posted
Wondering if people using HBOT treatment eat any fruit? Or do you have to be no sugar at all even fruit sugar?
Thank you!
Also, I have been back in the chamber for less time but more days. seems to be going well so far. Like two to three days in a row, then maybe a day off if I feel like its too much for 30 mins pressurized with oxygen so seems like progress. I hope Posts: 137 | From ATX | Registered: Nov 2011
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Phoiph
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Hi keikko,
Glad to hear things are going more smoothly. There are often many layers of the onion.
I think the amount and variety of fruit you can tolerate is related to any candida issues you may have. Depending on this, it might be best to stick to low sugar fruits in moderation such as green apples and berries (but plenty of avocado).
Others may offer more advice here; as I was restricted to only 5-6 foods and didn't have many options.
Posts: 2083 | From Earth | Registered: Jul 2013
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kgg
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Keikko, I am happy for you that you have found a tolerable pattern of treatment. Yay!
As far as fruit goes, I have a bad gut. For me, I found following a low FODMAP diet was helpful. I have since gone on to keto.
But on the low FODMAP diet they have guidance as to which fruits cause problems in the small bowel. Apples is one. (And I had just down sized to a property with 7 apple trees!!)
Most fruits were eliminated or limited. But what was allowed was a small amount of berries and kiwi. Raspberries were more limited than blueberries. Grapes were OK, if I remember correctly.
So that is what I went by while diving. We are all so individual with our health. Try a fruit and watch how you react.
For FODMAP, they say a bad reaction starts in about 8 hours and can last 24-36. So span your tests by at least 4 days, I would think.
Posts: 1856 | From Maine | Registered: Jun 2004
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Hi. Is it ok to get in chamber after getting two fillings done. Seems like I remember something on the thread about HBOT affecting dental work but I cant find it.
I had a broken tooth this morning and had to get a filling. Is it ok to get in the chamber today?
Thank you. I will keep trying to find it on this thread as well.
Hope everyone is doing well:)
Posts: 137 | From ATX | Registered: Nov 2011
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Keiko, I have never come across any contraindications for mHBO and a filling, so I would think it would be fine to dive today.
Posts: 566 | From NW Arkansas | Registered: May 2003
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Phoiph
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I have read to just make sure work is complete, no temporary caps, etc., otherwise air could be trapped.
Posts: 2083 | From Earth | Registered: Jul 2013
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I have read through this entire thread several times and it seems that getting rid of lyme and co-infections and symptoms is a pretty mixed bag for some. I am wondering if anyone has a guess or hypothesis as to why this is so, even if following the wonderful Phoiph's protocol, good diet, etc. I just want to make sure that I will succeed. Thank you so much any replies and knowledge.
Posts: 35 | From CO | Registered: Dec 2020
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kgg
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Wow! I am impressed you not only read the whole thread but multiple times. Good job! I am sure Phoiph will answer with a much better scientific sounding response. But in the meantime...
Yes, it is a mixed bag. We all respond to treatments differently, depending on our genetics, what specific infections we are dealing with and environmental factors as well.
I like your attitude. You say, "I just want to make sure that I will succeed." Good! But remember, treating Lyme infections with any treatment is a marathon not a sprint. I committed to at least 2 years of daily diving, once I got up to full hour dives.
The body decides what it is going to heal first and in what order. But you will get there! Just don't get discouraged when the symptom you want to get rid of the most is not the first to resolve.
Posts: 1856 | From Maine | Registered: Jun 2004
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Phoiph
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Thank you for the kind words, Lady T.
kgg has offered you some great advice.
A mixed bag is to be expected, as people land here with various histories, predispositions, and are all in different stages of their journey.
Many, including me, had tried everything, and discovered mHBOT after all else had failed. These are not "easy cases", yet there have been so many positive outcomes.
Your journey will be unique to you, but keep the faith and look for a 2 step forward, 1 step back pattern over the course of months, not days.
Posts: 2083 | From Earth | Registered: Jul 2013
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Thank you for answering Phoiph and kgg! I appreciate it! You both mentioned genetics and/or predispositions. Can you be more specific? I am interested and would like to know! Thank you
Posts: 35 | From CO | Registered: Dec 2020
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Just a follow-up question. I have read this thread multiple times, and I was wondering if anyone knew what happened to LymeBoy and Spinning122? I was wondering if they complete recoveries or not. Thank you!
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Phoiph
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Lady T, the last time I spoke with LymeBoy was awhile ago...maybe 2 years...and he was doing very well. Maybe I'll give him a call sometime soon.
I have not heard from Spinning122.
Posts: 2083 | From Earth | Registered: Jul 2013
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Hi all~After 2 years of good recovery and progress, I have landed in a home with mold. I have been attempting to remediate but it doesn't seem like its going to happen fast enough for my health, which is declining rapidly. I've discovered, using a petri dish of agar, that there are mold spores in the air in my chamber-my worst nightmare. Have you ever had a similar issue? I think wiping everything down with a damp rag and maybe light detergent and changing out the silicone hoses will do it? There's nothing except the bottom sheet I have on the mattress pad and the fabric of the zipper that will grow mold. Any thoughts? Thanks, carbokitty
Posts: 118 | From WI | Registered: Apr 2013
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dbpei
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Gosh Carbokitty, I am so sorry! I know that it is safe to use a 50/50 solution of peroxide and water when cleaning our chambers. I also read that peroxide is a good mold remover, but I am not sure if it needs to be used full strength.
I wonder if you could call the company you purchased your chamber from to find out if you could use a stronger solution. I would get rid of your foam mattress and bottom sheet to be safe.
I hope there will be some others who can give you some better advice from experience here. Good luck to you!
Posts: 2387 | From New England | Registered: Aug 2011
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Phoiph
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Carbokitty,
In addition to the 1:1 water/hydrogen peroxide mixture (or stonger solution if manufacturer OK's it, as dbpei suggested), I would also clean/replace internal and external filters in your concentrator and compressor.
Will you be able to keep/use your chamber in a mold-free environment until you finish remediating?
Posts: 2083 | From Earth | Registered: Jul 2013
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I'm wondering if anyone here has good links/info. on the types of oxygen concentrators that are compatible with HBOT, and at what pressure without losing oxygen concentration (my HBOT goes up to over 3 ATA, so beyond what some of the mentioned ones do here, though it can also operate at any level of mild).
The company has been useless for information and only wants me to get their concentrator that costs like 2500. Originally I was using E tanks (large cylinders) and it's set up for that, but that's too costly and they're not available much any more. Basically, I want to find a concentrator I can buy (new or used) so I can restart diving -- I did maybe 100-150 dives in the past and then stopped for a very long time.
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Phoiph
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Hi LymeMECFSMC,
I just replied to your post on another thread with some questions about your past HBOT treatment.
So, before answering your question about an oxygen concentrator, it sounds like you have a hard chamber? At what pressure (ATA) do you plan to dive?
Posts: 2083 | From Earth | Registered: Jul 2013
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Hi all~It's been a crazy ride-as we all seem to endlessly experience!
In addition to the mold, I have been experiencing (of all things) magnesium withdrawal! The mag glycinate I was taking for 4 years (at high doses, actually) was discontinued. It's been a nightmare month of trying to switch brands but getting very sick (diarrhea and awful anxiety). It has truly felt like a drug withdrawal.
At this writing, I have managed to get a "stash" of the good stuff and I am working on weaning myself down and off. I am currently taking 1/2 the dose I used to, still having symptoms, but today seems better. Whew!
And because magnesium is used in all sorts of detoxification pathways, the timing, coincident with the mold in my new home, was not good.
Last weekend, a friend and I wiped down the chamber inside and out. We took it down and moved it to her house. I am currently testing the air here to see if it's safe to set up and use.
In the meantime, I've been getting treatments at a local clinic. I feel very fortunate that that's available to me. I can't say I feel better afterwards (or before) but I know it's got to help. So I'm showing up.
My question is (and I have a Newtowne) has anyone replaced their mattress? Or used something other than what came with the chamber? I agree that it was probably best to get rid of it. I will also replace the tubing. So just your thoughts about the mattress. Thanks! Carbokitty
Posts: 118 | From WI | Registered: Apr 2013
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dbpei
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Hi carbokitty - so sorry about your magnesium withdrawal issues! I hope that continues to get easier for you.
You can buy a new mattress at Newtowne Hyperbarics. I did this last year. I don't remember the exact cost, but it was around $275 I think. It comes with a vinyl cover that zips up.
I am really glad I made the decision to purchase a new mattress instead of going to a fabric store and buying foam to cut. I think that would have been very hard to get right and also labor intensive for my arthritic hands!
Good luck to you!
Posts: 2387 | From New England | Registered: Aug 2011
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kgg
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Carbokitty, I am curious about the magnesium. Could it be that the anxiety means that you need magnesium? I have understood that it helps that. How are you doing now?
Posts: 1856 | From Maine | Registered: Jun 2004
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posted
Hi. So I was almost up to full protocol, like daily dives around 45 mins each for almost a month and then something hit.
I guess I will have to cut back again because I am like an anxious zombie just sitting here. Feels very weird and a little scary.
Bums me out that it has taken so long and has been difficult to get up to the hour a day. I wonder if it is because of such a heavy mold exposure in my recent past, or all the mercury fillings I had unsafely removed unknowingly, or a vaccine injury I had as nurse, or lyme or bartonella. I dont know anymore.
This is hard. I am so sick of trying to get better I could scream and cry at the same time. Sometimes, I wish that one treatment would work and not be scary. But I know its hard for many so have to keep chin up.
Has it taken anyone else this long to get up to full protocol of daily hour dives?
Posts: 137 | From ATX | Registered: Nov 2011
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Hi keiko, I’m with you. I actually started out not knowing we were supposed to start slow and work up. I just jumped in at an hour a day full O2. I did ok for months but then I started having issues. Now I can’t even do 20 minutes a day with O2 just flowing in, not masked. I get so tired and”zombied”. I don’t even know where to go from here.
-------------------- KB Posts: 176 | From Northern VA | Registered: Apr 2015
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posted
Wow! Thank you for the reply Kaibryd. I'm sorry your in the same boat too. So do you still get in the chamber daily for short a sort time with the O2 flowing in or do you take a break for a day.
I'm trying to figure out how to safely move forward as well.
Thanks!
Posts: 137 | From ATX | Registered: Nov 2011
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posted
No, I don’t really dive much any more. Every time I try, I end up much worse fatigue wise and my sleep gets worse if I try to push through. I tried again last week but I have a vacation coming up next week that I need energy for so I stopped after 3 days at 20 minutes. I’ll try again after vacay but I think I’ll try every other day this time. I did a sauna session after the first dive last week but I think I need much more detox. My brain is so scrambled and so much of life is a struggle that I forget to do things like detox every day.
-------------------- KB Posts: 176 | From Northern VA | Registered: Apr 2015
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posted
Oh geez! I get it Kaibyrd. That makes sense, I am pretty lost and no energy right now. I hope you get your energy back for your vacation and have nice trip.
I understand, my brain gets so scrambled I know I'm supposed to eat but can't even really figure it out. I hope it gets easier. I need to figure out how to detox better. Mostly my brain.
Thank you!
Posts: 137 | From ATX | Registered: Nov 2011
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kgg
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Keikko, I am so sorry to hear this but don't give up! You were almost there. Yay! Phoiph talks about the 2 step forward one back process this treatment takes. Sounds like you hit one.
Interesting that you had a vaccine injury as a nurse. I did too. Although I did not realize it at the time. But after my hep B series I was done working.
It has been a few days since you posted. What did you end up doing? Taking a break, then restart at a less time or went back to 45 minutes?
I used to take a 2-3 day break then start back at a reduced time for a couple of days. I just was so tired of feeling poorly that I really baby stepped the whole process so I didn't crash hard.
Posts: 1856 | From Maine | Registered: Jun 2004
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posted
Thank you kgg. I have not been back in the chamber since last Wednesday, so 5 days break, and I still feel so bad. Like I can't get back to my baseline . I zero energy and my brain is on another planet I was thinking about getting in today for like 20mins to see what happens.
I'm sorry you had a vaccine injury too as a nurse. Mine was Hep B too, at least one of them. I got three vaccines in one day when I transferred to a new hospital and one was hep b, MMR, and flu. It was over.
So I guess I am in a crash but what do I do? Just wait? or get back in ? I dont know. At least my anxiety has calmed and now I'm just tired. Thank you
Posts: 137 | From ATX | Registered: Nov 2011
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kgg
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I am really glad that your anxiety calmed down. That is the worst, imo. I think I like the sound of starting at 20 minutes. Not sure when. That would be your call.
I used to weigh how I felt with what I had going on that day and the next. If I was a little better or stable in symptoms, I would dive. If I wasn't I would wait. Hope that makes sense.
Keep us posted on what you decide to do and how it worked. I am hoping, you will be OK and can start ramping up again.
Posts: 1856 | From Maine | Registered: Jun 2004
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Phoiph
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quote:Originally posted by Kaibyrd: No, I don’t really dive much any more. Every time I try, I end up much worse fatigue wise and my sleep gets worse if I try to push through. I tried again last week but I have a vacation coming up next week that I need energy for so I stopped after 3 days at 20 minutes. I’ll try again after vacay but I think I’ll try every other day this time. I did a sauna session after the first dive last week but I think I need much more detox. My brain is so scrambled and so much of life is a struggle that I forget to do things like detox every day.
Kaibyrd, I'm not suprised that you could become more tired or your sleep could be affected with mHBOT at this stage. Among other things, mHBOT ramps up your metabolic system, which is like exercise for your body.
I don't agree that you need more detox; in fact I think doing sauna after your mHBOT session is way too much right now. Remember that released toxins also need to be transported out of your body, and by combining therapies, you could be releasing faster than your body can clear.
Drink lots of water, eat squeaky cleanly, and stay away from toxins of all kinds. Do yoga to increase circulation, improve breathing, and move lymph.
I would start back up as slowly as you need to, since you've been away from mHBOT for awhile.
Posts: 2083 | From Earth | Registered: Jul 2013
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Phoiph
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keikko,
I know you've been struggling a lot...but please take kgg's advice and don't give up!
I know you are frustrated that it is taking a while to get to full protocol, but this is a process, and although it doesn't feel like it right now, you are still receiving benefit.
Things are being stirred up, and that is often uncomfortable. I know of many people who felt no progress for a long time (for me it was several months at full protocol). I actually wouldn't expect you to feel better at this point...just "different", whatever that may be.
Your body doesn't care how you feel during the process, it just does what it needs to peel back and shed the layers. If your immune system becomes activated and begins taking care of pathogens, it may not feel nice at all, just like when you have the flu.
At this early stage, I would still listen closely to your body and go in the chamber on the days you can tolerate it, then give yourself a break in between if symptoms flare too badly.
You are not alone in this!
Posts: 2083 | From Earth | Registered: Jul 2013
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Thank you Kgg and Phoiph. I appreciate the feed back, seriously!
I will keep you posted. I am still in something, not sure why its taking so long to calm down.
I appreciate the support! I'm not giving up. It just feels like a set back but maybe its not. I dont know anymore
Thank you!
Posts: 137 | From ATX | Registered: Nov 2011
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Phoiph
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keikko,
I totally understand. I just didn't have anyone to ask for comparison, so I mindlessly plodded forward without expectation or belief that this would help me.
To my surprise, things began to shift. It didn't necessarily feel like it was for the better, just different, so without another option left, I doggedly and blindly continued. That 2 step forward, 1 step back process eventually see-sawed into wellness.
The "not knowing" is very difficult, but unfortunately is part of the process.
Posts: 2083 | From Earth | Registered: Jul 2013
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Phoiph
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quote:Originally posted by Kaibyrd: Phoiph,
I thought that sauna use would help transport released toxins from the body through sweating. 🤷🏻♀️
I’ll try to get some yoga in instead after vacation and recovery from vacation. 🤪
Thanks!
Kaibyrd,
Yes, of course, in theory that is the idea. But, it also creates "work" for the body by raising the heart rate, and possibly imbalancing electrolytes through sweating.
If someone is fragile, toxic, and has a compromised ability to detox, they may not be able to eliminate the extra toxic load that is released quickly enough.
Since you are already detoxifying and raising your metabolic activity through mHBOT, the combination of mHBOT and sauna this early on can be way too much. (You are still at a stage where you can only handle so much mHBOT.)
I never used sauna, but others on this site who have combined it with mHBOT early on ended up having to back off.
Posts: 2083 | From Earth | Registered: Jul 2013
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posted
Hi all~ I'm following the above discussions. I, too, found it was too much for me to combine treatments, specifically mHBOT and sauna in the same day. Remember peimama (I think that was her name??)-she did a lot of coffee enemas to help with detox after mHBOT. Just a thought.
I am still struggling with my mold exposure and now SIBO. I think I will need to discard my chamber, which breaks my heart. But this has been such an intense and challenging journey of ill health and I can't afford to get back into a chamber with 1 mold spore in it.
In the meantime, I had been going to the clinic near me. (It was 3 blocks away until I moved and now it's a 25 min drive). Early on in this illness and after I discovered mold in the chamber, I was going 4-5 times/week. However, as I said, things have gotten worse. I'm treating SIBO now with antimicrobials. Maybe it's too much die off? I was scheduling 3 in a row and was not good after the 2nd one and over 2 weeks, cancelled the 3rd one. I think now I've decided to go back to 40 min dives, which is what I did for the first 4 months of mHBOT.
It's hard to get used to where my body is now. I was at dive #800 and had been diving every day and then 5 days a week because of my work schedule and never really, in recent days experiencing anything but positive (although if I'm being honest, it did sometimes affect my sleep-but almost everything does!). And to adjust to my new normal-I'm having to pace myself in all areas of my life and activity.
I just met with a practitioner today who had originally diagnosed my SIBO back in 2014. (I had to wait 6 weeks to get in). She is tweaking my treatment plan some and I'm feeling the tiniest bit hopeful that this will have an impact.
In the meantime, I have scheduled a 40 min mHBOT on Friday and we'll see from there.
(If you know anyone who might want a chamber with (non-visible) mold spores, let me know. I asked if Newtown wanted it back for the brass parts and Marie said no).
Happy diving! Carbokitty
Posts: 118 | From WI | Registered: Apr 2013
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Hi All, Does mHBOT heal histamine issues - so after diving for a certain period of time, you no longer need to watch histamines, eat low histamine diet, etc. Thank you!
Posts: 35 | From CO | Registered: Dec 2020
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posted
Phoiph, your generosity on this thread is galactic. Thank you to everyone for keeping this thread going. I have been studying this incredible thread and taking notes. I am up to page 27 and the number of people you have helped is incredible.
I am considering buying an OxyHealth chamber and wondering if you or anyone has promo codes or anything to reduce the cost? I'm over in Europe so everything is more expensive (taxes taxes taxes).
I sent you a PM too.
Thanks in advance if anyone can help.
-------------------- Putting lyme, bart, bab into remission Posts: 9 | From Europe | Registered: May 2022
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kgg
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Welcome, chillpill. I like that name. =) Have you looked at NewTowne chambers? Not as pretty but functions the same and is less money. I have had both and am very happy with the Newtowne. One of the reasons I changed was the cost. I do not know of any codes they use.
LadyT, I do not know specifically. I do know that the use of mHBO seems to modify the immune's reaction. If it is hyper it calms it. If it is underreacting to pathogens it increases it. Hope that makes sense as I am only on my first cup of coffee.
Carbokitty, I am so sorry to hear that you have to not use your own chamber! Uggh. And that you are feeling so poorly lately. It is very hard to re-adjust to pacing after feeling better. I found it discouraging. I tried to remember that I got better before, I will again. Hope the tweaking of the protocol continues to help you feel better!
Posts: 1856 | From Maine | Registered: Jun 2004
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Phoiph
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Awwww, so kind, chillpill, thank you. I'm very glad you have found the thread helpful. It has been a group effort!
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Phoiph
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quote:Originally posted by LadyT: Hi All, Does mHBOT heal histamine issues - so after diving for a certain period of time, you no longer need to watch histamines, eat low histamine diet, etc. Thank you!
LadyT,
As your immune system modulates with mHBOT and diet, eventually the histamine reaction will calm down.
Whether you will always do better watching your histamine intake, that remains to be seen, but it will likely be a much less severe issue, if not a non-issue.
Posts: 2083 | From Earth | Registered: Jul 2013
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Hi all~ I'm sorry to say that things went from bad to worse. I ended up being hospitalized. I'm out now and just went back to a 20 min mHBOT today. I will try 40 min tomorrow. The 20 min was helpful, so fingers crossed. Thanks for being here. Carbokitty
Posts: 118 | From WI | Registered: Apr 2013
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dbpei
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So sorry to hear this, carbokitty. I hope that you can gradually get back to the good place you had been before this whole mess with the mold. It is encouraging that the 20 min dive was helpful. Start slow and hang in there! I am rooting for you!
Posts: 2387 | From New England | Registered: Aug 2011
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I ended up doing a 30 min session and it went well. I felt better for a few hours. I will do 30 again today. Thank you for your words of support. Carbokitty PS My Sp02 has gone up so that's a good sign. Not sleeping any longer than 4 hours/night but I wasn't sleeping at all, so that's progress.
Posts: 118 | From WI | Registered: Apr 2013
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I’ve had some health stuff pop up recently, R/A starting in my finger joints which led me to get some labs drawn and of course my ANA came back positive but there was also Sm/RNP antibodies was positive. Does anyone have any history with this marker? I’m getting my referred to a rheumatologist to do more testing since my finger joints are definitely looking and feeling like R/A.
Im wondering if the markers being positive are for the R/A.
I’ve started diving to see if this will change the labs.
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kgg
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Peimomma, I am sorry to hear this. I looked it up. It is a marker for both Mixed Connective Tissue Disease and Lupus (without the ANA marker). So they are ruling out stuff. Both can be caused by Borrelia.
I met a Lyme patient in Mesa, while living in Arizona. She was a LLMD patient from California. Her hands were involved. He diagnosed her with Mixed Connective Tissue Disease. He put her on both steriods and antibiotics.
I was concerned with the steroid use. But her hands were so bad there was no choice. (I had not bought my chamber yet).
You were smart to start diving again.
My son was just diagnosed with Psoriatic Arthritis. I realize there is a heavy life style component to it. But since he was positive for Lyme, Bartonella, Ehrlichia and Babesia. It makes me wonder if that is why it has become an autoimmune problem.
I have had my fingers flare twice over the last 7 years. The first time all of the stiffness and pain resolved with diving again. Nothing else.
And it was weird. It involved both ring fingers and both thumbs, nothing else. This year it is my index fingers. I recently started diving again.
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So do you still get in the chamber daily for short a sort time with the O2 flowing in or do you take a break for a day. 
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