellow light goes on again when there is pressure inside the chamber, there could be another issue, which we can troubleshoot.
Also check to make sure the LPM stays near 8 where you have set it and doesn't drop during the test dive.
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dbpei
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The green light stayed on the entire hour without changing to yellow. The LPM stayed near 8 as well. I am pretty sure that it was a kink in the tubing that caused this to happen.
I use a lot of pillows and a back rest so things may have gotten moved when I was climbing in or out of the chamber. From now on, I will check the tubing carefully before starting my dives. Thank you for your help in troubleshooting, Phoiph.
Posts: 2387 | From New England | Registered: Aug 2011
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Phoiph
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Great, dbpei!
You're very welcome.
It usually is something simple, like kinked or twisted tubing, but if you do ever notice it again, let me know.
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kgg
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Does anyone have an opinion on using mild hyperbaric therapy while taking biologicals? My son who has Lyme/Bartonella/Babesia/Ehrlichia has developed Psoriatic arthritis and takes biologicals. Out of the 4 he has tried only one helped a little. And he ended up having a bad reaction to it so he cannot use that particular one again.
I am still trying to encourage him to use the chamber. But I cannot find information on whether using it, while taking biologicals, would be helpful or counterproductive. They both modify the immune system.
I am going to encourage him to ask his rheumatologist. But I am not confident they would have an informed opinion about hyperbarics. I found medical articles where they use it for Psoriatic arthritis but no mention of using it while taking biologicals.
What do you all think?
Posts: 1856 | From Maine | Registered: Jun 2004
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Phoiph
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Hi kgg,
If he has tried 4 biologicals, and he had a negative reaction to the only one that helped him, then what is the rationale for continued use of biologicals?
Since there currently may not be literature on using both mHBOT and biologicals together, maybe you and/or your son could bring the supporting mHBOT articles to his rheumatologist, and ask if he would consider a break from the biologicals so he could do mHBOT?
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kgg
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Oh Phoiph, I truly wish!! I am so not a fan of biologicals! It is more convincing my unwilling son. I was hoping to find something about using them together, to help convince him. And hoping someone had some info I could not find. Thank you for responding. As always, much appreciated!
Posts: 1856 | From Maine | Registered: Jun 2004
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Phoiph
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I understand, and I'll let you know if I come across any related info.
For what it's worth, I'm always willing to share what I've experienced (via myself and others) if he is inclined to discuss.
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